Comprehensive handbook for developing a bladder cancer cystectomy database.

Journal Article (Journal Article)

OBJECTIVE: In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection. METHODS: Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group. RESULTS: Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements. CONCLUSIONS: Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.

Full Text

Duke Authors

Cited Authors

  • Lotan, Y; Amiel, G; Boorjian, SA; Clark, PE; Droller, M; Gingrich, JR; Guzzo, TJ; Inman, BA; Kamat, AM; Karsh, L; Nielsen, ME; Smith, ND; Shariat, SF; Svatek, RS; Taylor, JM; Bladder Cancer Think Tank, ; Bladder Cancer Advocacy Network,

Published Date

  • August 2013

Published In

Volume / Issue

  • 31 / 6

Start / End Page

  • 812 - 826

PubMed ID

  • 22056403

Electronic International Standard Serial Number (EISSN)

  • 1873-2496

Digital Object Identifier (DOI)

  • 10.1016/j.urolonc.2011.09.004


  • eng

Conference Location

  • United States