Comprehensive handbook for developing a bladder cancer cystectomy database.
OBJECTIVE: In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection. METHODS: Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group. RESULTS: Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements. CONCLUSIONS: Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.
Lotan, Y; Amiel, G; Boorjian, SA; Clark, PE; Droller, M; Gingrich, JR; Guzzo, TJ; Inman, BA; Kamat, AM; Karsh, L; Nielsen, ME; Smith, ND; Shariat, SF; Svatek, RS; Taylor, JM; Bladder Cancer Think Tank, ; Bladder Cancer Advocacy Network,
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