Threat to Parental Role: A Possible Mechanism of Altered Self-Concept Related to Carrier Knowledge.


Journal Article

Researchers and clinicians have suggested that learning one is a carrier for a genetic disorder has the potential to alter self-concept. Concerns about self-concept have influenced the development of policies regarding the availability of carrier testing for minors and the informed-consent process. A literature review identified three mechanisms through which self-concept has been proposed to be affected: altered perception of genetic identity, diminished social identity, and an altered perception of health. This paper presents a conceptual framework developed from identity theory and the "self's response to threat" to propose a fourth mechanism: threat to the parental role. Clarification of the role of self-concept, the threat to self-concept related to carrier knowledge, and coping behaviors activated in response to this threat would help to target appropriate genetic counseling interventions.

Full Text

Duke Authors

Cited Authors

  • McConkie-Rosell, A; DeVellis, BM

Published Date

  • August 2000

Published In

Volume / Issue

  • 9 / 4

Start / End Page

  • 285 - 302

PubMed ID

  • 26141472

Pubmed Central ID

  • 26141472

International Standard Serial Number (ISSN)

  • 1059-7700

Digital Object Identifier (DOI)

  • 10.1023/A:1009428328837


  • eng

Conference Location

  • United States