The National Alzheimer's Coordinating Center (NACC) database: the Uniform Data Set.

Published

Journal Article (Review)

The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of participant information collected from the 29 Alzheimer's Disease Centers (ADCs) funded by the National Institute on Aging (NIA). The NIA appointed the ADC Clinical Task Force to determine and define an expanded, standardized clinical data set, called the Uniform Data Set (UDS). The goal of the UDS is to provide ADC researchers a standard set of assessment procedures, collected longitudinally, to better characterize ADC participants with mild Alzheimer disease and mild cognitive impairment in comparison with nondemented controls. NACC implemented the UDS (September 2005) by developing data collection forms for initial and follow-up visits based on Clinical Task Force definitions, a relational database, and a data submission system accessible by all ADCs. The NIA requires ADCs to submit UDS data to NACC for all their Clinical Core participants. Thus, the NACC web site (https://www.alz.washington.edu) was enhanced to provide efficient and secure access data submission and retrieval systems.

Full Text

Duke Authors

Cited Authors

  • Beekly, DL; Ramos, EM; Lee, WW; Deitrich, WD; Jacka, ME; Wu, J; Hubbard, JL; Koepsell, TD; Morris, JC; Kukull, WA; NIA Alzheimer's Disease Centers,

Published Date

  • July 2007

Published In

Volume / Issue

  • 21 / 3

Start / End Page

  • 249 - 258

PubMed ID

  • 17804958

Pubmed Central ID

  • 17804958

International Standard Serial Number (ISSN)

  • 0893-0341

Digital Object Identifier (DOI)

  • 10.1097/WAD.0b013e318142774e

Language

  • eng

Conference Location

  • United States