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Health status of children with moderate to severe cerebral palsy.

Publication ,  Journal Article
Liptak, GS; O'Donnell, M; Conaway, M; Chumlea, WC; Wolrey, G; Henderson, RC; Fung, E; Stallings, VA; Samson-Fang, L; Calvert, R; Rosenbaum, P ...
Published in: Dev Med Child Neurol
June 2001

The aim of the study was to evaluate the health of children with cerebral palsy (CP) using a global assessment of quality of life, condition-specific measures, and assessments of health care use. A multicenter population-based cross-sectional survey of 235 children, aged 2 to 18 years, with moderate to severe impairment, was carried out using Gross Motor Function Classification System (GMFCS) levels III (n = 56), IV (n = 55), and V (n = 122). This study group scored significantly below the mean on the Child Health Questionnaire (CHQ) for Pain, General Health, Physical Functioning, and Impact on Parents. These children used more medications than children without CP from a national sample. Fifty-nine children used feeding tubes. Children in GMFCS level V who used a feeding tube had the lowest estimate of mental age, required the most health care resources, used the most medications, had the most respiratory problems, and had the lowest Global Health scores. Children with the most severe motor disability who have feeding tubes are an especially frail group who require numerous health-related resources and treatments. Also, there is a relationship among measures of health status such as the CHQ, functional abilities, use of resources, and mental age, but each appears to measure different aspects of health and well-being and should be used in combination to reflect children's overall health status.

Duke Scholars

Published In

Dev Med Child Neurol

DOI

ISSN

0012-1622

Publication Date

June 2001

Volume

43

Issue

6

Start / End Page

364 / 370

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Severity of Illness Index
  • Quality of Life
  • Psychomotor Performance
  • Population Surveillance
  • Pediatrics
  • North America
  • Male
  • Humans
  • Health Surveys
 

Citation

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Liptak, G. S., O’Donnell, M., Conaway, M., Chumlea, W. C., Wolrey, G., Henderson, R. C., … Stevenson, R. D. (2001). Health status of children with moderate to severe cerebral palsy. Dev Med Child Neurol, 43(6), 364–370. https://doi.org/10.1017/s001216220100069x
Liptak, G. S., M. O’Donnell, M. Conaway, W. C. Chumlea, G. Wolrey, R. C. Henderson, E. Fung, et al. “Health status of children with moderate to severe cerebral palsy.Dev Med Child Neurol 43, no. 6 (June 2001): 364–70. https://doi.org/10.1017/s001216220100069x.
Liptak GS, O’Donnell M, Conaway M, Chumlea WC, Wolrey G, Henderson RC, et al. Health status of children with moderate to severe cerebral palsy. Dev Med Child Neurol. 2001 Jun;43(6):364–70.
Liptak, G. S., et al. “Health status of children with moderate to severe cerebral palsy.Dev Med Child Neurol, vol. 43, no. 6, June 2001, pp. 364–70. Pubmed, doi:10.1017/s001216220100069x.
Liptak GS, O’Donnell M, Conaway M, Chumlea WC, Wolrey G, Henderson RC, Fung E, Stallings VA, Samson-Fang L, Calvert R, Rosenbaum P, Stevenson RD. Health status of children with moderate to severe cerebral palsy. Dev Med Child Neurol. 2001 Jun;43(6):364–370.
Journal cover image

Published In

Dev Med Child Neurol

DOI

ISSN

0012-1622

Publication Date

June 2001

Volume

43

Issue

6

Start / End Page

364 / 370

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Severity of Illness Index
  • Quality of Life
  • Psychomotor Performance
  • Population Surveillance
  • Pediatrics
  • North America
  • Male
  • Humans
  • Health Surveys