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Peer recommendations on how to improve clinical research, and Conference wrap-up.

Publication ,  Journal Article
Chad, DA; Rowland, LP; Armon, C; Bedlack, R; Durham, H; Factor-Litvak, P; Heiman-Patterson, T; Heitzman, D; Lacomis, D; Ludolph, A; Miller, R ...
Published in: Amyotroph Lateral Scler Frontotemporal Degener
May 2013

To promote clinical and patient oriented research, as part of the Second International ALS Conference in Tarrytown, NY, USA, seven pairs of clinicians and scientists were asked to lead discussions with meeting attendees on six major topics (one of which was discussed by two groups); each one the focus of a 90-min Breakout Session. Approximately 25 meeting attendees participated in each session. The Breakout Sessions considered six major themes: 1) Approaches to encourage clinicians to engage in more clinical research to discover the pathogenesis and cause of ALS; 2) Exploring avenues to build more effective partnerships between basic scientists and ALS physicians; 3) Increasing patient interest and commitment to participating in non-trial clinical research; 4) Brainstorming about factors that are most critical to the discovery of the pathogenesis and cause of ALS; 5) Finding ways to incorporate clinical research projects into clinical trials; and 6) Developing state-of-the-art epidemiological studies to solve the mystery of ALS. In this paper, we present the reports from each of the Breakout Sessions; and we provide a wrap-up of the entire conference.

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Published In

Amyotroph Lateral Scler Frontotemporal Degener

DOI

EISSN

2167-9223

Publication Date

May 2013

Volume

14 Suppl 1

Start / End Page

67 / 73

Location

England

Related Subject Headings

  • Peer Review
  • International Cooperation
  • Humans
  • Congresses as Topic
  • Biomedical Research
  • Amyotrophic Lateral Sclerosis
  • 3209 Neurosciences
  • 1109 Neurosciences
  • 1103 Clinical Sciences
 

Citation

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Chad, D. A., Rowland, L. P., Armon, C., Bedlack, R., Durham, H., Factor-Litvak, P., … Turner, M. R. (2013). Peer recommendations on how to improve clinical research, and Conference wrap-up. Amyotroph Lateral Scler Frontotemporal Degener, 14 Suppl 1, 67–73. https://doi.org/10.3109/21678421.2013.778605
Chad, David A., Lewis P. Rowland, Carmel Armon, Richard Bedlack, Heather Durham, Pam Factor-Litvak, Terry Heiman-Patterson, et al. “Peer recommendations on how to improve clinical research, and Conference wrap-up.Amyotroph Lateral Scler Frontotemporal Degener 14 Suppl 1 (May 2013): 67–73. https://doi.org/10.3109/21678421.2013.778605.
Chad DA, Rowland LP, Armon C, Bedlack R, Durham H, Factor-Litvak P, et al. Peer recommendations on how to improve clinical research, and Conference wrap-up. Amyotroph Lateral Scler Frontotemporal Degener. 2013 May;14 Suppl 1:67–73.
Chad, David A., et al. “Peer recommendations on how to improve clinical research, and Conference wrap-up.Amyotroph Lateral Scler Frontotemporal Degener, vol. 14 Suppl 1, May 2013, pp. 67–73. Pubmed, doi:10.3109/21678421.2013.778605.
Chad DA, Rowland LP, Armon C, Bedlack R, Durham H, Factor-Litvak P, Heiman-Patterson T, Heitzman D, Lacomis D, Ludolph A, Maragakis N, Miller R, Pattee G, Shoesmith C, Sorenson E, Turner MR. Peer recommendations on how to improve clinical research, and Conference wrap-up. Amyotroph Lateral Scler Frontotemporal Degener. 2013 May;14 Suppl 1:67–73.

Published In

Amyotroph Lateral Scler Frontotemporal Degener

DOI

EISSN

2167-9223

Publication Date

May 2013

Volume

14 Suppl 1

Start / End Page

67 / 73

Location

England

Related Subject Headings

  • Peer Review
  • International Cooperation
  • Humans
  • Congresses as Topic
  • Biomedical Research
  • Amyotrophic Lateral Sclerosis
  • 3209 Neurosciences
  • 1109 Neurosciences
  • 1103 Clinical Sciences