African American and non-African American patients' and families' decision making about renal replacement therapies.

Journal Article (Journal Article)

We conducted focus group meetings of African American and non-African American patients with end-stage renal disease (six groups) and their family members (six groups), stratified by race/ethnicity and treatment. We elicited differences in participants' experiences with shared decision making about initiating renal replacement therapy (RRT; that is, hemodialysis, peritoneal dialysis, or a kidney transplant). Patients were often very sick when initiating RRT, and had little, if any, time to make a decision about what type of RRT to initiate. They also lacked sufficient information about alternative treatment options prior to initiation. Family members played supportive roles and shared in decision making when possible. Reports were similar for African American and non-African American participants. Our findings suggest that a greater emphasis on the improved engagement of patients and their families in shared decision making about RRT initiation is needed for both ethnic/racial minorities and nonminorities.

Full Text

Duke Authors

Cited Authors

  • Sheu, J; Ephraim, PL; Powe, NR; Rabb, H; Senga, M; Evans, KE; Jaar, BG; Crews, DC; Greer, RC; Boulware, LE

Published Date

  • July 2012

Published In

Volume / Issue

  • 22 / 7

Start / End Page

  • 997 - 1006

PubMed ID

  • 22645225

Pubmed Central ID

  • PMC3927418

International Standard Serial Number (ISSN)

  • 1049-7323

Digital Object Identifier (DOI)

  • 10.1177/1049732312443427


  • eng

Conference Location

  • United States