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African American and non-African American patients' and families' decision making about renal replacement therapies.

Publication ,  Journal Article
Sheu, J; Ephraim, PL; Powe, NR; Rabb, H; Senga, M; Evans, KE; Jaar, BG; Crews, DC; Greer, RC; Boulware, LE
Published in: Qual Health Res
July 2012

We conducted focus group meetings of African American and non-African American patients with end-stage renal disease (six groups) and their family members (six groups), stratified by race/ethnicity and treatment. We elicited differences in participants' experiences with shared decision making about initiating renal replacement therapy (RRT; that is, hemodialysis, peritoneal dialysis, or a kidney transplant). Patients were often very sick when initiating RRT, and had little, if any, time to make a decision about what type of RRT to initiate. They also lacked sufficient information about alternative treatment options prior to initiation. Family members played supportive roles and shared in decision making when possible. Reports were similar for African American and non-African American participants. Our findings suggest that a greater emphasis on the improved engagement of patients and their families in shared decision making about RRT initiation is needed for both ethnic/racial minorities and nonminorities.

Duke Scholars

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Published In

Qual Health Res

DOI

ISSN

1049-7323

Publication Date

July 2012

Volume

22

Issue

7

Start / End Page

997 / 1006

Location

United States

Related Subject Headings

  • United States
  • Renal Replacement Therapy
  • Qualitative Research
  • Patient Education as Topic
  • Nursing
  • Middle Aged
  • Male
  • Humans
  • Health Knowledge, Attitudes, Practice
  • Focus Groups
 

Citation

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Sheu, J., Ephraim, P. L., Powe, N. R., Rabb, H., Senga, M., Evans, K. E., … Boulware, L. E. (2012). African American and non-African American patients' and families' decision making about renal replacement therapies. Qual Health Res, 22(7), 997–1006. https://doi.org/10.1177/1049732312443427
Sheu, Johanna, Patti L. Ephraim, Neil R. Powe, Hamid Rabb, Mikiko Senga, Kira E. Evans, Bernard G. Jaar, Deidra C. Crews, Raquel C. Greer, and L Ebony Boulware. “African American and non-African American patients' and families' decision making about renal replacement therapies.Qual Health Res 22, no. 7 (July 2012): 997–1006. https://doi.org/10.1177/1049732312443427.
Sheu J, Ephraim PL, Powe NR, Rabb H, Senga M, Evans KE, et al. African American and non-African American patients' and families' decision making about renal replacement therapies. Qual Health Res. 2012 Jul;22(7):997–1006.
Sheu, Johanna, et al. “African American and non-African American patients' and families' decision making about renal replacement therapies.Qual Health Res, vol. 22, no. 7, July 2012, pp. 997–1006. Pubmed, doi:10.1177/1049732312443427.
Sheu J, Ephraim PL, Powe NR, Rabb H, Senga M, Evans KE, Jaar BG, Crews DC, Greer RC, Boulware LE. African American and non-African American patients' and families' decision making about renal replacement therapies. Qual Health Res. 2012 Jul;22(7):997–1006.
Journal cover image

Published In

Qual Health Res

DOI

ISSN

1049-7323

Publication Date

July 2012

Volume

22

Issue

7

Start / End Page

997 / 1006

Location

United States

Related Subject Headings

  • United States
  • Renal Replacement Therapy
  • Qualitative Research
  • Patient Education as Topic
  • Nursing
  • Middle Aged
  • Male
  • Humans
  • Health Knowledge, Attitudes, Practice
  • Focus Groups