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Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.

Publication ,  Journal Article
Hripcsak, G; Bloomrosen, M; FlatelyBrennan, P; Chute, CG; Cimino, J; Detmer, DE; Edmunds, M; Embi, PJ; Goldstein, MM; Hammond, WE; Keenan, GM ...
Published in: J Am Med Inform Assoc
2014

Large amounts of personal health data are being collected and made available through existing and emerging technological media and tools. While use of these data has significant potential to facilitate research, improve quality of care for individuals and populations, and reduce healthcare costs, many policy-related issues must be addressed before their full value can be realized. These include the need for widely agreed-on data stewardship principles and effective approaches to reduce or eliminate data silos and protect patient privacy. AMIA's 2012 Health Policy Meeting brought together healthcare academics, policy makers, and system stakeholders (including representatives of patient groups) to consider these topics and formulate recommendations. A review of a set of Proposed Principles of Health Data Use led to a set of findings and recommendations, including the assertions that the use of health data should be viewed as a public good and that achieving the broad benefits of this use will require understanding and support from patients.

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Published In

J Am Med Inform Assoc

DOI

EISSN

1527-974X

Publication Date

2014

Volume

21

Issue

2

Start / End Page

204 / 211

Location

England

Related Subject Headings

  • United States
  • Societies, Medical
  • Patient Participation
  • Patient Access to Records
  • Organizational Policy
  • Medical Informatics
  • Information Dissemination
  • Humans
  • Health Policy
  • Electronic Health Records
 

Citation

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ICMJE
MLA
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Hripcsak, G., Bloomrosen, M., FlatelyBrennan, P., Chute, C. G., Cimino, J., Detmer, D. E., … Wilcox, A. B. (2014). Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. J Am Med Inform Assoc, 21(2), 204–211. https://doi.org/10.1136/amiajnl-2013-002117
Hripcsak, George, Meryl Bloomrosen, Patti FlatelyBrennan, Christopher G. Chute, Jim Cimino, Don E. Detmer, Margo Edmunds, et al. “Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.J Am Med Inform Assoc 21, no. 2 (2014): 204–11. https://doi.org/10.1136/amiajnl-2013-002117.
Hripcsak G, Bloomrosen M, FlatelyBrennan P, Chute CG, Cimino J, Detmer DE, et al. Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. J Am Med Inform Assoc. 2014;21(2):204–11.
Hripcsak, George, et al. “Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.J Am Med Inform Assoc, vol. 21, no. 2, 2014, pp. 204–11. Pubmed, doi:10.1136/amiajnl-2013-002117.
Hripcsak G, Bloomrosen M, FlatelyBrennan P, Chute CG, Cimino J, Detmer DE, Edmunds M, Embi PJ, Goldstein MM, Hammond WE, Keenan GM, Labkoff S, Murphy S, Safran C, Speedie S, Strasberg H, Temple F, Wilcox AB. Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. J Am Med Inform Assoc. 2014;21(2):204–211.
Journal cover image

Published In

J Am Med Inform Assoc

DOI

EISSN

1527-974X

Publication Date

2014

Volume

21

Issue

2

Start / End Page

204 / 211

Location

England

Related Subject Headings

  • United States
  • Societies, Medical
  • Patient Participation
  • Patient Access to Records
  • Organizational Policy
  • Medical Informatics
  • Information Dissemination
  • Humans
  • Health Policy
  • Electronic Health Records