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Quality of family history collection with use of a patient facing family history assessment tool.

Publication ,  Journal Article
Wu, RR; Himmel, TL; Buchanan, AH; Powell, KP; Hauser, ER; Ginsburg, GS; Henrich, VC; Orlando, LA
Published in: BMC Fam Pract
February 13, 2014

BACKGROUND: Studies have shown that the quality of family health history (FHH) collection in primary care is inadequate to assess disease risk. To use FHH for risk assessment, collected data must have adequate detail. To address this issue, we developed a patient facing FHH assessment tool, MeTree. In this paper we report the content and quality of the FHH collected using MeTree. DESIGN: A hybrid implementation-effectiveness study. Patients were recruited from 2009 to 2012. SETTING: Two community primary care clinics in Greensboro, NC. PARTICIPANTS: All non-adopted adult English speaking patients with upcoming appointments were invited to participate. INTERVENTION: Education about and collection of FHH with entry into MeTree. MEASURES: We report the proportion of pedigrees that were high-quality. High-quality pedigrees are defined as having all the following criteria: (1) three generations of relatives, (2) relatives' lineage, (3) relatives' gender, (4) an up-to-date FHH, (5) pertinent negatives noted, (6) age of disease onset in affected relatives, and for deceased relatives, (7) the age and (8) cause of death (Prim Care31:479-495, 2004.). RESULTS: Enrollment: 1,184. Participant demographics: age range 18-92 (mean 58.8, SD 11.79), 56% male, and 75% white. The median pedigree size was 21 (range 8-71) and the FHH entered into MeTree resulted in a database of 27,406 individuals. FHHs collected by MeTree were found to be high quality in 99.8% (N = 1,182/1,184) as compared to <4% at baseline. An average of 1.9 relatives per pedigree (range 0-50, SD 4.14) had no data reported. For pedigrees where at least one relative has no data (N = 497/1,184), 4.97 relatives per pedigree (range 1-50, SD 5.44) had no data. Talking with family members before using MeTree significantly decreased the proportion of relatives with no data reported (4.98% if you talked to your relative vs. 10.85% if you did not, p-value < 0.001.). CONCLUSION: Using MeTree improves the quantity and quality of the FHH data that is collected and talking with relatives prior to the collection of FHH significantly improves the quantity and quality of the data provided. This allows more patients to be accurately risk stratified and offered appropriate preventive care guided by their risk level. TRIAL NUMBER: NCT01372553.

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Published In

BMC Fam Pract

DOI

EISSN

1471-2296

Publication Date

February 13, 2014

Volume

15

Start / End Page

31

Location

England

Related Subject Headings

  • Research Design
  • Public Health
  • Middle Aged
  • Medical History Taking
  • Male
  • Humans
  • Female
  • Family Health
  • Aged
  • 4206 Public health
 

Citation

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Wu, R. R., Himmel, T. L., Buchanan, A. H., Powell, K. P., Hauser, E. R., Ginsburg, G. S., … Orlando, L. A. (2014). Quality of family history collection with use of a patient facing family history assessment tool. BMC Fam Pract, 15, 31. https://doi.org/10.1186/1471-2296-15-31
Wu, R Ryanne, Tiffany L. Himmel, Adam H. Buchanan, Karen P. Powell, Elizabeth R. Hauser, Geoffrey S. Ginsburg, Vincent C. Henrich, and Lori A. Orlando. “Quality of family history collection with use of a patient facing family history assessment tool.BMC Fam Pract 15 (February 13, 2014): 31. https://doi.org/10.1186/1471-2296-15-31.
Wu RR, Himmel TL, Buchanan AH, Powell KP, Hauser ER, Ginsburg GS, et al. Quality of family history collection with use of a patient facing family history assessment tool. BMC Fam Pract. 2014 Feb 13;15:31.
Wu, R. Ryanne, et al. “Quality of family history collection with use of a patient facing family history assessment tool.BMC Fam Pract, vol. 15, Feb. 2014, p. 31. Pubmed, doi:10.1186/1471-2296-15-31.
Wu RR, Himmel TL, Buchanan AH, Powell KP, Hauser ER, Ginsburg GS, Henrich VC, Orlando LA. Quality of family history collection with use of a patient facing family history assessment tool. BMC Fam Pract. 2014 Feb 13;15:31.
Journal cover image

Published In

BMC Fam Pract

DOI

EISSN

1471-2296

Publication Date

February 13, 2014

Volume

15

Start / End Page

31

Location

England

Related Subject Headings

  • Research Design
  • Public Health
  • Middle Aged
  • Medical History Taking
  • Male
  • Humans
  • Female
  • Family Health
  • Aged
  • 4206 Public health