Skip to main content
Journal cover image

Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.

Publication ,  Journal Article
Landier, W; Ahern, J; Barakat, LP; Bhatia, S; Bingen, KM; Bondurant, PG; Cohn, SL; Dobrozsi, SK; Haugen, M; Herring, RA; Hooke, MC; Martin, M ...
Published in: Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
November 2016

There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children's Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions. Five broad principles, with associated recommendations, were identified by the panel, including recognition that (1) in pediatric oncology, patient/family education is family-centered; (2) a diagnosis of childhood cancer is overwhelming and the family needs time to process the diagnosis and develop a plan for managing ongoing life demands before they can successfully learn to care for the child; (3) patient/family education should be an interprofessional endeavor with 3 key areas of focus: (a) diagnosis/treatment, (b) psychosocial coping, and (c) care of the child; (4) patient/family education should occur across the continuum of care; and (5) a supportive environment is necessary to optimize learning. Dissemination and implementation of these recommendations will set the stage for future studies that aim to develop evidence to inform best practices, and ultimately to establish the standard of care for effective patient/family education in pediatric oncology.

Duke Scholars

Published In

Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

DOI

EISSN

1532-8457

ISSN

1043-4542

Publication Date

November 2016

Volume

33

Issue

6

Start / End Page

422 / 431

Related Subject Headings

  • Professional-Family Relations
  • Practice Guidelines as Topic
  • Pediatrics
  • Parents
  • Parent-Child Relations
  • Nursing
  • Neoplasms
  • Medical Oncology
  • Male
  • Humans
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Landier, W., Ahern, J., Barakat, L. P., Bhatia, S., Bingen, K. M., Bondurant, P. G., … Hockenberry, M. (2016). Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients. Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses, 33(6), 422–431. https://doi.org/10.1177/1043454216655983
Landier, Wendy, JoAnn Ahern, Lamia P. Barakat, Smita Bhatia, Kristin M. Bingen, Patricia G. Bondurant, Susan L. Cohn, et al. “Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses 33, no. 6 (November 2016): 422–31. https://doi.org/10.1177/1043454216655983.
Landier W, Ahern J, Barakat LP, Bhatia S, Bingen KM, Bondurant PG, et al. Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2016 Nov;33(6):422–31.
Landier, Wendy, et al. “Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses, vol. 33, no. 6, Nov. 2016, pp. 422–31. Epmc, doi:10.1177/1043454216655983.
Landier W, Ahern J, Barakat LP, Bhatia S, Bingen KM, Bondurant PG, Cohn SL, Dobrozsi SK, Haugen M, Herring RA, Hooke MC, Martin M, Murphy K, Newman AR, Rodgers CC, Ruccione KS, Sullivan J, Weiss M, Withycombe J, Yasui L, Hockenberry M. Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2016 Nov;33(6):422–431.
Journal cover image

Published In

Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

DOI

EISSN

1532-8457

ISSN

1043-4542

Publication Date

November 2016

Volume

33

Issue

6

Start / End Page

422 / 431

Related Subject Headings

  • Professional-Family Relations
  • Practice Guidelines as Topic
  • Pediatrics
  • Parents
  • Parent-Child Relations
  • Nursing
  • Neoplasms
  • Medical Oncology
  • Male
  • Humans