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Beyond the Genetic Information Nondiscrimination Act: ethical and economic implications of the exclusion of disability, long-term care and life insurance.

Publication ,  Journal Article
Tenenbaum, JD; Goodman, KW
Published in: Per Med
March 2017

The Genetic Information Nondiscrimination Act (GINA) was intended to protect individuals in the USA from discrimination based on their genetic data, but does not apply to life, long-term care or disability insurance. Patient advocates and ethicists have argued that GINA does not go far enough. Others express concerns for the viability of insurance companies if millions of potential customers know more than professional actuaries. Here we discuss the exclusion of certain insurance types from GINA. We explore the ethical and economic implications of this distinction, and potential paths forward. We suggest that because long-term care and disability insurance can be essential for well-being, there is no good reason to place them in a class with life insurance and therefore beyond GINA's reach.

Duke Scholars

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Published In

Per Med

DOI

EISSN

1744-828X

Publication Date

March 2017

Volume

14

Issue

2

Start / End Page

153 / 157

Location

England

Related Subject Headings

  • United States
  • Prejudice
  • Pharmacology & Pharmacy
  • Long-Term Care
  • Insurance, Life
  • Humans
  • Genetic Testing
  • Genetic Privacy
  • 3214 Pharmacology and pharmaceutical sciences
  • 3202 Clinical sciences
 

Citation

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ICMJE
MLA
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Journal cover image

Published In

Per Med

DOI

EISSN

1744-828X

Publication Date

March 2017

Volume

14

Issue

2

Start / End Page

153 / 157

Location

England

Related Subject Headings

  • United States
  • Prejudice
  • Pharmacology & Pharmacy
  • Long-Term Care
  • Insurance, Life
  • Humans
  • Genetic Testing
  • Genetic Privacy
  • 3214 Pharmacology and pharmaceutical sciences
  • 3202 Clinical sciences