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Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial.

Publication ,  Journal Article
Zanni, MV; Fitch, K; Rivard, C; Sanchez, L; Douglas, PS; Grinspoon, S; Smeaton, L; Currier, JS; Looby, SE
Published in: HIV Clin Trials
March 2017

BACKGROUND: Women's under-representation in HIV and cardiovascular disease (CVD) research suggests a need for novel strategies to ensure robust representation of women in HIV-associated CVD research. OBJECTIVE: To elicit perspectives on CVD research participation among a community-sample of women with or at risk for HIV, and to apply acquired insights toward the development of an evidence-based campaign empowering older women with HIV to participate in a large-scale CVD prevention trial. METHODS: In a community-based setting, we surveyed 40 women with or at risk for HIV about factors which might facilitate or impede engagement in CVD research. We applied insights derived from these surveys into the development of the Follow YOUR Heart campaign, educating women about HIV-associated CVD and empowering them to learn more about a multi-site HIV-associated CVD prevention trial: REPRIEVE. RESULTS: Endorsed best methods for learning about a CVD research study included peer-to-peer communication (54%), provider communication (46%) and video-based communication (39%). Top endorsed non-monetary reasons for participating in research related to gaining information (63%) and helping others (47%). Top endorsed reasons for not participating related to lack of knowledge about studies (29%) and lack of request to participate (29%). Based on survey results, the REPRIEVE Follow YOUR Heart campaign was developed. Interwoven campaign components (print materials, video, web presence) offer provider-based information/knowledge, peer-to-peer communication, and empowerment to learn more. Campaign components reflect women's self-identified motivations for research participation - education and altruism. CONCLUSIONS: Investigation of factors influencing women's participation in HIV-associated CVD research may be usefully applied to develop evidence-based strategies for enhancing women's enrollment in disease-specific large-scale trials. If proven efficacious, such strategies may enhance conduct of large-scale research studies across disciplines.

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Published In

HIV Clin Trials

DOI

EISSN

1945-5771

Publication Date

March 2017

Volume

18

Issue

2

Start / End Page

83 / 91

Location

England

Related Subject Headings

  • Virology
  • Surveys and Questionnaires
  • Social Media
  • Sex Factors
  • Patient Selection
  • Patient Participation
  • Patient Education as Topic
  • Middle Aged
  • Humans
  • Health Promotion
 

Citation

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ICMJE
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Zanni, M. V., Fitch, K., Rivard, C., Sanchez, L., Douglas, P. S., Grinspoon, S., … Looby, S. E. (2017). Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial. HIV Clin Trials, 18(2), 83–91. https://doi.org/10.1080/15284336.2017.1297551
Zanni, Markella V., Kathleen Fitch, Corinne Rivard, Laura Sanchez, Pamela S. Douglas, Steven Grinspoon, Laura Smeaton, Judith S. Currier, and Sara E. Looby. “Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial.HIV Clin Trials 18, no. 2 (March 2017): 83–91. https://doi.org/10.1080/15284336.2017.1297551.
Zanni MV, Fitch K, Rivard C, Sanchez L, Douglas PS, Grinspoon S, et al. Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial. HIV Clin Trials. 2017 Mar;18(2):83–91.
Zanni, Markella V., et al. “Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial.HIV Clin Trials, vol. 18, no. 2, Mar. 2017, pp. 83–91. Pubmed, doi:10.1080/15284336.2017.1297551.
Zanni MV, Fitch K, Rivard C, Sanchez L, Douglas PS, Grinspoon S, Smeaton L, Currier JS, Looby SE. Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial. HIV Clin Trials. 2017 Mar;18(2):83–91.

Published In

HIV Clin Trials

DOI

EISSN

1945-5771

Publication Date

March 2017

Volume

18

Issue

2

Start / End Page

83 / 91

Location

England

Related Subject Headings

  • Virology
  • Surveys and Questionnaires
  • Social Media
  • Sex Factors
  • Patient Selection
  • Patient Participation
  • Patient Education as Topic
  • Middle Aged
  • Humans
  • Health Promotion