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Validation and Quality Assessment of the Kilimanjaro Cancer Registry.

Publication ,  Journal Article
Zullig, LL; Schroeder, K; Nyindo, P; Namwai, T; Silayo, E; Msomba, A; Munishi, MO; Karia, F; Muiruri, C; Bartlett, J; Maro, V; Zafar, SY
Published in: J Glob Oncol
December 2016

PURPOSE: Global cancer burden has increasingly shifted to low- and middle-income countries and is particularly pronounced in Africa. There remains a lack of comprehensive cancer information as a result of limited cancer registry development. In Moshi, Tanzania, a regional cancer registry exists at Kilimanjaro Christian Medical Center. Data quality is unknown. Our objective was to evaluate the completeness and quality of the Kilimanjaro Cancer Registry (KCR). METHODS: In October 2015, we conducted a retrospective review of KCR by validating the internal consistency of registry records with medical and pathology records. We randomly sampled approximately 100 total registry cases. Four reviewers not associated with the KCR manually collected data elements from medical records and compared them with KCR data. RESULTS: All 100 reviewed registry cases had complete cancer site and morphology included in the registry. Six had a recorded stage. For the majority (n = 92), the basis of diagnosis was pathology. Pathology reports were found in the medical record for 40% of patients; for the remainder, these were stored separately in the pathology department. Of sampled registry cases, the KCR and medical records were 98% and 94% concordant for primary cancer site and morphology, respectively. For 28%, recorded diagnosis dates were within 14 days of what was found in the medical record, and for 32%, they were within 30 days. CONCLUSION: The KCR has a high level of concordance for classification and coding when data are retrieved for validation. This parameter is one of the most important for measuring data quality in a regional cancer registry.

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Published In

J Glob Oncol

DOI

ISSN

2378-9506

Publication Date

December 2016

Volume

2

Issue

6

Start / End Page

381 / 386

Location

United States

Related Subject Headings

  • 4206 Public health
  • 3211 Oncology and carcinogenesis
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Zullig, L. L., Schroeder, K., Nyindo, P., Namwai, T., Silayo, E., Msomba, A., … Zafar, S. Y. (2016). Validation and Quality Assessment of the Kilimanjaro Cancer Registry. J Glob Oncol, 2(6), 381–386. https://doi.org/10.1200/JGO.2015.002873
Zullig, Leah L., Kristin Schroeder, Pilli Nyindo, Theresia Namwai, Elvis Silayo, Angelah Msomba, Michael Oresto Munishi, et al. “Validation and Quality Assessment of the Kilimanjaro Cancer Registry.J Glob Oncol 2, no. 6 (December 2016): 381–86. https://doi.org/10.1200/JGO.2015.002873.
Zullig LL, Schroeder K, Nyindo P, Namwai T, Silayo E, Msomba A, et al. Validation and Quality Assessment of the Kilimanjaro Cancer Registry. J Glob Oncol. 2016 Dec;2(6):381–6.
Zullig, Leah L., et al. “Validation and Quality Assessment of the Kilimanjaro Cancer Registry.J Glob Oncol, vol. 2, no. 6, Dec. 2016, pp. 381–86. Pubmed, doi:10.1200/JGO.2015.002873.
Zullig LL, Schroeder K, Nyindo P, Namwai T, Silayo E, Msomba A, Munishi MO, Karia F, Muiruri C, Bartlett J, Maro V, Zafar SY. Validation and Quality Assessment of the Kilimanjaro Cancer Registry. J Glob Oncol. 2016 Dec;2(6):381–386.

Published In

J Glob Oncol

DOI

ISSN

2378-9506

Publication Date

December 2016

Volume

2

Issue

6

Start / End Page

381 / 386

Location

United States

Related Subject Headings

  • 4206 Public health
  • 3211 Oncology and carcinogenesis