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A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis.

Publication ,  Journal Article
Kwan, YH; Fong, W; Leung, YY; Tan, VIC; Yap, AF; Phang, JK; Lui, NL; Yoon, S; Malhotra, R; Thumboo, J; Østbye, T
Published in: Int J Rheum Dis
February 2019

AIMS: To identify quality of life (QoL) domains and subdomains relevant to patients with different spondyloarthritis (SpA) subtypes in Singapore, and to assess how identified QoL domains and subdomains map onto currently used patient-reported outcome measures (PROMs). METHODS: Nine focus group discussions (FGDs), including two previously conducted FGDs from the Updating the Psoriatic Arthritis Core Domain Set Study, were conducted with patients with SpA in Singapore. The FGDs were organized by SpA subtype and language spoken. All FGDs were audio-taped, transcribed verbatim. After thematic analysis through open and axial coding, the domains were organized using the World Health Organization Quality of Life (WHOQOL) framework. Identified QoL domains and subdomains were mapped to currently used PROMs. RESULTS: The nine FGDs included 51 patients. In total, 27 domains and 92 subdomains were identified and then organized within the 7 broad categories of the WHOQOL framework. Patients in Singapore were more concerned about "financial resources, " "work satisfaction" and "positive feelings" while less concerned about "freedom, physical safety and security" than patients in Western countries. "Home environment" and "work satisfaction" emerged as unique QoL domains relevant to patients with axial SpA (axSpA). PROMs for psoriatic arthritis (PsA) can capture both identified domains of PsA and axSpA. CONCLUSIONS: A wide range of QoL domains and subdomains are relevant to SpA patients in Singapore, and there appears to be minimal differences in their relative importance between SpA subtypes. This study supports the development and validation of common QoL-specific PROMs for usage in SpA.

Duke Scholars

Published In

Int J Rheum Dis

DOI

EISSN

1756-185X

Publication Date

February 2019

Volume

22

Issue

2

Start / End Page

242 / 251

Location

England

Related Subject Headings

  • Young Adult
  • Spondylarthritis
  • Socioeconomic Factors
  • Singapore
  • Reproducibility of Results
  • Quality of Life
  • Qualitative Research
  • Predictive Value of Tests
  • Patient Reported Outcome Measures
  • Middle Aged
 

Citation

APA
Chicago
ICMJE
MLA
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Kwan, Y. H., Fong, W., Leung, Y. Y., Tan, V. I. C., Yap, A. F., Phang, J. K., … Østbye, T. (2019). A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis. Int J Rheum Dis, 22(2), 242–251. https://doi.org/10.1111/1756-185X.13413
Kwan, Yu Heng, Warren Fong, Ying Ying Leung, Victoria Ie Ching Tan, Angela Frances Yap, Jie Kie Phang, Nai Lee Lui, et al. “A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis.Int J Rheum Dis 22, no. 2 (February 2019): 242–51. https://doi.org/10.1111/1756-185X.13413.
Kwan YH, Fong W, Leung YY, Tan VIC, Yap AF, Phang JK, et al. A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis. Int J Rheum Dis. 2019 Feb;22(2):242–51.
Kwan, Yu Heng, et al. “A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis.Int J Rheum Dis, vol. 22, no. 2, Feb. 2019, pp. 242–51. Pubmed, doi:10.1111/1756-185X.13413.
Kwan YH, Fong W, Leung YY, Tan VIC, Yap AF, Phang JK, Lui NL, Yoon S, Malhotra R, Thumboo J, Østbye T. A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis. Int J Rheum Dis. 2019 Feb;22(2):242–251.
Journal cover image

Published In

Int J Rheum Dis

DOI

EISSN

1756-185X

Publication Date

February 2019

Volume

22

Issue

2

Start / End Page

242 / 251

Location

England

Related Subject Headings

  • Young Adult
  • Spondylarthritis
  • Socioeconomic Factors
  • Singapore
  • Reproducibility of Results
  • Quality of Life
  • Qualitative Research
  • Predictive Value of Tests
  • Patient Reported Outcome Measures
  • Middle Aged