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Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care.

Publication ,  Journal Article
Corazzini, KN; Anderson, RA; Bowers, BJ; Chu, CH; Edvardsson, D; Fagertun, A; Gordon, AL; Leung, AYM; McGilton, KS; Meyer, JE; Siegel, EO ...
Published in: Journal of the American Medical Directors Association
May 2019

To support person-centered, residential long-term care internationally, a consortium of researchers in medicine, nursing, behavioral, and social sciences from 21 geographically and economically diverse countries have launched the WE-THRIVE consortium to develop a common data infrastructure. WE-THRIVE aims to identify measurement domains that are internationally relevant, including in low-, middle-, and high-income countries, prioritize concepts to operationalize domains, and specify a set of data elements to measure concepts that can be used across studies for data sharing and comparisons. This article reports findings from consortium meetings at the 2016 meeting of the Gerontological Society of America and the 2017 meeting of the International Association of Gerontology and Geriatrics, to identify domains and prioritize concepts, following best practices to identify common data elements (CDEs) that were developed through the US National Institutes of Health/National Institute of Nursing Research's CDEs initiative. Four domains were identified, including organizational context, workforce and staffing, person-centered care, and care outcomes. Using a nominal group process, WE-THRIVE prioritized 21 concepts across the 4 domains. Several concepts showed similarity to existing measurement structures, whereas others differed. Conceptual similarity (convergence; eg, concepts in the care outcomes domain of functional level and harm-free care) provides further support of the critical foundational work in LTC measurement endorsed and implemented by regulatory bodies. Different concepts (divergence; eg, concepts in the person-centered care domain of knowing the person and what matters most to the person) highlights current gaps in measurement efforts and is consistent with WE-THRIVE's focus on supporting resilience and thriving for residents, family, and staff. In alignment with the World Health Organization's call for comparative measurement work for health systems change, WE-THRIVE's work to date highlights the benefits of engaging with diverse LTC researchers, including those in low-, middle-, and high-income countries, to develop a measurement infrastructure that integrates the aspirations of person-centered LTC.

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Published In

Journal of the American Medical Directors Association

DOI

EISSN

1538-9375

ISSN

1525-8610

Publication Date

May 2019

Volume

20

Issue

5

Start / End Page

598 / 603

Related Subject Headings

  • Patient-Centered Care
  • Nursing Homes
  • Long-Term Care
  • Interprofessional Relations
  • Humans
  • Geriatrics
  • Congresses as Topic
  • Common Data Elements
  • Aged
  • 4206 Public health
 

Citation

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Corazzini, K. N., Anderson, R. A., Bowers, B. J., Chu, C. H., Edvardsson, D., Fagertun, A., … WE-THRIVE, . (2019). Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care. Journal of the American Medical Directors Association, 20(5), 598–603. https://doi.org/10.1016/j.jamda.2019.01.123
Corazzini, Kirsten N., Ruth A. Anderson, Barbara J. Bowers, Charlene H. Chu, David Edvardsson, Anette Fagertun, Adam L. Gordon, et al. “Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care.Journal of the American Medical Directors Association 20, no. 5 (May 2019): 598–603. https://doi.org/10.1016/j.jamda.2019.01.123.
Corazzini KN, Anderson RA, Bowers BJ, Chu CH, Edvardsson D, Fagertun A, et al. Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care. Journal of the American Medical Directors Association. 2019 May;20(5):598–603.
Corazzini, Kirsten N., et al. “Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care.Journal of the American Medical Directors Association, vol. 20, no. 5, May 2019, pp. 598–603. Epmc, doi:10.1016/j.jamda.2019.01.123.
Corazzini KN, Anderson RA, Bowers BJ, Chu CH, Edvardsson D, Fagertun A, Gordon AL, Leung AYM, McGilton KS, Meyer JE, Siegel EO, Thompson R, Wang J, Wei S, Wu B, Lepore MJ, WE-THRIVE. Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care. Journal of the American Medical Directors Association. 2019 May;20(5):598–603.
Journal cover image

Published In

Journal of the American Medical Directors Association

DOI

EISSN

1538-9375

ISSN

1525-8610

Publication Date

May 2019

Volume

20

Issue

5

Start / End Page

598 / 603

Related Subject Headings

  • Patient-Centered Care
  • Nursing Homes
  • Long-Term Care
  • Interprofessional Relations
  • Humans
  • Geriatrics
  • Congresses as Topic
  • Common Data Elements
  • Aged
  • 4206 Public health