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Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study.

Publication ,  Journal Article
Plantinga, LC; Jones, B; Johnson, J; Lambeth, A; Lea, JP; Nadel, L; Vandenberg, AE; Bowling, CB
Published in: BMC Health Serv Res
November 27, 2019

BACKGROUND: Provider recognition of level of functioning may be suboptimal in the dialysis setting, and this lack of recognition may lead to less patient-centered care. We aimed to assess whether delivery of an app-based, individualized functioning report would improve patients' perceptions of patient-centeredness of care. METHODS: In this pre-post pilot study at three outpatient dialysis facilities in metropolitan Atlanta, an individualized functioning report-including information on physical performance, perceived physical functioning, and community mobility-was delivered to patients receiving hemodialysis (n = 43) and their providers. Qualitative and quantitative approaches were used to gather patient and provider feedback to develop and assess the report and app. Paired t test was used to test for differences in patient perception of patient-centeredness of care (PPPC) scores (range, 1 = most patient-centered to 4 = least patient-centered) 1 month after report delivery. RESULTS: Delivery of the reports to both patients and providers was not associated with a subsequent change in patients' perceptions of patient-centeredness of their care (follow-up vs. baseline PPPC scores of 2.35 vs. 2.36; P > 0.9). However, patients and providers generally saw the potential of the report to improve the patient-centeredness of care and reacted positively to the individualized reports delivered in the pilot. Patients also reported willingness to undergo future assessments. However, while two-thirds of surveyed providers reported always or sometimes discussing the reports they received, most (98%) participating patients reported that no one on the dialysis care team had discussed the report with them within 1 month. CONCLUSIONS: Potential lack of fidelity to the intervention precludes definitive conclusions about effects of the report on patient-centeredness of care. The disconnect between patients' and providers' perceptions of discussions of the report warrants future study. However, this study introduces a novel, individualized, multi-domain functional report that is easily implemented in the setting of hemodialysis. Our pilot study provides guidance for improving its use both clinically and in future pragmatic research studies, both within and beyond the dialysis population.

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Published In

BMC Health Serv Res

DOI

EISSN

1472-6963

Publication Date

November 27, 2019

Volume

19

Issue

1

Start / End Page

891

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Renal Dialysis
  • Quality Improvement
  • Pilot Projects
  • Patient-Centered Care
  • Middle Aged
  • Male
  • Kidney Failure, Chronic
  • Humans
  • Health Policy & Services
 

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Plantinga, L. C., Jones, B., Johnson, J., Lambeth, A., Lea, J. P., Nadel, L., … Bowling, C. B. (2019). Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study. BMC Health Serv Res, 19(1), 891. https://doi.org/10.1186/s12913-019-4733-6
Plantinga, Laura C., Brian Jones, Jeremy Johnson, Amelia Lambeth, Janice P. Lea, Leigh Nadel, Ann E. Vandenberg, and C Barrett Bowling. “Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study.BMC Health Serv Res 19, no. 1 (November 27, 2019): 891. https://doi.org/10.1186/s12913-019-4733-6.
Plantinga LC, Jones B, Johnson J, Lambeth A, Lea JP, Nadel L, et al. Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study. BMC Health Serv Res. 2019 Nov 27;19(1):891.
Plantinga, Laura C., et al. “Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study.BMC Health Serv Res, vol. 19, no. 1, Nov. 2019, p. 891. Pubmed, doi:10.1186/s12913-019-4733-6.
Plantinga LC, Jones B, Johnson J, Lambeth A, Lea JP, Nadel L, Vandenberg AE, Bowling CB. Delivery of a patient-friendly functioning report to improve patient-centeredness of dialysis care: a pilot study. BMC Health Serv Res. 2019 Nov 27;19(1):891.
Journal cover image

Published In

BMC Health Serv Res

DOI

EISSN

1472-6963

Publication Date

November 27, 2019

Volume

19

Issue

1

Start / End Page

891

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Renal Dialysis
  • Quality Improvement
  • Pilot Projects
  • Patient-Centered Care
  • Middle Aged
  • Male
  • Kidney Failure, Chronic
  • Humans
  • Health Policy & Services