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Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities.

Publication ,  Journal Article
Andrews, JA; Berry, JD; Baloh, RH; Carberry, N; Cudkowicz, ME; Dedi, B; Glass, J; Maragakis, NJ; Miller, TM; Paganoni, S; Rothstein, JD ...
Published in: Muscle Nerve
August 2020

Coronavirus disease 2019 has created unprecedented challenges for amyotrophic lateral sclerosis (ALS) clinical care and research in the United States. Traditional evaluations for making an ALS diagnosis, measuring progression, and planning interventions rely on in-person visits that may now be unsafe or impossible. Evidence- and experience-based treatment options, such as multidisciplinary team care, feeding tubes, wheelchairs, home health, and hospice, have become more difficult to obtain and in some places are unavailable. In addition, the pandemic has impacted ALS clinical trials by impairing the ability to obtain measurements for trial eligibility, to monitor safety and efficacy outcomes, and to dispense study drug, as these also often rely on in-person visits. We review opportunities for overcoming some of these challenges through telemedicine and novel measurements. These can reoptimize ALS care and research in the current setting and during future events that may limit travel and face-to-face interactions.

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Published In

Muscle Nerve

DOI

EISSN

1097-4598

Publication Date

August 2020

Volume

62

Issue

2

Start / End Page

182 / 186

Location

United States

Related Subject Headings

  • Wheelchairs
  • Ventilators, Mechanical
  • United States
  • Telemedicine
  • Spirometry
  • SARS-CoV-2
  • Pneumonia, Viral
  • Pandemics
  • Neurology & Neurosurgery
  • Humans
 

Citation

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Chicago
ICMJE
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Andrews, J. A., Berry, J. D., Baloh, R. H., Carberry, N., Cudkowicz, M. E., Dedi, B., … Bedlack, R. S. (2020). Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities. Muscle Nerve, 62(2), 182–186. https://doi.org/10.1002/mus.26989
Andrews, Jinsy A., James D. Berry, Robert H. Baloh, Nathan Carberry, Merit E. Cudkowicz, Brixhilda Dedi, Jonathan Glass, et al. “Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities.Muscle Nerve 62, no. 2 (August 2020): 182–86. https://doi.org/10.1002/mus.26989.
Andrews JA, Berry JD, Baloh RH, Carberry N, Cudkowicz ME, Dedi B, et al. Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities. Muscle Nerve. 2020 Aug;62(2):182–6.
Andrews, Jinsy A., et al. “Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities.Muscle Nerve, vol. 62, no. 2, Aug. 2020, pp. 182–86. Pubmed, doi:10.1002/mus.26989.
Andrews JA, Berry JD, Baloh RH, Carberry N, Cudkowicz ME, Dedi B, Glass J, Maragakis NJ, Miller TM, Paganoni S, Rothstein JD, Shefner JM, Simmons Z, Weiss MD, Bedlack RS. Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities. Muscle Nerve. 2020 Aug;62(2):182–186.
Journal cover image

Published In

Muscle Nerve

DOI

EISSN

1097-4598

Publication Date

August 2020

Volume

62

Issue

2

Start / End Page

182 / 186

Location

United States

Related Subject Headings

  • Wheelchairs
  • Ventilators, Mechanical
  • United States
  • Telemedicine
  • Spirometry
  • SARS-CoV-2
  • Pneumonia, Viral
  • Pandemics
  • Neurology & Neurosurgery
  • Humans