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Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions.

Publication ,  Journal Article
Kakooza-Mwesige, A; Kaddumukasa, M; Koltai, DC; Kaddumukasa, MN; Nakasujja, N; Kajumba, M; Nakku, J; Kolls, BJ; Fuller, AT; Teuwen, DE; Haglund, MM
Published in: Epilepsy Behav
January 2021

In this summary paper, we review the body of research contained in this special issue, The Intersection of Culture, Resources, and Disease: Epilepsy Care in Uganda, and corollary recommendations for a way forward. We review key findings and conclusions for the studies, which tell a story of culture and care-seeking through discussions and data gleaned from a rich research landscape traversing community village dwellings, shared communal areas, churches, and urban hospitals. The voices and perspectives of over 16,000 study participants inclusive of people living with epilepsy, their neighbors and healthcare workers, traditional healers, and faith leaders are reported. From this, we synthesize findings and prioritize a set of recommendations to advance epilepsy care in Uganda. Progress will require infrastructure strengthening, multilevel educational investments, and an ambitious, extensive program of community sensitization. These proposed priorities and actions outline a way forward through formidable but surmountable challenges but require harmonized efforts by government and other relevant stakeholders, scholars, clinicians, and community leaders. This article is part of the Special Issue "The Intersection of Culture, Resources, and Disease: Epilepsy Care in Uganda".

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Published In

Epilepsy Behav

DOI

EISSN

1525-5069

Publication Date

January 2021

Volume

114

Issue

Pt B

Start / End Page

107302

Location

United States

Related Subject Headings

  • Uganda
  • Patient Acceptance of Health Care
  • Neurology & Neurosurgery
  • Humans
  • Epilepsy
  • 5203 Clinical and health psychology
  • 5202 Biological psychology
  • 3209 Neurosciences
  • 1103 Clinical Sciences
 

Citation

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Kakooza-Mwesige, A., Kaddumukasa, M., Koltai, D. C., Kaddumukasa, M. N., Nakasujja, N., Kajumba, M., … Haglund, M. M. (2021). Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions. Epilepsy Behav, 114(Pt B), 107302. https://doi.org/10.1016/j.yebeh.2020.107302
Kakooza-Mwesige, Angelina, Mark Kaddumukasa, Deborah C. Koltai, Martin N. Kaddumukasa, Noeline Nakasujja, Mayanja Kajumba, Juliet Nakku, et al. “Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions.Epilepsy Behav 114, no. Pt B (January 2021): 107302. https://doi.org/10.1016/j.yebeh.2020.107302.
Kakooza-Mwesige A, Kaddumukasa M, Koltai DC, Kaddumukasa MN, Nakasujja N, Kajumba M, et al. Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions. Epilepsy Behav. 2021 Jan;114(Pt B):107302.
Kakooza-Mwesige, Angelina, et al. “Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions.Epilepsy Behav, vol. 114, no. Pt B, Jan. 2021, p. 107302. Pubmed, doi:10.1016/j.yebeh.2020.107302.
Kakooza-Mwesige A, Kaddumukasa M, Koltai DC, Kaddumukasa MN, Nakasujja N, Kajumba M, Nakku J, Kolls BJ, Fuller AT, Teuwen DE, Haglund MM. Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions. Epilepsy Behav. 2021 Jan;114(Pt B):107302.
Journal cover image

Published In

Epilepsy Behav

DOI

EISSN

1525-5069

Publication Date

January 2021

Volume

114

Issue

Pt B

Start / End Page

107302

Location

United States

Related Subject Headings

  • Uganda
  • Patient Acceptance of Health Care
  • Neurology & Neurosurgery
  • Humans
  • Epilepsy
  • 5203 Clinical and health psychology
  • 5202 Biological psychology
  • 3209 Neurosciences
  • 1103 Clinical Sciences