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Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.

Publication ,  Journal Article
Koch, A; Albrecht, T; Kozhumam, AS; Son, H; Brandon, D; Docherty, SL
Published in: Journal of child health care : for professionals working with children in the hospital and community
June 2023

Parents of children born with complex life-threatening chronic conditions (CLTCs) experience an uncertain trajectory that requires critical decision making. Along this trajectory, hope plays an influential but largely unexplored role; therefore, this qualitative descriptive study explores how parent and provider hope may influence decision making and care of a child born with CLTCs. A total of 193 interviews from 46 individuals (parents, nurses, physicians, and nurse practitioners) responsible for the care of 11 infants with complex congenital heart disease (CCHD) were analyzed to understand how hope features in experiences related to communication, relationships, and emotions that influence decision making. Overall, parental hope remained strong and played a pivotal role in parental decision making. Parents and professional healthcare providers expressed a range of emotions that appeared to be integrally linked to hope and affected decision making. Providers and parents brought their own judgments, perceptions, and measure of hope to relationships, when there was common ground for expressing, and having, hope, shared decision making was more productive and they developed more effective relationships and communication. Relationships between parents and providers were particularly influenced by and contributory to hope. Communication between parents and providers was also responsible for and responsive to hope.

Duke Scholars

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Published In

Journal of child health care : for professionals working with children in the hospital and community

DOI

EISSN

1741-2889

ISSN

1367-4935

Publication Date

June 2023

Volume

27

Issue

2

Start / End Page

300 / 315

Related Subject Headings

  • Uncertainty
  • Qualitative Research
  • Parents
  • Infant
  • Humans
  • Emotions
  • Decision Making
  • Communication
  • 4205 Nursing
  • 3213 Paediatrics
 

Citation

APA
Chicago
ICMJE
MLA
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Koch, A., Albrecht, T., Kozhumam, A. S., Son, H., Brandon, D., & Docherty, S. L. (2023). Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions. Journal of Child Health Care : For Professionals Working with Children in the Hospital and Community, 27(2), 300–315. https://doi.org/10.1177/13674935211059041
Koch, Amie, Tara Albrecht, Arthi S. Kozhumam, Heeyeon Son, Debra Brandon, and Sharron L. Docherty. “Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.Journal of Child Health Care : For Professionals Working with Children in the Hospital and Community 27, no. 2 (June 2023): 300–315. https://doi.org/10.1177/13674935211059041.
Koch A, Albrecht T, Kozhumam AS, Son H, Brandon D, Docherty SL. Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions. Journal of child health care : for professionals working with children in the hospital and community. 2023 Jun;27(2):300–15.
Koch, Amie, et al. “Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.Journal of Child Health Care : For Professionals Working with Children in the Hospital and Community, vol. 27, no. 2, June 2023, pp. 300–15. Epmc, doi:10.1177/13674935211059041.
Koch A, Albrecht T, Kozhumam AS, Son H, Brandon D, Docherty SL. Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions. Journal of child health care : for professionals working with children in the hospital and community. 2023 Jun;27(2):300–315.
Journal cover image

Published In

Journal of child health care : for professionals working with children in the hospital and community

DOI

EISSN

1741-2889

ISSN

1367-4935

Publication Date

June 2023

Volume

27

Issue

2

Start / End Page

300 / 315

Related Subject Headings

  • Uncertainty
  • Qualitative Research
  • Parents
  • Infant
  • Humans
  • Emotions
  • Decision Making
  • Communication
  • 4205 Nursing
  • 3213 Paediatrics