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Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013.

Publication ,  Journal Article
Lui, GK; Sommerhalter, K; Xi, Y; Botto, LD; Crume, T; Farr, S; Feldkamp, ML; Glidewell, J; Hsu, D; Khanna, A; Krikov, S; Li, J; Sarno, L ...
Published in: J Am Heart Assoc
September 20, 2022

Background We sought to characterize health care usage for adolescents with congenital heart defects (CHDs) using population-based multisite surveillance data. Methods and Results Adolescents aged 11 to 18 years with ≥1 CHD-related diagnosis code and residing in 5 US sites were identified in clinical and administrative data sources for the years 2011 to 2013. Sites linked data on all inpatient, emergency department (ED), and outpatient visits. Multivariable log-binomial regression models including age, sex, unweighted Charlson comorbidity index, CHD severity, cardiology visits, and insurance status, were used to identify associations with inpatient, ED, and outpatient visits. Of 9626 eligible adolescents, 26.4% (n=2543) had severe CHDs and 21.4% had Charlson comorbidity index >0. At least 1 inpatient, ED, or outpatient visit was reported for 21%, 25%, and 96% of cases, respectively. Cardiology visits, cardiac imaging, cardiac procedures, and vascular procedures were reported for 38%, 73%, 10%, and 5% of cases, respectively. Inpatient, ED, and outpatient visits were consistently higher for adolescents with severe CHDs compared with nonsevere CHDs. Adolescents with severe and nonsevere CHDs had higher health care usage compared with the 2011 to 2013 general adolescent US population. Adolescents with severe CHDs versus nonsevere CHDs were twice as likely to have at least 1 inpatient visit when Charlson comorbidity index was low (Charlson comorbidity index =0). Adolescents with CHDs and public insurance, compared with private insurance, were more likely to have inpatient (adjusted prevalence ratio, 1.5 [95% CI, 1.3-1.7]) and ED (adjusted prevalence ratio, 1.6 [95% CI, 1.4-1.7]) visits. Conclusions High resource usage by adolescents with CHDs indicates a substantial burden of disease, especially with public insurance, severe CHDs, and more comorbidities.

Duke Scholars

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Published In

J Am Heart Assoc

DOI

EISSN

2047-9980

Publication Date

September 20, 2022

Volume

11

Issue

18

Start / End Page

e026172

Location

England

Related Subject Headings

  • United States
  • Prevalence
  • Population Surveillance
  • Humans
  • Heart Defects, Congenital
  • Emergency Service, Hospital
  • Delivery of Health Care
  • Adolescent
  • 3201 Cardiovascular medicine and haematology
  • 1102 Cardiorespiratory Medicine and Haematology
 

Citation

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Lui, G. K., Sommerhalter, K., Xi, Y., Botto, L. D., Crume, T., Farr, S., … Book, W. M. (2022). Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013. J Am Heart Assoc, 11(18), e026172. https://doi.org/10.1161/JAHA.122.026172
Lui, George K., Kristin Sommerhalter, Yizhao Xi, Lorenzo D. Botto, Tessa Crume, Sherry Farr, Marcia L. Feldkamp, et al. “Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013.J Am Heart Assoc 11, no. 18 (September 20, 2022): e026172. https://doi.org/10.1161/JAHA.122.026172.
Lui GK, Sommerhalter K, Xi Y, Botto LD, Crume T, Farr S, et al. Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013. J Am Heart Assoc. 2022 Sep 20;11(18):e026172.
Lui, George K., et al. “Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013.J Am Heart Assoc, vol. 11, no. 18, Sept. 2022, p. e026172. Pubmed, doi:10.1161/JAHA.122.026172.
Lui GK, Sommerhalter K, Xi Y, Botto LD, Crume T, Farr S, Feldkamp ML, Glidewell J, Hsu D, Khanna A, Krikov S, Li J, Raskind-Hood C, Sarno L, Van Zutphen AR, Zaidi A, Soim A, Book WM. Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013. J Am Heart Assoc. 2022 Sep 20;11(18):e026172.
Journal cover image

Published In

J Am Heart Assoc

DOI

EISSN

2047-9980

Publication Date

September 20, 2022

Volume

11

Issue

18

Start / End Page

e026172

Location

England

Related Subject Headings

  • United States
  • Prevalence
  • Population Surveillance
  • Humans
  • Heart Defects, Congenital
  • Emergency Service, Hospital
  • Delivery of Health Care
  • Adolescent
  • 3201 Cardiovascular medicine and haematology
  • 1102 Cardiorespiratory Medicine and Haematology