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Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.

Publication ,  Journal Article
Hulbert, ML; Manwani, D; Meier, ER; Alvarez, OA; Brown, RC; Callaghan, MU; Campbell, AD; Coates, TD; Frei-Jones, MJ; Hankins, JS; Heeney, MM ...
Published in: Pediatr Blood Cancer
January 2023

Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element's categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), 10 were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.

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Published In

Pediatr Blood Cancer

DOI

EISSN

1545-5017

Publication Date

January 2023

Volume

70

Issue

1

Start / End Page

e29961

Location

United States

Related Subject Headings

  • Oncology & Carcinogenesis
  • Humans
  • Consensus
  • Child
  • Anemia, Sickle Cell
  • 3213 Paediatrics
  • 3211 Oncology and carcinogenesis
  • 1114 Paediatrics and Reproductive Medicine
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences
 

Citation

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Hulbert, M. L., Manwani, D., Meier, E. R., Alvarez, O. A., Brown, R. C., Callaghan, M. U., … Kanter, J. (2023). Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer, 70(1), e29961. https://doi.org/10.1002/pbc.29961
Hulbert, Monica L., Deepa Manwani, Emily Riehm Meier, Ofelia A. Alvarez, R Clark Brown, Michael U. Callaghan, Andrew D. Campbell, et al. “Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.Pediatr Blood Cancer 70, no. 1 (January 2023): e29961. https://doi.org/10.1002/pbc.29961.
Hulbert ML, Manwani D, Meier ER, Alvarez OA, Brown RC, Callaghan MU, et al. Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer. 2023 Jan;70(1):e29961.
Hulbert, Monica L., et al. “Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.Pediatr Blood Cancer, vol. 70, no. 1, Jan. 2023, p. e29961. Pubmed, doi:10.1002/pbc.29961.
Hulbert ML, Manwani D, Meier ER, Alvarez OA, Brown RC, Callaghan MU, Campbell AD, Coates TD, Frei-Jones MJ, Hankins JS, Heeney MM, Hsu LL, Lebensburger JD, Quinn CT, Shah N, Smith-Whitley K, Thornburg C, Kanter J. Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer. 2023 Jan;70(1):e29961.
Journal cover image

Published In

Pediatr Blood Cancer

DOI

EISSN

1545-5017

Publication Date

January 2023

Volume

70

Issue

1

Start / End Page

e29961

Location

United States

Related Subject Headings

  • Oncology & Carcinogenesis
  • Humans
  • Consensus
  • Child
  • Anemia, Sickle Cell
  • 3213 Paediatrics
  • 3211 Oncology and carcinogenesis
  • 1114 Paediatrics and Reproductive Medicine
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences