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Factors associated with African Americans' enrollment in a national cancer genetics registry.

Publication ,  Journal Article
Skinner, CS; Schildkraut, JM; Calingaert, B; Hoyo, C; Crankshaw, SS; Fish, L; Susswein, L; Jasper, C; Reid, L
Published in: Community Genet
2008

This study explored whether reactions to the Cancer Genetics Network (CGN) or CGN enrollment differed by receipt of a standard informational brochure versus a targeted version addressing factors previously associated with African Americans' health behavior decisions and research participation. The 262 participants, identified through tumor registries or clinic contacts, were mailed brochures and completed phone interviews. When asked whether - based on the brochure - they were or were not 'leaning toward' CGN enrollment, about 75% of both standard and targeted groups reported leaning toward. When given the opportunity at the end of the interview, 68% enrolled in the CGN. Trust was strongly related to enrollment. Less education, less satisfaction with cancer care, and individualistic rather than collective orientation were associated with lower trust. Education was also bivariately associated with enrollment, but mediation analysis indicated that the operational mechanism of education's influence on enrollment was through trust.

Duke Scholars

Published In

Community Genet

DOI

EISSN

1422-2833

Publication Date

2008

Volume

11

Issue

4

Start / End Page

224 / 233

Location

Switzerland

Related Subject Headings

  • Trust
  • Registries
  • Patient Participation
  • Neoplasms
  • Middle Aged
  • Medical Oncology
  • Male
  • Humans
  • Genetics & Heredity
  • Genetic Research
 

Citation

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Skinner, C. S., Schildkraut, J. M., Calingaert, B., Hoyo, C., Crankshaw, S. S., Fish, L., … Reid, L. (2008). Factors associated with African Americans' enrollment in a national cancer genetics registry. Community Genet, 11(4), 224–233. https://doi.org/10.1159/000116883
Skinner, C. S., J. M. Schildkraut, B. Calingaert, C. Hoyo, S. S. Crankshaw, L. Fish, L. Susswein, C. Jasper, and L. Reid. “Factors associated with African Americans' enrollment in a national cancer genetics registry.Community Genet 11, no. 4 (2008): 224–33. https://doi.org/10.1159/000116883.
Skinner CS, Schildkraut JM, Calingaert B, Hoyo C, Crankshaw SS, Fish L, et al. Factors associated with African Americans' enrollment in a national cancer genetics registry. Community Genet. 2008;11(4):224–33.
Skinner, C. S., et al. “Factors associated with African Americans' enrollment in a national cancer genetics registry.Community Genet, vol. 11, no. 4, 2008, pp. 224–33. Pubmed, doi:10.1159/000116883.
Skinner CS, Schildkraut JM, Calingaert B, Hoyo C, Crankshaw SS, Fish L, Susswein L, Jasper C, Reid L. Factors associated with African Americans' enrollment in a national cancer genetics registry. Community Genet. 2008;11(4):224–233.

Published In

Community Genet

DOI

EISSN

1422-2833

Publication Date

2008

Volume

11

Issue

4

Start / End Page

224 / 233

Location

Switzerland

Related Subject Headings

  • Trust
  • Registries
  • Patient Participation
  • Neoplasms
  • Middle Aged
  • Medical Oncology
  • Male
  • Humans
  • Genetics & Heredity
  • Genetic Research