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Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population.

Publication ,  Journal Article
Pasquali, SK; Jacobs, JP; Shook, GJ; O'Brien, SM; Hall, M; Jacobs, ML; Welke, KF; Gaynor, JW; Peterson, ED; Shah, SS; Li, JS
Published in: Am Heart J
December 2010

BACKGROUND: The use of clinical registries and administrative data sets in pediatric cardiovascular research has become increasingly common. However, this approach is limited by relatively few existing datasets, each of which contain limited data, and do not communicate with one another. We describe the implementation and validation of methodology using indirect patient identifiers to link The Society of Thoracic Surgeons Congenital Heart Surgery (STS-CHS) Database to The Pediatric Health Information Systems (PHIS) Database (a pediatric administrative database). METHODS: Centers submitting data to STS-CHS and PHIS during 2004 to 2008 were included (n=30). Both data sets were limited to patients 0 to 18 years old undergoing cardiac surgery. An exact match was defined as an exact match on each of the following: date of birth, date of admission, date of discharge, sex, and center. Likely matches were defined as an exact match for all variables except ±1 day for one of the date variables. RESULTS: Of 45,830 STS-CHS records, 87.4% matched to PHIS using the exact match criteria and 90.3% using the exact or likely match criteria. Validation in a subset of patients revealed that 100% of exact and likely matches were true matches. CONCLUSIONS: This analysis demonstrates that indirect identifiers can be used to create high-quality link between a clinical registry and administrative data set in the congenital heart surgery population. This methodology, which can also be applied to other data sets, allows researchers to capitalize on the strengths of both types of data and expands the pool of data available to answer important clinical questions.

Duke Scholars

Published In

Am Heart J

DOI

EISSN

1097-6744

Publication Date

December 2010

Volume

160

Issue

6

Start / End Page

1099 / 1104

Location

United States

Related Subject Headings

  • United States
  • Retrospective Studies
  • Registries
  • Patient Discharge
  • Male
  • Infant, Newborn
  • Infant
  • Humans
  • Hospital Records
  • Heart Defects, Congenital
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Pasquali, S. K., Jacobs, J. P., Shook, G. J., O’Brien, S. M., Hall, M., Jacobs, M. L., … Li, J. S. (2010). Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J, 160(6), 1099–1104. https://doi.org/10.1016/j.ahj.2010.08.010
Pasquali, Sara K., Jeffrey P. Jacobs, Gregory J. Shook, Sean M. O’Brien, Matthew Hall, Marshall L. Jacobs, Karl F. Welke, et al. “Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population.Am Heart J 160, no. 6 (December 2010): 1099–1104. https://doi.org/10.1016/j.ahj.2010.08.010.
Pasquali SK, Jacobs JP, Shook GJ, O’Brien SM, Hall M, Jacobs ML, et al. Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J. 2010 Dec;160(6):1099–104.
Pasquali, Sara K., et al. “Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population.Am Heart J, vol. 160, no. 6, Dec. 2010, pp. 1099–104. Pubmed, doi:10.1016/j.ahj.2010.08.010.
Pasquali SK, Jacobs JP, Shook GJ, O’Brien SM, Hall M, Jacobs ML, Welke KF, Gaynor JW, Peterson ED, Shah SS, Li JS. Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J. 2010 Dec;160(6):1099–1104.
Journal cover image

Published In

Am Heart J

DOI

EISSN

1097-6744

Publication Date

December 2010

Volume

160

Issue

6

Start / End Page

1099 / 1104

Location

United States

Related Subject Headings

  • United States
  • Retrospective Studies
  • Registries
  • Patient Discharge
  • Male
  • Infant, Newborn
  • Infant
  • Humans
  • Hospital Records
  • Heart Defects, Congenital