Modifiable barriers to enrollment in American ALS research studies.
Publication
, Journal Article
Bedlack, RS; Wicks, P; Heywood, J; Kasarskis, E
Published in: Amyotroph Lateral Scler
December 2010
Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.
Duke Scholars
Altmetric Attention Stats
Dimensions Citation Stats
Published In
Amyotroph Lateral Scler
DOI
EISSN
1471-180X
Publication Date
December 2010
Volume
11
Issue
6
Start / End Page
502 / 507
Location
England
Related Subject Headings
- Patient Selection
- Neurology & Neurosurgery
- Internet
- Humans
- Data Collection
- Clinical Trials as Topic
- Biomedical Research
- Amyotrophic Lateral Sclerosis
- 1702 Cognitive Sciences
- 1109 Neurosciences
Citation
APA
Chicago
ICMJE
MLA
NLM
Bedlack, R. S., Wicks, P., Heywood, J., & Kasarskis, E. (2010). Modifiable barriers to enrollment in American ALS research studies. Amyotroph Lateral Scler, 11(6), 502–507. https://doi.org/10.3109/17482968.2010.484494
Bedlack, Richard S., Paul Wicks, James Heywood, and Edward Kasarskis. “Modifiable barriers to enrollment in American ALS research studies.” Amyotroph Lateral Scler 11, no. 6 (December 2010): 502–7. https://doi.org/10.3109/17482968.2010.484494.
Bedlack RS, Wicks P, Heywood J, Kasarskis E. Modifiable barriers to enrollment in American ALS research studies. Amyotroph Lateral Scler. 2010 Dec;11(6):502–7.
Bedlack, Richard S., et al. “Modifiable barriers to enrollment in American ALS research studies.” Amyotroph Lateral Scler, vol. 11, no. 6, Dec. 2010, pp. 502–07. Pubmed, doi:10.3109/17482968.2010.484494.
Bedlack RS, Wicks P, Heywood J, Kasarskis E. Modifiable barriers to enrollment in American ALS research studies. Amyotroph Lateral Scler. 2010 Dec;11(6):502–507.
Published In
Amyotroph Lateral Scler
DOI
EISSN
1471-180X
Publication Date
December 2010
Volume
11
Issue
6
Start / End Page
502 / 507
Location
England
Related Subject Headings
- Patient Selection
- Neurology & Neurosurgery
- Internet
- Humans
- Data Collection
- Clinical Trials as Topic
- Biomedical Research
- Amyotrophic Lateral Sclerosis
- 1702 Cognitive Sciences
- 1109 Neurosciences