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Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making.

Publication ,  Journal Article
Miller, VA; Reynolds, WW; Ittenbach, RF; Luce, MF; Beauchamp, TL; Nelson, RM
Published in: Journal of empirical research on human research ethics : JERHRE
September 2009

RELIABLE AND VALID MEASURES OF RELEVANT constructs are critical in the developing field of the empirical study of research ethics. The early phases of scale development for such constructs can be complex. We describe the methodological challenges of construct definition and operationalization and how we addressed them in our study to develop a measure of perception of voluntariness. We also briefly present our conceptual approach to the construct of voluntariness, which we defined as the perception of control over decision making. Our multifaceted approach to scale development ensured that we would develop a construct definition of sufficient breadth and depth, that our new measure of voluntariness would be applicable across disciplines, and that there was a clear link between our construct definition and items. The strategies discussed here can be adapted by other researchers who are considering a scale development study related to the empirical study of ethics.

Duke Scholars

Published In

Journal of empirical research on human research ethics : JERHRE

DOI

EISSN

1556-2654

ISSN

1556-2646

Publication Date

September 2009

Volume

4

Issue

3

Start / End Page

21 / 31

Related Subject Headings

  • Volunteers
  • Therapies, Investigational
  • Surveys and Questionnaires
  • Perception
  • Patient Participation
  • Parents
  • Humans
  • Ethics, Research
  • Decision Making
  • Child
 

Citation

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Chicago
ICMJE
MLA
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Miller, V. A., Reynolds, W. W., Ittenbach, R. F., Luce, M. F., Beauchamp, T. L., & Nelson, R. M. (2009). Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making. Journal of Empirical Research on Human Research Ethics : JERHRE, 4(3), 21–31. https://doi.org/10.1525/jer.2009.4.3.21
Miller, Victoria A., William W. Reynolds, Richard F. Ittenbach, Mary Frances Luce, Tom L. Beauchamp, and Robert M. Nelson. “Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making.Journal of Empirical Research on Human Research Ethics : JERHRE 4, no. 3 (September 2009): 21–31. https://doi.org/10.1525/jer.2009.4.3.21.
Miller VA, Reynolds WW, Ittenbach RF, Luce MF, Beauchamp TL, Nelson RM. Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making. Journal of empirical research on human research ethics : JERHRE. 2009 Sep;4(3):21–31.
Miller, Victoria A., et al. “Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making.Journal of Empirical Research on Human Research Ethics : JERHRE, vol. 4, no. 3, Sept. 2009, pp. 21–31. Epmc, doi:10.1525/jer.2009.4.3.21.
Miller VA, Reynolds WW, Ittenbach RF, Luce MF, Beauchamp TL, Nelson RM. Challenges in measuring a new construct: perception of voluntariness for research and treatment decision making. Journal of empirical research on human research ethics : JERHRE. 2009 Sep;4(3):21–31.
Journal cover image

Published In

Journal of empirical research on human research ethics : JERHRE

DOI

EISSN

1556-2654

ISSN

1556-2646

Publication Date

September 2009

Volume

4

Issue

3

Start / End Page

21 / 31

Related Subject Headings

  • Volunteers
  • Therapies, Investigational
  • Surveys and Questionnaires
  • Perception
  • Patient Participation
  • Parents
  • Humans
  • Ethics, Research
  • Decision Making
  • Child