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Issues affecting minority participation in research studies of Alzheimer disease.

Publication ,  Journal Article
Welsh, KA; Ballard, E; Nash, F; Raiford, K; Harrell, L
Published in: Alzheimer Dis Assoc Disord
1994

Despite the need for minority subjects in research studies of Alzheimer disease (AD), the successful involvement of minority patients in such studies has been difficult. This report discusses the many societal, economic, logistical, and attitudinal barriers that have inhibited the participation of minority patients and their families in medical research programs of AD. Special consideration is given to the unique cultural issues that arise when conducting studies involving African-American elderly subjects. Methods are considered for overcoming the barriers to participation gleaned from the national study CERAD (Consortium to Establish a Registry of Alzheimer Disease) and other investigations of AD. Recommendations are made for future research programs targeted on the specific health care needs and concerns of the minority segments of our population.

Duke Scholars

Published In

Alzheimer Dis Assoc Disord

ISSN

0893-0341

Publication Date

1994

Volume

8

Issue

Suppl. 4

Start / End Page

38 / 48

Location

United States

Related Subject Headings

  • United States
  • Trust
  • Therapeutic Human Experimentation
  • Socioeconomic Factors
  • Social Welfare
  • Social Values
  • Scientific Misconduct
  • Research Subjects
  • Research Design
  • Research
 

Citation

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MLA
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Welsh, K. A., Ballard, E., Nash, F., Raiford, K., & Harrell, L. (1994). Issues affecting minority participation in research studies of Alzheimer disease. Alzheimer Dis Assoc Disord, 8(Suppl. 4), 38–48.
Welsh, Kathleen A., Edna Ballard, Florence Nash, Kate Raiford, and Lindy Harrell. “Issues affecting minority participation in research studies of Alzheimer disease.Alzheimer Dis Assoc Disord 8, no. Suppl. 4 (1994): 38–48.
Welsh KA, Ballard E, Nash F, Raiford K, Harrell L. Issues affecting minority participation in research studies of Alzheimer disease. Alzheimer Dis Assoc Disord. 1994;8(Suppl. 4):38–48.
Welsh, Kathleen A., et al. “Issues affecting minority participation in research studies of Alzheimer disease.Alzheimer Dis Assoc Disord, vol. 8, no. Suppl. 4, 1994, pp. 38–48.
Welsh KA, Ballard E, Nash F, Raiford K, Harrell L. Issues affecting minority participation in research studies of Alzheimer disease. Alzheimer Dis Assoc Disord. 1994;8(Suppl. 4):38–48.

Published In

Alzheimer Dis Assoc Disord

ISSN

0893-0341

Publication Date

1994

Volume

8

Issue

Suppl. 4

Start / End Page

38 / 48

Location

United States

Related Subject Headings

  • United States
  • Trust
  • Therapeutic Human Experimentation
  • Socioeconomic Factors
  • Social Welfare
  • Social Values
  • Scientific Misconduct
  • Research Subjects
  • Research Design
  • Research