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Patient-directed data capture for clinical research: A pilot study testing two platforms.

Journal article Contemp Clin Trials · December 2025 BACKGROUND: Patient-directed data capture enables individuals to access and share their electronic health record (EHR) data, potentially supporting patient engagement while also reducing data fragmentation. Although many vendors offer patient-directed data ... Full text Link to item Cite

Chronic conditions, disability, and COVID-19 testing and vaccination: A national Rapid Acceleration of Diagnostics-Underserved Populations analysis.

Journal article Ann Epidemiol · November 2025 PURPOSE: We investigated the impact of chronic conditions on COVID-19 testing, vaccination, and related challenges, with a focus on the interaction effect of disability. METHODS: This cross-sectional, cross-consortium analysis was conducted as part of the ... Full text Link to item Cite

Asundexian or Apixaban in Patients With Atrial Fibrillation According to Prior Oral Anticoagulant Use: A Subgroup Analysis of the OCEANIC-AF Randomized Clinical Trial.

Journal article JAMA Cardiol · June 1, 2025 IMPORTANCE: In patients with atrial fibrillation (AF), oral anticoagulants (OACs) reduce the risk of stroke. OBJECTIVE: To investigate if patients with less prior OAC exposure respond differently to a new OAC than patients with more OAC exposure. DESIGN, S ... Full text Link to item Cite

Generating Risk Reduction Analytics in Complex Cardiac Care Environments (GR2AC3E): Risk Prediction in Congenital Catheterization

Journal article Journal of the Society for Cardiovascular Angiography and Interventions · March 1, 2025 Background: Traditional statistical methodologies inadequately capture the complexities of real-world practice to assess risk in congenital cardiac catheterization (CCC). Artificial intelligence and machine learning (ML) techniques are well-suited to analy ... Full text Cite

Real-world exploration of LDL-cholesterol management in patients with atherosclerotic cardiovascular disease.

Journal article Am Heart J · January 2025 BACKGROUND: Although guidelines recommend low-density lipoprotein cholesterol (LDL-C) to be < 70 mg/dL in patients with atherosclerotic cardiovascular disease (ASCVD), the rate of achieving this goal remains suboptimal. We sought to understand real world c ... Full text Link to item Cite

Association of race, ethnicity, and housing stability with COVID-19 testing method by investigators in underserved populations 2020-2023.

Journal article Front Public Health · 2025 BACKGROUND: Expanding SARS-CoV-2 testing was a critical part of community-based health efforts during the COVID-19 pandemic. In the RADx-UP consortium, a large NIH-funded network of community-engaged researchers in the United States, investigators were abl ... Full text Link to item Cite

Lipoprotein (a) Testing in Patients With Atherosclerotic Cardiovascular Disease in 5 Large US Health Systems.

Journal article J Am Heart Assoc · November 5, 2024 BACKGROUND: Lipoprotein (a) is an independent risk factor for atherosclerotic cardiovascular disease. However, lipoprotein (a) testing remains variable and it is unclear what factors influence testing and if testing changes clinical management. METHODS AND ... Full text Link to item Cite

Kidney and Cardiovascular Effectiveness of SGLT2 Inhibitors vs GLP-1 Receptor Agonists in Type 2 Diabetes.

Journal article J Am Coll Cardiol · August 20, 2024 BACKGROUND: Emerging data suggest that glucagon-like peptide-1 receptor agonists (GLP-1 RAs) improve kidney outcomes for people with type 2 diabetes (T2D). Direct comparisons of the kidney and cardiovascular effectiveness of GLP-1 RA with sodium-glucose co ... Full text Open Access Link to item Cite

Kidney and Cardiovascular Effectiveness of Empagliflozin Compared With Dipeptidyl Peptidase-4 Inhibitors in Patients With Type 2 Diabetes.

Journal article Am J Cardiol · June 15, 2024 Placebo-controlled trials of sodium-glucose co-transporter-2 inhibitors demonstrate kidney and cardiovascular benefits for patients with type 2 diabetes and chronic kidney disease (CKD). We used real-world data to compare the kidney and cardiovascular effe ... Full text Open Access Link to item Cite

Concordance With Screening and Treatment Guidelines for Chronic Kidney Disease in Type 2 Diabetes.

Journal article JAMA Netw Open · June 3, 2024 IMPORTANCE: Chronic kidney disease (CKD) is an often-asymptomatic complication of type 2 diabetes (T2D) that requires annual screening to diagnose. Patient-level factors linked to inadequate screening and treatment can inform implementation strategies to f ... Full text Open Access Link to item Cite

Exploring procedure duration and risk for serious adverse events during congenital cardiac catheterization.

Journal article BMJ surgery, interventions, & health technologies · January 2023 ObjectivesWhile procedure length is considered an important metric for cardiothoracic surgical procedures, the relationship between procedure length and adverse events (AEs) in congenital cardiac catheterizations has little published data availabl ... Full text Cite

Immunity to varicella, measles, and mumps in patients evaluated for lung transplantation.

Conference Am J Transplant · August 2021 Vaccine-preventable viral infections are associated with increased risk of morbidity and mortality in post-transplant patients on immunosuppression regimens. Therefore, we studied rates of immunity against vaccine-preventable viruses in lung transplantatio ... Full text Open Access Link to item Cite