Current Appointments & Affiliations
Bioinformatician, Senior
Duke Clinical Research Institute,
Institutes and Centers
Recent Publications
The CHI-RON Study: Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative.
Journal Article Med Care · February 1, 2026 BACKGROUND: The Congenital Heart Initiative-Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) study is a unique collaboration between the PCORnet and Congenital Heart Initiative (CHI), the first patient powered registry for adult congenit ... Full text Link to item CiteConcordance Between Survey and Electronic Health Record Data in the COVID-19 Citizen Science Study: Retrospective Cohort Analysis.
Journal Article JMIR Form Res · July 28, 2025 BACKGROUND: Real-world data reported by patients and extracted from electronic health records (EHRs) are increasingly leveraged for research, policy, and clinical decision-making. However, it is not always obvious the extent to which these 2 data sources a ... Full text Link to item CiteRecent Grants
Data Services for the Coordinating Center for PCORnet®"
ResearchStatistical Team · Awarded by Patient-Centered Outcomes Research Institute · 2025 - 2028Inclusion of Adults with CHD Living with Neurodevelopmental Disability in PCOR
ResearchBiostatistician · Awarded by Children's National Hospital · 2024 - 20272/2: Implementation of the American College of Physician guideline for low back pain using a Multidisciplinary Conservative Care (MC2) model at the initial point of patient contact: A cluster randomized trial (IMPACt-LBP)-DCC
ResearchInformatics Manager · Awarded by National Institutes of Health · 2021 - 2026View All Grants