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L. Ebony Boulware

Adjunct Professor in the Department of Medicine
Medicine, General Internal Medicine
200 Morris Street, 3rd Floor, Durham, NC 27701

Selected Publications


Comparative Effectiveness of Alternative Treatment Approaches to Secondary Hyperparathyroidism in Patients Receiving Maintenance Hemodialysis: An Observational Trial Emulation.

Journal Article Am J Kidney Dis · January 2024 RATIONALE & OBJECTIVE: Optimal approaches to treat secondary hyperparathyroidism (SHPT) in patients on maintenance hemodialysis (HD) have yet to be established in randomized controlled trials (RCTs). STUDY DESIGN: Two observational clinical trial emulation ... Full text Link to item Cite

Improving Health Equity in Living Donor Kidney Transplant: Application of an Implementation Science Framework.

Journal Article Transplant Proc · 2024 BACKGROUND: Interventions to improve racial equity in access to living donor kidney transplants (LDKT) have focused primarily on patients, ignoring the contributions of clinicians, transplant centers, and health system factors. Obtaining access to LDKT is ... Full text Link to item Cite

Association of Age and Gender With Concerns About Live Donor Kidney Transplantation Among Black Individuals.

Conference Transplant Proc · December 2023 Black individuals are less likely to receive live donor kidney transplantation (LDKT) compared to others. This may be partly related to their concerns about LDKT, which can vary based on age and gender. We conducted a cross-sectional, secondary analysis of ... Full text Link to item Cite

Racial Equity in Living Donor Kidney Transplant Centers, 2008-2018.

Journal Article JAMA Netw Open · December 1, 2023 IMPORTANCE: It is unclear whether center-level factors are associated with racial equity in living donor kidney transplant (LDKT). OBJECTIVE: To evaluate center-level factors and racial equity in LDKT during an 11-year time period. DESIGN, SETTING, AND PAR ... Full text Link to item Cite

Residential Structural Racism and Prevalence of Chronic Health Conditions.

Journal Article JAMA Netw Open · December 1, 2023 IMPORTANCE: Studies elucidating determinants of residential neighborhood-level health inequities are needed. OBJECTIVE: To quantify associations of structural racism indicators with neighborhood prevalence of chronic kidney disease (CKD), diabetes, and hyp ... Full text Link to item Cite

Racial Differences in Over-the-Counter Non-steroidal Anti-inflammatory Drug Use Among Individuals at Risk of Adverse Cardiovascular Events.

Journal Article J Racial Ethn Health Disparities · August 18, 2023 PURPOSE: Black Americans are disproportionately affected by adverse cardiovascular events (ACEs). Over-the-counter (OTC) non-steroidal anti-inflammatory drugs (NSAIDs) confer increased risk for ACEs, yet racial differences in the use of these products rema ... Full text Link to item Cite

Association of Acute Kidney Injury and Cardiovascular Disease Following Percutaneous Coronary Intervention: Assessment of Interactions by Race, Diabetes, and Kidney Function.

Journal Article Am J Kidney Dis · June 2023 RATIONALE & OBJECTIVE: Black patients and those with diabetes or reduced kidney function experience a disproportionate burden of acute kidney injury (AKI) and cardiovascular events. However, whether these factors modify the association between AKI and card ... Full text Link to item Cite

A comparison of deprivation indices and application to transplant populations.

Journal Article Am J Transplant · March 2023 The choice of deprivation index can influence conclusions drawn regarding the extent of deprivation within a community and the identification of the most deprived communities in the United States. This study aimed to determine the degree of correlation amo ... Full text Link to item Cite

Association of Perceived Neighborhood Health With Hypertension Self-care.

Journal Article JAMA Netw Open · February 1, 2023 IMPORTANCE: Hypertension self-management is recommended for optimal blood pressure (BP) control, but self-identified residential contextual factors that hinder hypertension self-care are understudied. OBJECTIVE: To quantify perceived neighborhood health an ... Full text Link to item Cite

Use of Race in Kidney Function Estimation: Lessons Learned and the Path Toward Health Justice.

Journal Article Annu Rev Med · January 27, 2023 In 2020, the nephrology community formally interrogated long-standing race-based clinical algorithms used in the field, including the kidney function estimation equations. A comprehensive understanding of the history of kidney function estimation and racia ... Full text Link to item Cite

Self-Perceived Barriers and Facilitators to Dietary Approaches to Stop Hypertension Diet Adherence Among Black Americans With Chronic Kidney Disease: A Qualitative Study.

Journal Article J Ren Nutr · January 2023 OBJECTIVE: The Dietary Approaches to Stop Hypertension (DASH) eating plan improves hypertension in Black individuals and is associated with favorable chronic kidney disease (CKD) outcomes. Yet, adherence to DASH is low among US adults in general, particula ... Full text Link to item Cite

Association of the Affordable Care Act on Access to and Outcomes After Kidney or Liver Transplant: A Transplant Registry Study.

Journal Article Transplant Proc · 2023 BACKGROUND: To evaluate the effect of the Affordable Care Act (ACA) Medicaid expansion on payor mix among patients on the kidney and liver transplant waiting list as well as waiting list and post-transplant outcomes. DESIGN: Using the Scientific Registry o ... Full text Link to item Cite

Experiential Learning Methods for Biostatistics Students: A Model for Embedding Student Interns in Academic Health Centers.

Journal Article Stat · December 2022 This manuscript describes an experiential learning program for future collaborative biostatisticians (CBs) developed within an academic medical center. The program is a collaborative effort between the Biostatistics, Epidemiology, and Research Design (BERD ... Full text Link to item Cite

Association between Gentrification and Health and Healthcare Utilization.

Journal Article J Urban Health · December 2022 There is tremendous interest in understanding how neighborhoods impact health by linking extant social and environmental drivers of health (SDOH) data with electronic health record (EHR) data. Studies quantifying such associations often use static neighbor ... Full text Link to item Cite

Comparative Effectiveness of Alternative Treatment Approaches to Secondary Hyperparathyroidism in Patients Receiving Maintenance Hemodialysis: An Observational Trial Emulation.

Journal Article Am J Kidney Dis · January 2024 RATIONALE & OBJECTIVE: Optimal approaches to treat secondary hyperparathyroidism (SHPT) in patients on maintenance hemodialysis (HD) have yet to be established in randomized controlled trials (RCTs). STUDY DESIGN: Two observational clinical trial emulation ... Full text Link to item Cite

Improving Health Equity in Living Donor Kidney Transplant: Application of an Implementation Science Framework.

Journal Article Transplant Proc · 2024 BACKGROUND: Interventions to improve racial equity in access to living donor kidney transplants (LDKT) have focused primarily on patients, ignoring the contributions of clinicians, transplant centers, and health system factors. Obtaining access to LDKT is ... Full text Link to item Cite

Association of Age and Gender With Concerns About Live Donor Kidney Transplantation Among Black Individuals.

Conference Transplant Proc · December 2023 Black individuals are less likely to receive live donor kidney transplantation (LDKT) compared to others. This may be partly related to their concerns about LDKT, which can vary based on age and gender. We conducted a cross-sectional, secondary analysis of ... Full text Link to item Cite

Racial Equity in Living Donor Kidney Transplant Centers, 2008-2018.

Journal Article JAMA Netw Open · December 1, 2023 IMPORTANCE: It is unclear whether center-level factors are associated with racial equity in living donor kidney transplant (LDKT). OBJECTIVE: To evaluate center-level factors and racial equity in LDKT during an 11-year time period. DESIGN, SETTING, AND PAR ... Full text Link to item Cite

Residential Structural Racism and Prevalence of Chronic Health Conditions.

Journal Article JAMA Netw Open · December 1, 2023 IMPORTANCE: Studies elucidating determinants of residential neighborhood-level health inequities are needed. OBJECTIVE: To quantify associations of structural racism indicators with neighborhood prevalence of chronic kidney disease (CKD), diabetes, and hyp ... Full text Link to item Cite

Racial Differences in Over-the-Counter Non-steroidal Anti-inflammatory Drug Use Among Individuals at Risk of Adverse Cardiovascular Events.

Journal Article J Racial Ethn Health Disparities · August 18, 2023 PURPOSE: Black Americans are disproportionately affected by adverse cardiovascular events (ACEs). Over-the-counter (OTC) non-steroidal anti-inflammatory drugs (NSAIDs) confer increased risk for ACEs, yet racial differences in the use of these products rema ... Full text Link to item Cite

Association of Acute Kidney Injury and Cardiovascular Disease Following Percutaneous Coronary Intervention: Assessment of Interactions by Race, Diabetes, and Kidney Function.

Journal Article Am J Kidney Dis · June 2023 RATIONALE & OBJECTIVE: Black patients and those with diabetes or reduced kidney function experience a disproportionate burden of acute kidney injury (AKI) and cardiovascular events. However, whether these factors modify the association between AKI and card ... Full text Link to item Cite

A comparison of deprivation indices and application to transplant populations.

Journal Article Am J Transplant · March 2023 The choice of deprivation index can influence conclusions drawn regarding the extent of deprivation within a community and the identification of the most deprived communities in the United States. This study aimed to determine the degree of correlation amo ... Full text Link to item Cite

Association of Perceived Neighborhood Health With Hypertension Self-care.

Journal Article JAMA Netw Open · February 1, 2023 IMPORTANCE: Hypertension self-management is recommended for optimal blood pressure (BP) control, but self-identified residential contextual factors that hinder hypertension self-care are understudied. OBJECTIVE: To quantify perceived neighborhood health an ... Full text Link to item Cite

Use of Race in Kidney Function Estimation: Lessons Learned and the Path Toward Health Justice.

Journal Article Annu Rev Med · January 27, 2023 In 2020, the nephrology community formally interrogated long-standing race-based clinical algorithms used in the field, including the kidney function estimation equations. A comprehensive understanding of the history of kidney function estimation and racia ... Full text Link to item Cite

Self-Perceived Barriers and Facilitators to Dietary Approaches to Stop Hypertension Diet Adherence Among Black Americans With Chronic Kidney Disease: A Qualitative Study.

Journal Article J Ren Nutr · January 2023 OBJECTIVE: The Dietary Approaches to Stop Hypertension (DASH) eating plan improves hypertension in Black individuals and is associated with favorable chronic kidney disease (CKD) outcomes. Yet, adherence to DASH is low among US adults in general, particula ... Full text Link to item Cite

Association of the Affordable Care Act on Access to and Outcomes After Kidney or Liver Transplant: A Transplant Registry Study.

Journal Article Transplant Proc · 2023 BACKGROUND: To evaluate the effect of the Affordable Care Act (ACA) Medicaid expansion on payor mix among patients on the kidney and liver transplant waiting list as well as waiting list and post-transplant outcomes. DESIGN: Using the Scientific Registry o ... Full text Link to item Cite

Experiential Learning Methods for Biostatistics Students: A Model for Embedding Student Interns in Academic Health Centers.

Journal Article Stat · December 2022 This manuscript describes an experiential learning program for future collaborative biostatisticians (CBs) developed within an academic medical center. The program is a collaborative effort between the Biostatistics, Epidemiology, and Research Design (BERD ... Full text Link to item Cite

Association between Gentrification and Health and Healthcare Utilization.

Journal Article J Urban Health · December 2022 There is tremendous interest in understanding how neighborhoods impact health by linking extant social and environmental drivers of health (SDOH) data with electronic health record (EHR) data. Studies quantifying such associations often use static neighbor ... Full text Link to item Cite

Development of an Administrative Data-Based Frailty Index for Older Adults Receiving Dialysis.

Journal Article Kidney360 · September 29, 2022 BACKGROUND: Frailty is present in ≥50% of older adults receiving dialysis. Our objective was to a develop an administrative data-based frailty index and assess the frailty index's predictive validity for mortality and future hospitalizations. METHODS: We u ... Full text Link to item Cite

Receipt and Sharing of Information to Improve Knowledge About Living Donor Kidney Transplant among Transplant Candidates with Advanced Chronic Kidney Disease.

Journal Article Prog Transplant · September 2022 Introduction: Knowledge about living donor kidney transplant (LDKT) is associated with greater access. Yet, little is known about factors associated with high living donor transplant knowledge. Research Questions: Is receipt of LDKT information from health ... Full text Link to item Cite

Primary Medical Care Integrated with Healthy Eating and Healthy Moving is Essential to Reduce Chronic Kidney Disease Progression.

Journal Article Am J Med · September 2022 Increasing adverse outcomes in patients with chronic kidney disease reflect growth of patients with early-stage chronic kidney disease and their increasing per population rates of these outcomes. Progression of chronic kidney disease, more than current lev ... Full text Link to item Cite

Decisional Conflict About Kidney Failure Treatment Modalities Among Adults With Advanced CKD.

Journal Article Kidney Med · September 2022 RATIONALE & OBJECTIVE: Choosing from multiple kidney failure treatment modalities can create decisional conflict, but little is known about this experience before decision implementation. We explored decisional conflict about treatment for kidney failure a ... Full text Link to item Cite

Geospatial Analysis of Organ Transplant Referral Regions.

Journal Article JAMA Netw Open · September 1, 2022 IMPORTANCE: System and center-level interventions to improve health equity in organ transplantation benefit from robust characterization of the referral population served by each transplant center. Transplant referral regions (TRRs) define geographic catch ... Full text Link to item Cite

Interdisciplinary Care and Preparedness for Kidney Failure Management in a High-Risk Population.

Journal Article Kidney Med · May 2022 RATIONALE & OBJECTIVE: Interdisciplinary care may improve health outcomes in patients with chronic kidney disease (CKD). Few studies have evaluated this model of health care delivery in racial and ethnic minorities. STUDY DESIGN: Retrospective cohort study ... Full text Link to item Cite

Observability and its impact on differential bias for clinical prediction models.

Journal Article J Am Med Inform Assoc · April 13, 2022 OBJECTIVE: Electronic health records have incomplete capture of patient outcomes. We consider the case when observability is differential across a predictor. Including such a predictor (sensitive variable) can lead to algorithmic bias, potentially exacerba ... Full text Link to item Cite

The Impact of COVID-19 on Patient, Family Member, and Stakeholder Research Engagement: Insights from the PREPARE NOW Study.

Journal Article J Gen Intern Med · April 2022 BACKGROUND: Little is known about the impact of COVID-19 on patient, family member, and stakeholder patient-centered outcomes research engagement. OBJECTIVE: To answer the research questions: (1) What is the impact of COVID-19 on the lives of patients with ... Full text Link to item Cite

Abstract EP66: Racial Differences In The Use Of Over-the-counter Non-steroidal Anti-inflammatory Drugs Among Individuals At Risk Of Adverse Cardiovascular Events

Journal Article Circulation · March 2022 Introduction: Over-the-counter (OTC) non-steroidal anti-inflammatory drugs (NSAIDs) are commonly used despite conferring risk for adverse cardiovascular events (ACEs). ACEs disproportionately affect B ... Full text Cite

A scoping review of inequities in access to organ transplant in the United States.

Journal Article Int J Equity Health · February 12, 2022 BACKGROUND: Organ transplant is the preferred treatment for end-stage organ disease, yet the majority of patients with end-stage organ disease are never placed on the transplant waiting list. Limited access to the transplant waiting list combined with the ... Full text Link to item Cite

Health inequities and the inappropriate use of race in nephrology.

Journal Article Nat Rev Nephrol · February 2022 Chronic kidney disease is an important clinical condition beset with racial and ethnic disparities that are associated with social inequities. Many medical schools and health centres across the USA have raised concerns about the use of race - a socio-polit ... Full text Link to item Cite

Use of Race in Kidney Research and Medicine: Concepts, Principles, and Practice.

Journal Article Clin J Am Soc Nephrol · February 2022 Black Americans and other racially and ethnically minoritized individuals are disproportionately burdened by higher morbidity and mortality from kidney disease when compared with their White peers. Yet, kidney researchers and clinicians have struggled to f ... Full text Link to item Cite

Disparities in Discussions about Kidney Replacement Therapy in CKD Care.

Journal Article Kidney360 · January 27, 2022 Participants who identified as female and Black reported more thorough discussions of dialysis than transplant.Participants with low incomes and education reported more thorough discussions of dialysis than transplant. ... Full text Link to item Cite

Renal Failure After Primary Organ Transplantation

Conference AMERICAN JOURNAL OF TRANSPLANTATION · 2022 Cite

Perceived Susceptibility to Chronic Kidney Disease and Hypertension Self-Management among Black and White Live Kidney Donors.

Journal Article Ethn Dis · 2022 BACKGROUND: Despite the societal benefits of live kidney donation, Black donors may be more likely than White donors to develop hypertension (HTN) and chronic kidney disease after donation. Among live kidney donors diagnosed with post-donation HTN, little ... Full text Link to item Cite

Psychosocial determinants of cardiovascular events among black Americans with chronic kidney disease or associated risk factors in the Jackson heart study.

Journal Article BMC Nephrol · November 11, 2021 BACKGROUND: Individuals with chronic kidney disease (CKD), hypertension (HTN), or diabetes mellitus (DM) are at increased risk for cardiovascular disease (CVD). The extent to which psychosocial factors are associated with increased CVD risk within these in ... Full text Link to item Cite

A Cascade of Structural Barriers Contributing to Racial Kidney Transplant Inequities.

Journal Article Adv Chronic Kidney Dis · November 2021 Stark racial disparities in access to and receipt of kidney transplantation, especially living donor and pre-emptive transplantation, have persisted despite decades of investigation and intervention. The causes of these disparities are complex, are inter-r ... Full text Link to item Cite

Multiple, objectively measured sleep dimensions including hypoxic burden and chronic kidney disease: findings from the Multi-Ethnic Study of Atherosclerosis.

Journal Article Thorax · July 2021 BACKGROUND: Poor sleep may contribute to chronic kidney disease (CKD) through several pathways, including hypoxia-induced systemic and intraglomerular pressure, inflammation, oxidative stress and endothelial dysfunction. However, few studies have investiga ... Full text Open Access Link to item Cite

Need for improvements in simultaneous heart-kidney allocation: The limitation of pretransplant glomerular filtration rate.

Journal Article Am J Transplant · July 2021 The incidence of simultaneous heart-kidney transplant (SHK) has increased markedly in the last 15 years. There are no universally agreed upon indications for SHK vs. heart alone (HA) transplant, and center evaluation processes vary widely. We utilized Scie ... Full text Link to item Cite

Dismantling structural racism as a root cause of racial disparities in COVID-19 and transplantation.

Journal Article Am J Transplant · July 2021 As the United States faces unparalleled challenges due to COVID-19, racial disparities in health and healthcare have once again taken center stage. If effective interventions to address racial disparities in transplantation, including those magnified by CO ... Full text Link to item Cite

Risks associated with continuation of potentially inappropriate antihypertensive medications in older adults receiving hemodialysis.

Journal Article BMC Nephrol · June 19, 2021 BACKGROUND AND OBJECTIVES: After dialysis initiation, older adults may experience orthostatic or post-dialysis hypotension. Some orthostasis-causing antihypertensives (i.e., central alpha agonists and alpha blockers), are considered potentially inappropria ... Full text Link to item Cite

Transplant social worker and donor financial assistance to increase living donor kidney transplants among African Americans: The TALKS Study, a randomized comparative effectiveness trial.

Journal Article Am J Transplant · June 2021 Lack of donors hinders living donor kidney transplantation (LDKT) for African Americans. We studied the effectiveness of a transplant social worker intervention (TALK SWI) alone or paired with living donor financial assistance to activate African Americans ... Full text Link to item Cite

Hypoglycemia Communication in Primary Care Visits for Patients with Diabetes.

Journal Article J Gen Intern Med · June 2021 BACKGROUND: Hypoglycemia is a common and serious adverse effect of diabetes treatment, especially for patients using insulin or insulin secretagogues. Guidelines recommend that these patients be assessed for interval hypoglycemic events at each clinical en ... Full text Link to item Cite

Racism and Kidney Health: Turning Equity Into a Reality.

Journal Article Am J Kidney Dis · June 2021 Kidney disease continues to manifest stark racial inequities in the United States, revealing the entrenchment of racism and bias within multiple facets of society, including in our institutions, practices, norms, and beliefs. In this perspective, we synthe ... Full text Link to item Cite

Diversifying the Research Workforce as a Programmatic Priority for a Career Development Award Program at Duke University.

Journal Article Acad Med · June 1, 2021 The National Institutes of Health (NIH) has prioritized efforts to increase diversity in the biomedical research workforce. NIH-funded institutional career development awards may serve as one mechanism to facilitate these efforts. In 2013, the Duke Univers ... Full text Link to item Cite

Abstract P112: Impact Of Look Back Period Length On Associations When Using Electronic Health Record Data For Epidemiologic Research

Conference Circulation · May 25, 2021 Introduction: Studies using electronic health record (EHR) data often have a limited number of years available for analysis. There is a trade off between the look back period length used to define bas ... Full text Cite

Abstract P195: The Association Of Psychological Stress Measures With Allostatic Load Among African Americans With Hypertension

Conference Circulation · May 25, 2021 African Americans experience disproportionate stress over the life course, which has been posited as an explanatory mechanism underlying racial disparities in CVD risk. We studied associations between measures of self-reported psychosocial stress a ... Full text Cite

Targeting Patient and Health System Barriers To Improve Rates of Hemodialysis Initiation with an Arteriovenous Access.

Journal Article Kidney360 · April 29, 2021 BACKGROUND: Guidelines recommend pre-emptive creation of arteriovenous (AV) access. However, <20% of US patients initiate hemodialysis (HD) with a functional AV access. We implemented a quality improvement (QI) program to improve pre-HD vascular access car ... Full text Link to item Cite

African Americans' discussions about living-donor kidney transplants with family or friends: Who, what, and why not?

Journal Article Clin Transplant · April 2021 BACKGROUND: Although discussions with family or friends can improve access to living-donor kidney transplantation (LDKT), they remain an understudied step in the LDKT process. METHODS: Among 300 African American transplant candidates, we examined how socio ... Full text Link to item Cite

The National COVID Cohort Collaborative (N3C): Rationale, design, infrastructure, and deployment.

Journal Article J Am Med Inform Assoc · March 1, 2021 OBJECTIVE: Coronavirus disease 2019 (COVID-19) poses societal challenges that require expeditious data and knowledge sharing. Though organizational clinical data are abundant, these are largely inaccessible to outside researchers. Statistical, machine lear ... Full text Link to item Cite

Impact of pre-dialysis nephrology care engagement and decision-making on provider and patient action toward permanent vascular access.

Journal Article BMC Nephrol · February 16, 2021 BACKGROUND: While catheters are often thought the result of emergency hemodialysis (HD) initiation among patients with little or no pre-dialysis nephrology care, the role of patient level of engagement in care and modality decision-making have not been ful ... Full text Link to item Cite

A Scoping Review of International Barriers to Asthma Medication Adherence Mapped to the Theoretical Domains Framework.

Journal Article J Allergy Clin Immunol Pract · January 2021 BACKGROUND: Internationally, adult asthma medication adherence rates are low. Studies characterizing variations in barriers by country are lacking. OBJECTIVE: To conduct a scoping review to characterize international variations in barriers to asthma medica ... Full text Link to item Cite

Statins and atherosclerotic cardiovascular outcomes in patients on incident dialysis and with atherosclerotic heart disease.

Journal Article Am Heart J · January 2021 UNLABELLED: Statins failed to reduce cardiovascular (CV) events in trials of patients on dialysis. However, trial populations used criteria that often excluded those with atherosclerotic heart disease (ASHD), in whom statins have the greatest benefit, and ... Full text Link to item Cite

The case for early identification and intervention of chronic kidney disease: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference.

Conference Kidney Int · January 2021 Chronic kidney disease (CKD) causes substantial global morbidity and increases cardiovascular and all-cause mortality. Unlike other chronic diseases with established strategies for screening, there has been no consensus on whether health systems and govern ... Full text Link to item Cite

Integrated Digital Health System Tools to Support Decision Making and Treatment Preparation in CKD: The PREPARE NOW Study.

Journal Article Kidney Med · 2021 RATIONALE & OBJECTIVE: Digital health system tools to support shared decision making and preparation for kidney replacement treatments for patients with chronic kidney disease (CKD) are needed. STUDY DESIGN: Descriptive study of the implementation of digit ... Full text Link to item Cite

AdheRence to Inhaled Corticosteroids in Asthma (ARICA): A Randomized Controlled Pilot Study

Conference AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE · 2021 Cite

Preferences for and Experiences of Shared and Informed Decision Making Among Patients Choosing Kidney Replacement Therapies in Nephrology Care.

Journal Article Kidney Med · 2021 RATIONALE & OBJECTIVE: Chronic kidney disease (CKD) can progress rapidly, and patients are often unprepared to make kidney failure treatment decisions. We aimed to better understand patients' preferences for and experiences of shared and informed decision ... Full text Link to item Cite

Democratizing health system data to impact social and environmental health contexts: a novel collaborative community data-sharing model.

Journal Article J Public Health (Oxf) · November 23, 2020 BACKGROUND: Community health data are infrequently viewed in the context of social and environmental health determinants. We developed a novel data-sharing model to democratize health system data and to facilitate community and population health improvemen ... Full text Link to item Cite

Trends in Mineral Metabolism Treatment Strategies in Patients Receiving Hemodialysis in the United States.

Journal Article Clin J Am Soc Nephrol · November 6, 2020 BACKGROUND AND OBJECTIVES: With multiple medications indicated for mineral metabolism, dialysis providers can apply various strategies to achieve target phosphate and parathyroid hormone (PTH) levels. We describe common prescribing patterns and practice va ... Full text Link to item Cite

Fragmentation of care as a barrier to optimal ESKD management.

Journal Article Semin Dial · November 2020 Caring for patients with end-stage kidney disease (ESKD) in the United States is challenging, due in part to the complex epidemiology of the disease's progression as well as the ways in which care is delivered. As CKD progresses toward ESKD, the number of ... Full text Link to item Cite

Engaging patients and family members to design and implement patient-centered kidney disease research.

Journal Article Res Involv Engagem · November 1, 2020 We need more research projects that partner and engage with patients and family members as team members. Doing this requires that patients and family members set research priorities and fully participate in research teams. Models for this patient and famil ... Full text Link to item Cite

Methods for training collaborative biostatisticians.

Journal Article J Clin Transl Sci · August 4, 2020 The emphasis on team science in clinical and translational research increases the importance of collaborative biostatisticians (CBs) in healthcare. Adequate training and development of CBs ensure appropriate conduct of robust and meaningful research and, t ... Full text Link to item Cite

National Trends in the Association of Race and Ethnicity With Predialysis Nephrology Care in the United States From 2005 to 2015.

Journal Article JAMA Netw Open · August 3, 2020 IMPORTANCE: Predialysis nephrology care is associated with better survival among patients with end-stage kidney disease. OBJECTIVE: To examine national trends in racial/ethnic disparities in receipt of predialysis nephrology care at least 1 year before dia ... Full text Link to item Cite

"I Wish Someone Had Told Me That Could Happen": A Thematic Analysis of Patients' Unexpected Experiences With End-Stage Kidney Disease Treatment.

Journal Article J Patient Exp · August 2020 BACKGROUND: Preparedness regarding prognosis and treatment options enables patients to cope with uncertainties, make value-based treatment decisions, and set treatment goals. Yet, little is known about the expectedness of end-stage kidney disease (ESKD) pa ... Full text Link to item Cite

Development of an electronic health records datamart to support clinical and population health research.

Journal Article J Clin Transl Sci · June 23, 2020 INTRODUCTION: Electronic health record (EHR) data have emerged as an important resource for population health and clinical research. There have been significant efforts to leverage EHR data for research; however, given data security concerns and the comple ... Full text Link to item Cite

A Patient Safety Educational Tool for Patients With Chronic Kidney Disease: Development and Usability Study.

Journal Article JMIR Form Res · May 28, 2020 BACKGROUND: Chronic kidney disease (CKD) is a health condition that threatens patient safety; however, few interventions provide patient-centered education about kidney-specific safety hazards. OBJECTIVE: We sought to develop and test the usability of a mo ... Full text Link to item Cite

Life Course Socioeconomic Status, Allostatic Load, and Kidney Health in Black Americans.

Journal Article Clin J Am Soc Nephrol · March 6, 2020 BACKGROUND AND OBJECTIVES: Low socioeconomic status confers unfavorable health, but the degree and mechanisms by which life course socioeconomic status affects kidney health is unclear. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: We examined the associa ... Full text Link to item Cite

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates.

Journal Article Clin Transplant · March 2020 We studied associations between perceived adequacy of live donor kidney transplant (LDKT) information or knowledge with pursuit of LDKT or receipt of live donor inquiries among 300 African American kidney transplant candidates. Participants reported via qu ... Full text Link to item Cite

In-Hospital Cardiac Arrest Resuscitation Practices and Outcomes in Maintenance Dialysis Patients.

Journal Article Clin J Am Soc Nephrol · February 7, 2020 BACKGROUND AND OBJECTIVES: Patients on maintenance dialysis with in-hospital cardiac arrest have been reported to have worse outcomes relative to those not on dialysis; however, it is unknown if poor outcomes are related to the quality of resuscitation. Us ... Full text Link to item Cite

Supporting researchers through full-service hotline and consultation services: Success in simplicity, customization, and staffing.

Journal Article J Clin Transl Sci · February 2020 Navigating the research domain at an academic medical center can be challenging, even for seasoned investigators. To address this, Duke University launched two initiatives: (1) a research navigation "hotline" to provide brief assistance with a variety of r ... Full text Open Access Link to item Cite

Hypertension Self-management in Socially Disadvantaged African Americans: the Achieving Blood Pressure Control Together (ACT) Randomized Comparative Effectiveness Trial.

Journal Article J Gen Intern Med · January 2020 BACKGROUND: Effective hypertension self-management interventions are needed for socially disadvantaged African Americans, who have poorer blood pressure (BP) control compared to others. OBJECTIVE: We studied the incremental effectiveness of contextually ad ... Full text Link to item Cite

Awareness and Discussions About Chronic Kidney Disease Among African-Americans with Chronic Kidney Disease and Hypertension: a Mixed Methods Study.

Journal Article J Gen Intern Med · January 2020 BACKGROUND: Routine primary care visits provide an educational opportunity for African-Americans with chronic kidney disease (CKD) and CKD risk factors such as hypertension. The nature of patient-physician discussions about CKD and their impact on CKD awar ... Full text Link to item Cite

Trust in American Medicine: A Call to Action for Health Care Professionals.

Journal Article Hastings Cent Rep · January 2020 Medical mistrust has a well-documented harmful impact on a range of patients' health behaviors and outcomes. It can have such egregious downstream effects on so many aspects of medicine-from clinical trial participation to health care use, timely screening ... Full text Link to item Cite

Perspectives of African-American Family Members about Kidney Failure Treatment.

Journal Article Nephrol Nurs J · 2020 Understanding African-American families' experiences with treatment for kidney failure is necessary for informing the delivery of family-centered care and the design of appropriate interventions. This qualitative study explored treatment-related questions, ... Link to item Cite

Multiyear Outcomes of a Population-Oriented Care Redesign in an Internal Medicine Residency Continuity Clinic.

Journal Article J Health Care Poor Underserved · 2020 The cornerstone of ambulatory care training for internal medicine residents is the continuity clinic, which often serves medically and psychosocially complex patients. We conducted and evaluated a population-oriented redesign to improve care for "high-need ... Full text Link to item Cite

Advanced CKD Care and Decision Making: Which Health Care Professionals Do Patients Rely on for CKD Treatment and Advice?

Journal Article Kidney Med · 2020 RATIONALE & OBJECTIVE: Chronic kidney disease (CKD) care is often fragmented across multiple health care providers. It is unclear whether patients rely mostly on their nephrologists or non-nephrologist providers for medical care, including CKD treatment an ... Full text Link to item Cite

Patient, Provider and Community Stakeholder Recommendations for Asthma Interventions in Adult High-Risk Populations

Conference AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE · 2020 Cite

Development of Risk Prediction Equations for Incident Chronic Kidney Disease.

Journal Article JAMA · December 3, 2019 IMPORTANCE: Early identification of individuals at elevated risk of developing chronic kidney disease (CKD) could improve clinical care through enhanced surveillance and better management of underlying health conditions. OBJECTIVE: To develop assessment to ... Full text Link to item Cite

Measuring Health.

Journal Article Prim Care · December 2019 Primary care clinicians care for an extremely diverse range of patients, and they therefore have numerous opportunities to measure and act to improve the health of various populations. In order to take effective actions to improve the health of their patie ... Full text Link to item Cite

APOL1 Kidney Risk Variants and Cardiovascular Disease: An Individual Participant Data Meta-Analysis.

Journal Article J Am Soc Nephrol · October 2019 BACKGROUND: Two coding variants in the apo L1 gene (APOL1) are strongly associated with kidney disease in blacks. Kidney disease itself increases the risk of cardiovascular disease, but whether these variants have an independent direct effect on the risk o ... Full text Link to item Cite

DASH Diet and Blood Pressure Among Black Americans With and Without CKD: The Jackson Heart Study.

Journal Article Am J Hypertens · September 24, 2019 BACKGROUND: The Dietary Approaches to Stop Hypertension (DASH) diet lowers blood pressure (BP) more effectively in blacks compared to other US racial subgroups. Considering chronic kidney disease (CKD) raises BP through complex mechanisms, DASH may affect ... Full text Link to item Cite

A Patient Safety Educational Tool for Patients With Chronic Kidney Disease: Development and Usability Study (Preprint)

Journal Article · September 4, 2019 BACKGROUNDChronic kidney disease (CKD) is a health condition that threatens patient safety; however, few interventions provide patient-centered education about kidney-specific safety haza ... Full text Cite

Sociodemographic and Kidney Disease Correlates of Nutrient Intakes Among Urban African Americans With Uncontrolled Hypertension.

Journal Article J Ren Nutr · September 2019 OBJECTIVE: The objective of this study was to determine the association between sociodemographic factors and intakes of 4 nutrients and associations between intakes and markers of kidney disease to identify opportunities to improve outcomes among clinicall ... Full text Link to item Cite

Facilitating translational team science: The project leader model.

Journal Article J Clin Transl Sci · August 2019 Project management expertise is employed across many professional sectors, including clinical research organizations, to ensure that efforts undertaken by the organization are completed on time and according to specifications and are capable of achieving t ... Full text Link to item Cite

Association of functional and structural social support with chronic kidney disease among African Americans: the Jackson Heart Study.

Journal Article BMC Nephrol · July 15, 2019 BACKGROUND: There is limited evidence on the relationship between social support and renal outcomes in African Americans. We sought to determine the association of social support with prevalent chronic kidney disease (CKD) and kidney function decline in an ... Full text Link to item Cite

Modifiers of Plasma 25-Hydroxyvitamin D and Chronic Kidney Disease Outcomes in Black Americans: The Jackson Heart Study.

Internet Publication · June 1, 2019 BACKGROUND: 25-hydroxyvitamin D [25(OH)D] is lower in black compared with white Americans but is not consistently associated with outcomes in this group, possibly due to genetic and other biological differences. We examined the association of plasma 25(OH) ... Full text Open Access Link to item Cite

Addressing Diabetes and Poorly Controlled Hypertension: Pragmatic mHealth Self-Management Intervention.

Journal Article J Med Internet Res · April 9, 2019 BACKGROUND: Patients with diabetes and poorly controlled hypertension are at increased risk for adverse renal and cardiovascular outcomes. Identifying these patients early and addressing modifiable risk factors is central to delaying renal complications su ... Full text Open Access Link to item Cite

A Systematic Review of Patient- and Family-Level Inhaled Corticosteroid Adherence Interventions in Black/African Americans.

Journal Article J Allergy Clin Immunol Pract · April 2019 BACKGROUND: Inhaled corticosteroid (ICS) adherence rates are suboptimal among adult black/African Americans. Comprehensive studies characterizing the effectiveness and the methodological approaches to the development of interventions to improve ICS adheren ... Full text Link to item Cite

Who Will Drive the Change? Democratizing Health Data.

Journal Article Am J Public Health · April 2019 Full text Link to item Cite

Development of a Telehealth Intervention to Improve Access to Live Donor Kidney Transplantation.

Journal Article Transplant Proc · April 2019 BACKGROUND: Live donor kidney transplantation (LDKT) is underutilized by patients with end-stage kidney disease due to knowledge, communication, and logistical barriers. MATERIAL AND METHODS: The Talking About Live Kidney Donation Social Worker Interventio ... Full text Link to item Cite

Abstract 017: Impact of Gentrification on Cardiovascular Disease Surveillance Using Data from the Electronic Health Record

Conference Circulation · March 5, 2019 Introduction: Current static approaches of CVD surveillance may not capture the true health of neighborhoods as the influx of younger, healthier, and wealthier individuals (i.e., gentrification) can i ... Full text Cite

Evaluation of Allostatic Load as a Mediator of Sleep and Kidney Outcomes in Black Americans.

Journal Article Kidney Int Rep · March 2019 INTRODUCTION: Poor sleep associates with adverse chronic kidney disease (CKD) outcomes yet the biological mechanisms underlying this relation remain unclear. One proposed mechanism is via allostatic load, a cumulative biologic measure of stress. METHODS: U ... Full text Open Access Link to item Cite

Low use of routine medical care among African Americans with high CKD risk: the Jackson Heart Study.

Journal Article BMC Nephrol · January 10, 2019 BACKGROUND: Use of routine medical care (RMC) is advocated to address ethnic/racial disparities in chronic kidney disease (CKD) risks, but use is less frequent among African Americans. Factors associated with low RMC use among African Americans at risk of ... Full text Open Access Link to item Cite

Adiposity and risk of decline in glomerular filtration rate: meta-analysis of individual participant data in a global consortium.

Journal Article BMJ · January 10, 2019 OBJECTIVE: To evaluate the associations between adiposity measures (body mass index, waist circumference, and waist-to-height ratio) with decline in glomerular filtration rate (GFR) and with all cause mortality. DESIGN: Individual participant data meta-ana ... Full text Link to item Cite

Dietary Phosphorus and Ambulatory Blood Pressure in African Americans: The Jackson Heart Study.

Journal Article Am J Hypertens · January 1, 2019 BACKGROUND: Higher dietary phosphorus is associated with left ventricular hypertrophy and mortality, which are blood pressure (BP)-related outcomes. For this reason, we hypothesized that dietary phosphorus may be associated with adverse clinic and ambulato ... Full text Link to item Cite

AdheRence to Inhaled Corticosteroids in Asthma (ARICA): Intervention Development

Conference AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE · January 1, 2019 Link to item Cite

Family Members' Experiences With Dialysis and Kidney Transplantation.

Journal Article Kidney Med · 2019 RATIONALE & OBJECTIVE: Understanding whether family members' experiences with patients' treatment for end-stage kidney disease (ESKD) were expected could guide the development of family-centered interventions that enhance the preparedness of patients and t ... Full text Link to item Cite

Leveraging Delivery of Blood Pressure Control Interventions among Low-income African American Adults: Opportunities to Increase Social Support and Produce Family-level Behavior Change.

Journal Article Ethn Dis · 2019 PURPOSE: Few family-oriented cardiovascular risk reduction interventions exist that leverage the home environment to produce health behavior change among multiple family members. We identified opportunities to adapt disease self-management interventions in ... Full text Link to item Cite

Trends in African Americans' Attitudes and Behaviors About Living Donor Kidney Transplantation.

Journal Article Prog Transplant · December 2018 BACKGROUND: Due to marginal efforts to increase living donor kidney transplantation, it is unclear whether interventions to improve African Americans' interest and pursuit of living donation should be tailored to address patients' exposure to or familiarit ... Full text Link to item Cite

Perfluorinated Chemicals as Emerging Environmental Threats to Kidney Health: A Scoping Review.

Journal Article Clin J Am Soc Nephrol · October 8, 2018 BACKGROUND AND OBJECTIVES: Per- and polyfluoroalkyl substances (PFASs) are a large group of manufactured nonbiodegradable compounds. Despite increasing awareness as global pollutants, the impact of PFAS exposure on human health is not well understood, and ... Full text Link to item Cite

Putting patients at the center of kidney care transitions: PREPARE NOW, a cluster randomized controlled trial.

Journal Article Contemp Clin Trials · October 2018 UNLABELLED: Care for patients transitioning from chronic kidney disease to kidney failure often falls short of meeting patients' needs. The PREPARE NOW study is a cluster randomized controlled trial studying the effectiveness of a pragmatic health system i ... Full text Link to item Cite

Obesity and synergistic risk factors for chronic kidney disease in African American adults: the Jackson Heart Study.

Journal Article Nephrol Dial Transplant · June 1, 2018 BACKGROUND: African Americans are at high risk for chronic kidney disease (CKD). Obesity may increase the risk for CKD by exacerbating features of the metabolic syndrome and promoting glomerular hyperfiltration. Whether other factors also affecting these p ... Full text Link to item Cite

Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients.

Journal Article BMC Nephrol · May 3, 2018 BACKGROUND: African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial to provide preliminary evidence of the effect of informational decision support and donor financial assistance inte ... Full text Link to item Cite

End-stage renal disease treatment options education: What matters most to patients and families.

Journal Article Semin Dial · March 2018 Treatment modality education can offer many important benefits to patients and their families. Evidence suggests such education can increase use of home dialysis, reduce catheter use, decrease 90-day mortality, and increase transplantation. While these ben ... Full text Link to item Cite

Nondepressive Psychosocial Factors and CKD Outcomes in Black Americans.

Journal Article Clin J Am Soc Nephrol · February 7, 2018 BACKGROUND AND OBJECTIVES: Established risk factors for CKD do not fully account for risk of CKD in black Americans. We studied the association of nondepressive psychosocial factors with risk of CKD in the Jackson Heart Study. DESIGN, SETTING, PARTICIPANTS ... Full text Link to item Cite

Factors associated with reporting results for pulmonary clinical trials in ClinicalTrials.gov.

Journal Article Clin Trials · February 2018 Background/aims The Food and Drug Administration Amendments Act mandates that applicable clinical trials report basic summary results to the ClinicalTrials.gov database within 1 year of trial completion or termination. We aimed to determine the proportion ... Full text Link to item Cite

Association of Race and Ethnicity With Live Donor Kidney Transplantation in the United States From 1995 to 2014.

Journal Article JAMA · January 2, 2018 IMPORTANCE: Over the past 2 decades, there has been increased attention and effort to reduce disparities in live donor kidney transplantation (LDKT) for black, Hispanic, and Asian patients with end-stage kidney disease. The goal of this study was to invest ... Full text Link to item Cite

Understanding Family-Level Effects of Adult Chronic Disease Management Programs: Perceived Influences of Behavior Change on Adolescent Family Members' Health Behaviors Among Low-Income African Americans With Uncontrolled Hypertensions.

Journal Article Front Pediatr · 2018 Background: Despite improvements in cardiovascular disease (CVD) prevention and treatment, low-income African Americans experience disparities in CVD-related morbidity and mortality. Childhood obesity disparities and poor diet and physical activity behavio ... Full text Link to item Cite

Integration and expansion of palliative care work force.

Conference Journal of Clinical Oncology · November 1, 2017 126 Background: The specialty of Hospice and Palliative Medicine has grown out of the need for care of patients who are living longer with cancer and other serious illness and struggle with symptoms, decisions and care. Cancer pa ... Full text Cite

Hemodialysis Disparities in African Americans: The Deeply Integrated Concept of Race in the Social Fabric of Our Society.

Journal Article Semin Dial · May 2017 End-stage renal disease (ESRD) is one of the starkest examples of racial/ethnic disparities in health. Racial/ethnic minorities are 1.5 to nearly 4 times more likely than their non-Hispanic White counterparts to require renal replacement therapy (RRT), wit ... Full text Link to item Cite

Assessing electronic health record phenotypes against gold-standard diagnostic criteria for diabetes mellitus.

Journal Article J Am Med Inform Assoc · April 1, 2017 OBJECTIVE: We assessed the sensitivity and specificity of 8 electronic health record (EHR)-based phenotypes for diabetes mellitus against gold-standard American Diabetes Association (ADA) diagnostic criteria via chart review by clinical experts. MATERIALS ... Full text Link to item Cite

Protocol of the KTFT-TALK study to reduce racial disparities in kidney transplant evaluation and living donor kidney transplantation.

Journal Article Contemp Clin Trials · February 2017 Living donor kidney transplantation (LDKT) is the optimal treatment for end-stage kidney disease (ESKD). The evaluation process for a kidney transplant is complex, time consuming, and burdensome to the ESKD patient. Also, race disparities exist in rates of ... Full text Link to item Cite

Antihypertensive medications and risk of death and hospitalizations in US hemodialysis patients: Evidence from a cohort study to inform hypertension treatment practices.

Journal Article Medicine (Baltimore) · February 2017 Antihypertensive medications are commonly prescribed to hemodialysis patients but the optimal regimens to prevent morbidity and mortality are unknown. The goal of our study was to compare the association of routinely prescribed antihypertensive regimens wi ... Full text Link to item Cite

MyResearchHome@ Duke—launch and adoption of a portal for the research community.

Conference Journal of Clinical and Translational Science · January 9, 2017 Cite

Intravenous iron administration strategies and anemia management in hemodialysis patients.

Journal Article Nephrol Dial Transplant · January 1, 2017 BACKGROUND: The effect of maintenance intravenous (IV) iron administration on subsequent achievement of anemia management goals and mortality among patients recently initiating hemodialysis is unclear. METHODS: We performed an observational cohort study, i ... Full text Link to item Cite

Telehealth Applications to Enhance CKD Knowledge and Awareness Among Patients and Providers.

Journal Article Adv Chronic Kidney Dis · January 2017 CKD affects 13% of the US adult population, causes excess mortality, and is associated with significant sociodemographic disparities. Optimal CKD management slows progression of disease and reduces cardiovascular-related outcomes. Resources for patients an ... Full text Link to item Cite

Reducing Health Inequities in the U.S.: Recommendations From the NHLBI's Health Inequities Think Tank Meeting.

Journal Article J Am Coll Cardiol · August 2, 2016 The National, Heart, Lung, and Blood Institute convened a Think Tank meeting to obtain insight and recommendations regarding the objectives and design of the next generation of research aimed at reducing health inequities in the United States. The panel re ... Full text Link to item Cite

Risk Factors for Rapid Kidney Function Decline Among African Americans: The Jackson Heart Study (JHS).

Journal Article Am J Kidney Dis · August 2016 BACKGROUND: Racial differences in rapid kidney function decline exist, but less is known regarding factors associated with rapid decline among African Americans. Greater understanding of potentially modifiable risk factors for early kidney function loss ma ... Full text Link to item Cite

Hospital discharge communications during care transitions for patients with acute kidney injury: a cross-sectional study.

Journal Article BMC health services research · August 2016 BackgroundHigh quality hospital discharge communications about acute kidney injury (AKI) could facilitate continuity of care after hospital transitions and reduce patients' post-hospitalization health risks.MethodsWe characterized the pre ... Full text Open Access Cite

Reduced Racial Disparity in Kidney Transplant Outcomes in the United States from 1990 to 2012.

Journal Article J Am Soc Nephrol · August 2016 Earlier studies reported inferior outcomes among black compared with white kidney transplant (KT) recipients. We examined whether this disparity improved in recent decades. Using the Scientific Registry of Transplant Recipients and Cox regression models, w ... Full text Link to item Cite

Reaching for Health Equity and Social Justice in Baltimore: The Evolution of an Academic-Community Partnership and Conceptual Framework to Address Hypertension Disparities.

Journal Article Ethn Dis · July 21, 2016 Cardiovascular health disparities persist despite decades of recognition and the availability of evidence-based clinical and public health interventions. Racial and ethnic minorities and adults in urban and low-income communities are high-risk groups for u ... Full text Link to item Cite

Age, Race and Cardiovascular Outcomes in African American Veterans.

Journal Article Ethn Dis · July 21, 2016 BACKGROUND: In the general population, compared wtih their White peers, African Americans suffer premature all-cause and cardiovascular (CV) deaths, attributed in part to reduced access to care and lower socioeconomic status. Prior reports indicated younge ... Full text Link to item Cite

Patient Education and Support During CKD Transitions: When the Possible Becomes Probable.

Journal Article Adv Chronic Kidney Dis · July 2016 Patients transitioning from kidney disease to kidney failure require comprehensive patient-centered education and support. Efforts to prepare patients for this transition often fail to meet patients' needs due to uncertainty about which patients will progr ... Full text Link to item Cite

The Economic Burden of Chronic Kidney Disease and End-Stage Renal Disease.

Journal Article Semin Nephrol · July 2016 The growing prevalence and progression of chronic kidney disease (CKD) raises concerns about our capacity to manage its economic burden to patients, caregivers, and society. The societal direct and indirect costs of CKD and end-stage renal disease are subs ... Full text Link to item Cite

The OPTN Deceased Donor Potential Study: Implications for Policy and Practice.

Journal Article Am J Transplant · June 2016 The Organ Procurement and Transplantation Network (OPTN) Deceased Donor Potential Study, funded by the Health Resources and Services Administration, characterized the current pool of potential deceased donors and estimated changes through 2020. The goal wa ... Full text Link to item Cite

DEVELOPING A DATA-DRIVEN WORKFLOW FOR POPULATION HEALTH ROUNDING

Conference JOURNAL OF GENERAL INTERNAL MEDICINE · May 1, 2016 Link to item Cite

Educating Patients about CKD: The Path to Self-Management and Patient-Centered Care.

Journal Article Clin J Am Soc Nephrol · April 7, 2016 Patient education is associated with better patient outcomes and supported by international guidelines and organizations, but a range of barriers prevent widespread implementation of comprehensive education for people with progressive kidney disease, espec ... Full text Link to item Cite

Dramatic Improvements in Racial Disparities in Kidney Transplant Outcomes in the US

Journal Article AMERICAN JOURNAL OF TRANSPLANTATION · January 1, 2016 Link to item Cite

Primary Care: Medicine's Gordian Knot.

Journal Article Am J Med Sci · January 2016 Primary care is the cornerstone of effective and efficient healthcare systems. Patients prefer a trusted primary care provider to serve as the first contact for all of their healthcare questions, to help them make important health decisions, to help guide ... Full text Link to item Cite

Food Access, Chronic Kidney Disease, and Hypertension in the U.S.

Journal Article Am J Prev Med · December 2015 INTRODUCTION: Greater distance to full-service supermarkets and low income may impair access to healthy diets and contribute to chronic kidney disease (CKD) and hypertension. The study aim was to determine relationships among residence in a "food desert," ... Full text Link to item Cite

Association of Race With Mortality and Cardiovascular Events in a Large Cohort of US Veterans.

Journal Article Circulation · October 20, 2015 BACKGROUND: In the general population, blacks experience higher mortality than their white peers, attributed in part to their lower socioeconomic status, reduced access to care, and possibly intrinsic biological factors. Patients with kidney disease are a ... Full text Link to item Cite

The TALKS study to improve communication, logistical, and financial barriers to live donor kidney transplantation in African Americans: protocol of a randomized clinical trial.

Journal Article BMC Nephrol · October 9, 2015 BACKGROUND: Live donor kidney transplantation (LDKT), an optimal therapy for many patients with end-stage kidney disease, is underutilized, particularly by African Americans. Potential recipient difficulties initiating and sustaining conversations about LD ... Full text Open Access Link to item Cite

Effects of serum creatinine calibration on estimated renal function in african americans: the Jackson heart study.

Journal Article Am J Med Sci · May 2015 BACKGROUND: The calibration to isotope dilution mass spectrometry-traceable creatinine is essential for valid use of the new Chronic Kidney Disease Epidemiology Collaboration equation to estimate the glomerular filtration rate. METHODS: For 5,210 participa ... Full text Link to item Cite

Effect of intravenous iron use on hospitalizations in patients undergoing hemodialysis: a comparative effectiveness analysis from the DEcIDE-ESRD study.

Journal Article Nephrol Dial Transplant · April 2015 BACKGROUND: Intravenous iron use in hemodialysis patients has greatly increased over the last decade, despite limited studies on the safety of iron. METHODS: We studied the association of receipt of intravenous iron with hospitalizations in an incident coh ... Full text Link to item Cite

Specialist and primary care physicians' views on barriers to adequate preparation of patients for renal replacement therapy: a qualitative study.

Journal Article BMC Nephrol · March 28, 2015 BACKGROUND: Early preparation for renal replacement therapy (RRT) is recommended for patients with advanced chronic kidney disease (CKD), yet many patients initiate RRT urgently and/or are inadequately prepared. METHODS: We conducted audio-recorded, qualit ... Full text Open Access Link to item Cite

Implementation of management strategies for diabetes and hypertension: from local to global health in cardiovascular diseases.

Journal Article Glob Heart · March 2015 Diabetes and hypertension are chronic conditions that are growing in prevalence as major causal factors of cardiovascular disease (CVD). The need for chronic-illness surveillance, population-risk management, and successful treatment interventions are cruci ... Full text Link to item Cite

Cultural competence and perceptions of community health workers' effectiveness for reducing health care disparities.

Journal Article J Prim Care Community Health · January 2015 Featured Publication INTRODUCTION: Community health worker (CHW) interventions improve health outcomes of patients from underserved communities, but health professionals' perceptions of their effectiveness may impede integration of CHWs into health care delivery systems. Wheth ... Full text Link to item Cite

Reducing CKD risks among vulnerable populations in primary care.

Journal Article Adv Chronic Kidney Dis · January 2015 Ethnic/racial and socioeconomic status disparities in the health-care and clinical outcomes of patients with chronic kidney disease (CKD) are pervasive. The vast majority of care to decrease incidence of CKD risk and progression occurs in primary care sett ... Full text Link to item Cite

Perceived barriers and facilitators of using dietary modification for CKD prevention among African Americans of low socioeconomic status: a qualitative study.

Journal Article BMC Nephrol · December 6, 2014 BACKGROUND: Factors influencing the use of dietary interventions for modification of CKD risk among African Americans have not been well-explored. We assessed perceived barriers and facilitators of CKD prevention through dietary modifications among African ... Full text Link to item Cite

Intravenous iron exposure and mortality in patients on hemodialysis.

Journal Article Clin J Am Soc Nephrol · November 7, 2014 BACKGROUND AND OBJECTIVES: Clinical trials assessing effects of larger cumulative iron exposure with outcomes are lacking, and observational studies have been limited by assessment of short-term exposure only and/or failure to assess cause-specific mortali ... Full text Link to item Cite

Neighborhood socioeconomic status, race, and mortality in young adult dialysis patients.

Journal Article J Am Soc Nephrol · November 2014 Featured Publication Young blacks receiving dialysis have an increased risk of death compared with whites in the United States. Factors influencing this disparity among the young adult dialysis population have not been well explored. Our study examined the relation of neighbor ... Full text Link to item Cite

The last mile: translational research to improve CKD outcomes.

Journal Article Clin J Am Soc Nephrol · October 7, 2014 Featured Publication The National Institute of Diabetes and Digestive and Kidney Diseases-supported Kidney Research National Dialogue asked the scientific community to formulate and prioritize research objectives that would enhance understanding of kidney function and disease ... Full text Link to item Cite

The kidney research national dialogue: gearing up to move forward.

Journal Article Clin J Am Soc Nephrol · October 7, 2014 The National Institute of Diabetes and Digestive and Kidney Diseases-supported Kidney Research National Dialogue asked the scientific community to formulate and prioritize research objectives that would improve our understanding of kidney function and dise ... Full text Link to item Cite

An instrumental variable approach finds no associated harm or benefit with early dialysis initiation in the United States.

Journal Article Kidney Int · October 2014 The estimated glomerular filtration rate (eGFR) at dialysis initiation has been rising. Observational studies suggest harm, but may be confounded by unmeasured factors. As instrumental variable methods may be less biased, we performed a retrospective cohor ... Full text Link to item Cite

Concerns regarding the financial aspects of kidney transplantation: perspectives of pre-transplant patients and their family members.

Journal Article Clin Transplant · October 2014 Featured Publication BACKGROUND: African American and non-African American pre-transplant patients' and their families' concerns about the financial costs of kidney transplantation have not been well studied. METHODS: We conducted structured group interviews among pre-transpla ... Full text Link to item Cite

Troponin I and NT-proBNP and the association of systolic blood pressure with outcomes in incident hemodialysis patients: the Choices for Healthy Outcomes in Caring for ESRD (CHOICE) Study.

Journal Article Am J Kidney Dis · September 2014 BACKGROUND: There is uncertainty regarding treatment of hypertension in hemodialysis patients due to the observed J-shaped association between blood pressure (BP) and death. We hypothesized that this association reflects confounding by cardiovascular disea ... Full text Link to item Cite

Improving urban African Americans' blood pressure control through multi-level interventions in the Achieving Blood Pressure Control Together (ACT) study: a randomized clinical trial.

Journal Article Contemp Clin Trials · July 2014 Featured Publication BACKGROUND: Given their high rates of uncontrolled blood pressure, urban African Americans comprise a particularly vulnerable subgroup of persons with hypertension. Substantial evidence has demonstrated the important role of family and community support in ... Full text Link to item Cite

Comparative effectiveness of early versus conventional timing of dialysis initiation in advanced CKD.

Journal Article Am J Kidney Dis · May 2014 BACKGROUND: Previous observational studies examining outcomes associated with the timing of dialysis therapy initiation in the United States have often been limited by lead time and survivor bias. STUDY DESIGN: Retrospective cohort study comparing the effe ... Full text Link to item Cite

Disparities in the burden, outcomes, and care of chronic kidney disease.

Journal Article Curr Opin Nephrol Hypertens · May 2014 Featured Publication PURPOSE OF REVIEW: Racial, ethnic and socioeconomic disparities in chronic kidney disease (CKD) have been documented for decades, yet little progress has been made in mitigating them. Several recent studies offer new insights into the root causes of these ... Full text Link to item Cite

PCP'S FAMILIARITY, BELIEFS, AND PERCEIVED BARRIERS TO CKD GUIDELINES

Conference AMERICAN JOURNAL OF KIDNEY DISEASES · May 1, 2014 Featured Publication Link to item Cite

Primary care physicians' familiarity, beliefs, and perceived barriers to practice guidelines in non-diabetic CKD: a survey study.

Journal Article BMC Nephrol · April 22, 2014 BACKGROUND: Most non-dialysis dependent chronic kidney disease (CKD) patients are cared for by their primary care physicians (PCPs). Studies suggest many CKD patients receive suboptimal care. Recently, CKD clinical practice guidelines were updated with add ... Full text Link to item Cite

Primary care physicians' familiarity, beliefs, and perceived barriers to practice guidelines in non-diabetic CKD: A survey study

Journal Article BMC Nephrology · April 22, 2014 Background: Most non-dialysis dependent chronic kidney disease (CKD) patients are cared for by their primary care physicians (PCPs). Studies suggest many CKD patients receive suboptimal care. Recently, CKD clinical practice guidelines were updated with add ... Full text Cite

Predialysis systolic BP variability and outcomes in hemodialysis patients.

Journal Article J Am Soc Nephrol · April 2014 BP variability (BPV) is an important predictor of outcomes in the general population, but its association with clinical outcomes in hemodialysis patients is not clear. We identified 11,291 patients starting dialysis in 2003-2008 and followed them through D ... Full text Link to item Cite

RACIAL DISPARITIES IN THE PRIMARY CARE OF PATIENTS WITH CHRONIC KIDNEY DISEASE (CKD)

Conference JOURNAL OF GENERAL INTERNAL MEDICINE · April 1, 2014 Link to item Cite

Predialysis health, dialysis timing, and outcomes among older United States adults.

Journal Article J Am Soc Nephrol · February 2014 Featured Publication Studies of dialysis initiation timing have not accounted for predialysis clinical factors that could impact postdialysis outcomes. We examined the association of predialysis health with timing of dialysis initiation in older adult patients in the United St ... Full text Link to item Cite

Adapting hypertension self-management interventions to enhance their sustained effectiveness among urban African Americans.

Journal Article Fam Community Health · 2014 African Americans suffer disproportionately poor hypertension control despite the availability of efficacious interventions. Using principles of community-based participatory research and implementation science, we adapted established hypertension self-man ... Full text Link to item Cite

Racial disparities in kidney transplant and living donation

Chapter · January 1, 2014 In the US, racial–ethnic minorities experience disproportionately high rates of end-stage renal disease (ESRD) but are far less likely than their majority counterparts to receive kidney transplants, the optimal therapy for many patients with ESRD. Despite ... Full text Cite

Trends in anemia management in US hemodialysis patients 2004-2010.

Journal Article BMC Nephrol · December 1, 2013 BACKGROUND: There have been major changes in the management of anemia in US hemodialysis patients in recent years. We sought to determine the influence of clinical trial results, safety regulations, and changes in reimbursement policy on practice. METHODS: ... Full text Open Access Link to item Cite

Patterns in blood pressure medication use in US incident dialysis patients over the first 6 months.

Journal Article BMC Nephrol · November 12, 2013 BACKGROUND: Several observational studies have evaluated the effect of a single exposure window with blood pressure (BP) medications on outcomes in incident dialysis patients, but whether BP medication prescription patterns remain stable or a single exposu ... Full text Open Access Link to item Cite

Creating a transdisciplinary research center to reduce cardiovascular health disparities in Baltimore, Maryland: lessons learned.

Journal Article Am J Public Health · November 2013 Featured Publication Cardiovascular disease (CVD) disparities continue to have a negative impact on African Americans in the United States, largely because of uncontrolled hypertension. Despite the availability of evidence-based interventions, their use has not been translated ... Full text Link to item Cite

Comparison of life participation activities among adults treated by hemodialysis, peritoneal dialysis, and kidney transplantation: a systematic review.

Journal Article Am J Kidney Dis · November 2013 Featured Publication BACKGROUND: A comprehensive assessment of the association of patients' renal replacement therapy (RRT) modality with their participation in life activities (physical function, travel, recreation, freedom, and work) is needed. STUDY DESIGN: Systematic revie ... Full text Link to item Cite

Measure once, cut twice--adding patient-reported outcome measures to the electronic health record for comparative effectiveness research.

Journal Article J Clin Epidemiol · August 2013 Featured Publication OBJECTIVE: This article presents the current state of patient-reported outcome measures and explains new opportunities for leveraging the recent adoption of electronic health records to expand the application of patient-reported outcomes in both clinical c ... Full text Link to item Cite

Effectiveness of educational and social worker interventions to activate patients' discussion and pursuit of preemptive living donor kidney transplantation: a randomized controlled trial.

Journal Article Am J Kidney Dis · March 2013 Featured Publication BACKGROUND: Many patients with chronic kidney disease (CKD) have difficulty becoming actively engaged in the pursuit of preemptive living donor kidney transplantation. STUDY DESIGN: The Talking About Live Kidney Donation (TALK) Study was a randomized contr ... Full text Link to item Cite

Selecting renal replacement therapies: what do African American and non-African American patients and their families think others should know? A mixed methods study.

Journal Article BMC Nephrol · January 14, 2013 Featured Publication BACKGROUND: Little is known regarding the types of information African American and non-African American patients with chronic kidney disease (CKD) and their families need to inform renal replacement therapy (RRT) decisions. METHODS: In 20 structured group ... Full text Open Access Link to item Cite

The Talking about Live Kidney Donation (TALK) Social Worker Intervention: Putting it into Practice

Journal Article Journal of Nephrology Social Work · 2013 Live kidney transplantation (LKT) is underutilized among patients with kidney disease. Social workers may be particularly effective in helping patients and their families overcome barriers to considering and/or pursuing LKT because of their expertise in he ... Link to item Cite

Facilitators and barriers to hypertension self-management in urban African Americans: perspectives of patients and family members.

Journal Article Patient Prefer Adherence · 2013 Featured Publication INTRODUCTION: We aimed to inform the design of behavioral interventions by identifying patients' and their family members' perceived facilitators and barriers to hypertension self-management. MATERIALS AND METHODS: We conducted focus groups of African Amer ... Full text Open Access Link to item Cite

Measuring and explaining racial and ethnic differences in willingness to donate live kidneys in the United States.

Journal Article Clin Transplant · 2013 Featured Publication BACKGROUND: Reasons for US racial-ethnic minority ESRD patients' reported difficulties identifying live kidney donors are poorly understood. METHODS: We conducted a national study to develop scales measuring willingness to donate live kidneys among US adul ... Full text Link to item Cite

Comparative effectiveness research in kidney disease: a national priority.

Journal Article Am J Kidney Dis · January 2013 Featured Publication Full text Link to item Cite

Supratherapeutic dosing of acetaminophen among hospitalized patients.

Journal Article Arch Intern Med · December 10, 2012 BACKGROUND: We investigated acetaminophen use and identify factors contributing to supratherapeutic dosing of acetaminophen in hospitalized patients. METHODS: We retrospectively reviewed the electronic health records of adult patients who were admitted to ... Full text Link to item Cite

Comparative effectiveness studies to improve clinical outcomes in end stage renal disease: the DEcIDE patient outcomes in end stage renal disease study.

Journal Article BMC Nephrol · December 6, 2012 Featured Publication BACKGROUND: Evidence is lacking to inform providers' and patients' decisions about many common treatment strategies for patients with end stage renal disease (ESRD). METHODS/DESIGN: The DEcIDE Patient Outcomes in ESRD Study is funded by the United States ( ... Full text Open Access Link to item Cite

Development of a decision aid to inform patients' and families' renal replacement therapy selection decisions.

Journal Article BMC Med Inform Decis Mak · December 1, 2012 Featured Publication BACKGROUND: Few educational resources have been developed to inform patients' renal replacement therapy (RRT) selection decisions. Patients progressing toward end stage renal disease (ESRD) must decide among multiple treatment options with varying characte ... Full text Open Access Link to item Cite

Challenges perceived by primary care providers to educating patients about chronic kidney disease.

Journal Article J Ren Care · December 2012 Featured Publication OBJECTIVE: To identify primary care providers' (PCPs) perceived barriers to educating patients about chronic kidney disease (CKD) during routine clinical visits. METHODS: We conducted three focus groups of eighteen PCPs in Baltimore, Maryland (MD), USA. Fo ... Full text Link to item Cite

Feasibility and acceptability of the TALK social worker intervention to improve live kidney transplantation.

Journal Article Health Soc Work · November 2012 Featured Publication Live kidney transplantation (LKT) is underused by patients with end-stage renal disease. Easily implementable and effective interventions to improve patients' early consideration of LKT are needed. The Talking About Live Kidney Donation (TALK) social worke ... Full text Link to item Cite

The providing resources to enhance African American patients' readiness to make decisions about kidney disease (PREPARED) study: protocol of a randomized controlled trial.

Journal Article BMC Nephrol · October 12, 2012 Featured Publication BACKGROUND: Living related kidney transplantation (LRT) is underutilized, particularly among African Americans. The effectiveness of informational and financial interventions to enhance informed decision-making among African Americans with end stage renal ... Full text Open Access Link to item Cite

Setting an agenda for comparative effectiveness systematic reviews in CKD care.

Journal Article BMC Nephrol · August 1, 2012 Featured Publication Systematic reviews comparing the effectiveness of strategies to prevent, detect, and treat chronic kidney disease are needed to inform patient care. We engaged stakeholders in the chronic kidney disease community to prioritize topics for future comparative ... Full text Open Access Link to item Cite

Understanding and overcoming barriers to living kidney donation among racial and ethnic minorities in the United States.

Journal Article Adv Chronic Kidney Dis · July 2012 Featured Publication In the United States, racial-ethnic minorities experience disproportionately high rates of ESRD, but they are substantially less likely to receive living donor kidney transplants (LDKT) compared with their majority counterparts. Minorities may encounter ba ... Full text Link to item Cite

African American and non-African American patients' and families' decision making about renal replacement therapies.

Journal Article Qual Health Res · July 2012 Featured Publication We conducted focus group meetings of African American and non-African American patients with end-stage renal disease (six groups) and their family members (six groups), stratified by race/ethnicity and treatment. We elicited differences in participants' ex ... Full text Link to item Cite

Willingness of the United States general public to participate in kidney paired donation.

Journal Article Clin Transplant · 2012 Featured Publication BACKGROUND: Availability of kidney paired donation (KPD) is increasing in the United States, and a national system through UNOS is forthcoming. However, little is known about attitudes toward KPD among the general public, from which donors (particularly no ... Full text Link to item Cite

Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs.

Journal Article Transpl Int · October 2011 Featured Publication Little is known about racial/ethnic differences in preferred methods of disclosing deceased organ donation intentions among persons not previously designating their organ donation preferences publicly or the association of medical mistrust with preferences ... Full text Link to item Cite

Protocol of a randomized controlled trial of culturally sensitive interventions to improve African Americans' and non-African Americans' early, shared, and informed consideration of live kidney transplantation: the Talking About Live Kidney Donation (TALK) Study.

Journal Article BMC Nephrol · July 8, 2011 Featured Publication BACKGROUND: Live kidney transplantation (LKT) is underutilized, particularly among ethnic/racial minorities. The effectiveness of culturally sensitive educational and behavioral interventions to encourage patients' early, shared (with family and health car ... Full text Link to item Cite

Albuminuria: is it time to screen the general population?

Journal Article Adv Chronic Kidney Dis · July 2011 Featured Publication Albuminuria has been associated with increased risk of multiple adverse outcomes, including ESRD, acute kidney injury, cardiovascular disease, and death. Some clinicians advocate for population-based screening of this condition, as a means of identifying i ... Full text Link to item Cite

High-normal albuminuria and risk of heart failure in the community.

Journal Article Am J Kidney Dis · July 2011 Featured Publication BACKGROUND: Albuminuria has been associated with cardiovascular risk, but the relationship of high-normal albuminuria to subsequent heart failure has not been well established. STUDY DESIGN: Prospective observational study, the Atherosclerosis Risk in Comm ... Full text Link to item Cite

Identifying and addressing barriers to African American and non-African American families' discussions about preemptive living related kidney transplantation.

Journal Article Prog Transplant · June 2011 Featured Publication CONTEXT: Ethnic/racial minority and nonminority families' perceived barriers to discussing preemptive living related kidney transplantation (LRKT) and their views on the potential value of health care professionals trained to address barriers are unknown. ... Full text Link to item Cite

QUALITY OF EVIDENCE INFORMING PATIENTS' CHOICE OF RENAL REPLACEMENT MODALITY

Journal Article JOURNAL OF GENERAL INTERNAL MEDICINE · May 1, 2011 Link to item Cite

Quality of patient-physician discussions about CKD in primary care: a cross-sectional study.

Journal Article Am J Kidney Dis · April 2011 Featured Publication BACKGROUND: The quality of patient-physician discussions about chronic kidney disease (CKD) in primary care has not been studied previously. STUDY DESIGN: Cross-sectional study. SETTINGS & PARTICIPANTS: We audiotaped encounters between 236 patients with hy ... Full text Link to item Cite

Race differences in access to health care and disparities in incident chronic kidney disease in the US.

Journal Article Nephrol Dial Transplant · March 2011 Featured Publication BACKGROUND: The contribution of race differences in access to health care to disparities in chronic kidney disease (CKD) incidence in the United States is unknown. METHODS: We examined race differences in usual source of health care, health insurance and C ... Full text Link to item Cite

Primary care-specialist collaboration in the care of patients with chronic kidney disease.

Journal Article Clin J Am Soc Nephrol · February 2011 Featured Publication BACKGROUND AND OBJECTIVES: Collaboration between primary care physicians (PCPs) and nephrologists in the care of patients with chronic kidney disease (CKD) is widely advocated, but physician preferences regarding collaboration are unknown. Physicians' desi ... Full text Link to item Cite

Effect of primary care physicians' use of estimated glomerular filtration rate on the timing of their subspecialty referral decisions.

Journal Article BMC Nephrol · January 14, 2011 Featured Publication BACKGROUND: Primary care providers' suboptimal recognition of the severity of chronic kidney disease (CKD) may contribute to untimely referrals of patients with CKD to subspecialty care. It is unknown whether U.S. primary care physicians' use of estimated ... Full text Open Access Link to item Cite

Access and outcomes among minority transplant patients, 1999-2008, with a focus on determinants of kidney graft survival.

Journal Article Am J Transplant · April 2010 Featured Publication Coincident with an increasing national interest in equitable health care, a number of studies have described disparities in access to solid organ transplantation for minority patients. In contrast, relatively little is known about differences in posttransp ... Full text Link to item Cite

Addressing racial and ethnic disparities in live donor kidney transplantation: priorities for research and intervention.

Journal Article Semin Nephrol · January 2010 Featured Publication One potential mechanism for reducing racial/ethnic disparities in the receipt of kidney transplants is to enhance minorities' pursuit of living donor kidney transplantation (LDKT). Pursuit of LDKT is influenced by patients' personal values, their extended ... Full text Link to item Cite

Impact of Medicare coverage on disparities in access to simultaneous pancreas and kidney transplantation.

Journal Article Am J Transplant · December 2009 Featured Publication In the setting of disparities in access to simultaneous pancreas and kidney transplantation (SPKT), Medicare coverage for this procedure was initiated July 1999. The impact of this change has not yet been studied. A national cohort of 22 190 type 1 diabeti ... Full text Link to item Cite

Perceived susceptibility to chronic kidney disease among high-risk patients seen in primary care practices.

Journal Article J Gen Intern Med · October 2009 Featured Publication BACKGROUND: Patients' views of their risk for the development or progression of chronic kidney disease (CKD) are poorly characterized. OBJECTIVE: To assess perceived risk and concern regarding CKD development or progression among high-risk patients seen in ... Full text Link to item Cite

Heart failure disease management program experience in 4,545 heart failure admissions to a community hospital.

Journal Article Am Heart J · September 2009 Featured Publication BACKGROUND: Disease management programs (DMPs) are developed to address the high morbi-mortality and costs of congestive heart failure (CHF). Most studies have focused on intensive programs in academic centers. Washington County Hospital (WCH) in Hagerstow ... Full text Link to item Cite

Clinical testing patterns and cost implications of variation in the evaluation of CKD among US physicians.

Journal Article Am J Kidney Dis · August 2009 Featured Publication BACKGROUND: Clinical practice guidelines were established to improve the diagnosis and management of chronic kidney disease (CKD), but the extent, determinants, and cost implications of guideline adherence and variation in adherence have not been evaluated ... Full text Link to item Cite

In reply

Journal Article Archives of Internal Medicine · June 22, 2009 Featured Publication Full text Cite

Segregation, civil rights, and health disparities: the legacy of African American physicians and organized medicine, 1910-1968.

Journal Article J Natl Med Assoc · June 2009 Featured Publication Between 1910 and 1968, the National Medical Association (NMA) repeatedly clashed with the American Medical Association (AMA) over the latter organization's racial bars to membership and other health policy issues. The NMA, founded in 1895 as a nonexclusion ... Full text Link to item Cite

Creating a segregated medical profession: African American physicians and organized medicine, 1846-1910.

Journal Article J Natl Med Assoc · June 2009 Featured Publication An independent panel of experts, convened by the American Medical Association (AMA) Institute for Ethics, analyzed the roots of the racial divide within American medical organizations. In this, the first of a 2-part report, we describe 2 watershed moments ... Full text Link to item Cite

Population-based screening for CKD.

Journal Article Am J Kidney Dis · March 2009 Featured Publication Organizations both in the United States and globally have advocated for screening for chronic kidney disease with a urine test for proteinuria followed by subsequent testing with creatinine-based estimated glomerular filtration rate determinations. Screeni ... Full text Link to item Cite

Age and comorbidities are effect modifiers of gender disparities in renal transplantation.

Journal Article J Am Soc Nephrol · March 2009 Featured Publication Women have less access to kidney transplantation than men, but the contributions of age and comorbidity to this disparity are largely unknown. We conducted a national cohort study of 563,197 patients with first-onset ESRD between 2000 and 2005. We used mul ... Full text Link to item Cite

Perceived Susceptibility to Chronic Kidney Disease among High-risk Patients Seen in Primary Care Practices

Journal Article Journal of General Internal Medicine · 2009 Featured Publication Cite

Patient awareness of chronic kidney disease: trends and predictors.

Journal Article Arch Intern Med · November 10, 2008 Featured Publication BACKGROUND: The impact of recent guidelines for early detection and prevention of chronic kidney disease (CKD) on patient awareness of disease and factors that might be associated with awareness have not been well described. METHODS: Awareness rates were a ... Full text Link to item Cite

The association of state and national legislation with living kidney donation rates in the United States: a national study.

Journal Article Am J Transplant · July 2008 Featured Publication The effect of state legislation and federal policies supporting living donors on living kidney donation rates in the United States is unknown. We studied living kidney donation rates from 1988 to 2006, and we assessed changes in donation before and after t ... Full text Link to item Cite

Involvement of family in living donor decision making

Conference AMERICAN JOURNAL OF TRANSPLANTATION · May 1, 2008 Link to item Cite

Principles of screening for chronic kidney disease.

Journal Article Clin J Am Soc Nephrol · March 2008 Featured Publication Full text Link to item Cite

Perceived transparency and fairness of the organ allocation system and willingness to donate organs: a national study.

Journal Article Am J Transplant · July 2007 The influence of perceptions of organ allocation on willingness to donate organs is unclear. We performed a national study assessing the relation of public perceptions of organ allocation to willingness to donate organs, and we assessed the contribution of ... Full text Link to item Cite

Preferences for current health and their association with outcomes in patients with kidney disease.

Journal Article Med Care · March 2007 BACKGROUND: Patients with chronic disease who express stronger preference for their current health might be expected to have better outcomes than patients who assign lower utility to their current health state. OBJECTIVE: We sought to examine associations ... Full text Link to item Cite

Systematic review: the value of the periodic health evaluation.

Journal Article Ann Intern Med · February 20, 2007 BACKGROUND: The periodic health evaluation (PHE) has been a fundamental part of medical practice for decades despite a lack of consensus on its value. PURPOSE: To synthesize the evidence on benefits and harms of the PHE. DATA SOURCES: Electronic searches o ... Full text Link to item Cite

Prospective pilot study of living kidney donor decision-making and outcomes.

Journal Article Clin Transplant · 2007 Featured Publication In its recent report on organ donation, the Institute of Medicine has recommended rigorous studies of how living organ donors make the decision to donate. In this pilot study, 65 donor applicants were interviewed while being evaluated in the outpatient don ... Full text Link to item Cite

Public attitudes toward incentives for organ donation: a national study of different racial/ethnic and income groups.

Journal Article Am J Transplant · November 2006 Featured Publication Attitudes toward monetary and nonmonetary incentives for living (LD) and deceased donation (DD) among the U.S. general public and different racial/ethnic and income groups have not been systematically studied. We studied attitudes via a telephone questionn ... Full text Link to item Cite

Identification and referral of patients with progressive CKD: a national study.

Journal Article Am J Kidney Dis · August 2006 Featured Publication BACKGROUND: It is unclear whether primary care physicians (PCPs) and nephrologists differ in their recognition of progressive chronic kidney disease (CKD), agree on diagnostic and referral strategies, and identify similar barriers to caring for patients. M ... Full text Link to item Cite

Temporal relation among depression symptoms, cardiovascular disease events, and mortality in end-stage renal disease: contribution of reverse causality.

Journal Article Clin J Am Soc Nephrol · May 2006 Featured Publication Temporal relationships among depression, medical comorbidity, and death or cardiovascular disease (CVD) events are complex. Clarifying temporal relationships may enhance current insight regarding the nature of the association of depression with poor outcom ... Full text Link to item Cite

Value of the periodic health evaluation.

Journal Article Evid Rep Technol Assess (Full Rep) · April 2006 Featured Publication OBJECTIVES: To systematically review evidence on definitions of the periodic health evaluation (PHE), its associated benefits and harms, and system-level interventions to improve its delivery. DATA SOURCES: Electronic searches in MEDLINE, and other databas ... Link to item Cite

Fatal and nonfatal hemorrhagic complications of living kidney donation.

Journal Article Ann Surg · January 2006 Featured Publication OBJECTIVE: After anecdotal reports of severe hemorrhage from failure of surgical clips to sustain closure of renal artery stumps in live donor nephrectomies were received, this study was designed to identify specific surgical techniques that are associated ... Full text Link to item Cite

Direct, progressive association of cardiovascular risk factors with incident proteinuria: results from the Korea Medical Insurance Corporation (KMIC) study.

Journal Article Arch Intern Med · October 24, 2005 Featured Publication BACKGROUND: Proteinuria is a major risk factor for the progression of kidney disease and the development of cardiovascular disease. Little is known, however, about risk factors for incident proteinuria. METHODS: We conducted a 10-year prospective cohort st ... Full text Link to item Cite

Attitudes, psychology, and risk taking of potential live kidney donors: strangers, relatives, and the general public.

Journal Article Am J Transplant · July 2005 Featured Publication It is unclear whether potential living kidney donors and the general public differ in attitudes and psychological characteristics. We performed a case-control study to explore differences in these groups using a standardized questionnaire (analyzed using c ... Full text Link to item Cite

Preferences, knowledge, communication and patient-physician discussion of living kidney transplantation in African American families.

Journal Article Am J Transplant · June 2005 Featured Publication It is unknown whether patient-physician discussion about live kidney transplantation (LT) among African Americans (AA) is affected by preferences, knowledge and family discussions regarding LT. We recruited 182 AA dialysis patients and their families and a ... Full text Link to item Cite

Race concordance and trust in the patient-physician relationship.

Conference JOURNAL OF GENERAL INTERNAL MEDICINE · April 1, 2005 Link to item Cite

Whole body donation for medical science: a population-based study.

Journal Article Clin Anat · October 2004 Featured Publication Although cadaveric whole-body donation for the purposes of medical science is extremely important for medical education, the number of persons who choose to donate remains low. We assessed persons' willingness to consider whole body donation in a standardi ... Full text Link to item Cite

Cost-effectiveness of screening for proteinuria.

Journal Article JAMA · March 24, 2004 Featured Publication Full text Link to item Cite

Screening for proteinuria in US adults: a cost-effectiveness analysis.

Journal Article JAMA · December 17, 2003 Featured Publication CONTEXT: Chronic kidney disease is a growing public health problem. Screening for early identification could improve health but could also lead to unnecessary harms and excess costs. OBJECTIVE: To assess the value of periodic, population-based dipstick scr ... Full text Link to item Cite

Screening for proteinuria in US adults: A cost-effectiveness analysis.

Conference JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY · November 1, 2003 Link to item Cite

Use of glycated hemoglobin and microalbuminuria in the monitoring of diabetes mellitus.

Journal Article Evid Rep Technol Assess (Summ) · July 2003 Featured Publication Link to item Cite

Race and trust in the health care system.

Journal Article Public Health Rep · 2003 Featured Publication OBJECTIVE: A legacy of racial discrimination in medical research and the health care system has been linked to a low level of trust in medical research and medical care among African Americans. While racial differences in trust in physicians have been demo ... Full text Link to item Cite

Health status and patient preference in end-stage renal disease (ESRD).

Journal Article JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY · September 1, 2002 Link to item Cite

The contribution of sociodemographic, medical, and attitudinal factors to blood donation among the general public.

Journal Article Transfusion · June 2002 Featured Publication BACKGROUND: Few studies have simultaneously assessed the relative importance of sociodemographic, medical, and attitudinal factors in explaining which individuals are more likely to donate blood. STUDY DESIGN AND METHODS: A cross-sectional telephone survey ... Full text Link to item Cite

Determinants of willingness to donate living related and cadaveric organs: identifying opportunities for intervention.

Journal Article Transplantation · May 27, 2002 Featured Publication BACKGROUND: Although low rates of cadaveric organ donation have been attributed to potential cadaveric donors' concerns regarding their religious beliefs and mistrust of the health care system, it is unclear whether similar concerns are important to potent ... Full text Link to item Cite

Racial differences in trust in different components of our health care system.

Journal Article JOURNAL OF GENERAL INTERNAL MEDICINE · April 1, 2002 Link to item Cite

Quality of clinical reports on behavioral interventions for hypertension.

Journal Article Prev Med · April 2002 Featured Publication PURPOSE: The purpose of this study was to provide clinicians with the confidence to employ behavioral interventions for hypertension and to guide researchers in the development and reporting of studies. METHODS: We systematically reviewed English language ... Full text Link to item Cite

The general public's concerns about clinical risk in live kidney donation.

Journal Article Am J Transplant · February 2002 Featured Publication Difficulty in attracting live kidney donors may be related to fears regarding both the surgical procedure for kidney harvesting and future failure of the remaining kidney. We conducted a cross-sectional study of households in Maryland to identify public di ... Full text Link to item Cite

Understanding disparities in donor behavior: race and gender differences in willingness to donate blood and cadaveric organs.

Journal Article Med Care · February 2002 BACKGROUND: Recent efforts to recruit blood and organ donors have only marginally improved demographic disparities in willingness to donate. Few studies have examined which factors are most important in explaining race and gender disparities in willingness ... Full text Link to item Cite

An evidence-based review of patient-centered behavioral interventions for hypertension.

Journal Article Am J Prev Med · October 2001 Featured Publication INTRODUCTION: While behavioral interventions may be viewed as important strategies to improve blood pressure (BP), an evidence-based review of studies evaluating these interventions may help to guide clinical practice. METHODS: We employed systematic revie ... Full text Link to item Cite

A computerized tool for evaluating the effectiveness of preventive interventions.

Journal Article Public Health Rep · 2001 In identifying appropriate strategies for effective use of preventive services for particular settings or populations, public health practitioners employ a systematic approach to evaluating the literature. Behavioral intervention studies that focus on prev ... Full text Link to item Cite

A 78-year-old woman with leg pain and weakness.

Journal Article Am J Med Sci · June 2000 Link to item Cite

Can patients with hypertension acurately report the quality of their care?

Journal Article JOURNAL OF GENERAL INTERNAL MEDICINE · April 1, 2000 Link to item Cite