Karen E. Steinhauser

Journal article J Palliat Med · December 2002 Featured Publication PURPOSE: We conducted this study to pilot a new multidimensional instrument to assess the quality of life at the end of life. METHODS: Items were derived from focus groups and a national survey identifying attributes of the quality of dying. Fifty-four ite ... Full text Link to item Cite

Evolution in measuring the quality of dying.

Journal article J Palliat Med · June 2002 Featured Publication PURPOSE: Despite multiple efforts to improve the experience for dying patients, researchers still struggle to identify appropriate outcome measures that assess patients' and families' experiences. If health care systems are to provide excellent, compassion ... Full text Link to item Cite

Preparing for the end of life: preferences of patients, families, physicians, and other care providers.

Journal article J Pain Symptom Manage · September 2001 Featured Publication To examine patients', families', and health care providers' preferences regarding preparation for the end of life, attributes of preparation were generated in qualitative focus group discussions and subsequently tested for generalizability in a quantitativ ... Full text Link to item Cite

Factors considered important at the end of life by patients, family, physicians, and other care providers.

Journal article JAMA · November 15, 2000 Featured Publication CONTEXT: A clear understanding of what patients, families, and health care practitioners view as important at the end of life is integral to the success of improving care of dying patients. Empirical evidence defining such factors, however, is lacking. OBJ ... Full text Link to item Cite

In search of a good death: observations of patients, families, and providers.

Journal article Ann Intern Med · May 16, 2000 Featured Publication Despite a recent increase in the attention given to improving end-of-life care, our understanding of what constitutes a good death is surprisingly lacking. The purpose of this study was to gather descriptions of the components of a good death from patients ... Full text Link to item Cite

The evolution of volunteerism and professional staff within hospice care in North Carolina.

Journal article Hosp J · 2000 Featured Publication Although the pursuit of Medicare certification has been one of the most controversial events in hospice history no study has examined its impact using data from a defined population of hospices before, during, and after federal legislation was enacted. Thi ... Full text Link to item Cite