Overview
Program Director, CTSA Special Populations Core
Program Director, Newborn Screening Evidence Review Group
Program Director, Newborn Screening Evidence Review Group
Current Appointments & Affiliations
Clinical Trials Project Leader III
Duke Clinical & Translational Science Institute,
Institutes and Centers
Recent Publications
Developing a Public-facing Tool to Monitor Inclusion of Special Populations in Clinical Research
Journal Article Journal of Clinical and Translational Science · January 1, 2025 Clinical trials have provided evidence for determining treatment effectiveness. However, clinical trial participants have been underrepresented by diverse and special population groups (e.g., younger and older adults, different races/ethnicities), contribu ... Full text CiteA case study of inclusion of rural populations in research: Implications for science and health equity.
Journal Article Clin Transl Sci · August 2024 Prior research highlights that rural populations have been historically underrepresented/excluded from clinical research. The primary objective of this study was to describe the inclusion of rural populations within our research enterprise using Clinical R ... Full text Open Access Link to item CiteHealth and economic outcomes of newborn screening for infantile-onset Pompe disease.
Journal Article Genetics in medicine : official journal of the American College of Medical Genetics · April 2021 PurposeTo estimate health and economic outcomes associated with newborn screening (NBS) for infantile-onset Pompe disease in the United States.MethodsA decision analytic microsimulation model simulated health and economic outcomes of a bi ... Full text CiteRecent Grants
ACHDNC: Evidence-Based Reviews for Nominated Condition 1
ResearchPrincipal Investigator · Awarded by Research Institute at Nationwide Children's Hospital · 2024 - 2025Task Order 7 - Expedited Review of Krabbe Disease NBS
ResearchPrincipal Investigator · Awarded by Nationwide Children's Hospital · 2023 - 2024RTI-TO2-Newborn Screening Pilot Study for Adrenoleukodystrophy (ALD)
Public ServiceProject Leader · Awarded by Research Triangle Institute International · 2016 - 2018View All Grants