Overview
Program Director, CTSA Special Populations Core
Program Director, Newborn Screening Evidence Review Group
Program Director, Newborn Screening Evidence Review Group
Current Appointments & Affiliations
Clinical Trials Project Leader III
Duke Clinical & Translational Science Institute,
Institutes and Centers
Recent Publications
Developing a public-facing tool to monitor inclusion of special populations in clinical research.
Journal Article J Clin Transl Sci · 2025 Clinical trials have provided evidence for determining treatment effectiveness. However, clinical trial participants have been underrepresented by diverse and special population groups (e.g., younger and older adults, different races/ethnicities), contribu ... Full text Link to item CiteA case study of inclusion of rural populations in research: Implications for science and health equity.
Journal Article Clin Transl Sci · August 2024 Prior research highlights that rural populations have been historically underrepresented/excluded from clinical research. The primary objective of this study was to describe the inclusion of rural populations within our research enterprise using Clinical R ... Full text Open Access Link to item CiteHealth and economic outcomes of newborn screening for infantile-onset Pompe disease.
Journal Article Genetics in medicine : official journal of the American College of Medical Genetics · April 2021 PurposeTo estimate health and economic outcomes associated with newborn screening (NBS) for infantile-onset Pompe disease in the United States.MethodsA decision analytic microsimulation model simulated health and economic outcomes of a bi ... Full text CiteRecent Grants
1/3 CTSA UM1 at Duke University
ResearchProject Leader · Awarded by National Institutes of Health · 2025 - 2032ACHDNC: Evidence-Based Reviews for Nominated Condition 1
ResearchPrincipal Investigator · Awarded by Research Institute at Nationwide Children's Hospital · 2024 - 2025Task Order 7 - Expedited Review of Krabbe Disease NBS
ResearchPrincipal Investigator · Awarded by Nationwide Children's Hospital · 2023 - 2024View All Grants