Journal articleMed Care · August 1, 2026
BACKGROUND: While community engagement is an evidence-based strategy, less is known about how longstanding community engagement panels are used in practice, and how their input is incorporated by researchers. OBJECTIVE: To describe the types of consultatio ...
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Journal articleMed Care · July 8, 2026
BACKGROUND: Rural Veterans and caregivers face challenges related to health care access, care coordination, and institutional trust-areas where Community Health Workers (CHWs) are well positioned to make an impact. Despite their potential, CHW integration ...
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Journal articleJournal of applied gerontology : the official journal of the Southern Gerontological Society · May 2026
Background and ObjectivesHomelessness among Veterans aged 55+ rose 150% from 2010-2023, reflecting a critical housing crisis. While Housing and Urban Development-Veterans Affairs Supportive Housing (HUD-VASH) offers support, aging and disabled Veterans may ...
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Journal articleJournal of applied gerontology : the official journal of the Southern Gerontological Society · April 2026
In the context of a rapidly growing aging population, the United States must address challenges with long term services and supports as that is what the acronym refers to. These challenges include affordability and access to home- and-community-based servi ...
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Journal articleJ Appl Gerontol · January 2026
Distress behaviors are common in residential care settings and contribute to staff burnout and poor quality of life for older adults. While nonpharmacologic interventions reduce distress behaviors, implementation in routine care remains challenging. Our st ...
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Journal articleNorth Carolina Medical Journal · January 1, 2026
Our commentary examines loneliness and social isolation among older adults in North Carolina, highlighting demographic change, rural infrastructure constraints, caregiving pressures, and health workforce shortages shaping social disconnection. We propose c ...
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Journal articleSage open aging · January 2026
Literature often explores turnover, burnout, and inadequate support of long-term care (LTC) workforces, and their negative impact on staff retention and care delivery. However, current evidence on positive core elements that retain staff is limited and doe ...
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Journal articleMedical care · December 2025
ObjectiveTo assess the relationship between burnout scores for patient safety professionals and perceived support from the National Center for Patient Safety (NCPS) and direct communication with medical center directors in the Veterans Health Admi ...
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Journal articleEastern Mediterranean health journal = La revue de sante de la Mediterranee orientale = al-Majallah al-sihhiyah li-sharq al-mutawassit · December 2025Full textCite
Journal articleGerontologist · October 22, 2025
BACKGROUND AND OBJECTIVES: Person-centered "home time" measures track time spent in health care versus home using claims data. These measures can indicate patient preferences, quality of care, or quality of life. However, for people living with dementia, t ...
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Journal articleJ Am Geriatr Soc · August 2025
BACKGROUND: Researchers and insurers use "home time," or an individual's time at home compared to time in different health care settings, as a population-level quality of life (QoL) or quality of care measure. With varying definitions, it is unknown which ...
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Journal articleJournal of applied gerontology : the official journal of the Southern Gerontological Society · June 2025
Older adults and people living with disabilities receive home- and community-based services (HCBS) from approximately 113,000 often under-resourced and inadequately supported direct service workers (e.g., personal care aides, direct support professionals, ...
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Journal articlePEC innovation · June 2025
ObjectivesDescribe the role and benefit of Community Health Workers in American Indian communities as a novel solution to meeting home and community-based service (HCBS) needs.MethodsShort communication based on extant literature and curr ...
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Journal articleCurr Eye Res · May 2025
PURPOSE: Central retinal artery occlusion, also known as an eye stroke, results in visual impairment and functional challenges. Our study objectives were to identify meaningful measures and factors that indicate or enable successful recovery after eye stro ...
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Journal articleAnn Intern Med · February 2025
BACKGROUND: Postdischarge contacts (PDCs) after hospitalization are common practice, but their effectiveness in reducing use of acute care after discharge remains unclear. PURPOSE: To assess the effects of PDC on 30-day emergency department (ED) visits, 30 ...
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Journal articleJournal of the American Medical Directors Association · December 30, 2024
Objectives
To explore and understand the sources and experiences of joy in caregiving among formal caregivers in Canadian long-term care (LTC).
Design
A qualitative study with interpretative descriptive design.
Setting and Participants
The participants con ...
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Journal articleHealth Serv Res · December 2024
OBJECTIVE: To assess the effects of an evidence-based family caregiver training program (implementation of Helping Invested Families Improve Veteran Experiences Study [iHI-FIVES]) in the Veterans Affairs healthcare system on Veteran days not at home and fa ...
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Journal articleJournal of aging & social policy · July 2024
Caregivers play a crucial role in providing health and social supports to their family and friends. Older adults who take on caregiving roles are themselves uniquely vulnerable to negative health and financial effects due to their age and underlying health ...
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Journal articleAmerican journal of public health · June 2024
In a 2023 sequential explanatory mixed-methods study in four US states, we identified barriers and facilitators experienced by Vaccines for Children (VFC) program providers in reporting vaccination data to state immunization information systems (IISs). We ...
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Journal articleFront Aging · 2024
BACKGROUND: Family caregivers are family members or friends of care recipients who assist with activities of daily living, medication management, transportation, and help with finances among other activities. As a result of their caregiving, family caregiv ...
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Journal articleClin Gerontol · 2024
OBJECTIVES: This review examines health care team-focused interventions on managing persistent or recurrent distress behaviors among older adults in long-term residential or inpatient health care settings. METHODS: We searched interventions addressing heal ...
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Journal articlePLoS One · 2024
INTRODUCTION: We aimed to understand clinician views regarding gene therapy as a future treatment for Alzheimer's disease (AD) and potential barriers and facilitators to its use. METHODS: We interviewed ten clinicians who treat patients with AD. Clinicians ...
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Journal articleAntimicrob Steward Healthc Epidemiol · 2024
Our interviews of inpatient clinicians (physicians, physician assistants) modeled after the Capability, Opportunity, and Motivation Model of Behavior model revealed opportunity and motivation as important drivers for overdiagnosis and overprescribing for a ...
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Journal articleJ Gen Intern Med · September 2023
BACKGROUND: Health services research can benefit from frontline clinician input across all stages of research, yet their key perspectives are often not meaningfully engaged. OBJECTIVE: How can we improve clinician engagement in research? DESIGN: Convenienc ...
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Journal articleGerontologist · March 21, 2023
BACKGROUND AND OBJECTIVES: A minority of family caregivers receive training, with implications for their own and their recipient's outcomes. Federal policy has supported the implementation and expansion of caregiver training and support. The Department of ...
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Journal articlePerm J · March 15, 2023
Background Caregivers play a key role in supporting patient health; however, they have largely been excluded from participating in health care teams. This paper describes development and evaluation of web-based training for health care professionals about ...
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Journal articleThe American journal of hospice & palliative care · June 2022
ObjectiveTo examine health professions trainees' end-of-life (EOL) care knowledge, attitudes, and intentions.MethodsIRB-approved online survey of 346 students/5 universities in final training years-public health, pharmacy, physician, phys ...
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Journal articleUrology · June 2022
OBJECTIVES: To develop a conceptual framework to understand and define the impact of DSD diagnosis and management from the perspective of parents of recently diagnosed children. METHODS: Semi-structured interviews were conducted with parents of children di ...
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Journal articleJ Am Geriatr Soc · June 2022
BACKGROUND: The quality of life of care partners and care recipients may be improved by programs that address unmet needs. The aim of this qualitative study was to identify care partners' social and practical needs as they care for Veterans (65 yo+) with s ...
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Journal articleInnovation in aging · January 2022
Background and objectivesMany patients lack understanding of hospice services and their preparation for the transition to hospice at home may be insufficient. This study explored how hospice admissions staff and caregivers of hospice patients perc ...
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Journal articleGerontol Geriatr Med · 2022
OBJECTIVES: To ascertain common experiences and needs of a diverse group of caregivers challenged by hurricanes/floods and COVID-19. METHODS: In-depth interviews with unpaid caregivers in U.S. Southeast/Gulf Coast states who had experienced caregiving duri ...
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Journal articleJournal of applied gerontology : the official journal of the Southern Gerontological Society · December 2021
MethodsWe conducted a thematic analysis on semi-structured interviews with 11 caregivers.ResultsCaregivers discussed how prior incarceration coupled with aging present barriers to housing, employment, and safety-net benefits-making caregi ...
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Journal articleHealthc (Amst) · December 2021
Measuring "home time," number of days not in facility-based care, with medical claims is a promising approach to assess person-centered outcomes on a population level. Generally, spending more time at home matches long-term care preferences and improves qu ...
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Journal articleMed Care · November 1, 2021
BACKGROUND: Home-based and community-based health care for individuals with complex medical conditions is often provided by family caregivers. Yet caregivers often are not meaningfully included in interactions with clinical health care teams. Inclusive car ...
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Journal articleMed Care Res Rev · October 2021
More direct inclusion of informal caregivers (i.e., family, friends) in patients' care will make care more patient- and family-centered and has the potential to improve overall quality of care for patients. We need to understand what potentially comprises ...
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Journal articleJ Palliat Med · August 2021
Objectives: To characterize clinician experiences of hospice access and scope of services for undocumented immigrants. Background: The 10.5 million undocumented immigrants in the United States are not covered by Medicare's hospice benefit and are at high r ...
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Journal articleMilbank Q · June 2021
UNLABELLED: Policy Points To address systemic problems amplified by COVID-19, we need to restructure US long-term services and supports (LTSS) as they relate to both the health care systems and public health systems. We present both near-term and long-term ...
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Journal articleBMC Health Serv Res · May 6, 2021
BACKGROUND: Caring for a growing aging population using existing long-term care resources while simultaneously supporting and educating family caregivers, is a public health challenge. We describe the application of the Replicating Effective Programs (REP) ...
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Journal articleThe Permanente journal · May 2021
BackgroundWomen face unique logistical and financial barriers to health care access. They also have higher health care expenditures and higher rates of morbidity. Women's experiences while utilizing health care are historically less well researche ...
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Journal articleJ Am Med Dir Assoc · March 2021
OBJECTIVES: To describe long-term care services and supports (LTSS) in the United States, note their limitations in serving older adults post-incarceration, and offer potential solutions, with special consideration for the Coronavirus Disease 2019 pandemic ...
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Journal articleAm J Hosp Palliat Care · February 2021
BACKGROUND: Compared to Whites, racial/ethnic minorities are less likely to enroll in hospice and if they enroll, more likely to experience poor quality care. Building cultural competence (CC) among hospice staff is a strategy that may reduce disparities. ...
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Journal articleNorth Carolina medical journal · January 2021
Four in 10 COVID-19 cases and deaths in North Carolina have occurred in long-term care facilities. The virus has contributed to increased health complications and financial stressors for recipients of long-term care services and supports and their caregive ...
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Journal articleJournal of Long Term Care · January 1, 2021
Context: COVID-19 has a high case fatality rate in high-risk populations and can cause severe morbidity and high healthcare resource use. Nursing home residents are a high-risk population; they live in congregate settings, often with shared rooms, and requ ...
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Journal articleNorth Carolina Medical Journal · January 1, 2021
Background As antivaccination movements increase in the United States, underlying structural barriers to vaccination are often ignored. This study examines barriers to vaccination in an adult population to uncover factors leading to vaccination rates in un ...
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Journal articleMil Med · February 12, 2020
INTRODUCTION: Many studies have linked hope with better mental health and lower risk of suicide. This is especially true in those who have experienced severe physical or emotional trauma. Religious involvement is associated with greater hope. We examine he ...
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Journal articleJ Nurs Scholarsh · January 2020
PURPOSE: We describe an approach to rapidly adapt and implement an education and skills improvement intervention to address the needs of family caregivers of functionally impaired veterans-Helping Invested Families Improve Veterans' Experience Study (HI-FI ...
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Journal articleMilitary Behavioral Health · July 3, 2019
The relationship between posttraumatic stress disorder (PTSD) symptom severity and pain is well known in veterans and active duty military (V/ADM). This study examines the buffering effect of religiosity on that relationship. A multisite study was conducte ...
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Journal articleHealth Aff (Millwood) · June 2019
Family caregivers often serve as unpaid members of the home and community-based care workforce for people with serious illness; as key partners in the home-clinic continuum, they should be included in health care teams. The Campaign for Inclusive Care is a ...
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Journal articleJournal of pain and symptom management · December 2018
ContextPalliative care (PC) model delivered by two large hospices and PC providers.ObjectivesTo understand study participants' knowledge of PC and acceptability of a new community-based PC model.MethodsSemistructured interview wi ...
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Journal articleJournal of palliative medicine · August 2018
ContextBest supportive care (BSC) is often not standardized across sites, consistent with best evidence, or sufficiently described. We developed a consensus-based checklist to document BSC delivery, including symptom management, decision making, a ...
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Journal articleAm J Hosp Palliat Care · July 2018
OBJECTIVES: To describe older Veteran's perspectives on the current delivery of religious or spiritual (R/S) care. METHODS: Semi-structured interviews with older veterans with advanced stage cancer, heart failure, or pulmonary disease to elicit views on wh ...
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Journal articleJ Palliat Med · May 2018
BACKGROUND: On January 1, 2016, Medicare implemented a new "two-tiered" model for hospice services, with per diem rates increased for days 1 through 60, decreased for days 61 and greater, and service intensity add-on payments made retrospectively for the l ...
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Journal articleJ Pain Symptom Manage · February 2018
CONTEXT: Patients with acute leukemias likely have needs that palliative care can respond to, yet little is known about specific challenges they face, particularly during active treatment. We examined acute myeloid leukemia (AML) patients' expressed challe ...
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Journal articleJ Palliat Med · June 2017
OBJECTIVE: Describe social goods and services for which hospices assist patients and families and the resources hospices use to do so. BACKGROUND: Basic social supports and services not routinely covered by insurers may be needed by terminally ill patients ...
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Journal articleJournal of applied gerontology : the official journal of the Southern Gerontological Society · March 2017
ObjectiveWhat is the characterization of family involvement in health decisions, filial piety, religiosity/spirituality, and fatalism as they relate to attitudes/intentions toward end-of-life (EOL) planning/decision making among elderly Dominicans ...
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Journal articleJ Nerv Ment Dis · February 2017
Wartime experiences have long been known to cause ethical conflict, guilt, self-condemnation, difficulty forgiving, loss of trust, lack of meaning and purpose, and spiritual struggles. "Moral injury" (MI) (also sometimes called "inner conflict") is the ter ...
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Journal articlePerm J · 2017
Religion is an important part of many patients' cultural perspectives and value systems that influence them during advanced illness and toward the end of life when they directly face mortality. Worldwide violence perpetrated by people identifying as Muslim ...
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Journal articleJAAPA : official journal of the American Academy of Physician Assistants · September 2016
Patients with advanced or terminal illness, especially racial and ethnic minorities, would benefit from greater access to hospice and palliative care. Expanding the PA role in these areas would help fill gaps in both access and patients' understanding of w ...
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Journal articleAmerican journal of public health · June 2016
Aging patients with advanced or terminal illnesses or at the end of their lives become highly vulnerable when their cultural needs-in terms of ethnic habits, religious beliefs, and language-are unmet. Cultural diversity should be taken into account during ...
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Journal articleThe Permanente journal · January 2015
Quality medical care is a clinical and public health imperative, but defining quality and achieving improved, measureable outcomes are extremely complex challenges. Adherence to best practice invariably improves outcomes. Nonphysician medical providers (NP ...
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Journal articleJournal of community health · December 2014
This was a model of community engagement for a Hispanic population in East Harlem, New York City to assess health care decision-making processes, with a focus on end-of-life decisions, among older men and women. The design involved two senior center-based ...
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Journal articleThe journal of trauma and acute care surgery · July 2012
BackgroundMost surgical critical care literature reflects practices at trauma centers and tertiary hospitals. Surgical critical care needs and practices may be quite different at nontrauma center teaching hospitals. As acute care surgery develops ...
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Journal articleCytopathology : official journal of the British Society for Clinical Cytology · June 2009
Aims and objectiveThe Technical External Quality Assessment Scheme (TEQA) introduced in Wales is based on NHSCSP publication No 19 [External Quality Assessment Scheme for the Evaluation of Papanicolaou Staining in Cervical Cytology] which sets out ...
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