Scholars@Duke
Rebecca A Shelby

Rebecca A Shelby

Professor in Psychiatry and Behavioral Sciences
Psychiatry & Behavioral Sciences, Behavioral Medicine & Neurosciences
rebecca.shelby@duke.edu
Box 102506, Durham, NC 27710
2400 Pratt Street, 7th Floor, Room 7059, Durham, NC 27705

Scholarly Works - Journal articles

Symptom management and transitioning to engagement with post-treatment care for adolescent and young adult cancer survivors (AYA STEPS): Study protocol.

Journal article Contemp Clin Trials · July 8, 2026 For adolescent and young adult (AYA) cancer survivors, treatment impacts are significant and long-lasting, including physical symptoms (e.g., pain, fatigue), emotional distress (e.g., anxiety, depression), and increased risk for long-term health problems ( ... Full text Link to item Cite

Characterizing Alcohol Use and Expectancies for Alcohol Analgesia Among Breast Cancer Survivors With Arthralgia.

Journal article Psychooncology · June 2026 BACKGROUND: Expectancies for alcohol analgesia (EAA; beliefs that alcohol use can reduce pain) are linked to heavier drinking in chronic non-cancer pain; however, no studies have examined EAA in those with cancer-related pain. AIMS: These secondary analyse ... Full text Link to item Cite

Impact of loving-kindness meditation intervention vs. music intervention during biopsy on adherence to recommended breast cancer screening.

Journal article Breast Cancer Res Treat · July 2025 PURPOSE: To evaluate the impact of providing a loving-kindness meditation (LKM) intervention vs. a music intervention during core-needle breast biopsy (CNBB) on adherence to subsequent, clinically recommended breast cancer screening and surveillance. METHO ... Full text Link to item Cite

Pattern of change and predictors of cognitive function in older adults receiving allogeneic hematopoietic cell transplantation using the Montreal cognitive assessment.

Journal article J Cancer Surviv · June 20, 2025 PURPOSE: This study examined the pattern of change in cognitive function using the Montreal Cognitive Assessment (MoCA) in the context of physical function and identified risk factors for poor cognitive function post allogeneic HCT in adults ≥ 60 years. MA ... Full text Link to item Cite

Availability of Adolescent and Young Adult-Specific Sexual and Reproductive Health Programs and Resources: A Review of the Websites of National Cancer Institute-Designated Cancer Centers.

Journal article J Adolesc Young Adult Oncol · June 2025 Adolescent and young adult (AYA) cancer survivors often search online for information about cancer-related sexual and reproductive health concerns. A review of the websites of National Cancer Institute-designated cancer centers (n = 9) and comprehensive ca ... Full text Link to item Cite

Unmet Reproductive Health Care Information Needs of Female Young Adult Survivors of Childhood Cancer: Oncology Providers' Perspectives.

Journal article J Adolesc Young Adult Oncol · February 2025 This study aimed to characterize unmet reproductive health needs of female young adult survivors of childhood cancer (YASCC), as understood by oncology providers (N = 10) caring for this patient population. Providers completed brief online questionnaires a ... Full text Link to item Cite

Web-Based Pain Coping Skills Training (PCST) for Managing Aromatase Inhibitor-Associated Arthralgia in Breast Cancer Survivors: Randomized Controlled Trial Protocol.

Journal article Contemp Clin Trials · February 2025 BACKGROUND: Aromatase inhibitors (AIs) are a cornerstone of adjuvant systemic therapy for postmenopausal patients with hormone-receptor positive (HR+) breast cancer. Although AIs decrease cancer recurrence rates and improve survival rates, approximately 50 ... Full text Link to item Cite

Pilot Study of a Cognitive Behavioral Intervention for Pelvic Exam Anxiety Among Survivors of Endometrial and Cervical Cancer

Journal article Women S Reproductive Health · January 1, 2025 No evidence-based interventions exist for anxiety related to pelvic exams after cancer treatment. A 3-session cognitive behavioral intervention, Pelvic Examination and Anxiety Coping Skills for Empowerment (PEACE), was developed. We conducted a proof-of co ... Full text Cite

Insomnia and Related Symptom Severity in Women with Breast Cancer and Pain Receiving Treatment in Medically Underserved Areas.

Journal article Behav Sleep Med · 2025 OBJECTIVES: Insomnia is common for women with breast cancer, and related to fatigue, depression, and pain. Research exploring these symptoms among breast cancer patients in medically underserved areas is lacking. This study aimed to characterize symptom se ... Full text Link to item Cite

Adoption as an Alternative Family-Building Strategy: Perceptions of Female, Young Adult Cancer Survivors Receiving Gonadotoxic Treatments.

Journal article J Adolesc Young Adult Oncol · August 2024 Female survivors of young adult (YA) cancers are at risk of fertility impacts following cancer treatment. For these women, fertility-related distress is both prevalent and persistent. Yet there is little research regarding survivors' perspectives on altern ... Full text Link to item Cite

Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial.

Journal article Pilot Feasibility Stud · June 8, 2024 BACKGROUND: Young adult (YA) cancer survivors are a growing, yet underserved population who often face significant and long-lasting cancer-related physical (e.g., pain, fatigue) and emotional (e.g., psychological distress) symptoms. Post-treatment symptoms ... Full text Link to item Cite

Impact of Financial Costs on Patients' Fertility Preservation Decisions: An Examination of Qualitative Data from Female Young Adults with Cancer and Oncology Providers.

Journal article J Adolesc Young Adult Oncol · June 2024 Purpose: To examine the impact of financial costs on fertility preservation decisions among female young adults (YAs) with cancer. Methods: Female YAs (N = 18; aged 21-36) with a history of cancer and oncology providers (N = 12) were recruited from an Nati ... Full text Link to item Cite

Psychological distress and pain related to gynecologic exams among female survivors of sexual and physical violence: A systematic review.

Journal article J Trauma Stress · April 2024 Gender-based violence is prevalent globally, yet the impacts of sexual and physical violence on women's experiences of routine gynecologic care are not well understood. The purpose of this systematic review of quantitative research is to describe (a) psych ... Full text Link to item Cite

Now or Later? Patient Satisfaction and Anxiety Among Women Undergoing Breast Biopsies Performed the Same Day as Recommended Versus a Later Day.

Journal article J Am Coll Radiol · March 2024 PURPOSE: The aim of this study was to determine differences in patient satisfaction and anxiety among women undergoing core-needle breast biopsies performed the same day as recommended versus a future date. METHODS: After institutional review board exempti ... Full text Link to item Cite

Author Response to Swisher et al.

Journal article Phys Ther · February 1, 2024 Full text Link to item Cite

Developing a Cognitive Behavioral Intervention for Gynecologic Cancer Survivors Undergoing Pelvic Exams

Journal article Women S Reproductive Health · January 1, 2024 Regular pelvic exams after completing cancer treatment are critical for detecting endometrial and cervical cancer recurrence. Patients report high levels of distress and pain during exams. We conducted in-depth individual interviews with patients (N = 13) ... Full text Cite

Behavioral cancer pain intervention dosing: results of a Sequential Multiple Assignment Randomized Trial.

Journal article Pain · September 1, 2023 Behavioral pain management interventions are efficacious for reducing pain in patients with cancer. However, optimal dosing of behavioral pain interventions for pain reduction is unknown, and this hinders routine clinical use. A Sequential Multiple Assignm ... Full text Link to item Cite

Improving Symptom Management for Survivors of Young Adult Cancer: Development of a Novel Intervention.

Journal article J Adolesc Young Adult Oncol · August 2023 Purpose: Improved symptom management is a critical although unmet post-treatment need for young adult (YA) cancer survivors (aged 18-39 at diagnosis). This study aimed to develop and refine a behavioral symptom management intervention for YA survivors. Met ... Full text Link to item Cite

Relationships Between Burnout and Resilience: Experiences of Physical Therapists and Occupational Therapists During the COVID-19 Pandemic.

Journal article Phys Ther · May 4, 2023 OBJECTIVE: Research on burnout among physical therapists and occupational therapists in the context of the coronavirus disease 2019 (COVID-19) pandemic is limited. Resilience may be important for reducing burnout and promoting well-being among rehabilitati ... Full text Link to item Cite

Improving well-being for individuals with persistent pain after surgery for breast cancer, lobular carcinoma in situ, or ductal carcinoma in situ: A randomized clinical trial.

Journal article Contemp Clin Trials · November 2022 >276,000 Americans will be diagnosed with invasive breast cancer, lobular carcinoma in situ, or ductal carcinoma in situ this year and most will undergo breast surgery as part of their care. Although prognosis is excellent, many patients experience persist ... Full text Link to item Cite

Symptom Communication Preferences and Communication Barriers for Young Adult Cancer Survivors and Their Health Care Providers.

Journal article J Adolesc Young Adult Oncol · October 2022 Purpose: Effective communication between young adult (YA; aged 18-39 years) cancer survivors and their health care providers is critical for managing post-treatment symptoms. Yet, little is known about YAs' and providers' preferences for and barriers to sy ... Full text Link to item Cite

Managing female sexual dysfunction.

Journal article Urol Oncol · August 2022 OBJECTIVE: Provide an overview of sexual dysfunction in female urologic cancer patients, approaches for assessing sexual problems, and interventions to treat sexual dysfunction in this patient population. METHODS: A review of the literature in urologic onc ... Full text Link to item Cite

Home-Based Hematopoietic Cell Transplantation in the United States.

Journal article Transplant Cell Ther · April 2022 Patients undergoing allogeneic (allo) and autologous (auto) hematopoietic cell transplantation (HCT) require extensive hospitalizations or daily clinic visits for the duration of their transplantation. Home HCT, wherein patients live at home and providers ... Full text Link to item Cite

DEVELOPMENT, FEASIBILITY, AND ACCEPTABILITY OF A BEHAVIORAL WEIGHT AND SYMPTOM MANAGEMENT INTERVENTION FOR BREAST CANCER SURVIVORS AND INTIMATE PARTNERS.

Journal article J Cancer Rehabil · 2022 BACKGROUND: Weight gain is common for breast cancer survivors and associated with disease progression, recurrence, and mortality. Traditional behavioral programs fail to address symptoms (i.e., pain, fatigue, distress) experienced by breast cancer survivor ... Full text Open Access Link to item Cite

Low-touch, team-based care for co-morbidity management in cancer patients: the ONE TEAM randomized controlled trial.

Journal article BMC Fam Pract · November 18, 2021 BACKGROUND: As treatments for cancer have improved, more people are surviving cancer. However, compared to people without a history of cancer, cancer survivors are more likely to die of cardiovascular disease (CVD). Increased risk for CVD-related mortality ... Full text Link to item Cite

Replicating dissemination and identifying mechanisms of implementation of an empirically supported treatment.

Journal article Health Psychol · July 2021 OBJECTIVE: Implementation research is needed in cancer control. Replication of the dissemination of empirically supported treatments (ESTs) is important as is the identification of mechanisms by which dissemination leads to implementation. Addressing these ... Full text Link to item Cite

Behavioral cancer pain intervention using videoconferencing and a mobile application for medically underserved patients: Rationale, design, and methods of a prospective multisite randomized controlled trial.

Journal article Contemp Clin Trials · March 2021 BACKGROUND: Women with breast cancer in medically underserved areas are particularly vulnerable to persistent pain and disability. Behavioral pain interventions reduce pain and improve outcomes. Cancer patients in medically underserved areas receive limite ... Full text Link to item Cite

SEXUALITY AND CANCER: WHAT WE KNOW AND WHERE WE NEED TO GO

Journal article Journal of Cancer Rehabilitation · January 1, 2021 Sexuality in cancer patients has been studied for at least 70 years, with the earliest work done by oncologists comparing outcomes of patients receiving different treatments. However, Masters’ and Johnson’s studies of sexuality (1966) and sexual dysfunctio ... Full text Cite

Factors associated with falls in older women with breast cancer: the use of a brief geriatric screening tool in clinic.

Journal article Breast Cancer Res Treat · November 2020 PURPOSE: Unintentional falls and breast cancer are common among older women, but the associations between them are understudied. We aimed to identify factors associated with falls in older women with breast cancer. METHODS: We retrospectively reviewed clin ... Full text Link to item Cite

Microtransplantation in older patients with AML: A pilot study of safety, efficacy and immunologic effects.

Journal article Am J Hematol · June 2020 Older AML patients have low remission rates and poor survival outcomes with standard chemotherapy. Microtransplantation (MST) refers to infusion of allogeneic hematopoietic stem cells without substantial engraftment. MST has been shown to improve clinical ... Full text Link to item Cite

Evolution of a longitudinal, multidisciplinary, and scalable patient navigation matrix model.

Journal article Cancer Med · May 2020 This Longitudinal patient navigation Matrix Model was developed to overcome barriers across the cancer care continuum by offering prepatients, patients, and their families with support services. The extraordinary heterogeneity of patient needs during cance ... Full text Link to item Cite

Improving health engagement and lifestyle management for breast cancer survivors with diabetes.

Journal article Contemp Clin Trials · May 2020 Breast cancer survivors with type 2 diabetes are at high risk for cancer recurrence, serious health complications, more severe symptoms, psychological distress, and premature death relative to breast cancer survivors without diabetes. Maintaining glycemic ... Full text Open Access Link to item Cite

Unmet Spiritual Care Needs in Women Undergoing Core Needle Breast Biopsy.

Journal article J Breast Imaging · March 25, 2020 OBJECTIVE: Spiritual care is an important part of healthcare, especially when patients face a possible diagnosis of a life-threatening disease. This study examined the extent to which women undergoing core-needle breast biopsy desired spiritual support and ... Full text Link to item Cite

A feasible and acceptable multicultural psychosocial intervention targeting symptom management in the context of advanced breast cancer.

Journal article Psychooncology · February 2020 OBJECTIVE: Advanced breast cancer patients around the world experience high symptom burden (ie, distress, pain, and fatigue) and are in need of psychosocial interventions that target symptom management. This study examined the feasibility, acceptability, a ... Full text Link to item Cite

Detecting geriatric needs in older patients with breast cancer through use of a brief geriatric screening tool.

Journal article J Geriatr Oncol · November 2019 INTRODUCTION: Identification of geriatric syndromes is important for determining functional age and optimizing care for people with cancer. Based on administration of a geriatric screening tool, we aimed to describe needed resources for geriatric syndromes ... Full text Link to item Cite

Frequency of Breast Cancer Thoughts and Lifetime Risk Estimates: A Multi-Institutional Survey of Women Undergoing Screening Mammography.

Journal article J Am Coll Radiol · October 2019 PURPOSE: The aim of this study was to quantify women's personal estimates of breast cancer risk and frequency of breast cancer thoughts. METHODS: Women from five medical centers were surveyed before their screening mammographic examinations. Participants w ... Full text Link to item Cite

Preliminary efficacy of a lovingkindness meditation intervention for patients undergoing biopsy and breast cancer surgery: A randomized controlled pilot study.

Journal article Support Care Cancer · September 2019 PURPOSE: Despite more women undergoing treatment for breast cancer and increased survival rates, many women suffer from anxiety and physical symptoms (e.g., pain, fatigue) surrounding diagnosis and surgery. Research investigating the efficacy of psychosoci ... Full text Link to item Cite

Partner status moderates the relationships between sexual problems and self-efficacy for managing sexual problems and psychosocial quality-of-life for postmenopausal breast cancer survivors taking adjuvant endocrine therapy.

Journal article Menopause · August 2019 OBJECTIVE: Past studies indicate that >90% of breast cancer survivors taking adjuvant endocrine therapy (AET) experience menopausal symptoms including sexual problems (eg, vaginal dryness, dyspareunia); however, research examining the impact of these probl ... Full text Link to item Cite

Optimizing the Patient Experience during Breast Biopsy.

Journal article J Breast Imaging · June 4, 2019 For years, breast imaging has been the model in radiology for patient communication, and more recently, it has been a leader in the growing patient- and family-centered approach to care. To maintain high levels of patient satisfaction during image-guided c ... Full text Link to item Cite

Persistent breast pain in post-surgery breast cancer survivors and women with no history of breast surgery or cancer: associations with pain catastrophizing, perceived breast cancer risk, breast cancer worry, and emotional distress.

Journal article Acta Oncol · May 2019 Background: Persistent breast pain (PBP) is prevalent among breast cancer survivors and has powerful negative psychological consequences. The present study provided a first test of the hypothesis that: (a) pain catastrophizing, (b) heightened perceived ris ... Full text Link to item Cite

Higher symptom burden is associated with lower function in women taking adjuvant endocrine therapy for breast cancer.

Journal article J Geriatr Oncol · March 2019 OBJECTIVE: To explore the impact of symptoms on physical function in women on adjuvant endocrine therapy for breast cancer. METHODS: Eligible women were postmenopausal, had hormone receptor positive, stage I-IIIA breast cancer, completed surgery, chemother ... Full text Open Access Link to item Cite

Novel cancer therapies and their association with diabetes.

Journal article J Mol Endocrinol · February 1, 2019 Over the last decade, there has been a shift in the focus of cancer therapy from conventional cytotoxic drugs to therapies more specifically directed to cancer cells. These novel therapies include immunotherapy, targeted therapy and precision medicine, eac ... Full text Link to item Cite

Reminders of cancer risk and pain catastrophizing: relationships with cancer worry and perceived risk in women with a first-degree relative with breast cancer.

Journal article Fam Cancer · January 2019 First-degree relatives of women with breast cancer may experience increased worry or perceived risk when faced with reminders of their own cancer risk. Worry and risk reminders may include physical symptoms (e.g., persistent breast pain) and caregiving exp ... Full text Link to item Cite

Using a geriatric oncology assessment to link with services (GOAL).

Journal article J Geriatr Oncol · January 2019 OBJECTIVE: Geriatric screening tools assess functional limitations and inform clinical decision-making for older adults with cancer. Our objective was to evaluate the feasibility and effectiveness of a screener in community-based oncology clinics. MATERIAL ... Full text Open Access Link to item Cite

Testing a behavioral intervention to improve adherence to adjuvant endocrine therapy (AET).

Journal article Contemp Clin Trials · January 2019 Adjuvant endocrine therapy (AET) is used to prevent recurrence and reduce mortality for women with hormone receptor positive breast cancer. Poor adherence to AET is a significant problem and contributes to increased medical costs and mortality. A variety o ... Full text Open Access Link to item Cite

Development and pilot testing of an mHealth behavioral cancer pain protocol for medically underserved communities.

Journal article J Psychosoc Oncol · 2019 The purpose of this study was to refine and test a mobile-health behavioral cancer pain coping skills training protocol for women with breast cancer and pain from medically underserved areas. Three focus groups (Phase 1) were used to refine the initial pro ... Full text Link to item Cite

Self-Efficacy for Pain Communication Moderates the Relation Between Ambivalence Over Emotional Expression and Pain Catastrophizing Among Patients With Osteoarthritis.

Journal article J Pain · September 2018 UNLABELLED: Pain catastrophizing (ie, the tendency to focus on and magnify pain sensations and feel helpless in the face of pain) is one of the most important and consistent psychological predictors of the pain experience. The present study examined, in 60 ... Full text Link to item Cite

Patient Perceptions of Breast Cancer Risk in Imaging-Detected Low-Risk Scenarios and Thresholds for Desired Intervention: A Multi-Institution Survey.

Journal article J Am Coll Radiol · June 2018 PURPOSE: To determine women's perceptions of breast cancer risk and thresholds for desiring biopsy when considering BI-RADS 3 and 4A scenarios and recommendations, respectively. MATERIALS AND METHODS: Women presenting for screening mammography from five ge ... Full text Link to item Cite

The effect of pre-transplant pain and chronic disease self-efficacy on quality of life domains in the year following hematopoietic stem cell transplantation.

Journal article Support Care Cancer · April 2018 PURPOSE: Pain is common for hematopoietic stem cell transplant (HSCT) patients and may be experienced pre-transplant, acutely post-transplant, and for months or years following transplant. HSCT patients with persistent pain may be at risk for poor quality ... Full text Link to item Cite

An mHealth Pain Coping Skills Training Intervention for Hematopoietic Stem Cell Transplantation Patients: Development and Pilot Randomized Controlled Trial.

Journal article JMIR Mhealth Uhealth · March 19, 2018 BACKGROUND: Pain is a challenge for patients following hematopoietic stem cell transplantation (HCT). OBJECTIVE: This study aimed to develop and test the feasibility, acceptability, and initial efficacy of a Web-based mobile pain coping skills training (mP ... Full text Link to item Cite

The relationship between holding back from communicating about breast concerns and anxiety in the year following breast biopsy.

Journal article J Psychosoc Oncol · 2018 PURPOSE: Evidence suggests open communication about breast cancer concerns promotes psychological adjustment, while holding back can lead to negative outcomes. Little is known about the relationship between communication and distress following breast biops ... Full text Link to item Cite

Positive and negative mood following imaging-guided core needle breast biopsy and receipt of biopsy results.

Journal article Psychol Health Med · December 2017 Positive and negative mood are independent psychological responses to stressful events. Negative mood negatively impacts well-being and co-occurring positive mood leads to improved adjustment. Women undergoing core needle breast biopsies (CNB) experience d ... Full text Link to item Cite

Impact of Sodium Bicarbonate-Buffered Lidocaine on Patient Pain During Image-Guided Breast Biopsy.

Journal article J Am Coll Radiol · September 2017 PURPOSE: This randomized, double-blind controlled study evaluated the effectiveness of sodium bicarbonate-buffered lidocaine on reducing pain during imaging-guided breast biopsies. MATERIALS AND METHODS: This prospective, HIPAA-compliant study randomly ass ... Full text Link to item Cite

An mHealth Pain Coping Skills Training Intervention for Hematopoietic Stem Cell Transplantation Patients: Development and Pilot Randomized Controlled Trial (Preprint)

Journal article · July 27, 2017 BACKGROUNDPain is a challenge for patients following hematopoietic stem cell transplantation (HCT). Full text Cite

Optimizing delivery of a behavioral pain intervention in cancer patients using a sequential multiple assignment randomized trial SMART.

Journal article Contemp Clin Trials · June 2017 BACKGROUND/AIMS: Pain is common in cancer patients and results in lower quality of life, depression, poor physical functioning, financial difficulty, and decreased survival time. Behavioral pain interventions are effective and nonpharmacologic. Traditional ... Full text Link to item Cite

Anxiety prior to breast biopsy: Relationships with length of time from breast biopsy recommendation to biopsy procedure and psychosocial factors.

Journal article J Health Psychol · April 2017 This study investigated how time from breast biopsy recommendation to biopsy procedure affected pre-biopsy anxiety ( N = 140 women), and whether the relationship between wait time and anxiety was affected by psychosocial factors (chronic life stress, traum ... Full text Link to item Cite

Cognitive problems following hematopoietic stem cell transplant: relationships with sleep, depression and fatigue.

Journal article Bone Marrow Transplant · February 2017 Cognitive problems are a significant, persistent concern for patients undergoing hematopoietic stem cell transplant (HSCT). Sleep is important for many cognitive tasks; however, the relationship between sleep and cognitive problems for HSCT patients is unk ... Full text Link to item Cite

Persistent Breast Pain Among Women With Histories of Breast-conserving Surgery for Breast Cancer Compared With Women Without Histories of Breast Surgery or Cancer.

Journal article Clin J Pain · January 2017 OBJECTIVES: This study compared persistent breast pain among women who received breast-conserving surgery for breast cancer and women without a history of breast cancer. METHODS: Breast cancer survivors (n=200) were recruited at their first postsurgical su ... Full text Link to item Cite

Sexual Satisfaction and the Importance of Sexual Health to Quality of Life Throughout the Life Course of U.S. Adults.

Journal article J Sex Med · November 2016 INTRODUCTION: Discussions about sexual health are uncommon in clinical encounters, despite the sexual dysfunction associated with many common health conditions. Understanding of the importance of sexual health and sexual satisfaction in U.S. adults is limi ... Full text Link to item Cite

Patient Anxiety Before and Immediately After Imaging-Guided Breast Biopsy Procedures: Impact of Radiologist-Patient Communication.

Journal article J Am Coll Radiol · November 2016 PURPOSE: The aim of this study was to evaluate patient anxiety and its association with perceived radiologist-patient communication in the setting of imaging-guided breast biopsy. METHODS: After informed consent was obtained, 138 women recommended for imag ... Full text Link to item Cite

Self-system therapy for distress associated with persistent low back pain: A randomized clinical trial.

Journal article Psychother Res · July 2016 OBJECTIVE: Persistent low back pain (PLBP) is associated with vulnerability to depression. PLBP frequently requires major changes in occupation and lifestyle, which can lead to a sense of failing to attain one's personal goals (self-discrepancy). METHOD: W ... Full text Open Access Link to item Cite

Imaging-Guided Core-Needle Breast Biopsy: Impact of Meditation and Music Interventions on Patient Anxiety, Pain, and Fatigue.

Journal article J Am Coll Radiol · May 2016 PURPOSE: To evaluate the impact of guided meditation and music interventions on patient anxiety, pain, and fatigue during imaging-guided breast biopsy. METHODS: After giving informed consent, 121 women needing percutaneous imaging-guided breast biopsy were ... Full text Link to item Cite

A Small Randomized Controlled Pilot Trial Comparing Mobile and Traditional Pain Coping Skills Training Protocols for Cancer Patients with Pain.

Journal article Pain Res Treat · 2016 Psychosocial pain management interventions are efficacious for cancer pain but are underutilized. Recent advances in mobile health (mHealth) technologies provide new opportunities to decrease barriers to access psychosocial pain management interventions. T ... Full text Link to item Cite

Medication taking behaviors among breast cancer patients on adjuvant endocrine therapy.

Journal article Breast · October 2015 PURPOSE: To explore how symptoms and psychosocial factors are related to intentional and unintentional non-adherent medication taking behaviors. METHODS: Included were postmenopausal women with hormone receptor positive, stage I-IIIA breast cancer, who had ... Full text Open Access Link to item Cite

Development and Initial Validation of the PROMIS(®) Sexual Function and Satisfaction Measures Version 2.0.

Journal article J Sex Med · September 2015 INTRODUCTION: The Patient-Reported Outcomes Measurement Information System (PROMIS)(®) Sexual Function and Satisfaction measure (SexFS) version 1.0 was developed with cancer populations. There is a need to expand the SexFS and provide evidence of its valid ... Full text Link to item Cite

Adherence to adjuvant endocrine therapy for breast cancer: importance in women with low income.

Journal article J Womens Health (Larchmt) · May 2015 There are wide disparities in breast cancer-specific survival by patient sociodemographic characteristics. Women of lower income, for instance, have higher relapse and death rates from breast cancer. One possible contributing factor for this disparity is l ... Full text Open Access Link to item Cite

ANXIETY AND NEGATIVE MOOD FOLLOWING MAMMOGRAPHY SCREENING FOR BREAST CANCER

Journal article ANNALS OF BEHAVIORAL MEDICINE · April 1, 2015 Link to item Cite

Dissemination of an evidence-based treatment for cancer patients: training is the necessary first step.

Journal article Transl Behav Med · March 2015 Evidence-based psychological treatments (EBTs) for cancer patients have not been disseminated in part due to lack of available training. The biobehavioral intervention (BBI) is an EBT designed to alleviate cancer stress and enhance coping. The current stud ... Full text Link to item Cite

Self-efficacy for coping with symptoms moderates the relationship between physical symptoms and well-being in breast cancer survivors taking adjuvant endocrine therapy.

Journal article Support Care Cancer · October 2014 PURPOSE: This study examined the relationships between physical symptoms, self-efficacy for coping with symptoms, and functional, emotional, and social well-being in women who were taking adjuvant endocrine therapy for breast cancer. METHODS: One hundred a ... Full text Link to item Cite

Holding back moderates the association between health symptoms and social well-being in patients undergoing hematopoietic stem cell transplantation.

Journal article J Pain Symptom Manage · September 2014 CONTEXT: Holding back, or withholding discussion of disease-related thoughts and emotions, is associated with negative outcomes including lower quality of life, diminished well-being, and relational distress. For patients undergoing hematopoietic stem cell ... Full text Link to item Cite

Improving patients' understanding of terms and phrases commonly used in self-reported measures of sexual function.

Journal article J Sex Med · August 2014 INTRODUCTION: There is a significant gap in research regarding the readability and comprehension of existing sexual function measures. Patient-reported outcome measures may use terms not well understood by respondents with low literacy. AIM: This study aim ... Full text Link to item Cite

Predictors of pain experienced by women during percutaneous imaging-guided breast biopsies.

Journal article J Am Coll Radiol · July 2014 PURPOSE: The purpose of this study was to evaluate pain experienced during imaging-guided core-needle breast biopsies and to identify factors that predict increased pain perception during procedures. METHODS: In this institutional review board-approved, HI ... Full text Link to item Cite

DISSEMINATION OF THE BIOBEHAVIORAL INTERVENTION: FROM CANCER TO HEALTH

Journal article ANNALS OF BEHAVIORAL MEDICINE · April 1, 2014 Link to item Cite

Targeted investment improves access to hospice and palliative care.

Journal article J Pain Symptom Manage · November 2013 CONTEXT: Availability of hospice and palliative care is increasing, despite lack of a clear national strategy for developing and evaluating their penetration into and impact on the target population. OBJECTIVES: To determine whether targeted investment (i. ... Full text Link to item Cite

Conceptual model for the PROMIS sexual function and satisfaction measure

Journal article QUALITY OF LIFE RESEARCH · October 1, 2013 Link to item Cite

Psychosocial interventions for managing pain in older adults: outcomes and clinical implications.

Journal article Br J Anaesth · July 2013 Interest in the use of psychosocial interventions to help older adults manage pain is growing. In this article, we review this approach. The first section reviews the conceptual background for psychosocial interventions with a special emphasis on the biops ... Full text Link to item Cite

Patient anxiety before and immediately after imaging-guided breast biopsy procedures: impact of radiologist-patient communication.

Journal article J Am Coll Radiol · June 2013 PURPOSE: The aim of this study was to evaluate patient anxiety and its association with perceived radiologist-patient communication in the setting of imaging-guided breast biopsy. METHODS: After informed consent was obtained, 138 women recommended for imag ... Full text Link to item Cite

Symptom communication in breast cancer: relationships of holding back and self-efficacy for communication to symptoms and adjustment.

Journal article J Psychosoc Oncol · 2013 Adjuvant endocrine therapy improves overall survival for women with breast cancer. However, side effects may compromise patients' quality of life (QOL). This study examined how two communication variables (self-efficacy for symptom communication [SE] and h ... Full text Link to item Cite

The context of pain in arthritis: self-efficacy for managing pain and other symptoms.

Journal article Curr Pain Headache Rep · December 2012 Arthritis pain may be best understood in the context of a biospychosocial model of pain. The biopsychosocial model of pain suggests that adjustment to arthritis pain is multifaceted and is influenced by biological, psychological, and social factors. One ps ... Full text Link to item Cite

Assessment of the psychometric properties of an English version of the cancer dyspnea scale in people with advanced lung cancer.

Journal article J Pain Symptom Manage · November 2012 CONTEXT: Dyspnea is a poorly understood subjective sensation. Existing dyspnea measures fail to adequately address its multidimensionality. A Japanese group developed and validated the Cancer Dyspnea Scale (CDS) for assessing dyspnea in patients with advan ... Full text Open Access Link to item Cite

Patient experiences with communication about sex during and after treatment for cancer.

Journal article Psychooncology · June 2012 OBJECTIVE: We studied patients' experiences with oncology providers regarding communication about sexual issues during and after treatment for cancer. METHODS: During development of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) S ... Full text Link to item Cite

Pain coping skills training and lifestyle behavioral weight management in patients with knee osteoarthritis: a randomized controlled study.

Journal article Pain · June 2012 Overweight and obese patients with osteoarthritis (OA) experience more OA pain and disability than patients who are not overweight. This study examined the long-term efficacy of a combined pain coping skills training (PCST) and lifestyle behavioral weight ... Full text Link to item Cite

Brief Fear of Movement Scale for osteoarthritis.

Journal article Arthritis Care Res (Hoboken) · June 2012 OBJECTIVE: Fear of movement has important clinical implications for individuals with osteoarthritis (OA). This study aimed to establish a brief fear of movement scale for use in OA. Items from the Tampa Scale for Kinesiophobia (TSK) were examined. METHODS: ... Full text Link to item Cite

Prospective study of factors predicting adherence to surveillance mammography in women treated for breast cancer.

Journal article J Clin Oncol · March 10, 2012 PURPOSE: This prospective study examined the factors that predicted sustained adherence to surveillance mammography in women treated for breast cancer. METHODS: Breast cancer survivors (N = 204) who were undergoing surveillance mammography completed questi ... Full text Link to item Cite

Sexual quality of life in patients undergoing coronary artery bypass graft surgery.

Journal article Psychol Health · 2012 OBJECTIVES: Despite improvements in many domains of functioning, sexual quality of life often remains impaired following coronary artery bypass graft (CABG) surgery. This study examined associations among sexual quality of life, fear of sexual activity and ... Full text Link to item Cite

Longitudinal patient-reported performance status assessment in the cancer clinic is feasible and prognostic.

Journal article J Oncol Pract · November 2011 PURPOSE: Performance status is prognostic in oncology and palliative care settings. Traditionally clinician rated, it is often inconsistently collected, recorded, and measured, thereby limiting its utility. Patient-reported strategies are increasingly used ... Full text Link to item Cite

Symptom experiences and nonadherent medication-taking behaviors of breast cancer patients taking adjuvant hormone therapy.

Journal article J Clin Oncol · May 20, 2011 524 Background: Many breast cancer patients do not adhere to prescribed adjuvant hormone therapy. This pilot study explored symptom experiences and medication adherence behaviors. METHODS: Eligible women were postmenopausal, had hormone receptor positive s ... Link to item Cite

Effects of coping skills training and sertraline in patients with non-cardiac chest pain: a randomized controlled study.

Journal article Pain · April 2011 Non-cardiac chest pain (NCCP) is a common and distressing condition. Prior studies suggest that psychotropic medication or pain coping skills training (CST) may benefit NCCP patients. To our knowledge, no clinical trials have examined the separate and comb ... Full text Link to item Cite

Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®).

Journal article Psychooncology · April 2011 OBJECTIVE: Cancer and treatments for cancer affect specific aspects of sexual functioning and intimacy; however, limited qualitative work has been done in diverse cancer populations. As part of an effort to improve measurement of self-reported sexual funct ... Full text Link to item Cite

Sexual concerns in lung cancer patients: an examination of predictors and moderating effects of age and gender.

Journal article Support Care Cancer · January 2011 PURPOSE: Sexual concerns are understudied and undertreated for patients with lung cancer. Objectives were to: (1) assess sexual concerns in lung cancer patients and examine differences by age and gender; (2) examine stability of sexual concerns over time; ... Full text Link to item Cite

Chronic pain and adherence

Journal article · December 1, 2010 Chronic pain of non-malignant etiology is a significant problem. Chronic non-malignant pain is typically defined as pain that persists for 3 months or longer and that is non-life threatening [1, 2]. Among the most common chronic pain conditions are chronic ... Full text Cite

Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®)).

Journal article Psychooncology · October 2010 OBJECTIVE: Cancer and its treatments disturb sleep-wake functioning; however, there is little information available on the characteristics and consequences of sleep problems associated with cancer. As part of an effort to improve measurement of sleep-wake ... Full text Link to item Cite

Validation of the Patient Care Monitor (Version 2.0): a review of system assessment instrument for cancer patients.

Journal article J Pain Symptom Manage · October 2010 CONTEXT: The Patient Care Monitor (PCM) is a review of systems survey delivered by means of an electronic patient-reported outcomes (ePRO) data capture system that uses wireless tablet computers. Although the PCM 1.0 is validated, the updated PCM 2.0 has n ... Full text Link to item Cite

Sexual concerns in cancer patients: a comparison of GI and breast cancer patients.

Journal article Support Care Cancer · September 2010 PURPOSE: Although sexual concerns have been examined in breast cancer (BC), these concerns remain understudied and undertreated for patients with gastrointestinal (GI) cancer. Objectives were to: (1) assess sexual concerns in GI cancer patients compared wi ... Full text Link to item Cite

Disease severity and domain-specific arthritis self-efficacy: relationships to pain and functioning in patients with rheumatoid arthritis.

Journal article Arthritis Care Res (Hoboken) · June 2010 OBJECTIVE: To examine the degree to which disease severity and domains of self-efficacy (pain, function, and other symptoms) explain pain and functioning in rheumatoid arthritis (RA) patients. METHODS: Patients (n = 263) completed the Arthritis Impact Meas ... Full text Link to item Cite

Pain catastrophizing in patients with noncardiac chest pain: relationships with pain, anxiety, and disability.

Journal article Psychosom Med · October 2009 OBJECTIVE: To examine the contributions of chest pain, anxiety, and pain catastrophizing to disability in 97 patients with noncardiac chest pain (NCCP) and to test whether chest pain and anxiety were related indirectly to greater disability via pain catast ... Full text Link to item Cite

Pain catastrophizing and pain-related fear in osteoarthritis patients: relationships to pain and disability.

Journal article J Pain Symptom Manage · May 2009 This study examined the degree to which pain catastrophizing and pain-related fear explain pain, psychological disability, physical disability, and walking speed in patients with osteoarthritis (OA) of the knee. Participants in this study were 106 individu ... Full text Link to item Cite

Religious coping and pain associated with sickle cell disease: Exploration of a non-linear model

Journal article Journal of African American Studies · March 1, 2009 The current study tested a non-linear model of religious coping among Black patients with Sickle Cell Disease (SCD). We predicted that moderate prayer and church attendance would be associated with less severe affective and sensory ratings of pain, lower l ... Full text Cite

Randomized trial of a decision aid for BRCA1/BRCA2 mutation carriers: impact on measures of decision making and satisfaction.

Journal article Health Psychol · January 2009 OBJECTIVE: Genetic testing is increasingly part of routine clinical care for women with a family history of breast cancer. Given their substantially elevated risk for breast cancer, BRCA1/BRCA2 mutation carriers must make the difficult decision whether or ... Full text Link to item Cite

Domain specific self-efficacy mediates the impact of pain catastrophizing on pain and disability in overweight and obese osteoarthritis patients.

Journal article J Pain · October 2008 UNLABELLED: This study examined whether self-efficacy mediated the relationship between pain catastrophizing and pain and disability. Participants were 192 individuals diagnosed with osteoarthritis (OA) of the knees who were overweight or obese. Multiple m ... Full text Link to item Cite

Optimism, social support, and adjustment in African American women with breast cancer.

Journal article J Behav Med · October 2008 Past studies show that optimism and social support are associated with better adjustment following breast cancer treatment. Most studies have examined these relationships in predominantly non-Hispanic White samples. The present study included 77 African Am ... Full text Link to item Cite

Arthritis self-efficacy and self-efficacy for resisting eating: relationships to pain, disability, and eating behavior in overweight and obese individuals with osteoarthritic knee pain.

Journal article Pain · June 2008 This study examined arthritis self-efficacy and self-efficacy for resisting eating as predictors of pain, disability, and eating behaviors in overweight or obese patients with osteoarthritis (OA) of the knee. Patients (N=174) with a body mass index between ... Full text Link to item Cite

PTSD diagnoses, subsyndromal symptoms, and comorbidities contribute to impairments for breast cancer survivors.

Journal article J Trauma Stress · April 2008 The clinical importance of posttraumatic stress disorder (PTSD) symptomatology for cancer patients is unclear. The association between the magnitude of cancer-related PTSD symptoms, comorbidity, and functioning is tested. Breast cancer patients (N = 74) we ... Full text Link to item Cite

Changes in diet and physical activity following BRCA1/2 testing.

Journal article J Psychosoc Oncol · 2008 The present study prospectively examined change in diet and physical activity behaviors in 115 women undergoing BRCA1/2 gene testing (46 mutation positive, 46 uninformative and 23 definitive negative). Participants completed measures of diet and physical a ... Full text Link to item Cite

RCT of a psychological intervention for patients with cancer: I. mechanisms of change.

Journal article J Consult Clin Psychol · December 2007 Little is known about the therapeutic processes contributing to efficacy of psychological interventions for patients with cancer. Data from a randomized clinical trial yielding robust biobehavioral and health effects (B. L. Andersen et al., 2004, 2007) wer ... Full text Link to item Cite

Standardized versus open-ended assessment of psychosocial and medical concerns among African American breast cancer patients.

Journal article Psychooncology · May 2006 Standardized quality of life measures have been developed and used primarily with Caucasian and middle-class cancer patients. This study assessed the ability of several widely used standardized measures to capture the concerns and problems of 89 African Am ... Full text Link to item Cite

Parental substance abuse, reports of chronic pain and coping in adult patients with sickle cell disease.

Journal article J Natl Med Assoc · March 2006 There is increasing interest from a social learning perspective in understanding the role of parental factors on adult health behaviors and health outcomes. Our review revealed no studies, to date, that have evaluated the effects of parental substance abus ... Link to item Cite

TNF-alpha levels in cancer patients relate to social variables.

Journal article Brain Behav Immun · November 2005 Tumor necrosis factor-alpha (TNF-alpha) is an important cytokine associated with tumor regression and increased survival time for cancer patients. Research evidence relates immune factors (e.g., natural killer (NK) cell counts, NK cell lysis, lymphocyte pr ... Full text Link to item Cite

Mismatch of posttraumatic stress disorder (PTSD) symptoms and DSM-IV symptom clusters in a cancer sample: exploratory factor analysis of the PTSD Checklist-Civilian Version.

Journal article J Trauma Stress · August 2005 The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV; American Psychiatric Association, 1994a) conceptualization of posttraumatic stress disorder (PTSD) includes three symptom clusters: reexperiencing, avoidance/numbing, and ar ... Full text Link to item Cite

Traumatic stress, perceived global stress, and life events: prospectively predicting quality of life in breast cancer patients.

Journal article Health Psychol · May 2005 The authors investigated the relationship between stress at initial cancer diagnosis and treatment and subsequent quality of life (QoL). Women (n = 112) randomized to the assessment-only arm of a clinical trial were initially assessed after breast cancer d ... Full text Link to item Cite

Quality of life and trial adherence among participants in the prostate, lung, colorectal, and ovarian cancer screening trial.

Journal article J Natl Cancer Inst · July 21, 2004 BACKGROUND: The National Cancer Institute's Prostate, Lung, Colorectal, and Ovarian (PLCO) Cancer Screening Trial was designed to examine whether annual screening tests for these four tumor sites result in reduced disease-related mortality. We assessed the ... Full text Link to item Cite

Psychological adjustment among African American breast cancer patients: one-year follow-up results of a randomized psychoeducational group intervention.

Journal article Health Psychol · May 2003 The effectiveness of support group interventions for cancer patients has been established among White patients but has been virtually unstudied among minority patients. The current study represents the 1st randomized support group intervention targeted to ... Full text Link to item Cite

Development of an interactive decision aid for female BRCA1/BRCA2 carriers

Journal article Journal of Genetic Counseling · January 1, 2003 Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical ... Full text Cite

Impact of undergoing prostate carcinoma screening on prostate carcinoma-related knowledge and distress.

Journal article Cancer · September 1, 2002 BACKGROUND: Despite the ongoing controversy regarding the utility of prostate carcinoma (PCa) screening, the prevalence of asymptomatic men who participate in free PCa screening programs is on the rise. However, this increased awareness has not been associ ... Full text Link to item Cite

The impact of item order on ratings of cancer risk perception.

Journal article Cancer Epidemiol Biomarkers Prev · July 2002 Although perceived risk is central to most theories of health behavior, there is little consensus on its measurement with regard to item wording, response set, or the number of items to include. In a methodological assessment of perceived risk, we assessed ... Link to item Cite

Treatment regimen, sexual attractiveness concerns and psychological adjustment among African American breast cancer patients.

Journal article Psychooncology · 2002 BACKGROUND: Among a sample of African American women recently diagnosed with breast cancer, we assessed the consequences of different treatment regimens on sexual attractiveness concerns, and the impact of sexual attractiveness concerns on current and subs ... Full text Link to item Cite

The role of community-based and philanthropic organizations in meeting cancer patient and caregiver needs.

Journal article CA Cancer J Clin · 2002 We examined information from community-based and philanthropic organizations to document the cancer-related services that are currently available, establish which services are still needed, and determine who utilizes these formal support networks. In Phase ... Full text Link to item Cite

Factors contributing to levels of burnout among sex offender treatment providers

Journal article Journal of Interpersonal Violence · January 1, 2001 This study used the Maslach Burnout Inventory (MBI) to examine burnout among 86 licensed mental health providers who treat sex offenders. Participants were 53.5% male, 43% worked in inpatient/prison settings, and 55.8% worked in group therapy settings. Com ... Full text Cite