Sophia Kustas Smith | Scholars@Duke

Sophia Kustas Smith
Associate Professor in the School of Nursing

Dr. Sophia Smith is an Associate Professor at the Duke School of Nursing and earned her PhD and MSW degrees at UNC-Chapel Hill School of Social Work. Her research explores ways to improve the quality of cancer care including post-treatment survivorship and palliative care with a primary focus on leveraging technology in delivering behavioral health interventions to the community. She is leading efforts to integrate clinical cancer care and research as a means to build the body of scientific evidence that forms the foundation of evidence-based practice through her leadership as Association of Oncology Social Work (AOSW) Research Director and membership on the National Comprehensive Cancer Network (NCCN) Survivorship Guidelines Panel and American Society of Clinical Oncology (ASCO) Survivorship Committee. Dr. Smith’s research has been funded by the National Institutes of Health, the American Cancer Society, NCCN, and Pfizer Grants for Independent Learning and Change.

Current Appointments & Affiliations

Associate Professor in the School of Nursing, School of Nursing, Duke University 2017
Member of the Duke Cancer Institute, Duke Cancer Institute, Institutes and Centers 2013
Member in the Duke Clinical Research Institute, Duke Clinical Research Institute, Institutes and Centers 2014

Contact Information

307 Trent Dr, DUMC 3322, Pearson 2114, Durham, NC 27710
DUMC 3322, Durham, NC 27710
sophia.smith@duke.edu (919) 684-9628

Background
Education, Training, & Certifications
- Ph.D., University of North Carolina at Chapel Hill 2007
- M.S.W., University of North Carolina at Chapel Hill 2001
Duke Appointment History
- Associate Professor in the School of Nursing, School of Nursing, Duke University 2015 - 2016
- Instructor, Temporary in the School of Nursing, School of Nursing, Duke University 2014 - 2015
Recognition
In the News
- JUL 31, 2017 Herald-Sun
  
  PTSD app helps cancer survivors overcome trauma of treatment.
- JUL 11, 2017 WRAL-TV
  
  Mobile app developed at Duke helping survivors battle 'cancer PTSD'
- MAY 27, 2016 Dr Sophia Smith Discusses AttAmerican Journal of Managed Care Network Journal
  
  Dr Sophia Smith Discusses Attending to Patients' Psychosocial Needs
- MAR 31, 2016 American Journal of Managed Care Network Journal
  
  Dr. Sophia Smith Advocates for Introducing Palliative Care as Early as Possible
- JUN 8, 2015
  
  Trifecta Care for Cancer Survivors Improves Health Outcomes
Awards & Honors
Expertise
Subject Headings
Global Scholarship
- Research
  - United States of America (Country)
Research
Selected Grants
- Symptom Burden and Quality of Life in Multiple Myeloma Patients awarded by American Cancer Society, Inc. 2019 - 2021
- Patient-centered home-based hematopoietic stem cell transplantation awarded by National Institutes of Health 2016 - 2021
- Reimagine End of Life: An Online, Personalized Coping and Decision Aid for Metastatic Breast Cancer Patients and Providers awarded by Pfizer, Inc. 2016 - 2018
- Pillars4Life: An Online Self-Management Curriculum for Cancer Survivors awarded by Pfizer, Inc. 2014 - 2016
Fellowships, Supported Research, & Other Grants
- Usability of a Mobile App to Improve Communication around Symptom Management awarded by Duke Palliative Care Pilot Award 2018 - 2019
- Patient-centered home-based hematopoietic stem cell transplantation (PCHT) awarded by National Cancer Institute 2016 - 2020
Publications & Artistic Works
Selected Publications
- Academic Articles
  - Jung, A, Nielsen, ME, Crandell, JL, Palmer, MH, Bryant, AL, Smith, SK, & Mayer, DK. (2019, May). Quality of Life in Non-Muscle-Invasive Bladder Cancer Survivors: A Systematic Review. Cancer Nursing , 42 (3), E21-E33. Full Text
  - Smith, SK, MacDermott, K, Amarasekara, S, Pan, W, Mayer, D, & Hockenberry, M. (2019, May). Reimagine: a randomized controlled trial of an online, symptom self-management curriculum among breast cancer survivors. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer , 27 (5), 1775-1781. Full Text
  - Denlinger, CS, Sanft, T, Baker, KS, Broderick, G, Demark-Wahnefried, W, Friedman, DL, Goldman, M, Hudson, M, Khakpour, N, King, A, Koura, D, Lally, RM, Langbaum, TS, McDonough, AL, Melisko, M, Montoya, JG, Mooney, K, Moslehi, JJ, O'Connor, T, Overholser, L, Paskett, ED, Peppercorn, J, Pirl, W, Rodriguez, MA, Ruddy, KJ, Silverman, P, Smith, S, Syrjala, KL, Tevaarwerk, A, Urba, SG, Wakabayashi, MT, Zee, P, McMillian, NR, & Freedman-Cass, DA. (2018, October). Survivorship, Version 2.2018, NCCN Clinical Practice Guidelines in Oncology. Journal of the National Comprehensive Cancer Network : Jnccn , 16 (10), 1216-1247. Full Text
  - Smith, SK, Loscalzo, M, Mayer, C, & Rosenstein, DL. (2018, May). Best Practices in Oncology Distress Management: Beyond the Screen. American Society of Clinical Oncology Educational Book. American Society of Clinical Oncology. Annual Meeting , 38 , 813-821. (Review) Full Text
  - Bagley, KA, Dunn, SE, Chuang, EY, Dorr, VJ, Thompson, JA, & Smith, SK. (2018, April). Nonspecialty Nurse Education: Evaluation of the Oncology Intensives Initiative, an Oncology Curriculum to Improve Patient Care. Clinical Journal of Oncology Nursing , 22 (2), E44-E51. Full Text
  - Bloom, D, Beetsch, J, Harker, M, Hesterlee, S, Moreira, P, Patrick-Lake, B, Selig, W, Sherman, J, Smith, SK, Valentine, JE, & Roberts, JN. (2018, March). The Rules of Engagement: CTTI Recommendations for Successful Collaborations Between Sponsors and Patient Groups Around Clinical Trials. Therapeutic Innovation & Regulatory Science , 52 (2), 206-213. Full Text
  - Smith, SK, Kuhn, E, O'Donnell, J, Koontz, BF, Nelson, N, Molloy, K, Chang, J, & Hoffman, J. (2018, January). Cancer distress coach: Pilot study of a mobile app for managing posttraumatic stress. Psycho Oncology , 27 (1), 350-353. (Letter) Full Text
  - Berkowitz, CM, Zullig, LL, Koontz, BF, & Smith, SK. (2017, November). Prescribing an App? Oncology Providers' Views on Mobile Health Apps for Cancer Care. Jco Clinical Cancer Informatics , 1 , 1-7. Full Text
  - Denlinger, CS, Sanft, T, Baker, KS, Baxi, S, Broderick, G, Demark-Wahnefried, W, Friedman, DL, Goldman, M, Hudson, M, Khakpour, N, King, A, Koura, D, Kvale, E, Lally, RM, Langbaum, TS, Melisko, M, Montoya, JG, Mooney, K, Moslehi, JJ, O'Connor, T, Overholser, L, Paskett, ED, Peppercorn, J, Rodriguez, MA, Ruddy, KJ, Silverman, P, Smith, S, Syrjala, KL, Tevaarwerk, A, Urba, SG, Wakabayashi, MT, Zee, P, Freedman-Cass, DA, & McMillian, NR. (2017, September). Survivorship, Version 2.2017, NCCN Clinical Practice Guidelines in Oncology. Journal of the National Comprehensive Cancer Network : Jnccn , 15 (9), 1140-1163. Full Text
  - Smith, SK, Johnston, J, Rutherford, C, Hollowell, R, & Tanabe, P. (2017, September). Identifying Social-Behavioral Health Needs of Adults with Sickle Cell Disease in the Emergency Department. Journal of Emergency Nursing: Jen : Official Publication of the Emergency Department Nurses Association , 43 (5), 444-450. Full Text
  - Sarker, S-J, Smith, SK, Chowdhury, K, Ganz, PA, Zimmerman, S, Gribben, J, & Korszun, A. (2017, March). Comparison of the impact of cancer between British and US long-term non-Hodgkin lymphoma survivors. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer , 25 (3), 739-748. Full Text
  - Beaven, AW, Samsa, G, Zimmerman, S, & Smith, SK. (2016, July 5). Quality of Life is Similar between Long-term Survivors of Indolent and Aggressive Non-Hodgkin Lymphoma. Cancer investigation , 34 (6), 279-285. Full Text
  - Denlinger, CS, Ligibel, JA, Are, M, Baker, KS, Broderick, G, Demark-Wahnefried, W, Friedman, DL, Goldman, M, Jones, LW, King, A, Ku, GH, Kvale, E, Langbaum, TS, McCabe, MS, Melisko, M, Montoya, JG, Mooney, K, Morgan, MA, Moslehi, JJ, O'Connor, T, Overholser, L, Paskett, ED, Peppercorn, J, Rodriguez, MA, Ruddy, KJ, Sanft, T, Silverman, P, Smith, S, Syrjala, KL, Urba, SG, Wakabayashi, MT, Zee, P, McMillian, NR, & Freedman-Cass, DA. (2016, June). NCCN Guidelines Insights: Survivorship, Version 1.2016. Journal of the National Comprehensive Cancer Network : Jnccn , 14 (6), 715-724. Full Text
  - Denlinger, CS, Ligibel, JA, Are, M, Baker, KS, Broderick, G, Demark-Wahnefried, W, Friedman, DL, Goldman, M, Jones, LW, King, A, Ku, GH, Kvale, E, Langbaum, TS, McCabe, MS, Melisko, M, Montoya, JG, Mooney, K, Morgan, MA, Moslehi, JJ, O'connor, T, Overholser, L, Paskett, ED, Peppercorn, J, Rodriguez, MA, Ruddy, KJ, Sanft, T, Silverman, P, Smith, S, Syrjala, KL, Urba, SG, Wakabayashi, MT, Zee, P, McMillian, NR, & Freedman-Cass, DA. (2016, June 1). NCCN guidelines ^® insights survivorship, version 1.2016 featured updates to the NCCN Guidelines. Jnccn Journal of the National Comprehensive Cancer Network , 14 (6), 715-724. Full Text
  - (2016, May). NCCN Roundtable: Palliative Care: Providing Comfort From a Patient and Provider Perspective. Journal of the National Comprehensive Cancer Network : Jnccn , 14 (5 Suppl), 634-636.
  - Smith, SK, O'Donnell, JD, Abernethy, AP, MacDermott, K, Staley, T, & Samsa, GP. (2015, November). Evaluation of Pillars4life: a virtual coping skills program for cancer survivors. Psycho Oncology , 24 (11), 1407-1415. Full Text
  - Spector, DJ, Noonan, D, Mayer, DK, Benecha, H, Zimmerman, S, & Smith, SK. (2015, September). Are lifestyle behavioral factors associated with health-related quality of life in long-term survivors of non-Hodgkin lymphoma?. Cancer , 121 (18), 3343-3351. Full Text
  - Bryant, AL, Smith, SK, Zimmer, C, Crandell, J, Jenerette, CM, Bailey, DE, Zimmerman, S, & Mayer, DK. (2015, May). An exploratory path model of the relationships between positive and negative adaptation to cancer on quality of life among non-Hodgkin lymphoma survivors. Journal of psychosocial oncology , 33 (3), 310-331. Full Text
  - Smith, SK, Selig, W, Harker, M, Roberts, JN, Hesterlee, S, Leventhal, D, Klein, R, Patrick-Lake, B, & Abernethy, AP. (2015, January). Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey. PloS one , 10 (10), e0140232-. Full Text
  - Smith, SK, Nicolla, J, & Zafar, SY. (2014, September). Bridging the gap between financial distress and available resources for patients with cancer: a qualitative study. Journal of Oncology Practice , 10 (5), e368-e372. Full Text
  - Smith, SK, Samsa, G, Ganz, PA, & Zimmerman, S. (2014, March). Is there a relationship between posttraumatic stress and growth after a lymphoma diagnosis?. Psycho-oncology , 23 (3), 315-321. Full Text
  - Smith, SK, Abernethy, AP, Staley, T, MacDermott, K, O'Donnell, J, & Samsa, GP. (2014, February). Evaluation of an Online, Educational Group Intervention for Oncology Patients and Caregivers: Pillars4Life. PSYCHO-ONCOLOGY , 23 , 47-47. Link to Item
  - Smith, SK, Rowe, K, & Abernethy, AP. (2014, February). Use of an electronic patient-reported outcome measurement system to improve distress management in oncology. Palliative & Supportive Care , 12 (1), 69-73. Full Text
  - Oerlemans, S, Smith, SK, Crespi, CM, Zimmerman, S, van de Poll-Franse, LV, & Ganz, PA. (2013, June). Assessing the impact of cancer among Dutch non-Hodgkin lymphoma survivors compared with their American counterparts: a cross-national study. Psycho-oncology , 22 (6), 1258-1265. Full Text
  - Leak, A, Smith, SK, Crandell, J, Jenerette, C, Bailey, DE, Zimmerman, S, & Mayer, DK. (2013, March). Demographic and disease characteristics associated with non-hodgkin lymphoma survivors' quality of life: does age matter?. Oncology Nursing Forum , 40 (2), 157-162. Full Text
  - Crespi, CM, Ganz, PA, Petersen, L, & Smith, SK. (2013, February). A procedure for obtaining impact of cancer version 2 scores using version 1 responses. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation , 22 (1), 103-109. Full Text
  - Smith, SK, Mayer, DK, Zimmerman, S, Williams, CS, Benecha, H, Ganz, PA, Edwards, LJ, & Abernethy, AP. (2013, January). Quality of life among long-term survivors of non-Hodgkin lymphoma: a follow-up study. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology , 31 (2), 272-279. Full Text
  - Smith, SK, Samsa, G, Ganz, PA, & Zimmerman, S. (2013). Is there a relationship between posttraumatic stress and growth after a lymphoma diagnosis?. Psycho Oncology ,.
  - Mayer, DK, Gerstel, A, Leak, AN, & Smith, SK. (2012, July). Patient and provider preferences for survivorship care plans. Journal of Oncology Practice , 8 (4), e80-e86. Full Text
  - Smith, SK, Zimmerman, S, Williams, CS, Benecha, H, Abernethy, AP, Mayer, DK, Edwards, LJ, & Ganz, PA. (2011, December). Post-traumatic stress symptoms in long-term non-Hodgkin's lymphoma survivors: does time heal?. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology , 29 (34), 4526-4533. Full Text
  - Leak, A, Mayer, DK, & Smith, S. (2011, June). Quality of life domains among non-Hodgkin lymphoma survivors: an integrative literature review. Leukemia & Lymphoma , 52 (6), 972-985. (Review) Full Text
  - Smith, SK, Herndon, JE, Lyerly, HK, Coan, A, Wheeler, JL, Staley, T, & Abernethy, AP. (2011, May). Correlates of quality of life-related outcomes in breast cancer patients participating in the Pathfinders pilot study. Psycho Oncology , 20 (5), 559-564. Full Text
  - Smith, SK, Williams, CS, Zimmer, CR, & Zimmerman, S. (2011, January). An exploratory model of the relationships between cancer-related trauma outcomes on quality of life in non-Hodgkin lymphoma survivors. Journal of Psychosocial Oncology , 29 (1), 19-34. Full Text
  - Smith, SK, Crespi, CM, Petersen, L, Zimmerman, S, & Ganz, PA. (2010, December). The impact of cancer and quality of life for post-treatment non-Hodgkin lymphoma survivors. Psycho-oncology , 19 (12), 1259-1267. Full Text
  - Abernethy, AP, Herndon, JE, Coan, A, Staley, T, Wheeler, JL, Rowe, K, Smith, SK, Shaw, H, & Lyerly, HK. (2010, July). Phase 2 pilot study of Pathfinders: a psychosocial intervention for cancer patients. Support Care Cancer , 18 (7), 893-898. Full Text Link to Item
  - Friedman, DR, Coan, AD, Smith, SK, Herndon, JE, & Abernethy, AP. (2010, July). Informational needs assessment of non-Hodgkin lymphoma survivors and their physicians. Am J Hematol , 85 (7), 528-532. (Letter) Full Text Link to Item
  - Crespi, CM, Smith, SK, Petersen, L, Zimmerman, S, & Ganz, PA. (2010, March). Measuring the impact of cancer: a comparison of non-Hodgkin lymphoma and breast cancer survivors. Journal of Cancer Survivorship : Research and Practice , 4 (1), 45-58. Full Text
  - Smith, SK, Zimmerman, S, Williams, CS, & Zebrack, BJ. (2009, July). Health status and quality of life among non-Hodgkin lymphoma survivors. Cancer , 115 (14), 3312-3323. Full Text
  - Smith, SK, Zimmerman, S, Williams, CS, Preisser, JS, & Clipp, EC. (2008, February). Post-traumatic stress outcomes in non-Hodgkin's lymphoma survivors. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology , 26 (6), 934-941. Full Text
- Other Articles
  - Abernethy, AP, Herndon, JE, Coan, A, Staley, T, Wheeler, JL, Rowe, K, Smith, SK, Shaw, H, & Lyerly, HK. (2011, March 1). Erratum: Phase 2 pilot study of Pathfinders: A psychosocial intervention for cancer patients (Support Care Center DOI 10.1007/s00520-010-0823-z). Supportive Care in Cancer , 19 (3), 439-null. Full Text
- Conference Papers
  - Zebrack, B, Kayser, K, Oktay, J, Smith, S, Lee, H, & Rohan, E. (2018, February 1). Building a Patient-Centered Research Collaborative (PCRC) for psychosocial oncology. WILEY. Link to Item
  - Smith, SK, Westbrook, KE, MacDermott, K, LeBlanc, MR, Amarasekara, S, & Pan, W. (2017, November). Four Conversations: A randomized control trial of an online, shared decision making curriculum among the metastatic breast cancer community. American Society of Clinical Oncology (ASCO). Full Text
  - Berkowitz, C, Allen, DH, Tenhover, J, Zullig, LL, Fischer, JE, Pollak, KI, Smith, SK, Ragsdale, JW, Anderson, JB, Bowlby, LA, & Koontz, BF. (2017, October). Bridging the Gap: PCP and Patient Needs in Head and Neck Cancer Survivor Care. Elsevier BV. Full Text
  - Kayser, K, Zebrack, B, Oktay, J, Rohan, E, Lee, HY, & Smith, S. (2017, August 1). Improving Institutional Capacity for Cancer Programs to Provide Quality Psychosocial Services: The APAQCC Project. WILEY. Link to Item
  - Allen, D, Neelon, V, & Smith, S. (2017, March 1). EXPLORING COMPENSATORY BEHAVIORS USED TO MAINTAIN COGNITIVE FUNCTION IN ADULT SURVIVORS OF PRIMARY BRAIN TUMOR. ONCOLOGY NURSING SOC. Link to Item
  - Turner, J, Smith, S, & Allen, D. (2016, March 1). SYMPTOM MANAGEMENT AT HOME: PREPARING PATIENTS THROUGH A GROUP PATIENT EDUCATION CLASS DURING INDUCTION CHEMOTHERAPY. ONCOLOGY NURSING SOC. Link to Item
  - Hudson, KE, Benecha, HK, Houck, KL, LeBlanc, TW, Abernethy, AP, Zimmerman, S, Ganz, PA, & Smith, SK. (2015, October 10). Fatigue in long-term non-Hodgkin lymphoma survivors. American Society of Clinical Oncology (ASCO). Full Text
  - Smith, S. (2015, July 1). Usability Testing for Cancer Distress Coach: A Mobile App to Manage Posttraumatic Stress Symptoms. WILEY-BLACKWELL. Link to Item
  - Hudson, KE, Benecha, HK, Houck, KL, LeBlanc, TW, Abernethy, AP, Zimmerman, S, Ganz, PA, & Smith, SK. (2015, May 20). Fatigue in long-term non-Hodgkin lymphoma survivors. Annual Meeting of the American-Society-of-Clinical-Oncology (ASCO) / Clinical Science Symposium on Predicting and Improving Adverse Outcomes in Older Adults with Cancer. Chicago, IL. AMER SOC CLINICAL ONCOLOGY. Link to Item
  - Smith, S, O'Donnell, J, Abernethy, A, MacDermott, K, Staley, T, & Samsa, G. (2015, March 1). EVALUATION OF PILLARS4LIFE: AN ONLINE, EDUCATIONAL GROUP CURRICULUM FOR ONCOLOGY PATIENTS. ONCOLOGY NURSING SOC. Link to Item
  - O'Donnell, JD, Abernethy, AP, Samsa, G, Staley, T, MacDermott, K, & Smith, S. (2014, May 20). Evaluation of an online, skill-building, group intervention for cancer patients and caregivers: Pillars4Life. American Society of Clinical Oncology (ASCO). Full Text
Teaching & Mentoring
Recent Courses
Scholarly, Clinical, & Service Activities
Presentations & Appearances
Outreach & Engaged Scholarship
- Program Volunteer. California Fun-time Fantasy, Sunshine Kids. 2006 2006
- Youth Basketball Coach. YMCA. 2006 - 2008 2006 - 2008
- Program Volunteer. Coach Write!. Chapel Hill-Carrboro City Schools . 2004 - 2005 2004 - 2005
- Member. Relay for Life Planning Committee American Cancer Society. 2000 - 2001 2000 - 2001
- Program Manager. Chemo-Coach Program. American Cancer Society . 1996 - 1997 1996 - 1997
- Volunteer. YWCA Battered Women's Program . 1996 - 1997 1996 - 1997
Service to the Profession
Service to Duke

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Education, Training, & Certifications

Duke Appointment History

In the News

Awards & Honors

Subject Headings

Global Scholarship

Research

Selected Grants

Fellowships, Supported Research, & Other Grants

Selected Publications

Academic Articles

Other Articles

Conference Papers

Recent Courses

Presentations & Appearances

Outreach & Engaged Scholarship

Service to the Profession

Service to Duke