Journal articleJournal of cancer survivorship : research and practice · July 2026
PurposeSurvivors of Hodgkin lymphoma (HL) face lifelong risks of treatment-related late adverse effects, yet many lack adequate knowledge of these risks. This study examined sociodemographic, clinical, and care-related correlates of survivorship k ...
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Journal articleCancer · February 15, 2026
BACKGROUND: Hematopoietic stem cell transplantation (HCT) is an intensive and invasive procedure used in cancer treatment that depends heavily on the involvement of caregivers and places them at high risk for posttraumatic stress disorder (PTSD) symptoms. ...
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Journal articleJCO Oncology Practice · October 14, 2025
550Background: Hematopoietic cell transplantation (HCT) cancer survivors face elevated risk for posttraumatic stress disorder (PTSD) symptoms, yet access to effective treatment remains limited. This NCI-funded study (R01-CA244172) evaluated a stepped-care, ...
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Journal articlePsycho-oncology · October 2025
BackgroundCaregivers of hematopoietic cell transplantation (HCT) survivors face high risk for posttraumatic stress disorder (PTSD) but lack psychosocial support. Digital health tools may offer scalable solutions to address caregiver distress. This ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · June 2025
The NCCN Guidelines for Survivorship include screening, evaluation, and treatment recommendations for common physical and psychosocial problems resulting from adult-onset cancer and its treatment and provide a framework for coordination of survivorship car ...
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Journal articlePalliative & supportive care · April 2025
ObjectivesPatients with cancer benefit greatly from receiving palliative care (PC), improving their overall survival and quality of life. Despite its benefits, PC is underutilized among patients with hematologic malignancies (HMs), particularly am ...
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Journal articleCancer · December 1, 2024
INTRODUCTION: Hematopoietic stem cell transplantation (HCT) is an intensive and invasive procedure used in cancer treatment that can lead to posttraumatic stress disorder (PTSD) symptoms. These symptoms are frequently overlooked in oncology and general hea ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · December 2024
The NCCN Guidelines for Survivorship include recommendations for screening, evaluation, and treatment of psychosocial and physical problems resulting from adult-onset cancer and its treatment. They also include recommendations to promote healthy behaviors ...
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Journal articleJ Clin Nurs · July 2024
AIM: To investigate the feasibility and acceptability of the training process, procedures, measures and recruitment strategies necessary for a future investigation to test the reliability and validity of using positivity resonance measures in health care e ...
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Journal articleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · February 2024
PurposeThe American Society of Clinical Oncology Cancer Survivorship Committee established a task force to determine which survivorship care services were being denied by public and private payers for coverage and reimbursement.MethodsA q ...
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Journal articleJournal of psychosocial oncology · January 2024
This paper demonstrates the essential nature of oncology social work and the critical role that oncology social workers (OSWs) play in the achievement of high-quality cancer care that improves patient outcomes, contains cost, advances population health, re ...
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Journal articleJCO oncology practice · August 2023
PurposeFinancial navigation services support patients with cancer and address the direct and indirect financial burden of cancer diagnosis and treatment. These services are commonly delivered through a variety of frontline oncology support personn ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · August 2023
The NCCN Guidelines for Survivorship are intended to help healthcare professionals address the complex and varied needs of cancer survivors. The NCCN Guidelines provide screening, evaluation, and treatment recommendations for psychosocial and physical prob ...
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Journal articleJMIR Cancer · July 6, 2023
BACKGROUND: Patients with blood cancer experience serious physical and emotional symptoms throughout their cancer journey. OBJECTIVE: Building on previous work, we aimed to develop an app designed to help patients with multiple myeloma and chronic lymphocy ...
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Journal articleJournal of psychosocial oncology · January 2023
The purpose of this study was to explore whether patient-centered communication (PCC) would partially mediate the relationship between social support and mental health status among adult survivors of non-Hodgkin's lymphoma (NHL). Methods: Secondary ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · October 2022
The NCCN Guidelines for Survivorship are intended to help healthcare professionals who work with survivors to ensure that the survivors' complex and varied needs are addressed. The NCCN Guidelines provide screening, evaluation, and treatment recommendation ...
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Journal articleJ Med Internet Res · September 8, 2022
BACKGROUND: Although videoconferencing between oncology patients and nurses became routine during the pandemic, little is known about the development of clinician-patient rapport in this care environment. Evidence that virtual visits may challenge nurses' ...
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Journal articleTransplant Cell Ther · August 2022
Allogeneic hematopoietic stem cell transplantation (HCT) is a potentially curative treatment for both malignant and nonmalignant hematologic diseases; however, reported rates of treatment-related mortality approach 30%. Outcomes are worse in patients who b ...
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Journal articleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · July 2022
PurposeThe aim of this study was to examine relationships among uncertainty, PTSD symptoms (PTSS), and quality of life (QOL) in non-muscle-invasive bladder cancer (NMIBC) survivors.MethodsEligible NMIBC survivors were identified through t ...
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Journal articleSupport Care Cancer · June 2022
BACKGROUND: The purpose of this manuscript is to describe health-related quality of life (HRQoL) outcomes in a United States (US)-based sample of multiple myeloma (MM) patients and identify characteristics associated with poor HRQoL. PATIENTS AND METHODS: ...
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Journal articleLeuk Lymphoma · February 2022
This study describes the prevalence and persistence of fatigue among a cohort of long-term non-Hodgkin lymphoma (NHL) survivors. Mailed surveys assessed quality-of-life including fatigue (SF-36) at baseline and five years. Logistic regression was used to i ...
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Journal articleContemp Clin Trials · November 2021
BACKGROUND/AIMS: Many cancer survivors who received intensive treatment such as hematopoietic stem cell transplantation (HCT) experience posttraumatic stress disorder (PTSD) symptoms. PTSD is associated with lower quality of life and other symptoms that re ...
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Journal articleJ Palliat Med · August 2021
Objectives: To characterize clinician experiences of hospice access and scope of services for undocumented immigrants. Background: The 10.5 million undocumented immigrants in the United States are not covered by Medicare's hospice benefit and are at high r ...
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Journal articleJournal of pediatric nursing · July 2021
PurposeThis study explores human flourishing (HF) in adolescents with cancer (AC) as witnessed by their health care providers, and it develops a list of critical attributes associated with HF to describe the positive outcomes witnessed.Design ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · June 2021
The NCCN Guidelines for Survivorship are intended to help healthcare professionals working with cancer survivors to ensure that each survivor's complex and varied needs are addressed. The Guidelines provide screening, evaluation, and treatment recommendati ...
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Journal articleUrologic oncology · April 2021
ObjectiveThis cross-sectional study examined the prevalence of post-traumatic stress disorder (PTSD) and identified the predictive factors associated with PTSD symptoms in a population of non-muscle-invasive bladder cancer (NMIBC) survivors.Me ...
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Journal articleOncol Nurs Forum · March 1, 2021
PURPOSE: To explore the ways in which multiple myeloma affects an individual's life in the modern treatment era. PARTICIPANTS & SETTING: 15 individuals with multiple myeloma and 10 clinicians were recruited from two academic medical centers in the southeas ...
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Journal articleThe Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · September 2020
PurposePeople living in rural areas experience greater health disparities than their nonrural counterparts, but little is known about the association between rural status and quality of life (QOL) in non-Hodgkin's lymphoma (NHL) survivors. We comp ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · August 2020
The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for consequences of adult-onset cancer and its treatment, with the goal of helping healthcare professionals who work with survivors, including those in primar ...
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Journal articleQual Life Res · June 2020
PURPOSE: Patients with relapsed and/or refractory multiple myeloma (RRMM) are living longer due in part to changing treatment patterns. It is important to understand how changing treatment patterns affect patients' lives beyond extending survival. Research ...
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Journal articleJournal of palliative medicine · March 2020
Background: Anticipating and making health care decisions about appropriate or preferred treatment around end-of-life care are intellectually challenging and emotionally distressing for metastatic breast cancer (MBC) patients, new interventio ...
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Journal articleBJU international · January 2020
ObjectiveTo examine the effect of non-muscle-invasive bladder cancer (NMIBC) diagnosis and treatment on survivors' quality of life (QoL).Patients and methodsOf the 5979 patients with NMIBC diagnosed between 2010 and 2014 in North Carolina ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · July 2019
The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for consequences of cancer and cancer treatment to aid healthcare professionals who work with survivors of adult-onset cancer. Guidance is also provided to he ...
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Journal articleCancer nursing · May 2019
BackgroundNon-muscle-invasive bladder cancer (NMIBC) represents approximately 75% of newly diagnosed patients with bladder cancer. Non-muscle-invasive bladder cancer survivors have unique chronic burdens including frequent recurrences, repeated su ...
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Journal articleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · May 2019
PurposeChronic pain, depression, and fatigue are common effects resulting from the cancer experience; new interventions are needed. This study examined the effect of Reimagine, an online symptom self-management curriculum that teaches coping skill ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · October 2018
The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for common physical and psychosocial consequences of cancer and cancer treatment to help healthcare professionals who work with survivors of adult-onset cance ...
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Journal articleAmerican Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting · May 2018
The field of psychosocial oncology is a young discipline with a rapidly expanding evidence base. Over the past few decades, several lines of research have established that psychosocial problems, such as anxiety, depression, post-traumatic stress, fatigue, ...
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Journal articleClinical journal of oncology nursing · April 2018
BackgroundA community hospital combined its medical and surgical patients with cancer on one unit, which resulted in nurses not trained in oncology caring for this patient population.ObjectivesThe Oncology Intensives Initiative (ONCii) in ...
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Journal articleTherapeutic innovation & regulatory science · March 2018
ObjectiveTo identify the elements necessary for successful collaboration between patient groups and academic and industry sponsors of clinical trials, in order to develop recommendations for best practices for effective patient group engagement.
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Journal articleJCO Clin Cancer Inform · November 2017
INTRODUCTION: Although there are over 500 mobile health (mHealth) applications (apps) available for download in the field of oncology, little research has addressed their acceptability among health care providers. In addition, the providers' perspectives r ...
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Journal articleJournal of emergency nursing · September 2017
IntroductionSickle cell disease (SCD) is a complex illness with many social-behavioral co-morbidities. The aim of this project was to describe unmet social-behavioral health needs for adults with SCD who presented to the emergency department for t ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · September 2017
Many cancer survivors experience menopausal symptoms, including female survivors taking aromatase inhibitors or with a history of oophorectomy or chemotherapy, and male survivors who received or are receiving androgen-ablative therapies. Sexual dysfunction ...
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Journal articleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · March 2017
PurposeThe aims of this study were to examine quality of life, using the Impact of Cancer version 2 (IOCv2), in British non-Hodgkin lymphoma (NHL) survivors and investigate differences between survivors in the UK and the USA.MethodsNHL su ...
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Journal articleCancer Invest · July 2, 2016
Differences in quality of life (QOL) of long-term survivors of aggressive or indolent subtypes of non-Hodgkin lymphoma (NHL) have not been frequently evaluated. We assessed these differences by analyzing results of a large QOL survey of long-term NHL survi ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · June 2016
The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for common consequences of cancer and cancer treatment. They are intended to aid health care professionals who work with survivors of adult-onset cancer in th ...
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Journal articleJournal of the National Comprehensive Cancer Network : JNCCN · May 2016
The words "palliative care" can be threatening for many patients, particularly for those who do not understand what they mean. In fact, according to a survey by the American Cancer Society, about 70% of adults in the United States are not at all knowledgea ...
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Journal articlePsychooncology · November 2015
OBJECTIVE: Pillars4Life is an educational program that teaches coping skills to cancer patients in a virtual group setting; it was recently implemented at 17 hospitals across the USA. The cost-effective, scalable, and assessable Pillars4Life curriculum tar ...
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Journal articleCancer · September 2015
BackgroundThe objective of the current study was to determine whether survivors of non-Hodgkin lymphoma are meeting select American Cancer Society (ACS) health-related guidelines for cancer survivors, as well as to examine relationships between th ...
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Journal articleJournal of psychosocial oncology · May 2015
Adaptation is an ongoing, cognitive process with continuous appraisal of the cancer experience by the survivor. This exploratory study tested a path model examining the personal (demographic, disease, and psychosocial) characteristics associated with quali ...
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Journal articlePloS one · January 2015
ObjectivePatient-centered clinical trial design and execution is becoming increasingly important. No best practice guidelines exist despite a key stakeholder declaration to create more effective engagement models. This study aims to gain a better ...
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Journal articleJ Oncol Pract · September 2014
PURPOSE: Cancer treatment-related out-of-pocket costs create substantial financial distress for many patients. However, little work has been done to describe available financial resources and barriers to connecting those resources to patients. METHODS: Thi ...
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Journal articlePsychooncology · March 2014
OBJECTIVE: There are conflicting empirical data regarding the relationship between posttraumatic stress (PTS) and growth (PTG) observed in cancer survivors. Clarification of this association could inform evidence-based therapeutic recommendations to promot ...
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Journal articlePalliative & supportive care · February 2014
ObjectiveManagement of patient distress is a critical task in cancer nursing and cancer practice. Here we describe two examples of how an electronic patient-reported outcome (ePRO) measurement system implemented into routine oncology care can prac ...
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Journal articlePsycho-oncology · June 2013
PurposeTo understand cultural differences in the impact of cancer (IOC) by (i) performing an independent psychometric evaluation of the Dutch version of the Impact of Cancer Scale version 2 (IOCv2) in a non-Hodgkin lymphoma (NHL) sample and (ii) e ...
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Journal articleOncology nursing forum · March 2013
Purpose/objectivesTo examine demographic and disease characteristics by age and the moderating effect of age on quality of life (QOL) among non-Hodgkin lymphoma (NHL) survivors.DesignA cross-sectional, secondary analysis study of NHL surv ...
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Journal articleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · February 2013
PurposePsychometric scales often change over time, complicating comparison of scores across different versions. The Impact of Cancer (IOC) scale was developed to measure quality of life of long-term cancer survivors. We sought to develop a method ...
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Journal articleJournal of clinical oncology : official journal of the American Society of Clinical Oncology · January 2013
PurposeLittle is known about change in quality of life (QOL) among long-term cancer survivors. We examined change over time in QOL among long-term survivors of non-Hodgkin lymphoma and identified demographic, clinical, and psychosocial risk factor ...
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Journal articleJournal of oncology practice · July 2012
PurposeSurvivorship care plans (SCPs) are tools used to assist in the transition from treatment to surveillance cancer care. However, few studies have investigated survivor and provider preferences regarding SCPs. Our purpose was to explore surviv ...
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Journal articleJournal of clinical oncology : official journal of the American Society of Clinical Oncology · December 2011
PurposeLittle is known about the trajectory of post-traumatic stress disorder (PTSD) symptoms in cancer survivors, despite the fact that such knowledge can guide treatment. Therefore, this study examined changes in PTSD symptoms among long-term su ...
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Journal articleLeukemia & lymphoma · June 2011
Survival rates of individuals with non-Hodgkin lymphoma (NHL) have increased in the past several years, as has the prevalence of older adults who are managing late and long-term effects of the disease and its treatment. In this integrative review, the stat ...
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Journal articlePsychooncology · May 2011
OBJECTIVE: In a pilot study, participation in the Pathfinders program was associated with reductions in distress and despair and improvements in quality of life (QOL) among advanced breast cancer patients. This study explores the relationship between psych ...
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Journal articleJournal of psychosocial oncology · January 2011
Given that more than one third of some cohorts of cancer survivors exhibit post-traumatic stress disorder (PTSD) symptomatology, this study examines how trauma outcomes might relate to quality of life (QOL). Eight hundred thirty survivors of adult lymphoma ...
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Journal articlePsycho-oncology · December 2010
ObjectiveRecent work suggests that perceptions of the impact of cancer on survivors' lives are associated with physical and mental health and quality of life (QOL) outcomes. This study examines the association between the Impact of Cancer Version ...
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Journal articleSupport Care Cancer · July 2010
PURPOSE: Pathfinders is a multi-faceted psychosocial care program for cancer patients; it was developed in community oncology and adapted to the academic oncology setting. This prospective, single-arm, phase 2 pilot study examined the acceptability and fea ...
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Journal articleJournal of cancer survivorship : research and practice · March 2010
IntroductionSelf-report instruments such as the Impact of Cancer (IOC) are designed to measure quality of life (QOL) impacts that cancer survivors attribute to their cancer experience. Generalizability of QOL findings across distinct diagnostic ca ...
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Journal articleCancer · July 2009
Background: A growing body of evidence suggests that long-term survivors with 1 of the more common forms of adult cancer report a quality of life (QOL) similar to that in the general population. However, specific concerns have been identified (sex ...
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Journal articleJournal of clinical oncology : official journal of the American Society of Clinical Oncology · February 2008
PurposeA large body of evidence suggests that being diagnosed with and treated for cancer adversely affects functioning and quality of life, yet less is known about longer term outcomes. Therefore, this study aims to estimate the prevalence of pos ...
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