Journal articleBMJ open · June 2026
BackgroundThe increasing global burden of long-term illnesses necessitates high-quality data to inform effective interventions, particularly in low-resource settings. Despite the critical role of data collectors in health research, their lived exp ...
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Journal articleWestern journal of nursing research · May 2026
BackgroundThe Hispanic or Latino community account for under 8% of US clinical trial samples. Research is needed to facilitate increased enrollment of Hispanic or Latino individuals into trials.ObjectivesThe purpose of this study was to d ...
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Journal articlePain Manag Nurs · January 20, 2026
BACKGROUND: Even though there is clear evidence supporting the use of complementary and integrative health (CIH) interventions for chronic pain, their integration into clinical care is challenging. Thus, the purpose of this study was to understand how the ...
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Journal articleJournal of Sickle Cell Disease · January 1, 2026
Objectives: To address the lack of structured sickle cell disease (SCD) training and missed opportunities for early identification, intervention, and improved patient outcomes in resource limited settings, the U.S. based SCD Nursing Excellence Train-the-Tr ...
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Journal articlePragmatic and observational research · January 2026
PurposeThere is a growing urgency to address health inequities in clinical trial design. Pragmatic trials hold promise in addressing inequities in research. We conducted a rapid qualitative analysis of barriers and facilitators to implementing hea ...
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Journal articleJ Emerg Nurs · July 2025
INTRODUCTION: National guidelines for the acute management of sickle cell disease vaso-occlusive episodes recommend the use of a patient-specific or a weight-based protocol. The authors compared patient satisfaction with pain management between those rando ...
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Journal articleJt Comm J Qual Patient Saf · January 2025
Sickle cell disease (SCD) is a life-limiting multisystem disease primarily affecting individuals of African and Latinx descent. Its most common complication is painful vaso-occlusive episodes (VOEs), which is also the most common reason individuals with SC ...
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Journal articleJournal of Sickle Cell Disease · January 1, 2025
SCD is a rare, inherited blood disorder that disproportionately affects Black patients. Individuals living with SCD experience significant pain crises and complications due to the sickling of red blood cells. These pain crises cause complications that affe ...
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Journal articleJournal of the American Association of Nurse Practitioners · March 2024
BackgroundThe widespread use of telehealth and regulatory changes that enhanced nurse practitioner (NP) practice authority because of the SARS-CoV-2 pandemic offers an opportunity to assess postpandemic NP satisfaction with telehealth care deliver ...
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Journal articleBr J Haematol · March 2023
Individuals with sickle cell disease (SCD) have historically been considered underweight. Despite increasing body mass index (BMI) in the general population, the prevalence of overweight and obese status remains unclear in the adult SCD population. Our pri ...
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Digital art · 2022
Breaking Research Barriers is a podcast that inspires equity and inclusion in the research cycle. Through the use of engaging storytelling and shared expertise, leading researchers will share actionable strategies to promote racial justice and equity in cl ...
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Journal articleQualitative health research · July 2021
Sickle cell disease (SCD) is a chronic genetic disease that causes life-threatening complications and requires robust comprehensive management. Developing comprehensive SCD programs in sub-Saharan African countries requires knowledge of the cultural factor ...
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Journal articleContemp Clin Trials · February 2021
OBJECTIVES: Painful vaso-occlusive episodes (VOE) are the most common reason for emergency department (ED) visits experienced by patients with sickle cell disease (SCD). The National Heart, Lung and Blood Institute (NHLBI) evidence-based recommendations fo ...
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Journal articleNursing forum · January 2021
The coronavirus disease 2019 mortality rate among Black adults in the U.S. is double that of other racial and ethnic groups. The current pandemic is re-illuminating health inequities that are pervasive in our society and reflected in our health system. Thi ...
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Journal articleJ Prim Care Community Health · 2021
BACKGROUND: Sickle cell disease (SCD) is a complex chronic blood disorder characterized by severe disease complications ideally managed by both hematologists and primary care providers (PCP's). PCP's report knowledge gaps and discomfort with SCD management ...
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Journal articleJournal of National Black Nurses' Association : JNBNA · December 2020
A Black woman has an 85.7% chance of developing hypertension in her lifetime, yet she is less likely to be optimally treated. The purpose of this research report is to describe the factors associated with self-reported hypertension in a sample of Black wom ...
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Journal articlePublic health nursing (Boston, Mass.) · November 2018
ObjectiveThe purpose of this review is to determine the factors associated with the outcomes of community health programs with particular focus on low- to middle-income countries. In addition, this review aims to suggest how these factors can affe ...
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