Thomas William LeBlanc

Journal article Leuk Lymphoma · July 29, 2026 Venetoclax (VEN) plus hypomethylating agents (HMA) is approved for newly diagnosed (ND) acute myeloid leukemia (AML) in patients ineligible for intensive chemotherapy (IC). This international retrospective chart review involving 17 academic sites included ... Full text Link to item Cite

The burden of acute myeloid leukemia: an integrated review of clinical, economic, and patient-centered evidence.

Journal article Expert Rev Anticancer Ther · July 17, 2026 INTRODUCTION: Acute myeloid leukemia (AML) is an aggressive hematologic cancer that accounts for approximately one third of all newly diagnosed leukemias annually in the United States (US), and is associated with high mortality and substantial clinical, ec ... Full text Link to item Cite

Where Hospice Fails Us: A Qualitative Study of Facilitators and Barriers in Transitions to Hospice According to Palliative Care Clinicians.

Journal article J Palliat Med · July 15, 2026 BACKGROUND: Transitions to hospice are challenging for patients, caregivers, and health care teams, yet few studies have examined gaps in care from the perspectives of referring palliative care (PC) clinicians. OBJECTIVES: To identify facilitators and barr ... Full text Link to item Cite

Real-World Outcomes in First-Line Venetoclax-based Therapy in Patients with AML Ineligible for Intensive Chemotherapy: A Single Center Study

Journal article Clinical Lymphoma Myeloma and Leukemia · July 2026 Full text Cite

Clinical, Ethical, and Financial Considerations With Red Blood Cell Transfusion Support at the End of Life in Hematologic Malignancies.

Journal article Am J Hosp Palliat Care · June 22, 2026 Patients with advanced hematological malignancies often have red blood cell (RBC) transfusion needs at the end of life (EOL) to improve debilitating anemia-related symptoms. Given that patients with hematologic malignancies and their caregivers find that t ... Full text Link to item Cite

Shared Care Offers an Effective Framework for Managing Tagraxofusp Treatment in Blastic Plasmacytoid Dendritic Cell Neoplasm.

Journal article Acta Haematol · June 4, 2026 BACKGROUND: Tagraxofusp, a first-in-class CD123-targeted therapy, is the only approved treatment for blastic plasmacytoid dendritic cell neoplasm (BPDCN). Shared care models enable coordination and care delivery between specialized cancer treatment centers ... Full text Link to item Cite

Treatment Decision-Making for Individuals with Relapsed/Refractory Chronic Lymphocytic Leukemia in the USA.

Journal article Acta Haematol · May 7, 2026 INTRODUCTION: As available treatment options for relapsed/refractory (R/R) chronic lymphocytic leukemia (CLL) increase, treatment decisions become increasingly complex. This cross-sectional study evaluated patient and physician decision-making when selecti ... Full text Link to item Cite

What patients would have liked to have known in advance about physical function due to cancer treatment.

Journal article Support Care Cancer · May 4, 2026 PURPOSE: As cancer survivorship rises, provision of information during cancer care is increasingly important, especially regarding potential impacts on patients' health-related quality of life. We sought to understand information needs patients had before ... Full text Link to item Cite

Pilot Testing of Build StaMINA: A Tailored Physical Activity Program for Adults Receiving Treatment for Acute Myeloid Leukemia.

Journal article Cancer Nurs · May 2026 BACKGROUND: Acute myeloid leukemia (AML) is an aggressive and often debilitating cancer for adults across the treatment trajectory. Patients experience frequent hospitalization, sedentariness, and negative sequelae including physical dysfunction and sympto ... Full text Link to item Cite

Budget Impact of Venetoclax for Newly Diagnosed Patients with Acute Myeloid Leukemia Aged ≥ 75 Years or with Comorbidities Precluding Intensive Chemotherapy in the United States.

Journal article Adv Ther · May 2026 INTRODUCTION: Venetoclax plus azacitidine or decitabine is approved in the US for treatment of newly diagnosed patients with acute myeloid leukemia (AML) aged ≥ 75 years or who have comorbidities precluding use of intensive chemotherapy. As novel targeted ... Full text Link to item Cite

Top advances of the year: Palliative and supportive care in oncology.

Journal article Cancer · April 15, 2026 Palliative care, or care that aims to reduce suffering, manage symptoms, and improve quality-of-life for those living with serious illness, is recognized as essential to high-quality cancer care. However, challenges to equitable and timely access and integ ... Full text Link to item Cite

Association Between Transfusion Status, Hemoglobin Levels, and Patient-Reported Outcomes in Myelofibrosis: A Post Hoc Clinical Trial Analysis.

Journal article Cancer Med · April 2026 BACKGROUND: Quality of life and symptom burden of patients with myelofibrosis are well recognized and compounded in those with anemia; however, the effects of transfusion burden or anemia severity on quality of life have not been comprehensively characteri ... Full text Link to item Cite

Navigating Prognostic Dialogue During Serious Illness Conversations.

Journal article JAMA Netw Open · April 1, 2026 IMPORTANCE: Double awareness, the ability to live meaningfully while preparing for the end of life, is central to serious illness conversations. In hematology, prognostic uncertainty and expectations of novel therapies often delay prognostic dialogue, limi ... Full text Link to item Cite

The power of words: evaluating the role of qualitative methods in cancer research.

Journal article Lancet Oncol · February 2026 This Review underscores qualitative research as an indispensable facet of scientific inquiry to improve provision of safe, effective, and affordable care for patients with cancer worldwide. Representing a global working group of applied qualitative researc ... Full text Link to item Cite

A Qualitative Study of the Initial Diagnosis and Treatment Experience of Black Patients with Newly Diagnosed Acute Myeloid Leukemia

Journal article Palliative Medicine Reports · January 2026 Purpose:Black patients with acute myeloid leukemia (AML) experience disparate outcomes, and factors such as structural racism and differential treatment access have been i ... Full text Cite

Developing a Novel Values Elicitation Measure for Clinical Use in Older Adults with Hematologic Malignancies: Values-HM.

Journal article MDM Policy Pract · 2026 UNLABELLED: Introduction. The recent expansion of treatment options for older adults with blood cancers has increased the necessity for understanding patient preferences and values to inform treatment decision making. Currently, no values elicitation measu ... Full text Link to item Cite

Present challenges impacting the management of psychological symptoms in patients receiving CAR-T therapy or stem cell transplantation.

Journal article Expert Rev Pharmacoecon Outcomes Res · December 2025 INTRODUCTION: Hematopoietic stem cell (HSCT) and chimeric antigen receptor T-cell (CAR-T) therapy are crucial in the treatment of hematologic malignancies. While HSCT has been long established as a mainstay of the treatment of these diseases, CAR-T is a ne ... Full text Link to item Cite

Palliative Care Integration in Oncology: A Review and Update.

Journal article J Hosp Palliat Care · December 1, 2025 Palliative care (PC) is increasingly recognized as an essential component of high-quality cancer care, with evidence from randomized trials and meta-analyses demonstrating that it improves quality of life, mood, and goal-concordant end-of-life care. Despit ... Full text Link to item Cite

Physician Characteristics Associated With Advance Care Planning After a Machine Learning-Based Nudge.

Journal article Am J Hosp Palliat Care · November 21, 2025 Prognostic machine learning models can help identify patients in need of advance care planning (ACP) conversations. However, additional work is needed to understand which factors guide physicians' comfort with and prioritization of ACP conversations, even ... Full text Link to item Cite

A modelled cost-utility analysis comparing early referral to specialist palliative care versus standard care for older people with acute myeloid leukaemia.

Journal article Support Care Cancer · November 17, 2025 AIM: To investigate whether early referral to specialist palliative care (SPC) is cost-effective compared to standard care for people ≥ 60 years of age with newly diagnosed acute myeloid leukaemia (AML). METHODS: A modelled cost-utility analysis, from an A ... Full text Link to item Cite

Ivosidenib or venetoclax combined with hypomethylating agents in IDH1-mutated acute myeloid leukemia: a real-world study.

Journal article Blood Neoplasia · November 2025 Approximately 10% of patients with newly diagnosed acute myeloid leukemia (ND-AML) harbor the isocitrate dehydrogenase 1 gene mutation (mIDH1). In this real-world study evaluating ivosidenib (IVO) + hypomethylating agents (HMAs; n = 181) vs venetoclax (VEN ... Full text Link to item Cite

Palliative care use and end-of-life care quality in HR+/HER2- metastatic breast cancer.

Journal article Breast Cancer Res Treat · November 2025 PURPOSE: Metastatic breast cancer (MBC) is incurable, despite therapeutic advances, especially in hormone receptor positive (HR+) and human epidermal growth factor-2 negative (HER2-) disease. Specialist palliative care (SPC) is recommended to alleviate dis ... Full text Link to item Cite

Céline LOCHOT — Complexe de l’ironiste, De Quincey à l’œuvre (Grenoble, UGA Editions, 2021, 352 p., ISBN : 978-2-37747-231-4 ; OpenEdition Books : 978-2-37747-274-1)

Journal article Études anglaises · October 23, 2025 Full text Cite

Prolonged Hospitalization for Hematopoietic Cell Transplantation: Characteristics, Risk Factors and Associations with Patient-Reported and Clinical Outcomes.

Journal article Transplant Cell Ther · September 2025 Patients hospitalized for hematopoietic cell transplantation (HCT) may experience prolonged length of stay (PLOS). However, the associations between PLOS and patient-reported outcomes (PROs) during and after HCT hospitalization is unknown. We aimed to eval ... Full text Link to item Cite

Multisite Randomized Trial of Inpatient Palliative Care Intervention for Patients Undergoing Hematopoietic Stem Cell Transplantation.

Journal article J Clin Oncol · August 20, 2025 PURPOSE: Patients undergoing hematopoietic stem cell transplantation (HSCT) and their caregivers endure immense physical and psychological symptoms, which result in quality-of-life (QOL) impairments during HSCT. METHODS: We conducted a multisite randomized ... Full text Link to item Cite

Treatment Patterns, Efficacy, and Tolerability of Belantamab Mafodotin in Patients With Relapsed and/or Refractory Multiple Myeloma: A Real-World Analysis.

Journal article Clin Lymphoma Myeloma Leuk · August 2025 PURPOSE: Belantamab mafodotin is an anti-B cell maturation antigen (BCMA) immunoconjugate for patients with relapsed/refractory multiple myeloma (RRMM). Additional data on its treatment patterns, efficacy, and tolerability in real-world settings are needed ... Full text Link to item Cite

Early Specialist Palliative Care in Patients with Metastatic Cancer: A Population-Based Cohort Study.

Journal article J Pain Symptom Manage · August 2025 CONTEXT: Although early integration of specialist palliative care (PC) is recommended for patients with advanced cancer, how frequently these guidelines are followed is unknown. OBJECTIVE: To examine use of early PC in real-world settings. METHODS: Retrosp ... Full text Link to item Cite

What do pediatric transplant physicians think about palliative care? Results from a national survey study.

Journal article Bone Marrow Transplant · August 2025 The benefits of palliative care (PC) for hematopoietic cell transplant (HCT) patients are well established, however, uptake in pediatric HCT remains limited. To understand pediatric transplant physicians' attitudes towards PC, we conducted a cross-sectiona ... Full text Link to item Cite

Examining the Experience and Preferences of Patients with Advanced Cancer at a Tertiary Care Center.

Journal article J Palliat Med · August 2025 Background and Objectives: Cancer care has been transformed with the advent of new personalized and targeted therapies, and the integration of specialist palliative care (PC). Comparatively little is understood about the patient experience in this modern c ... Full text Link to item Cite

Real-world analysis of strategies to prevent thrombosis and bleeding in adults with ALL treated with asparaginase.

Journal article Blood Vessel Thromb Hemost · August 2025 The prognosis of adult patients with acute lymphoblastic leukemia (ALL) has improved with the incorporation of pediatric-inspired regimens that contain PEGylated asparaginase (PEG-Asp). However, PEG-Asp administration is associated with an increased rate o ... Full text Link to item Cite

Quantifying Preferences for CAR-T Compared to Standard of Care as a First-Line Treatment Among Patients With Multiple Myeloma.

Journal article Cancer Med · July 2025 BACKGROUND: CAR-T therapy is approved for the treatment of relapsed refractory multiple myeloma (MM) and is being studied for newly diagnosed MM (NDMM). The use of novel therapies in early-line MM raises questions on the acceptability of upfront risks in e ... Full text Link to item Cite

Unmet needs and lived experience of patients receiving CAR T-cell therapy.

Journal article Leuk Lymphoma · June 2025 Chimeric Antigen Receptor T-Cell (CAR-T) therapy is an effective therapy and promising frontier in the treatment of hematologic malignancies. However, this revolutionary treatment has led to new challenges for patients, caregivers, and the healthcare syste ... Full text Link to item Cite

Factors associated with early quality-of-life response to palliative care during hematopoietic cell transplantation.

Journal article Blood Adv · May 13, 2025 Limited data exist on factors associated with early quality-of-life (QOL) response to palliative care (PC) in patients undergoing hematopoietic cell transplantation (HCT). We conducted a secondary analysis from 2 randomized clinical trials of PC vs usual c ... Full text Link to item Cite

Elranatamab versus physician's choice of treatment in patients with triple-class exposed/refractory multiple myeloma: an updated matching-adjusted indirect comparison.

Journal article J Comp Eff Res · May 2025 Aim: Despite the availability of novel treatment options for patients with triple-class exposed/refractory multiple myeloma , there is a lack of consensus on the optimal regimen. A previous unanchored matching-adjusted indirect comparison (MAIC) of the Mag ... Full text Link to item Cite

Quality for All: Clinical Trial Enrollment and End-of-Life Care in Solid and Hematologic Malignancies.

Journal article Cancer Med · May 2025 BACKGROUND: Patients with incurable cancer deserve quality end-of-life (EOL) care. Despite established EOL quality metrics, many patients receive aggressive EOL care with limited goals of care (GOC) documentation. Concurrently, clinical trials are critical ... Full text Link to item Cite

Implementation of a Novel Pathway to Integrate Palliative and Oncology Care for Patients With Acute Myeloid Leukemia in a Community Hospital.

Journal article JCO Oncol Pract · April 2025 PURPOSE: Historically, patients with hematologic malignancies are referred to palliative care less often and later in the disease trajectory than those with solid tumors. Recent evidence demonstrates the benefit of early, integrated inpatient palliative ca ... Full text Link to item Cite

Correction.

Journal article Future Oncol · April 2025 Full text Link to item Cite

Increasing Advance Care Planning Discussions and Documentation.

Journal article J Adv Pract Oncol · March 16, 2025 BACKGROUND: Advance care planning (ACP) is an important aspect of care for the oncology patient population, leading to improved outcomes, less aggressive care toward the end of life, and reduced costs. PURPOSE: The objective of this project was to increase ... Full text Link to item Cite

Evaluation of Gemtuzumab Ozogamicin and Anthracycline Dosing for Favorable Risk Acute Myeloid Leukemia.

Journal article Eur J Haematol · March 2025 Gemtuzumab ozogamicin (GO) is a CD33-targeting antibody-drug conjugate approved for the treatment of CD33-positive de novo and relapsed and refractory acute myeloid leukemia (AML). Subset analyses have demonstrated improved clinical outcomes in patients wi ... Full text Link to item Cite

Recalling what we thought we knew about recall periods: a qualitative descriptive study of how adults diagnosed with cancer use recall periods for patient-reported outcome items about physical function.

Journal article Qual Life Res · March 2025 OBJECTIVES: In cancer studies, assessment of patients' physical function can provide insight into cancer-related symptoms and the side effects of treatment. Physical function can be assessed using patient-reported outcome measures (PROMs), which may or may ... Full text Open Access Link to item Cite

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Patients with Myeloproliferative Neoplasms.

Journal article J Palliat Med · February 2025 Myeloproliferative neoplasms (MPNs) are a group of rare chronic progressive blood cancers that vary widely in clinical presentation, yet all patients have a risk of disease progression and thrombotic complications. Diseases include primary myelofibrosis, p ... Full text Link to item Cite

Multiple Myeloma Experiences and Preferences: A Mixed Methods Study of Patients and Care Partners in the United States.

Journal article Patient Prefer Adherence · 2025 PURPOSE: Multiple myeloma (MM) is characterized by treatment relapse and resistance, requiring sequential treatment decisions throughout its course. To understand how disease status and an evolving treatment landscape impact decisions made by patients and ... Full text Link to item Cite

Matching-Adjusted Indirect Comparison of Elranatamab versus Teclistamab in Patients with Triple-Class Exposed/Refractory Multiple Myeloma: Updated Results.

Journal article J Blood Med · 2025 BACKGROUND: Due to the absence of a head-to-head trial directly comparing elranatamab and teclistamab in triple-class exposed/refractory multiple myeloma (TCE/R MM), a matching-adjusted indirect treatment comparison (MAIC) was previously conducted. The aim ... Full text Link to item Cite

An Updated Indirect Comparison of Elranatamab Versus a Real-World External Control Arm in Triple-Class Refractory Multiple Myeloma.

Journal article Blood Lymphat Cancer · 2025 PURPOSE: Elranatamab is a BCMAxCD3 bispecific antibody approved for the treatment of relapsed/refractory multiple myeloma (RRMM). The registrational Phase 2 MagnetisMM-3 (NCT04649359) trial was single-armed; the aim of this indirect comparison was to conte ... Full text Link to item Cite

Treatment of Relapsed/Refractory t(11;14) Multiple Myeloma and High-Risk Myelodysplastic Syndrome With Venetoclax.

Journal article Case Rep Hematol · 2025 Patients with multiple myeloma (MM) have an inherent risk for secondary myeloid malignancies. Innovative approaches to treatment are needed when these hematologic malignancies co-occur. Venetoclax (VEN), a BCL2 inhibitor, has been used in combination with ... Full text Link to item Cite

Updates on strategies to integrate palliative care in hematologic malignancy.

Journal article Hematology Am Soc Hematol Educ Program · December 6, 2024 Full text Link to item Cite

Machine Learning for Targeted Advance Care Planning in Cancer Patients: A Quality Improvement Study.

Journal article J Pain Symptom Manage · December 2024 CONTEXT: Prognostication challenges contribute to delays in advance care planning (ACP) for patients with cancer near the end of life (EOL). OBJECTIVES: Examine a quality improvement mortality prediction algorithm intervention's impact on ACP documentation ... Full text Link to item Cite

The impact of language discordance on pediatric cancer care outcomes: A systematic review.

Journal article Pediatr Blood Cancer · December 2024 Language discordance between clinicians and families in pediatrics has been associated with adverse events and lower quality of care. We aimed to summarize the existing literature evaluating the impact of language discordance among healthcare professionals ... Full text Link to item Cite

Quality of end-of-life care in patients with hematological malignancies: potential role of palliative care.

Journal article Support Care Cancer · November 28, 2024 BACKGROUND: Limited data are available on the impact of specialist palliative care on end-of-life care quality for patients with hematologic malignancies. This study aims to analyze the quality of end-of-life care in patients with hematological malignancie ... Full text Link to item Cite

Symptom experience of patients undergoing treatment for multiple myeloma: a longitudinal real-world electronic patient-reported outcomes study.

Journal article Support Care Cancer · November 18, 2024 PURPOSE: Patients with multiple myeloma (MM) experience significant symptom burden. We used a symptom monitoring app to longitudinally characterize the MM treatment experience in detail based on line of therapy (LOT). METHODS: Adults with MM on active trea ... Full text Link to item Cite

A systematic review of health state utility values for older people with acute myeloid leukaemia.

Journal article Qual Life Res · November 2024 PURPOSE: Older people with acute myeloid leukaemia (AML) have a poor prognosis, reduced health-related quality of life (HRQoL) and require substantial healthcare resources. The objectives of this systematic review were to determine what health state utilit ... Full text Link to item Cite

Timing of Palliative Care Consultation Impacts End of Life Care Outcomes in Metastatic Non-Small Cell Lung Cancer.

Journal article J Pain Symptom Manage · October 2024 CONTEXT: Early specialist palliative care (PC) involvement in metastatic non-small cell lung cancer (mNSCLC) is associated with improved quality of life, less aggressive end of life (EoL) care, and longer survival. As treatment paradigms for NSCLC have evo ... Full text Link to item Cite

How do patients interpret and respond to a novel patient-reported eastern cooperative oncology group performance status (ECOG)?

Journal article Qual Life Res · September 2024 PURPOSE: Performance status is an important concept in oncology, but is typically clinician-reported. Efforts are underway to include patient-reported measures in cancer care, which may improve patient symptoms, quality of life and overall survival. The pu ... Full text Open Access Link to item Cite

Stepped Palliative Care for Patients With Advanced Lung Cancer: A Randomized Clinical Trial.

Journal article JAMA · August 13, 2024 IMPORTANCE: Despite the evidence for early palliative care improving outcomes, it has not been widely implemented in part due to palliative care workforce limitations. OBJECTIVE: To evaluate a stepped-care model to deliver less resource-intensive and more ... Full text Link to item Cite

Promoting Electronic Patient-Reported Outcomes in Quality Measurement.

Journal article J Gen Intern Med · August 2024 Full text Link to item Cite

Facets of physical function assessed by patient-reported outcome measures in oncology research.

Journal article Qual Life Res · July 2024 PURPOSE: The U.S. Food & Drug Administration has identified physical functioning (PF) as a core patient-reported outcome (PRO) in cancer clinical trials. The purpose of this study was to identify PF PRO measures (PROMs) in adult cancer populations and clas ... Full text Open Access Link to item Cite

What facets of physical function are most important to adults diagnosed with cancer?

Journal article Qual Life Res · July 2024 PURPOSE: Successful patient-focused drug development involves selecting and measuring outcomes in clinical trials that are important to patients. The U.S. Food & Drug Administration's definition of clinical benefit includes how patients feel, function, or ... Full text Link to item Cite

Multi-site randomized trial of a collaborative palliative and oncology care model for patients with acute myeloid leukemia (AML) and myelodysplastic syndrome (MDS) receiving non-intensive therapy.

Journal article Journal of Clinical Oncology · June 10, 2024 LBA6508 Background: Patients with AML and high-risk MDS receiving non-intensive chemotherapy have substantial quality of life (QOL) impairments and often do not engage in timely discussions with their clinicians about their end-o ... Full text Cite

Top Ten Tips Palliative Care Clinicians Should Know About Acute Myeloid Leukemia.

Journal article J Palliat Med · June 2024 Acute myeloid leukemia (AML) is the most common form of acute leukemia in adults. Rapidly proliferating leukemic cells cause symptoms and increase the risk of infection. While individuals may initially benefit from supportive measures, disease-directed the ... Full text Link to item Cite

Palliative and End-of-Life Care in Hematologic Malignancies: Progress and Opportunities.

Journal article JCO Oncol Pract · June 2024 @JCOOP_ASCO editorial on unique needs of end-of-life care for different blood cancers discusses: #pallheme improves QOL but less utilized in cancers. Contextualize Weisse et al study. More #pallheme research needed for lymphoma and myeloma in era of cell t ... Full text Link to item Cite

A Positive Psychology Intervention in Allogeneic Hematopoietic Stem Cell Transplantation Survivors (PATH): A Pilot Randomized Clinical Trial.

Journal article J Natl Compr Canc Netw · June 2024 BACKGROUND: Allogeneic hematopoietic stem cell transplantation (HSCT) survivors experience significant psychological distress and low levels of positive psychological well-being, which can undermine patient-reported outcomes (PROs), such as quality of life ... Full text Link to item Cite

A matching-adjusted indirect comparison of the efficacy of elranatamab versus teclistamab in patients with triple-class exposed/refractory multiple myeloma.

Journal article Leuk Lymphoma · May 2024 For patients with triple-class exposed/refractory multiple myeloma (TCE/RMM), where effective treatments options are limited, B-cell maturation antigen and CD3-directed bispecific antibodies offer a promising new approach. Teclistamab gained conditional ap ... Full text Link to item Cite

Isavuconazonium or posaconazole for antifungal prophylaxis in patients with acute myeloid leukemia.

Journal article J Oncol Pharm Pract · April 2024 BACKGROUND: Invasive fungal infection (IFI) prophylaxis is recommended in patients with acute myeloid leukemia (AML) during induction chemotherapy. Posaconazole (POSA) is the recommended agent of choice; however, this medication can be associated with QTc ... Full text Link to item Cite

Work absenteeism, disability, and lost wages among patients with acute myeloid leukemia and their caregivers: a cohort study using US administrative claims and productivity data.

Journal article Expert Rev Pharmacoecon Outcomes Res · April 2024 OBJECTIVE: We describe the impact of acute myeloid leukemia (AML) diagnosis on workplace absenteeism and disability days among patients and their caregivers. METHODS: This retrospective study included adults with newly diagnosed AML (2009-2019) and adult c ... Full text Link to item Cite

Coping in patients with hematologic malignancies undergoing hematopoietic cell transplantation.

Journal article Blood Adv · March 26, 2024 Patients undergoing hematopoietic cell transplantation (HCT) must cope with physical and psychological symptoms. Yet, studies examining pre-HCT coping are limited. We aimed to characterize pre-HCT coping, evaluate the association of coping with baseline qu ... Full text Link to item Cite

Benefits, Harms, and Stakeholder Perspectives Regarding Opioid Therapy for Pain in Individuals With Metastatic Cancer: Protocol for a Descriptive Cohort Study.

Journal article JMIR Res Protoc · March 13, 2024 BACKGROUND: Opioids are a key component of pain management among patients with metastatic cancer pain. However, the evidence base available to guide opioid-related decision-making in individuals with advanced cancer is limited. Patients with advanced cance ... Full text Link to item Cite

Protocol for multi-site randomized trial of inpatient palliative care for patients with hematologic malignancies undergoing hematopoietic stem cell transplantation.

Journal article Contemp Clin Trials · March 2024 BACKGROUND: Patients with hematologic malignancies undergoing hematopoietic stem cell transplantation (HSCT) commonly experience debilitating physical and psychological symptoms during a 3-4-week-hospitalization. During hospitalization, caregivers (i.e., f ... Full text Link to item Cite

Knowledge of Palliative Care and Barriers to Access Among Outpatients with Cancer.

Journal article J Pain Symptom Manage · February 2024 CONTEXT: Palliative Care (PC) is poorly understood by laypersons. However, little is known about what ambulatory patients with cancer understand about PC or what barriers to access exist. METHODS: Outpatients undergoing cancer treatment completed a survey ... Full text Link to item Cite

A matching-adjusted indirect comparison of the efficacy of elranatamab versus physician's choice of treatment in patients with triple-class exposed/refractory multiple myeloma.

Journal article Curr Med Res Opin · February 2024 INTRODUCTION: For patients with triple-class exposed/refractory multiple myeloma (TCE/R MM), prognosis is poor and effective treatment options are limited. Elranatamab is a novel B-cell maturation antigen (BCMA)- and CD3-directed bispecific antibody which ... Full text Link to item Cite

Overcoming Transfusion Needs as a Barrier to Hospice Care for Patients With Blood Cancers.

Journal article J Pain Symptom Manage · January 2024 Full text Link to item Cite

Expressive writing to address distress in hospitalized adults with acute myeloid leukemia: a pilot randomized clinical trial.

Journal article J Psychosoc Oncol · 2024 PURPOSE: Patients with acute myeloid leukemia (AML) experience significant distress. Expressive writing is an intervention designed to improve well-being by encouraging expression of emotions related to traumatic experiences. Expressive writing has been sh ... Full text Link to item Cite

Elranatamab efficacy in MagnetisMM-3 compared with real-world control arms in triple-class refractory multiple myeloma.

Journal article Future Oncol · 2024 Elranatamab efficacy in the single-arm, registrational MagnetisMM-3 trial (NCT04649359) was compared with that of physician's choice of treatment (PCT) for triple-class refractory multiple myeloma. MagnestisMM-3 eligibility criteria were applied to two USA ... Full text Link to item Cite

Mindful Night-to-Day: A Pilot Feasibility Trial of a Mindfulness-Based Insomnia and Symptom Management Intervention for Patients with Hematologic Cancer.

Journal article Behav Sleep Med · 2024 OBJECTIVES: Patients with hematologic cancer experience severe symptoms (i.e. insomnia, fatigue, pain, distress). Few interventions addressing insomnia and other symptoms exist for this population. Mindfulness-Based Therapy for Insomnia (MBTI) may be appro ... Full text Link to item Cite

Patient, Care Partner, and Physician Voices in Treatment Decision-Making for Multiple Myeloma.

Journal article Patient Prefer Adherence · 2024 INTRODUCTION: Treatment decision-making for multiple myeloma (MM) is complex. Individuals involved in decision-making may value treatment attributes differently based on their role as a patient, care partner, or physician. This study describes those attrib ... Full text Link to item Cite

Using machine learning for targeted advance care planning (ACP) conversations in patients with cancer: A quality improvement initiative.

Journal article Journal of Clinical Oncology · January 1, 2024 Background: Despite improvements, patients with advanced cancer often do not receive goal-concordant care at the end of life (EOL). Challenges with prognostication contribute to delays ACP conversations and result in more aggressive care, gaps in symptom m ... Full text Cite

Palliative Care in Patients With Hematological Malignancies. We Have a Long Way to Go….

Journal article Am J Hosp Palliat Care · December 2023 Background: Patients with hematological malignancies have significant and diverse palliative care needs but are not usually referred to specialist palliative care services in a timely manner, if at all. Objective: To identify the characteristics of patient ... Full text Link to item Cite

Work loss and activity impairment due to extended nausea and vomiting in patients with breast cancer receiving CINV prophylaxis.

Journal article Support Care Cancer · October 25, 2023 PURPOSE: Chemotherapy-induced nausea and vomiting (CINV)'s impact on work loss remains poorly described. We evaluated associations between the duration of CINV episodes, CINV-related work loss (CINV-WL), and CINV-related activity impairment (CINV-AI) in pa ... Full text Link to item Cite

Innovations for the integration of palliative care for hematologic malignancies.

Journal article Curr Probl Cancer · October 2023 Specialist palliative care provides additional support to facilitate living well with a serious illness, like cancer, even while pursuing disease-directed therapy. For patients with hematologic malignancies, integrated specialist palliative care improves s ... Full text Link to item Cite

Psychological Distress in Young Adults with Acute Myeloid Leukemia Undergoing Induction Chemotherapy.

Journal article J Adolesc Young Adult Oncol · August 2023 Young adults (YAs), aged 18-39 years, with acute myeloid leukemia (AML) navigate life disruptions amid an unpredictable illness trajectory. We conducted a secondary analysis of patient-reported outcomes for hospitalized YAs with high-risk AML receiving int ... Full text Link to item Cite

Feasibility of a positive psychology intervention (PATH) in allogeneic hematopoietic stem cell transplantation survivors: Randomized pilot trial design and methods.

Journal article Contemp Clin Trials · August 2023 BACKGROUND: Although patients undergoing allogeneic hematopoietic stem cell transplantation (HSCT) experience low levels of positive psychological well-being (PPWB), interventions that specifically boost PPWB in this population are lacking. OBJECTIVE: To d ... Full text Link to item Cite

A Mobile App to Support Self-Management in Patients with Multiple Myeloma or Chronic Lymphocytic Leukemia: Pilot Randomized Controlled Trial.

Journal article JMIR Cancer · July 6, 2023 BACKGROUND: Patients with blood cancer experience serious physical and emotional symptoms throughout their cancer journey. OBJECTIVE: Building on previous work, we aimed to develop an app designed to help patients with multiple myeloma and chronic lymphocy ... Full text Link to item Cite

In their own words: a qualitative study of coping mechanisms employed by patients with acute myeloid leukemia.

Journal article Support Care Cancer · July 5, 2023 PURPOSE: Positive coping mediates improved outcomes from integrated palliative care in acute myeloid leukemia (AML). We qualitatively explored patients' coping mechanisms to better understand this relationship. METHODS: We enrolled patients with high-risk ... Full text Link to item Cite

What do patients think about palliative care? A national survey of hematopoietic stem cell transplant recipients.

Journal article Blood Adv · May 23, 2023 Palliative care (PC) benefits patients undergoing hematopoietic stem cell transplantation (HSCT), but it remains underutilized. Although transplant physicians report concerns regarding how patients perceive PC, HSCT recipients' perceptions about PC remain ... Full text Link to item Cite

Advancing Palliative Care Integration in Hematology: Building Upon Existing Evidence.

Journal article Curr Treat Options Oncol · May 2023 Patients with hematologic malignancies and their families are among the most distressed of all those with cancer. Despite high palliative care-related needs, the integration of palliative care in hematology is underdeveloped. The evidence is clear that the ... Full text Link to item Cite

Moving beyond traditional clinical trial endpoints: patient-reported outcomes illuminate the patient experience of novel AML therapies.

Journal article Leuk Lymphoma · May 2023 Full text Link to item Cite

Survey of patients and physicians on shared decision-making in treatment selection in relapsed/refractory multiple myeloma.

Journal article Transl Behav Med · April 15, 2023 Shared decision-making (SDM) is a key component of patient-centered healthcare. SDM is particularly pertinent in the relapsed and/or refractory multiple myeloma (RRMM) setting, in which numerous treatment options can present challenges for identifying opti ... Full text Link to item Cite

Coping in caregivers of patients with hematologic malignancies undergoing hematopoietic stem cell transplantation.

Journal article Blood Adv · April 11, 2023 Caregivers of patients with hematologic malignancies undergoing hematopoietic stem cell transplantation (HSCT) must cope with substantial caregiving burden, high rates of psychological distress, and diminished quality of life (QOL). However, data describin ... Full text Link to item Cite

Duration of Chemotherapy-Induced Nausea and Vomiting (CINV) as a Predictor of Recurrent CINV in Later Cycles.

Journal article Oncologist · March 17, 2023 BACKGROUND: The relationship between CINV duration and recurrence in subsequent cycles is largely unstudied. Our objective was to determine if patients experiencing CINV in their first cycle of chemotherapy (C1) would face increased risk of CINV in later c ... Full text Link to item Cite

Novel agents and regimens in acute myeloid leukemia: latest updates from 2022 ASH Annual Meeting.

Journal article J Hematol Oncol · March 3, 2023 Developments in investigational agents and novel regimens in acute myeloid leukemia (AML) were reported in the 2022 American Society of Hematology (ASH) annual meeting. Encouraging efficacy data were presented from first-in-human studies of two investigati ... Full text Link to item Cite

A Systematic Review of Decision Aids in Hematologic Malignancies: What Are Currently Available and What Are We Missing?

Journal article Oncologist · February 8, 2023 BACKGROUND: Patient decision aids (PDAs) are tools designed to facilitate decision-making. In this systematic review, we summarized existing studies on the development and evaluation of PDAs for patients with hematologic malignancies. PATIENTS AND METHODS: ... Full text Link to item Cite

Use of Opioids for Adults With Pain From Cancer or Cancer Treatment: ASCO Guideline.

Journal article J Clin Oncol · February 1, 2023 PURPOSE: To provide guidance on the use of opioids to manage pain from cancer or cancer treatment in adults. METHODS: A systematic review of the literature identified systematic reviews and randomized controlled trials of the efficacy and safety of opioid ... Full text Link to item Cite

Patient perspectives on considerations, tradeoffs, and experiences with multiple myeloma treatment selection: a qualitative descriptive study.

Journal article BMC Cancer · January 19, 2023 BACKGROUND: Advances in multiple myeloma treatment and a proliferation of treatment options have resulted in improved survival rates and periods of symptom-free remission for many multiple myeloma patients. As a result, health-related quality of life (HRQo ... Full text Link to item Cite

Advance Care Planning in Serious Illness: A Narrative Review.

Journal article J Pain Symptom Manage · January 2023 CONTEXT: Advance care planning (ACP) intends to support person-centered medical decision-making by eliciting patient preferences. Research has not identified significant associations between ACP and goal-concordant end-of-life care, leading to justified sc ... Full text Link to item Cite

Patient-Reported Distress and Clinical Outcomes with Immuno-Oncology Agents in Metastatic Non-Small Cell Lung Cancer (mNSCLC): A Real-World Retrospective Cohort Study.

Journal article Lung Cancer · January 2023 OBJECTIVES: There are limited real-world data about patient-reported outcomes with immunotherapies (IO) in metastatic non-small cell lung cancer (mNSCLC). We describe patient-reported distress and clinical outcomes with IO-based treatments or cytotoxic che ... Full text Link to item Cite

An Analysis of Dasatinib Treatment Patterns in Patients with Chronic Myeloid Leukemia after Experiencing Pleural Effusion during Dasatinib Therapy.

Journal article Acta Haematol · 2023 INTRODUCTION: Treatment with dasatinib for chronic myeloid leukemia (CML) has been associated with development of pleural effusion; however, data regarding its optimal management are limited. We examined treatment patterns and healthcare resource utilizati ... Full text Link to item Cite

The experience of patients with acute myeloid leukemia in remission post-transplant.

Journal article Leuk Lymphoma · 2023 The symptoms of acute myeloid leukemia (AML) and its treatment can negatively impact patient functioning and quality of life. Through concept elicitation interviews, we sought to evaluate the experience of patients with AML in remission following hematopoi ... Full text Link to item Cite

Did a bot eat your homework? An assessment of the potential impact of bad actors in online administration of preference surveys.

Journal article PLoS One · 2023 BACKGROUND: Online administration of surveys has a number of advantages but can also lead to increased exposure to bad actors (human and non-human bots) who can try to influence the study results or to benefit financially from the survey. We analyze data c ... Full text Link to item Cite

"More than conquerors": a qualitative analysis of war metaphors for patients with cancer.

Journal article Support Care Cancer · December 27, 2022 PURPOSE: Meaning-making is fundamental to the cancer experience and communication within cancer care is saturated with metaphors. The objective of this study was to better understand the impact and function of war metaphors among patients with cancer. METH ... Full text Link to item Cite

Indirect treatment comparison of oral versus injectable azacitidine as maintenance therapy for acute myeloid leukemia.

Journal article Future Oncol · December 12, 2022 Aim: Evaluate the relative efficacy of oral versus injectable azacitidine (AZA) maintenance therapy in acute myeloid leukemia (AML) after complete remission. Materials & methods: Systematic literature review identified QUAZAR AML-001, HOVON 97 AML, UK NCRI ... Full text Link to item Cite

Patient, Family Member and Physician Perspectives and Experiences with AML Treatment Decision-Making.

Journal article Oncol Ther · December 2022 INTRODUCTION: Treatment decisions in older adults with acute myeloid leukemia (AML) are challenging, particularly for those who are not candidates for intensive chemotherapy (IC), and the trade-offs patients, their families and physicians consider when cho ... Full text Link to item Cite

Integrative Medicine for Pain Management in Oncology: Society for Integrative Oncology-ASCO Guideline.

Journal article J Clin Oncol · December 1, 2022 PURPOSE: The aim of this joint guideline is to provide evidence-based recommendations to practicing physicians and other health care providers on integrative approaches to managing pain in patients with cancer. METHODS: The Society for Integrative Oncology ... Full text Link to item Cite

Adapting a patient-centered communication tool for older patients with acute myeloid leukemia and their oncologist.

Journal article Blood Adv · November 8, 2022 Full text Link to item Cite

A single-site pilot feasibility randomized trial of a supportive care mobile application intervention for patients with advanced cancer and caregivers.

Journal article Support Care Cancer · October 2022 PURPOSE: Mobile health interventions can improve patient care. We developed the Digital Supportive Care Awareness and Navigation (D-SCAN) application (app) to facilitate symptom monitoring and use/awareness of cancer supportive care resources. This study t ... Full text Link to item Cite

Relationship Between Longitudinal Coping Strategies and Outcomes in Patients With Acute Myeloid Leukemia.

Journal article J Natl Compr Canc Netw · October 2022 BACKGROUND: Patients with acute myeloid leukemia (AML) face an abrupt life-threatening illness and experience immense physical and psychological symptoms. However, no data describe how patients with AML cope longitudinally with their illness or the relatio ... Full text Link to item Cite

Economic burden in US patients with newly diagnosed acute myeloid leukemia receiving intensive induction chemotherapy.

Journal article Future Oncol · October 2022 Aim: This retrospective, observational study assessed healthcare resource utilization (HCRU) and costs for newly diagnosed acute myeloid leukemia (AML) patients receiving intensive induction chemotherapy. Materials & methods: Adult AML patients with inpati ... Full text Link to item Cite

Utilization of Text Messages to Supplement Rounding Communication: a Randomized Feasibility Study.

Journal article J Gen Intern Med · September 2022 BACKGROUND: Fragmented communication with patients and families during hospitalizations often leaves patients confused about the daily plan. OBJECTIVE: To pilot a supplemental text message-based platform for improving bidirectional communication about the ... Full text Open Access Link to item Cite

Clinicians' Understanding of Preferences and Values of People with Hematological Malignancies at the End of Life: Concurrent Surveys.

Journal article J Palliat Med · September 2022 Background: People with hematological malignancies can deteriorate rapidly to a terminal event and have variable levels of engagement when transitioning to palliative and end-of-life care. Objectives: To describe end-of-life care values and preferences of ... Full text Link to item Cite

Correction to: Unintentional weight loss, its associated burden, and perceived weight status in people with cancer.

Journal article Support Care Cancer · September 2022 Full text Link to item Cite

Costs per patient achieving remission with venetoclax-based combinations in newly diagnosed patients with acute myeloid leukemia ineligible for intensive induction chemotherapy.

Journal article J Manag Care Spec Pharm · September 2022 BACKGROUND: Venetoclax, in combination with azacitidine, decitabine, or low-dose cytarabine (LDAC), received confirmatory approval in 2020 by the US Food and Drug Administration for the treatment of newly diagnosed acute myeloid leukemia (AML) in patients ... Full text Link to item Cite

Comment on 'Patient-reported outcomes and the patient experience of acute myeloid leukemia among older adults'.

Journal article J Geriatr Oncol · September 2022 Full text Link to item Cite

Palliative care for patients with hematologic malignancies: are we meeting patients' needs early enough?

Journal article Expert Rev Hematol · September 2022 INTRODUCTION: Palliative care for patients with cancer, and more recently for patients with hematologic malignancies, has increasingly been shown to be beneficial, with mounting evidence pointing to its vast benefits both to patients and caregivers. Despit ... Full text Link to item Cite

Rural-urban disparities in place of death in hematologic malignancies in the United States, 2003 to 2019.

Journal article Blood Adv · August 23, 2022 Full text Link to item Cite

Code status transitions in patients with high-risk acute myeloid leukemia.

Journal article Blood Adv · July 26, 2022 Patients with high-risk acute myeloid leukemia (AML) often experience intensive medical care at the end of life (EOL), including high rates of hospitalizations and intensive care unit (ICU) admissions. Despite this, studies examining code status transition ... Full text Link to item Cite

The association between changes in symptoms or quality of life and overall survival in outpatients with advanced cancer.

Journal article Ann Palliat Med · July 2022 BACKGROUND: Several prognostic tools have been developed to aid clinicians in survival prediction. However, changes in symptoms are rarely included in established prognostic systems. We aimed to investigate the influence of changes in symptoms and quality ... Full text Link to item Cite

A cross-sectional observational study of health-related quality of life in adults with multiple myeloma.

Journal article Support Care Cancer · June 2022 BACKGROUND: The purpose of this manuscript is to describe health-related quality of life (HRQoL) outcomes in a United States (US)-based sample of multiple myeloma (MM) patients and identify characteristics associated with poor HRQoL. PATIENTS AND METHODS: ... Full text Link to item Cite

Factors Associated with Health Care Utilization at the End of Life for Patients with Acute Myeloid Leukemia.

Journal article J Palliat Med · May 2022 Background: Patients (≥60 years) with acute myeloid leukemia (AML) often receive intense health care utilization at the end of life (EOL). However, factors associated with their health care use at the EOL are unknown. Methods: We conducted a secondary anal ... Full text Link to item Cite

Coping strategies in patients with acute myeloid leukemia.

Journal article Blood Adv · April 12, 2022 Patients diagnosed with acute myeloid leukemia (AML) face sudden-onset life-threatening disease that requires intensive treatments. Although their early disease trajectory is characterized by significant, toxic side effects, limited data are available desc ... Full text Link to item Cite

Triadic agreement about advanced cancer treatment decisions: Perceptions among patients, families, and oncologists.

Journal article Patient Educ Couns · April 2022 OBJECTIVES: When patients make cancer treatment decisions, they consider the needs and preferences of family caregivers and clinicians. We examined how much all three triad members agreed about goals of treatment and caregivers' influence on decision-makin ... Full text Link to item Cite

Why Are We Failing to Do What Works? Musings on Outpatient Palliative Care Integration in Cancer Care.

Journal article JCO Oncol Pract · April 2022 Full text Link to item Cite

Patient-reported distress as an early warning sign of unmet palliative care needs and increased healthcare utilization in patients with advanced cancer.

Journal article Support Care Cancer · April 2022 INTRODUCTION: Cancer patients' sources of distress are often unaddressed, and patient-reported distress data could be utilized to identify those with unmet and impending care needs. We explored the association between moderate/severe distress and healthcar ... Full text Link to item Cite

Bridging New Technology Into Clinical Practice With Mobile Apps, Electronic Patient-Reported Outcomes, and Wearables.

Journal article Am Soc Clin Oncol Educ Book · April 2022 With sophisticated mobile and wearable technologies available, there has been interest in leveraging these devices to help gather and analyze patient-generated health data (PGHD). This information could be used to better address health concerns, aid in tre ... Full text Link to item Cite

Assessment of Changes in Symptoms Is Feasible and Prognostic in the Last Weeks of Life: An International Multicenter Cohort Study.

Journal article J Palliat Med · March 2022 Background: Symptoms are not typically part of established various prognostic factors and scoring systems but are among the most frequently assessed issues in patient care. Objectives: To evaluate that, changes in symptoms can provide additional useful pro ... Full text Link to item Cite

Reply to Paul and Lewis.

Journal article Pain · March 1, 2022 Full text Link to item Cite

Persistent fatigue among long-term non-Hodgkin lymphoma survivors.

Journal article Leuk Lymphoma · February 2022 This study describes the prevalence and persistence of fatigue among a cohort of long-term non-Hodgkin lymphoma (NHL) survivors. Mailed surveys assessed quality-of-life including fatigue (SF-36) at baseline and five years. Logistic regression was used to i ... Full text Link to item Cite

Do you mind if I record?: Perceptions and practice regarding patient requests to record clinic visits in oncology.

Journal article Cancer · January 15, 2022 BACKGROUND: Audio recordings of oncology clinic discussions can help patients retain and understand information about their disease and treatment decisions. Access to this tool relies on acceptance of recordings by oncologists. This is the first study to e ... Full text Link to item Cite

Lean Into the Uncomfortable: Using Trauma-Informed Care to Engage in Shared Decision-Making With Racial Minorities With Hematologic Malignancies.

Journal article Am J Hosp Palliat Care · January 2022 Discussions involving racial health disparities must include pathways for engaging in shared decision-making with racial/ethnic minorities. Research demonstrates glaring racial and ethnic disparities when it comes to hematologic malignancies from the time ... Full text Link to item Cite

The relationship between emotional well-being and understanding of prognosis in patients with acute myeloid leukemia (AML).

Journal article Support Care Cancer · January 2022 PURPOSE: Adults with acute myeloid leukemia (AML) face considerable distress and often have a poor prognosis. However, little is known about these patients' perceptions of prognosis and how this relates to emotional well-being (EWB). METHODS: We conducted ... Full text Link to item Cite

Venous Thromboembolism in Patients with Cancer Receiving Specialist Palliative Care.

Journal article Clin Appl Thromb Hemost · 2022 CONTEXT: The prevalence of venous thromboembolism (VTE) in patients with cancer is particularly high at disease progression and during relapse. Patients cared for in specialized palliative care units (SPCU) are rarely included in VTE studies. Objective: We ... Full text Link to item Cite

The impact of remission duration on the long-term economic burden of acute myeloid leukemia among patients without hematopoietic stem cell transplant in the United States.

Journal article J Med Econ · 2022 BACKGROUND AND AIMS: Acute myeloid leukemia (AML) prognosis is poor, with sustained remission occurring in <35% of young adults and <15% of older adults. This descriptive study examined the potential benefit of prolonged remission on the economic burden of ... Full text Link to item Cite

Distress in a Pandemic: Association of the Coronavirus Disease-2019 Pandemic with Distress and Quality of Life in Hematopoietic Stem Cell Transplantation.

Journal article Transplant Cell Ther · December 2021 The global coronavirus disease 2019 (COVID-19) pandemic has drastically disrupted cancer care, potentially exacerbating patients' distress levels. Patients undergoing hematopoietic stem cell transplantation (HSCT) may be especially vulnerable to this pande ... Full text Link to item Cite

A matter of time: how does emotion influence temporal aspects of remembering?

Journal article Cogn Emot · December 2021 Spatiotemporal context is an intrinsic aspect of episodic memory. Although a large literature has demonstrated that emotion enhances episodic memory, less research has considered whether and how emotion affects memory for the timing of an experience, despi ... Full text Link to item Cite

Perceptions of Hematology Among Palliative Care Physicians: Results of a Nationwide Survey.

Journal article J Pain Symptom Manage · November 2021 CONTEXT: Palliative care integration for patients with hematologic diseases has lagged behind solid-organ malignancies. Previous work has characterized hematologist perspectives, but less is known about palliative care physician views of this phenomenon. O ... Full text Link to item Cite

Targeting health-related quality of life in patients with myelodysplastic syndromes - Current knowledge and lessons to be learned.

Journal article Blood Rev · November 2021 Using a range of health-related quality of life (HRQoL) instruments, most - but not all - studies of myelodysplastic syndromes (MDS) have reported that lower hemoglobin levels and red blood cell transfusion dependency are associated with worse HRQoL. In ad ... Full text Link to item Cite

The patient experience of ABVD treatment in Hodgkin lymphoma: a retrospective cohort study of patient-reported distress.

Journal article Support Care Cancer · September 2021 PURPOSE: Psychological distress is prevalent in Hodgkin lymphoma (HL). Many patients, regardless of prognosis, receive ABVD chemotherapy as first-line treatment, but few studies have specifically examined the nature of distress during this shared treatment ... Full text Link to item Cite

Parental limited English proficiency in pediatric stem cell transplantation: Clinical impact and health care utilization.

Journal article Pediatr Blood Cancer · September 2021 BACKGROUND: Limited English proficiency (LEP) is associated with adverse clinical outcomes. The clinical impact of LEP in hematopoietic stem cell transplant (HSCT) has not been studied. The objectives of this study were to compare HSCT outcomes and health ... Full text Link to item Cite

Posttraumatic stress disorder symptoms in patients with acute myeloid leukemia.

Journal article Cancer · July 15, 2021 BACKGROUND: Patients with acute myeloid leukemia (AML) receiving intensive chemotherapy face a life-threatening illness, isolating hospitalization, and substantial physical and psychological symptoms. However, data are limited regarding risk factors of pos ... Full text Link to item Cite

A novel decision aid for acute myeloid leukemia: a feasibility and preliminary efficacy trial.

Journal article Support Care Cancer · July 2021 PURPOSE: Acute myeloid leukemia (AML) is a hematologic malignancy characterized by a poor prognosis but also a paradoxical possibility of cure. This renders decision-making complex and imminent. Unfortunately, many patients with AML misestimate their progn ... Full text Link to item Cite

Burden of illness and treatment patterns among patients with peripheral T-cell lymphoma in the US healthcare setting.

Journal article Curr Med Res Opin · July 2021 OBJECTIVE: Limited real-world information exists on the characteristics or treatment patterns of patients with peripheral T-cell lymphoma (PTCL). We reported demographics, treatments and direct healthcare resource utilization (HRU) in a large cohort of US ... Full text Link to item Cite

Revisiting patient-related barriers to cancer pain management in the context of the US opioid crisis.

Journal article Pain · June 1, 2021 Patient fear of addiction is a well-documented barrier to the use of analgesic medications for cancer pain control. Over the past 2 decades in the United States, an "opioid crisis" has arisen, accompanied by risk messages delivered through news outlets, pu ... Full text Link to item Cite

Integrated Palliative and Oncology Care for Patients With Acute Myeloid Leukemia-Moving From Evidence to Practice-Reply.

Journal article JAMA Oncol · June 1, 2021 Full text Link to item Cite

Morphologic leukemia-free state in acute myeloid leukemia is sufficient for successful allogeneic hematopoietic stem cell transplant.

Journal article Blood Cancer J · May 16, 2021 Full text Open Access Link to item Cite

Caregiver-guided pain coping skills training for patients with advanced cancer: Results from a randomized clinical trial.

Journal article Palliat Med · May 2021 BACKGROUND: Pain is a major concern among patients with advanced cancer and their family caregivers. Evidence suggests that pain coping skills training interventions can improve outcomes, however they have rarely been tested in this population. AIM: To tes ... Full text Link to item Cite

Avoidable Acute Care Use Associated with Nausea and Vomiting Among Patients Receiving Highly Emetogenic Chemotherapy or Oxaliplatin.

Journal article Oncologist · April 2021 PURPOSE: Chemotherapy-induced nausea and vomiting (CINV) contributes to avoidable acute care, a metric now tracked in Medicare's oncology outcome measure. CINV is preventable, yet guidelines are often not followed. We sought to quantify acute care involvin ... Full text Link to item Cite

A Qualitative Study of the Experiences of Living With Multiple Myeloma.

Journal article Oncol Nurs Forum · March 1, 2021 PURPOSE: To explore the ways in which multiple myeloma affects an individual's life in the modern treatment era. PARTICIPANTS & SETTING: 15 individuals with multiple myeloma and 10 clinicians were recruited from two academic medical centers in the southeas ... Full text Link to item Cite

Effectiveness of Integrated Palliative and Oncology Care for Patients With Acute Myeloid Leukemia: A Randomized Clinical Trial.

Journal article JAMA Oncol · February 1, 2021 IMPORTANCE: Patients with acute myeloid leukemia (AML) receiving intensive chemotherapy experience substantial decline in their quality of life (QOL) and mood during their hospitalization for induction chemotherapy and often receive aggressive care at the ... Full text Link to item Cite

Early Palliative Care Services and End-of-Life Care in Medicare Beneficiaries with Hematologic Malignancies: A Population-Based Retrospective Cohort Study.

Journal article J Palliat Med · January 2021 Background: Patients with hematologic malignancies (HM) often receive aggressive care at the end of life (EOL). Early palliative care (PC) has been shown to improve EOL care outcomes, but its benefits are less established in HM than in solid tumors. Object ... Full text Link to item Cite

Health Care Resource Utilization and Costs Among Medicare Beneficiaries Newly Diagnosed With Peripheral T-cell Lymphoma: A Retrospective Claims Analysis.

Journal article Clin Lymphoma Myeloma Leuk · January 2021 BACKGROUND: There are limited data on the treatment patterns, health care resource utilization (HRU), survival outcomes, and medical costs among Medicare beneficiaries newly diagnosed with peripheral T-cell lymphoma (PTCL). PATIENTS AND METHODS: This was a ... Full text Link to item Cite

Oncologist and Patient Preferences for Novel Agents in First-Line Treatment for Chronic Lymphocytic Leukemia: Commonalities and Disconnects.

Journal article Patient Prefer Adherence · 2021 PURPOSE: Treatment for chronic lymphocytic leukemia (CLL) has changed dramatically with the approval of novel agents. Information regarding how patients and oncologists make trade-offs across attributes of novel therapies is limited. The purpose of this st ... Full text Link to item Cite

Intensive versus less-intensive antileukemic therapy in older adults with acute myeloid leukemia: A systematic review.

Journal article PLoS One · 2021 To compare the effectiveness and safety of intensive antileukemic therapy to less-intensive therapy in older adults with acute myeloid leukemia (AML) and intermediate or adverse cytogenetics, we searched the literature in Medline, Embase, and CENTRAL to id ... Full text Link to item Cite

Hoping for the best and preparing for the worst: a forgotten maxim in the immunotherapy era?

Journal article Palliat Med · December 2020 Full text Link to item Cite

Decisional involvement and information preferences of patients with hematologic malignancies.

Journal article Blood Adv · November 10, 2020 Understanding decisional involvement and information preferences in patients with hematologic malignancies may help to optimize physician-patient communication about treatment decisions and align the decision-making processes with patients' preferences. We ... Full text Link to item Cite

An analysis of missing items in real-world electronic patient reported outcomes data: implications for clinical care.

Journal article Support Care Cancer · November 2020 PURPOSE: Utilization of electronic patient-reported outcomes (ePROs) in the clinic can improve quality of life and prolong survival in cancer care. However, there remain unanswered questions regarding trends in missing data and the potential effect on real ... Full text Link to item Cite

Oral adherence in adults with acute myeloid leukemia (AML): results of a mixed methods study.

Journal article Support Care Cancer · November 2020 INTRODUCTION: The incidence of AML is increasing, in part due to an aging population. Since 2017, eight novel agents have been introduced, 6 of which are oral: midostaurin, enasidenib, ivosidenib, gilteritinib, glasdegib, and venetoclax. With an increase i ... Full text Link to item Cite

Implementation of Electronic Patient-Reported Outcomes in Routine Cancer Care at an Academic Center: Identifying Opportunities and Challenges.

Journal article JCO Oncol Pract · November 2020 PURPOSE: Electronic patient-reported outcomes (ePROs) can help clinicians proactively assess and manage their patients' symptoms. Despite known benefits, there is limited adoption of ePROs into routine clinical care as a result of workflow and technologic ... Full text Link to item Cite

Improving end-of-life care for patients with leukemia: is inpatient death the right measure?

Journal article Leuk Lymphoma · November 2020 Full text Link to item Cite

Primary Palliative Care for Patients with Advanced Hematologic Malignancies: A Pilot Trial of the SHARE Intervention.

Journal article J Palliat Med · October 19, 2020 Objective: Develop and pilot-test a nurse-led primary palliative care intervention for patients with advanced hematologic malignancies. Background: Nurse-led primary palliative care interventions may improve outpatient palliative care provision for patient ... Full text Link to item Cite

Reply to J. Schildmann et al.

Journal article J Clin Oncol · August 20, 2020 Full text Link to item Cite

American Society of Hematology 2020 guidelines for treating newly diagnosed acute myeloid leukemia in older adults.

Journal article Blood Adv · August 11, 2020 BACKGROUND: Older adults with acute myeloid leukemia (AML) represent a vulnerable population in whom disease-based and clinical risk factors, patient goals, prognosis, and practitioner- and patient-perceived treatment risks and benefits influence treatment ... Full text Link to item Cite

End-of-life care quality outcomes among Medicare beneficiaries with hematologic malignancies.

Journal article Blood Adv · August 11, 2020 Patients with hematologic malignancies are thought to receive more aggressive end-of-life (EOL) care and have suboptimal hospice use compared with patients with solid tumors, but descriptions of EOL outcomes from comprehensive cohorts have been lacking. We ... Full text Link to item Cite

Symptom Burden, Perceived Control, and Quality of Life Among Patients Living With Multiple Myeloma.

Journal article J Natl Compr Canc Netw · August 2020 BACKGROUND: New therapies for multiple myeloma (MM) have improved survival rates but often expose patients to heightened toxicities and prolonged treatment, leading to increasing complications and side effects. We evaluated the association between symptom ... Full text Link to item Cite

How are patient-reported outcomes and symptoms being measured in adults with relapsed/refractory multiple myeloma? A systematic review.

Journal article Qual Life Res · June 2020 PURPOSE: Patients with relapsed and/or refractory multiple myeloma (RRMM) are living longer due in part to changing treatment patterns. It is important to understand how changing treatment patterns affect patients' lives beyond extending survival. Research ... Full text Link to item Cite

Microtransplantation in older patients with AML: A pilot study of safety, efficacy and immunologic effects.

Journal article Am J Hematol · June 2020 Older AML patients have low remission rates and poor survival outcomes with standard chemotherapy. Microtransplantation (MST) refers to infusion of allogeneic hematopoietic stem cells without substantial engraftment. MST has been shown to improve clinical ... Full text Link to item Cite

What the HEC? Clinician Adherence to Evidence-Based Antiemetic Prophylaxis for Highly Emetogenic Chemotherapy.

Journal article J Natl Compr Canc Netw · June 2020 BACKGROUND: Clinician adherence to antiemetic guidelines for preventing chemotherapy-induced nausea and vomiting (CINV) caused by highly emetogenic chemotherapy (HEC) remains poorly characterized. The primary aim of this study was to evaluate individual cl ... Full text Link to item Cite

When to Integrate Palliative Care in the Trajectory of Cancer Care.

Journal article Curr Treat Options Oncol · April 23, 2020 Palliative care provides an extra layer of support to patients and families facing a serious illness. To date, several studies support the use of early, integrated palliative care for patients with cancer, based upon documented improvements in quality of l ... Full text Link to item Cite

Why palliative care is the answer to the serious illness question in payment reform.

Journal article Am J Manag Care · April 2020 Full text Link to item Cite

Palliative and End-of-Life Care for Patients With Hematologic Malignancies.

Journal article J Clin Oncol · March 20, 2020 Hematologic malignancies are a heterogeneous group of diseases with unique illness trajectories, treatment paradigms, and potential for curability, which affect patients' palliative and end-of-life care needs. Patients with hematologic malignancies endure ... Full text Link to item Cite

Patient-hematologist discordance in perceived chance of cure in hematologic malignancies: A multicenter study.

Journal article Cancer · March 15, 2020 BACKGROUND: Ensuring that patients with hematologic malignancies have an accurate understanding of their likelihood of cure is important for informed decision making. In a multicenter, longitudinal study, the authors examined discordance in patients' perce ... Full text Link to item Cite

Palliative care in hematologic malignancies: a multidisciplinary approach.

Journal article Expert Rev Hematol · March 2020 Introduction: Palliative care is specialized health care focused on improving the quality of life amid serious illness. Patients with hematologic malignancies have significant needs that could be addressed by a multidisciplinary palliative care team, but t ... Full text Link to item Cite

End-of-Life Care, Palliative Care Consultation, and Palliative Care Referral in the Emergency Department: A Systematic Review.

Journal article J Pain Symptom Manage · February 2020 CONTEXT: There is growing interest in providing palliative care (PC) in the emergency department (ED), but relatively little is known about the efficacy of ED-based PC interventions. A 2016 systematic review on this topic found no evidence that ED-based PC ... Full text Link to item Cite

Impact of Addition of Carboplatin AUC ≥ 4 to Antiemetic Guidelines for Triple Antiemetic Prophylaxis: A Gap in Quality of Care, Guideline Adoption, and Avoiding Acute Care.

Journal article JCO Oncol Pract · February 2020 PURPOSE: After ASCO and National Comprehensive Cancer Network guideline recommendations for triple antiemetic prophylaxis for carboplatin area under the curve (AUC) ≥ 4, and the publication of studies documenting avoidable acute care after chemotherapy inv ... Full text Link to item Cite

Unintentional weight loss, its associated burden, and perceived weight status in people with cancer.

Journal article Support Care Cancer · January 2020 PURPOSE: Unintentional weight loss (UWL) is a prevalent problem in people with cancer and is associated with poorer psychosocial outcomes. A gap exists in understanding whether and how perceived and/or weight status impacts experiences of UWL. Thus, we sou ... Full text Link to item Cite

Opportunities to Improve Utilization of Palliative Care Among Adults With Cystic Fibrosis: A Systematic Review.

Journal article J Pain Symptom Manage · December 2019 CONTEXT: Individuals with cystic fibrosis (CF) frequently survive into adulthood, and many have multifaceted symptoms that impair quality of life. OBJECTIVE: We conducted a systematic review to investigate opportunities to improve utilization of palliative ... Full text Link to item Cite

Introduction.

Journal article Semin Oncol Nurs · December 2019 Full text Link to item Cite

Shared Decision-making in Acute Myeloid Leukemia.

Journal article Semin Oncol Nurs · December 2019 OBJECTIVES: Shared decision-making (SDM) is the gold standard approach to cancer treatment decision-making in the 21st century, but it is frequently misunderstood, and many clinicians do not know how to operationalize the SDM framework in their busy practi ... Full text Link to item Cite

Integration of Palliative Care into Acute Myeloid Leukemia Care.

Journal article Semin Oncol Nurs · December 2019 OBJECTIVE: To provide an overview of the past, present, and future of the integration of palliative care services for patients with hematologic malignancies, such as acute myeloid leukemia (AML). DATA SOURCES: Published literature as indexed in Medline, re ... Full text Link to item Cite

Experts on their own experiences: the rise of patient-reported outcomes in oncology drug trials.

Journal article Leuk Lymphoma · November 2019 Full text Link to item Cite

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Patients with Hematologic Malignancies.

Journal article J Palliat Med · November 2019 Hematologic malignancies differ in several important ways from solid organ cancers, and warrant a unique approach to palliative care (PC) integration. As PC has moved upstream from end-of-life care, PC clinicians are increasingly asked to see patients with ... Full text Link to item Cite

Palliative Care Opportunities Among Adults With Congenital Heart Disease-A Systematic Review.

Journal article J Pain Symptom Manage · November 2019 CONTEXT: Little is known about advance care planning (ACP) and palliative care needs among adults with congenital heart disease (ACHD). OBJECTIVES: The objective of this study was to identify and synthesize studies concerning palliative care among ACHD pat ... Full text Link to item Cite

Pruritus in patients with solid tumors: an overlooked supportive care need.

Journal article Support Care Cancer · October 2019 PURPOSE: Pruritus is a common symptom in cutaneous malignancies, but its impact on patients with solid tumors is unclear. We explored the impact and management of pruritus in patients with solid tumors, using patient-reported outcomes (PRO) data from a rea ... Full text Link to item Cite

Quality of life and mood of older patients with acute myeloid leukemia (AML) receiving intensive and non-intensive chemotherapy.

Journal article Leukemia · October 2019 Older patients with AML face difficult treatment decisions as they can be treated either with 'intensive' chemotherapy requiring prolonged hospitalization, or 'non-intensive' chemotherapy. Although clinicians often perceive intensive chemotherapy as more b ... Full text Link to item Cite

Review of the patient-centered communication landscape in multiple myeloma and other hematologic malignancies.

Journal article Patient Educ Couns · September 2019 OBJECTIVES: To identify factors limiting and facilitating patient-centered communication (PCC) in the United States hematology-oncology setting, with a focus on multiple myeloma (MM), given the limited attention to PCC and rapid pace of change that has tak ... Full text Link to item Cite

Associations between Anxiety, Poor Prognosis, and Accurate Understanding of Scan Results among Advanced Cancer Patients.

Journal article J Palliat Med · August 2019 Background: Routine imaging ("scan") results contain key prognostic information for advanced cancer patients. Yet, little is known about how accurately patients understand this information, and whether psychological states relate to accurate understanding. ... Full text Link to item Cite

Patient-reported distress in Hodgkin lymphoma across the survivorship continuum.

Journal article Support Care Cancer · July 2019 PURPOSE: Hodgkin lymphoma (HL) survivors face long-term, elevated risk of treatment-related sequelae, including psychosocial distress associated with poor health outcomes. The magnitude and sources of distress are not well described in the routine care of ... Full text Link to item Cite

Patient-Reported Outcomes for Cancer Patients Receiving Checkpoint Inhibitors: Opportunities for Palliative Care-A Systematic Review.

Journal article J Pain Symptom Manage · July 2019 CONTEXT: Immune checkpoint inhibitors (ICIs) are increasingly used to treat a variety of cancers, but comparatively little is known about patient-reported outcomes (PROs) and health-related quality of life (HRQoL) among patients receiving these novel thera ... Full text Link to item Cite

Introduction to a New Special Series for the Journal of Pain and Symptom Management-Science in Action: Evidence and Opportunities for Palliative Care Across Diverse Populations and Care Settings.

Journal article J Pain Symptom Manage · July 2019 Practices to optimize palliative care delivery and new opportunities in which to integrate palliative care vary across populations and care settings. Systematic reviews are an efficient and methodologically rigorous approach to summarize existing research ... Full text Link to item Cite

Korean Physicians' Perspectives on Prognostication in Palliative Care: A Qualitative Study.

Journal article Am J Hosp Palliat Care · June 2019 BACKGROUND: Prognostication is an essential component of palliative care for patients with advanced cancer but also poses challenges. Little is known about physicians' perspectives on prognostication and prognostic tools used in palliative care practice in ... Full text Link to item Cite

Caregiver-guided pain coping skills training for patients with advanced cancer: Background, design, and challenges for the CaringPals study.

Journal article Clin Trials · June 2019 BACKGROUND/AIMS: Pain is a major concern of patients with advanced cancer and their caregivers. There is strong evidence that pain coping skills training interventions based on cognitive-behavioral principles can reduce pain severity and pain interference. ... Full text Link to item Cite

Acute Myeloid Leukemia, Version 3.2019, NCCN Clinical Practice Guidelines in Oncology.

Journal article J Natl Compr Canc Netw · June 1, 2019 Acute myeloid leukemia (AML) is the most common form of acute leukemia among adults and accounts for the largest number of annual deaths due to leukemias in the United States. Recent advances have resulted in an expansion of treatment options for AML, espe ... Full text Link to item Cite

Erratum to 'Anticholinergic Drug Burden in Noncancer Versus Cancer Patients Near the End of Life' [Journal of Pain and Symptom Management 52 (2016) 737-743].

Journal article J Pain Symptom Manage · May 2019 Full text Link to item Cite

Assessing the Impact of a Novel Integrated Palliative Care and Medical Oncology Inpatient Service on Health Care Utilization before Hospice Enrollment.

Journal article J Palliat Med · April 2019 BACKGROUND: Evidence increasingly supports the integration of specialist palliative care (PC) into routine cancer care. A novel, fully integrated PC and medical oncology inpatient service was developed at Duke University Hospital in 2011. OBJECTIVE: To ass ... Full text Link to item Cite

Preventing chemotherapy-induced nausea and vomiting with netupitant/palonosetron, the first fixed combination antiemetic: current and future perspective.

Journal article Future Oncol · April 2019 Chemotherapy-induced nausea and vomiting (CINV) can be prevented in most patients receiving appropriate antiemetic treatment. However, inadequate uptake of current antiemetic guideline recommendations by physicians, and poor treatment adherence by patients ... Full text Link to item Cite

Shifting paradigms in the treatment of older adults with AML.

Journal article Semin Hematol · April 2019 The treatment of acute myeloid leukemia has been associated with dismal outcomes despite available therapies. The morbidity and mortality associated with acute myeloid leukemia (AML) are most profound in older patients who account for the majority of cases ... Full text Link to item Cite

Prognostication and Communication in Oncology.

Journal article J Oncol Pract · April 2019 Full text Link to item Cite

Disparities in place of death for patients with hematological malignancies, 1999 to 2015.

Journal article Blood Adv · February 12, 2019 Patients with hematologic malignancies (HMs) often receive aggressive end-of-life care and less frequently use hospice. Comprehensive longitudinal reporting on place of death, a key quality indicator, is lacking. Deidentified death certificate data were ob ... Full text Link to item Cite

Dose-intense chemoimmunotherapy plus radioimmunotherapy in high-risk diffuse large B-cell lymphoma and mantle cell lymphoma: a phase II study.

Journal article Br J Haematol · February 2019 Full text Link to item Cite

The experiences of older caregivers of cancer patients following hospital discharge.

Journal article Support Care Cancer · February 2019 PURPOSE: This study addressed the experiences of older caregivers of cancer patients in the 2 weeks following a hospital discharge. It sought to understand the challenges they face in providing supportive care to patients at home. METHODS: Qualitative desc ... Full text Link to item Cite

Patient-Clinician Discordance in Perceptions of Treatment Risks and Benefits in Older Patients with Acute Myeloid Leukemia.

Journal article Oncologist · February 2019 BACKGROUND: Older patients (≥60 years) with acute myeloid leukemia (AML) face difficult decisions regarding treatment with "intensive" chemotherapy that carries significant toxicity for a small chance of a cure versus "nonintensive" chemotherapy to control ... Full text Link to item Cite

Integrated outpatient palliative care for patients with advanced cancer: A systematic review and meta-analysis.

Journal article Palliat Med · February 2019 BACKGROUND:: Despite increasing emphasis on integration of palliative care with disease-directed care for advanced cancer, the nature of this integration and its effects on patient and caregiver outcomes are not well-understood. AIM:: We evaluated the effe ... Full text Link to item Cite

Let's Talk About Those Herbs You Are Taking: Ethical Considerations for Communication With Patients With Cancer About Complementary and Alternative Medicine.

Journal article J Oncol Pract · January 2019 Oncologists face ethical challenges when patients use potentially harmful complementary and alternative medicine in addition to or instead of conventional treatments for their cancer. For example, a patient may forego effective cancer treatment in favor of ... Full text Link to item Cite

Hemato-oncology and palliative care teams: is it time for an integrated approach to patient care?

Journal article Curr Opin Support Palliat Care · December 2018 PURPOSE OF REVIEW: Integrated palliative care for those with advanced solid tumors yields significant benefits in patient and caregiver outcomes. However, most palliative care clinical trials have excluded patients with hematologic malignancies. There is g ... Full text Link to item Cite

A New Frontier for Palliative Care: The Need to Train Palliative-Oncology Subspecialists.

Journal article J Palliat Med · December 2018 Full text Link to item Cite

Place of death for patients with cancer in the United States, 1999 through 2015: Racial, age, and geographic disparities.

Journal article Cancer · November 15, 2018 BACKGROUND: Place of death is an essential component of high quality cancer care and comprehensive national trends and disparities in place of death are unknown. METHODS: Deidentified death certificate data were obtained via the National Center for Health ... Full text Link to item Cite

Actigraphy assessment of sleep quality among patients with acute myeloid leukaemia during induction chemotherapy.

Journal article BMJ Support Palliat Care · September 2018 OBJECTIVES: Patients receiving induction chemotherapy for acute myeloid leukaemia (AML) anecdotally describe poor sleep, but sleep disturbances have not been well-characterised in this population. We aimed to test the feasibility of measuring sleep quality ... Full text Link to item Cite

Palliative Performance Scale Score at 1 Week After Palliative Care Unit Admission is More Useful for Survival Prediction in Patients With Advanced Cancer in South Korea.

Journal article Am J Hosp Palliat Care · September 2018 BACKGROUND: The Palliative Performance Scale (PPS) is a useful prognostic index in palliative care. Changes in PPS score over time may add useful prognostic information beyond a single measurement. OBJECTIVE: To investigate the usefulness of repeated PPS m ... Full text Link to item Cite

Palliative care integration in haematological malignancies: towards a needs-based approach.

Journal article BMJ Support Palliat Care · September 2018 Full text Link to item Cite

Transfusion dependence, use of hospice services, and quality of end-of-life care in leukemia.

Journal article Blood · August 16, 2018 Hospice provides high-quality end-of-life care, but patients with leukemias use hospice services less frequently than those with solid tumors. Transfusion dependence (TD) may hinder or delay enrollment, because hospice organizations typically disallow tran ... Full text Link to item Cite

Evidence-based Management of Cancer Pain.

Journal article Semin Oncol Nurs · August 2018 OBJECTIVE: To provide a brief review of common palliative care practices in the assessment and management of cancer pain for practicing oncology nurses. DATA SOURCES: Published literature as indexed in Medline, relevant guideline documents, textbooks, and ... Full text Link to item Cite

The Surprise Question and Identification of Palliative Care Needs among Hospitalized Patients with Advanced Hematologic or Solid Malignancies.

Journal article J Palliat Med · June 2018 BACKGROUND: Little is known about quality of life (QOL), depression, and end-of-life (EOL) outcomes among hospitalized patients with advanced cancer. OBJECTIVE: To assess whether the surprise question identifies inpatients with advanced cancer likely to ha ... Full text Link to item Cite

Information Framing Reduces Initial Negative Attitudes in Cancer Patients' Decisions About Hospice Care.

Journal article J Pain Symptom Manage · June 2018 BACKGROUND: Negative attitudes toward hospice care might prevent patients with cancer from discussing and choosing hospice as they approach end of life. When making a decision, people often naturally focus on either expected benefits or the avoidance of ha ... Full text Link to item Cite

Pain Syndromes and Management in Adult Hematopoietic Stem Cell Transplantation.

Journal article Hematol Oncol Clin North Am · June 2018 Pain is a significant physical symptom that can be observed across the spectrum of hematopoietic stem cell transplant (HSCT) care. Pain assessment should include evaluation of the physical and functional components of pain. Management varies based on the t ... Full text Link to item Cite

"How Much Time Do I Have?": Communicating Prognosis in the Era of Exceptional Responders.

Journal article Am Soc Clin Oncol Educ Book · May 23, 2018 Prognostication is the science by which clinicians estimate a patient's expected outcome. A robust literature shows that many patients with advanced cancer have inaccurate perceptions of their prognosis, thus raising questions about whether patients are tr ... Full text Link to item Cite

The impact of remission status on patients' experiences with acute myeloid leukemia (AML): an exploratory analysis of longitudinal patient-reported outcomes data.

Journal article Support Care Cancer · May 2018 PURPOSE: Shared decision-making in acute myeloid leukemia (AML) requires understanding patients' longitudinal experiences of illness, but little is known about the impact of remission status on patient-reported outcomes (PROs). We aimed to explore the asso ... Full text Link to item Cite

A Cohort Study of Patient-Reported Outcomes and Healthcare Utilization in Acute Myeloid Leukemia Patients Receiving Active Cancer Therapy in the Last Six Months of Life.

Journal article J Palliat Med · May 2018 BACKGROUND: Evidence about the unique palliative care needs of patients with acute myeloid leukemia (AML) is limited. Improving the care of these patients will require a better understanding of their unmet needs, including symptom burden at the end of life ... Full text Link to item Cite

Top Ten Tips for Palliative Care Clinicians Caring for Cancer Patients Receiving Immunotherapies.

Journal article J Palliat Med · May 2018 Patients with cancer face an ever-changing landscape of tumor-directed therapies available to improve quality of life and potentially increase survival. The most recent advances, immunotherapeutics, offer a novel way to target cancer cells by engaging the ... Full text Link to item Cite

It is time to rethink weight loss in cancer.

Journal article Ann Oncol · May 2018 Full text Link to item Cite

Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists.

Journal article Support Care Cancer · April 2018 PURPOSE: The research on cancer treatment decision-making focuses on dyads; the full "triad" of patients, oncologists, and caregivers remains largely unstudied. We investigated how all members of this triad perceive and experience decisions related to trea ... Full text Link to item Cite

Open Oncology Notes: A Qualitative Study of Oncology Patients' Experiences Reading Their Cancer Care Notes.

Journal article J Oncol Pract · April 2018 PURPOSE: Electronic medical records increasingly allow patients access to clinician notes. Although most believe that open notes benefits patients, some suggest negative consequences. Little is known about the experiences of patients with cancer reading th ... Full text Link to item Cite

Patient-Reported Distress in Myelodysplastic Syndromes and Its Association With Clinical Outcomes: A Retrospective Cohort Study.

Journal article J Natl Compr Canc Netw · March 2018 Background: NCCN defines distress as a multifactorial, unpleasant emotional experience of a psychological nature that may interfere with patients' ability to cope with cancer symptoms and treatment. Patients with myelodysplastic syndromes (MDS) are at risk ... Full text Link to item Cite

Acute Leukemia Patients' Needs: Qualitative Findings and Opportunities for Early Palliative Care.

Journal article J Pain Symptom Manage · February 2018 CONTEXT: Patients with acute leukemias likely have needs that palliative care can respond to, yet little is known about specific challenges they face, particularly during active treatment. We examined acute myeloid leukemia (AML) patients' expressed challe ... Full text Link to item Cite

Comparing the Palliative Care Needs of Patients With Hematologic and Solid Malignancies.

Journal article J Pain Symptom Manage · January 2018 CONTEXT: Hematologic cancer patients use palliative care services less frequently than their solid tumor counterparts. Prior work suggests that these patients have a sizable symptom burden, but comparisons between hematologic and solid tumor patients near ... Full text Link to item Cite

Advance Care Planning and Palliative Care Specialists in Malignant Hematology and Stem-Cell Transplantation: On Why It Takes A Village.

Journal article J Oncol Pract · January 2018 Full text Link to item Cite

Patient-reported outcomes in cancer care - hearing the patient voice at greater volume.

Journal article Nat Rev Clin Oncol · December 2017 Recording of patient-reported outcomes (PROs) enables direct measurement of the experiences of patients with cancer. In the past decade, the use of PROs has become a prominent topic in health-care innovation; this trend highlights the role of the patient e ... Full text Link to item Cite

Effect of Inpatient Palliative Care During Hematopoietic Stem-Cell Transplant on Psychological Distress 6 Months After Transplant: Results of a Randomized Clinical Trial.

Journal article J Clin Oncol · November 10, 2017 Purpose Inpatient palliative care integrated with transplant care improves patients' quality of life (QOL) and symptom burden during hematopoietic stem-cell transplant (HCT). We assessed patients' mood, post-traumatic stress disorder (PTSD) symptoms, and Q ... Full text Link to item Cite

The Implementation of Measuring What Matters in Research and Practice: Series Commentary.

Journal article J Pain Symptom Manage · November 2017 The Measuring What Matters (MWM) initiative identified 10 indicators of high-quality palliative and hospice care. Members of the AAHPM Research Committee, through a special series of articles, examined applications of the MWM quality indicators in research ... Full text Link to item Cite

Integration of Electronic Patient-Reported Outcomes Into Routine Cancer Care: An Analysis of Factors Affecting Data Completeness.

Journal article JCO Clin Cancer Inform · November 2017 PURPOSE: Routinely collected patient-reported outcomes (PROs) could provide invaluable data to a patient-centered learning health system but are often highly missing in clinical trials. We analyzed our experience with PROs to understand patterns of missing ... Full text Link to item Cite

The Prospective Evaluation of the Net Effect of Red Blood Cell Transfusions in Routine Provision of Palliative Care.

Journal article J Palliat Med · October 2017 BACKGROUND: Red Blood Cell (RBC) transfusions are commonly used in palliative care. RBCs are a finite resource, transfusions carry risks, and the net effect (benefits and harms) is poorly defined for people with life-limiting illnesses. OBJECTIVE: To exami ... Full text Link to item Cite

Hope, Phase I Trials, and Palliative Care: So You're Telling Me There's a Chance?

Journal article J Oncol Pract · October 2017 Full text Link to item Cite

Ethics Never Left.

Journal article J Oncol Pract · October 2017 Full text Link to item Cite

Improvements in Patient and Health System Outcomes Using an Integrated Oncology and Palliative Medicine Approach on a Solid Tumor Inpatient Service.

Journal article J Oncol Pract · September 2017 PURPOSE: Early palliative care (PC) improves outcomes for outpatients with advanced cancer. Its effect on hospitalized patients with cancer is unknown. Herein, we report on the influence of a novel, fully integrated inpatient medical oncology and PC partne ... Full text Link to item Cite

Palliative Care Has Come of Age.

Journal article J Oncol Pract · September 2017 Full text Link to item Cite

The Cambia Sojourns Scholars Leadership Program: Conversations with Emerging Leaders in Palliative Care.

Journal article J Palliat Med · August 2017 BACKGROUND: There is a pressing workforce shortage and leadership scarcity in palliative care to adequately meet the demands of individuals with serious illness and their families. To address this gap, the Cambia Health Foundation launched its Sojourns Sch ... Full text Link to item Cite

Early Palliative Care for Patients with Hematologic Malignancies: Is It Really so Difficult to Achieve?

Journal article Curr Hematol Malig Rep · August 2017 Evidence points to many benefits of "early palliative care," the provision of specialist palliative care services upstream from the end of life, to improve patients' quality of life while living with a serious illness. Yet most trials of early palliative c ... Full text Link to item Cite

Assessing Psychological Toxicity and Patient-Reported Distress as the Sixth Vital Sign in Cancer Care and Clinical Trials.

Journal article AMA J Ethics · May 1, 2017 As the number of available cancer therapies continues to grow, there is increasing interest in their impact on cancer patients' lived experiences. Screening for distress is one way to measure psychological dimensions of cancer patients' experiences, and do ... Full text Link to item Cite

Operationalizing the Measuring What Matters Spirituality Quality Metric in a Population of Hospitalized, Critically Ill Patients and Their Family Members.

Journal article J Pain Symptom Manage · March 2017 CONTEXT: Measuring What Matters (MWM) quality indicators support measurement of the percentage of patients who have spiritual discussions, if desired. OBJECTIVES: The objective of this study was to 1) determine the ease of, and barriers to, prospectively c ... Full text Link to item Cite

Concordance Between Veterans' Self-Report and Documentation of Surrogate Decision Makers: Implications for Quality Measurement.

Journal article J Pain Symptom Manage · January 2017 CONTEXT: The Measuring What Matters initiative of the American Academy of Hospice and Palliative Medicine and the Hospice and Palliative Nurses Association identified documentation of a surrogate decision maker as one of the top 10 quality indicators in th ... Full text Link to item Cite

Palliative and End-of-Life Care in Myelodysplastic Syndromes.

Journal article Curr Hematol Malig Rep · December 2016 A growing literature demonstrates that MDS is associated with significant impairments in overall quality of life. Given the poor prognosis for many patients with MDS, and the considerable morbidities associated with this disease, there is a critical need t ... Full text Link to item Cite

Adherence to Measuring What Matters Items When Caring for Patients With Hematologic Malignancies Versus Solid Tumors.

Journal article J Pain Symptom Manage · December 2016 CONTEXT: Measuring What Matters (MWM) prioritizes quality measures in palliative care practice. Hematologic malignancy patients are less likely to access palliative care, yet little is known about their unique needs. Differences in MWM adherence may highli ... Full text Link to item Cite

Risk stratification, treatment selection, and transplant eligibility in multiple myeloma: a qualitative study of the perspectives and self-reported practices of oncologists.

Journal article Curr Oncol · December 2016 BACKGROUND: Since the early 2000s, treatment options for multiple myeloma have rapidly expanded, adding significant complexity to the management of this disease. To our knowledge, no systematic qualitative research on clinical decision-making in multiple m ... Full text Link to item Cite

Effect of Inpatient Palliative Care on Quality of Life 2 Weeks After Hematopoietic Stem Cell Transplantation: A Randomized Clinical Trial.

Journal article JAMA · November 22, 2016 IMPORTANCE: During hospitalization for hematopoietic stem cell transplantation (HCT), patients receive high-dose chemotherapy before transplantation and experience significant physical and psychological symptoms and poor quality of life (QOL). OBJECTIVE: T ... Full text Link to item Cite

Anticholinergic Drug Burden in Noncancer Versus Cancer Patients Near the End of Life.

Journal article J Pain Symptom Manage · November 2016 CONTEXT: Anticholinergic drugs can cause several side effects, impairing cognition and quality of life (QOL). Cancer patients are often exposed to increasing cumulative anticholinergic load (ACL) as they approach death, but this burden has not been examine ... Full text Link to item Cite

Cancer Cachexia: Beyond Weight Loss.

Journal article J Oncol Pract · November 2016 Cancer cachexia is a multifactorial syndrome characterized by skeletal muscle loss leading to progressive functional impairment. Despite the ubiquity of cachexia in clinical practice, prevention, early identification, and intervention remain challenging. T ... Full text Link to item Cite

Association of Practice-Level Hospital Use With End-of-Life Outcomes, Readmission, and Weekend Hospitalization Among Medicare Beneficiaries With Cancer.

Journal article J Oncol Pract · October 2016 PURPOSE: To determine the relationships between hospital use of treating oncology practices and patient outcomes. PATIENTS AND METHODS: Retrospective analysis of 397,646 Medicare beneficiaries who received anticancer therapy in 2012. Each beneficiary was a ... Full text Link to item Cite

Better Palliative Care for All: Improving the Lived Experience With Cancer.

Journal article JAMA · July 5, 2016 Full text Link to item Cite

Pretransplantation Supportive and Palliative Care Consultation for High-Risk Hematopoietic Cell Transplantation Patients.

Journal article Biol Blood Marrow Transplant · July 2016 Early palliative care (EPC) for patients with metastatic solid tumors is now standard of care, but the effect of EPC in hematopoietic cell transplantation (HCT) is less well understood. We studied the acceptability of pre-HCT EPC as measured by trial parti ... Full text Link to item Cite

Assessing Emotional Suffering in Palliative Care: Use of a Structured Note Template to Improve Documentation.

Journal article J Pain Symptom Manage · July 2016 CONTEXT: Documentation of the emotional or psychological needs of seriously ill patients receiving specialty palliative care is endorsed by the "Measuring What Matters" project as a quality performance metric and recommended for use by hospice and palliati ... Full text Link to item Cite

Potentially avoidable hospital admissions in older patients with acute myeloid leukaemia in the USA: a retrospective analysis.

Journal article Lancet Haematol · June 2016 BACKGROUND: Older adults (≥60 years of age) with acute myeloid leukaemia spend a substantial proportion of their life in hospital after diagnosis. We examined reasons for their hospital admissions and identified potentially avoidable hospital admissions (P ... Full text Link to item Cite

An Exploratory Factor Analysis of the Scale Structure of the Patient Care Monitor Version 2.0.

Journal article J Pain Symptom Manage · April 2016 CONTEXT: The Patient Care Monitor (PCM), version 2.0, is an electronic patient-reported outcomes instrument designed to be embedded into oncology practices. One key psychometric component of an instrument is its factor structure. OBJECTIVES: To validate th ... Full text Link to item Cite

A practical measurement of thoracic sarcopenia: correlation with clinical parameters and outcomes in advanced lung cancer.

Journal article ERJ Open Res · April 2016 Thoracic sarcopenia can feasibly be measured from routine CT scans but does not correlate to patient-centred outcomes http://ow.ly/102UkQ. ... Full text Open Access Link to item Cite

Concordance of Advance Care Plans With Inpatient Directives in the Electronic Medical Record for Older Patients Admitted From the Emergency Department.

Journal article J Pain Symptom Manage · April 2016 CONTEXT: Measuring What Matters identified quality indicators to examine the percentage of patients with documentation of a surrogate decision maker and preferences for life-sustaining treatments. OBJECTIVES: To determine the rate of advance care planning ... Full text Link to item Cite

Palliative chemotherapy: oxymoron or misunderstanding?

Journal article BMC Palliat Care · March 21, 2016 Oncologists routinely prescribe chemotherapy for patients with advanced cancer. This practice is sometimes misunderstood by palliative care clinicians, yet data clearly show that chemotherapy can be a powerful palliative intervention when applied appropria ... Full text Open Access Link to item Cite

Adherence to Measuring What Matters Measures Using Point-of-Care Data Collection Across Diverse Clinical Settings.

Journal article J Pain Symptom Manage · March 2016 CONTEXT: Measuring What Matters (MWM) for palliative care has prioritized data collection efforts for evaluating quality in clinical practice. How these measures can be implemented across diverse clinical settings using point-of-care data collection on qua ... Full text Link to item Cite

Addressing End-of-Life Quality Gaps in Hematologic Cancers: The Importance of Early Concurrent Palliative Care.

Journal article JAMA Intern Med · February 2016 Full text Link to item Cite

Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting.

Journal article J Pain Symptom Manage · February 2016 CONTEXT: As endorsed by the palliative care "Measuring What Matters" initiative, capturing patients' direct assessment of their care is essential for ongoing quality reporting and improvement. Fostering an environment where seriously ill patients feel hear ... Full text Link to item Cite

Discussing the Evidence for Upstream Palliative Care in Improving Outcomes in Advanced Cancer.

Journal article Am Soc Clin Oncol Educ Book · 2016 Palliative care has received increasing attention at the American Society of Clinical Oncology (ASCO) Annual Meeting since the publication of its provisional clinical opinion on the topic in 2012. Despite frequent discussion, palliative care remains a sour ... Full text Link to item Cite

What bothers lung cancer patients the most? A prospective, longitudinal electronic patient-reported outcomes study in advanced non-small cell lung cancer.

Journal article Support Care Cancer · December 2015 PURPOSE: Patients with advanced non-small cell lung cancer (aNSCLC) face a significant symptom burden. Little is known about the frequency and severity of symptoms over time, so we longitudinally characterized patients' symptoms using the Patient Care Moni ... Full text Link to item Cite

Chemotherapy Use, Performance Status, and Quality of Life at the End of Life.

Journal article JAMA Oncol · September 2015 IMPORTANCE: Although many patients with end-stage cancer are offered chemotherapy to improve quality of life (QOL), the association between chemotherapy and QOL amid progressive metastatic disease has not been well-studied. American Society for Clinical On ... Full text Link to item Cite

Health care utilization and end-of-life care for older patients with acute myeloid leukemia.

Journal article Cancer · August 15, 2015 BACKGROUND: Health care utilization in older adults (age ≥60 years) with acute myeloid leukemia (AML) has not been well studied. METHODS: We conducted a retrospective analysis of 330 consecutive older patients who were diagnosed with AML between May 1, 200 ... Full text Link to item Cite

Validation and real-world assessment of the Functional Assessment of Anorexia-Cachexia Therapy (FAACT) scale in patients with advanced non-small cell lung cancer and the cancer anorexia-cachexia syndrome (CACS).

Journal article Support Care Cancer · August 2015 PURPOSE: Patients with cancer anorexia-cachexia syndrome (CACS) suffer a significant symptom burden, impaired quality of life (QoL), and shorter survival. Measurement of QoL impairments related to CACS is thereby important both in clinical practice and in ... Full text Link to item Cite

Symptom burden of haematological malignancies as death approaches in a community palliative care service: a retrospective cohort study of a consecutive case series.

Journal article Lancet Haematol · August 2015 BACKGROUND: Patients with haematological malignancies are less likely to use palliative care services than are patients with solid tumours. This difference might stem from differing symptom burden, care needs, disease trajectories, or a combination of thes ... Full text Link to item Cite

Cancer-Related Fatigue, Version 2.2015.

Journal article J Natl Compr Canc Netw · August 2015 Cancer-related fatigue is defined as a distressing, persistent, subjective sense of physical, emotional, and/or cognitive tiredness or exhaustion related to cancer or cancer treatment that is not proportional to recent activity and interferes with usual fu ... Full text Link to item Cite

Polypharmacy in patients with advanced cancer and the role of medication discontinuation.

Journal article Lancet Oncol · July 2015 Polypharmacy is a well known problem in elderly patients in general, but its prevalence and effects in patients with cancer are less clear, particularly in end-of-life settings. This Review examines the existing literature on polypharmacy in advanced cance ... Full text Link to item Cite

Safety and benefit of discontinuing statin therapy in the setting of advanced, life-limiting illness: a randomized clinical trial.

Journal article JAMA Intern Med · May 2015 IMPORTANCE: For patients with limited prognosis, some medication risks may outweigh the benefits, particularly when benefits take years to accrue; statins are one example. Data are lacking regarding the risks and benefits of discontinuing statin therapy fo ... Full text Link to item Cite

Correlation between the international consensus definition of the Cancer Anorexia-Cachexia Syndrome (CACS) and patient-centered outcomes in advanced non-small cell lung cancer.

Journal article J Pain Symptom Manage · April 2015 CONTEXT: The cancer anorexia-cachexia syndrome (CACS) is common in patients with advanced solid tumors and is associated with adverse outcomes including poor quality of life (QOL), impaired functioning, and shortened survival. OBJECTIVES: To apply the rece ... Full text Link to item Cite

What is different about patients with hematologic malignancies? A retrospective cohort study of cancer patients referred to a hospice research network.

Journal article J Pain Symptom Manage · March 2015 CONTEXT: Although much is known about solid tumor patients who use hospice, the hematologic malignancies hospice population is inadequately described. OBJECTIVES: To compare the characteristics and outcomes of hospice patients with hematologic malignancies ... Full text Link to item Cite

Perceptions of palliative care among hematologic malignancy specialists: a mixed-methods study.

Journal article J Oncol Pract · March 2015 PURPOSE: Patients with hematologic malignancies are less likely to receive specialist palliative care services than patients with solid tumors. Reasons for this difference are poorly understood. METHODS: This was a multisite, mixed-methods study to underst ... Full text Link to item Cite

Communication skills training in the twenty-first century.

Journal article AMA J Ethics · February 1, 2015 Full text Link to item Cite

Communication skills training in the twenty-first century

Journal article AMA Journal of Ethics · February 1, 2015 Full text Cite

When and why should patients with hematologic malignancies see a palliative care specialist?

Journal article Hematology Am Soc Hematol Educ Program · 2015 Palliative care is a multidisciplinary approach to symptom management, psychosocial support, and assistance in treatment decision-making for patients with serious illness and their families. It emphasizes well-being at any point along the disease trajector ... Full text Link to item Cite

Early integration of palliative care into the care of patients with cancer.

Journal article Hematology Am Soc Hematol Educ Program · 2015 Full text Link to item Cite

Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices

Journal article BLOOD · December 6, 2014 Link to item Cite

Palliative care and hematologic malignancies: old dog, new tricks?

Journal article J Oncol Pract · November 2014 Full text Link to item Cite

Early palliative care on an inpatient oncology unit: Impact of a novel co-rounding partnership on patient and health system outcomes.

Journal article J Clin Oncol · November 2014 3 Background: Early palliative care (PC) improves outcomes for outpatients with advanced cancer, but its impact on an inpatient oncology unit is unknown. We implemented a novel inpatient medical oncology (ONC) and PC co-rounding partnership on September 1, ... Full text Link to item Cite

Electronic Health Records (EHRs) in the oncology clinic: how clinician interaction with EHRs can improve communication with the patient.

Journal article J Oncol Pract · September 2014 Electronic health records pose a particularly difficult problem in the oncology clinic, where difficult topics require much time and attention to address. But with careful attention, they might actually enhance communication in the clinic. ... Full text Link to item Cite

Building the palliative care evidence base: Lessons from a randomized controlled trial of oxygen vs room air for refractory dyspnea.

Journal article J Natl Compr Canc Netw · July 2014 Palliative care is increasingly seen as a standard component of high-quality comprehensive cancer care. However, several challenges remain to its widespread integration into clinical oncology practice, including workforce problems, reimbursement concerns, ... Full text Link to item Cite

Rituximab for follicular lymphoma: watch and wait, watch and worry, or watch and live?

Journal article Lancet Oncol · June 2014 Full text Link to item Cite

Patient understanding of medical jargon: a survey study of U.S. medical students.

Journal article Patient Educ Couns · May 2014 OBJECTIVE: With increasing exposure, medical students may forget that technical jargon is unfamiliar to laypeople. To investigate this possibility, authors assessed student perceptions of patient understanding across different years in medical school. METH ... Full text Link to item Cite

On Goldilocks, care coordination, and palliative care: making it 'just right'.

Journal article Prim Care Respir J · March 2014 Full text Link to item Cite

In the sandbox: palliative care and hematologic malignancies.

Journal article J Community Support Oncol · February 2014 Palliative care specialists have had little involvement in the care of patients with hematologic malignancies. The reasons for this are not clear, because these patients certainly face a significant symptom burden, and many hematologic malignancies are eit ... Full text Link to item Cite

Overcoming recruitment challenges in palliative care clinical trials.

Journal article J Oncol Pract · November 2013 PURPOSE: Palliative care is increasingly viewed as a necessary component of cancer care, especially for patients with advanced disease. Rigorous clinical trials are thus needed to build the palliative care evidence base, but clinical research-especially pa ... Full text Link to item Cite

Defining quality, disseminating evidence, and enforcing guidelines for cancer treatment.

Journal article Virtual Mentor · August 1, 2013 Full text Link to item Cite

Discontinuation of statins in routine care settings.

Journal article Ann Intern Med · July 2, 2013 Full text Link to item Cite

Quality of life in higher resolution: the next generation of comparative effectiveness research in malignant hematology.

Journal article Haematologica · June 2013 Full text Link to item Cite

Considerations in reporting palliative care clinical trials: standardizing information reported and authorship practices (vol 6, pg 494, 2012)

Journal article CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE · March 1, 2013 Link to item Cite

The ethics of health information technology in oncology: emerging isssues from both local and global perspectives.

Journal article Am Soc Clin Oncol Educ Book · 2013 Health information technology (HIT) is ever-increasing in complexity and has incrementally become a fundamental part of our everyday clinical lives. As HIT becomes more complex and commonplace, so do the questions it raises about stewardship and usage of d ... Full text Link to item Cite

The message isn't as mean as we may think.

Journal article Virtual Mentor · January 1, 2013 Full text Link to item Cite

Considerations in reporting palliative care clinical trials: standardizing information reported and authorship practices.

Journal article Curr Opin Support Palliat Care · December 2012 PURPOSE OF REVIEW: The nature of palliative care practice, especially the reliance on referrals and differing models of service delivery, poses unique challenges for the creation and interpretation of an evidence base, frequently limiting the applicability ... Full text Link to item Cite

Autopsy and grief: a case of transformative postmortem examination.

Journal article J Palliat Med · February 2012 BACKGROUND: A physician's obligations to deliver compassionate care do not end with a patient's death. When a patient dies there remains a responsibility to assist grieving family members. Unfortunately, many physicians feel ill prepared to assist in the b ... Full text Link to item Cite

The need for community-based palliative care for patients living with cancer

Journal article Oncology · December 1, 2011 Cite

Palliative care and oncology: integration leads to better care.

Journal article Oncology (Williston Park) · November 30, 2011 The timely integration of palliative care services into standard oncology care is essential to providing comprehensive individualized care for patients with advanced and incurable cancer and their families. Herein we discuss five important areas in which t ... Link to item Cite

Palliative care and oncology: integration leads to better care.

Journal article Oncology (Williston Park) · November 30, 2011 Link to item Cite

Longitudinal patient-reported performance status assessment in the cancer clinic is feasible and prognostic.

Journal article J Oncol Pract · November 2011 PURPOSE: Performance status is prognostic in oncology and palliative care settings. Traditionally clinician rated, it is often inconsistently collected, recorded, and measured, thereby limiting its utility. Patient-reported strategies are increasingly used ... Full text Link to item Cite

Linking palliative care and oncology practice: performance status as a common thread.

Journal article J Oncol Pract · November 2011 Full text Link to item Cite

What is the role of friends when contributing care at the end of life? Findings from an Australian population study.

Journal article Psychooncology · February 2011 PURPOSE: To examine the role of friends as caregivers of people with terminal illness. METHOD: Piloted questions were included in the 2001-2007 random face-to-face annual health surveys of 23588 South Australians on the death of a loved one, caregiving pro ... Full text Link to item Cite

Young caregivers in the end-of-life setting: a population-based profile of an emerging group.

Journal article J Palliat Med · October 2010 PURPOSE: Little is known about young caregivers of people with advanced life-limiting illness. Better understanding of the needs and characteristics of these young caregivers can inform development of palliative care and other support services. METHODS: A ... Full text Open Access Link to item Cite

Research in end-of-life settings: an ethical inquiry.

Journal article J Pain Palliat Care Pharmacother · September 2010 A fundamental tension surrounds the ethics of conducting research in vulnerable populations, and specifically, research involving patients at or near the end-of-life. In Palliative Medicine, these patients' care has historically been based on compassion, c ... Full text Link to item Cite

A comparative resident site visit project: a novel approach for implementing programmatic change in the duty hours era.

Journal article Acad Med · July 2010 The Duke University Medical Center Internal Medicine Residency Program did not reach its anticipated quota of applicants during the 2008 National Residency Matching Program. Post-Match feedback regarding workload prompted an effort to redesign the general ... Full text Link to item Cite

Acute eosinophilic pneumonia secondary to daptomycin: a report of three cases.

Journal article Clin Infect Dis · June 1, 2010 We describe 3 cases of daptomycin-induced pulmonary toxic effects that are consistent with drug-induced acute eosinophilic pneumonia. Patients presented similarly with dyspnea, cough, hypoxia, and diffuse ground-glass opacities at chest computed tomography ... Full text Open Access Link to item Cite

Grief, interrupted.

Journal article J Palliat Med · April 2010 Full text Open Access Link to item Cite

Developing the evidence base for palliative care: formation of the Palliative Care Research Cooperative and its first trial.

Journal article Hosp Pract (1995) · 2010 The field of palliative care and hospice has gained accreditation, with a growing cadre of specialists being trained, but there is a dearth of robust research evidence to guide clinical practice. After 2 years of planning, a group of senior investigators c ... Full text Link to item Cite