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The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.

Publication ,  Journal Article
Veerapandiyan, A; Wagner, KR; Apkon, S; McDonald, CM; Mathews, KD; Parsons, JA; Wong, BL; Eichinger, K; Shieh, PB; Butterfield, RJ; Rao, VK ...
Published in: Muscle & nerve
July 2020

The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.

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Published In

Muscle & nerve

DOI

EISSN

1097-4598

ISSN

0148-639X

Publication Date

July 2020

Volume

62

Issue

1

Start / End Page

41 / 45

Related Subject Headings

  • SARS-CoV-2
  • Pneumonia, Viral
  • Pandemics
  • Neurology & Neurosurgery
  • Muscular Dystrophy, Duchenne
  • Humans
  • Disease Management
  • Coronavirus Infections
  • COVID-19
  • Betacoronavirus
 

Citation

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Chicago
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Veerapandiyan, A., Wagner, K. R., Apkon, S., McDonald, C. M., Mathews, K. D., Parsons, J. A., … Ciafaloni, E. (2020). The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle & Nerve, 62(1), 41–45. https://doi.org/10.1002/mus.26902
Veerapandiyan, Aravindhan, Kathryn R. Wagner, Susan Apkon, Craig M. McDonald, Katherine D. Mathews, Julie A. Parsons, Brenda L. Wong, et al. “The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.Muscle & Nerve 62, no. 1 (July 2020): 41–45. https://doi.org/10.1002/mus.26902.
Veerapandiyan A, Wagner KR, Apkon S, McDonald CM, Mathews KD, Parsons JA, et al. The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle & nerve. 2020 Jul;62(1):41–5.
Veerapandiyan, Aravindhan, et al. “The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.Muscle & Nerve, vol. 62, no. 1, July 2020, pp. 41–45. Epmc, doi:10.1002/mus.26902.
Veerapandiyan A, Wagner KR, Apkon S, McDonald CM, Mathews KD, Parsons JA, Wong BL, Eichinger K, Shieh PB, Butterfield RJ, Rao VK, Smith EC, Proud CM, Connolly AM, Ciafaloni E. The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle & nerve. 2020 Jul;62(1):41–45.
Journal cover image

Published In

Muscle & nerve

DOI

EISSN

1097-4598

ISSN

0148-639X

Publication Date

July 2020

Volume

62

Issue

1

Start / End Page

41 / 45

Related Subject Headings

  • SARS-CoV-2
  • Pneumonia, Viral
  • Pandemics
  • Neurology & Neurosurgery
  • Muscular Dystrophy, Duchenne
  • Humans
  • Disease Management
  • Coronavirus Infections
  • COVID-19
  • Betacoronavirus