Assessment of Caregiver Inventory for Rett Syndrome.
Journal Article (Journal Article)
Rett syndrome (RTT) requires total caregiver attention and leads to potential difficulties throughout life. The Caregiver Burden Inventory, designed for Alzheimer disease, was modified to a RTT Caregiver Inventory Assessment (RTT CIA). Reliability and face, construct, and concurrent validity were assessed in caregivers of individuals with RTT. Chi square or Fisher's exact test for categorical variables and t tests or Wilcoxon two-sample tests for continuous variables were utilized. Survey completed by 198 caregivers; 70 caregivers completed follow-up assessment. Exploratory factor analysis revealed good agreement for physical burden, emotional burden, and social burden. Internal reliability was high (Cronbach's alpha 0.898). RTT CIA represents a reliable and valid measure, providing a needed metric of caregiver burden in this disorder.
Full Text
Duke Authors
Cited Authors
- Lane, JB; Salter, AR; Jones, NE; Cutter, G; Horrigan, J; Skinner, SA; Kaufmann, WE; Glaze, DG; Neul, JL; Percy, AK
Published Date
- April 2017
Published In
Volume / Issue
- 47 / 4
Start / End Page
- 1102 - 1112
PubMed ID
- 28132121
Pubmed Central ID
- PMC5357458
Electronic International Standard Serial Number (EISSN)
- 1573-3432
Digital Object Identifier (DOI)
- 10.1007/s10803-017-3034-3
Language
- eng
Conference Location
- United States