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Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.

Publication ,  Journal Article
Safran, C; Bloomrosen, M; Hammond, WE; Labkoff, S; Markel-Fox, S; Tang, PC; Detmer, DE; Expert Panel,
Published in: J Am Med Inform Assoc
2007

Secondary use of health data applies personal health information (PHI) for uses outside of direct health care delivery. It includes such activities as analysis, research, quality and safety measurement, public health, payment, provider certification or accreditation, marketing, and other business applications, including strictly commercial activities. Secondary use of health data can enhance health care experiences for individuals, expand knowledge about disease and appropriate treatments, strengthen understanding about effectiveness and efficiency of health care systems, support public health and security goals, and aid businesses in meeting customers' needs. Yet, complex ethical, political, technical, and social issues surround the secondary use of health data. While not new, these issues play increasingly critical and complex roles given current public and private sector activities not only expanding health data volume, but also improving access to data. Lack of coherent policies and standard "good practices" for secondary use of health data impedes efforts to strengthen the U.S. health care system. The nation requires a framework for the secondary use of health data with a robust infrastructure of policies, standards, and best practices. Such a framework can guide and facilitate widespread collection, storage, aggregation, linkage, and transmission of health data. The framework will provide appropriate protections for legitimate secondary use.

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Published In

J Am Med Inform Assoc

DOI

ISSN

1067-5027

Publication Date

2007

Volume

14

Issue

1

Start / End Page

1 / 9

Location

England

Related Subject Headings

  • United States
  • Societies, Medical
  • Medical Records
  • Medical Informatics
  • Informed Consent
  • Humans
  • Health Services Research
  • Health Policy
  • Confidentiality
  • Biomedical Research
 

Citation

APA
Chicago
ICMJE
MLA
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Safran, C., Bloomrosen, M., Hammond, W. E., Labkoff, S., Markel-Fox, S., Tang, P. C., … Expert Panel, . (2007). Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. J Am Med Inform Assoc, 14(1), 1–9. https://doi.org/10.1197/jamia.M2273
Safran, Charles, Meryl Bloomrosen, W Edward Hammond, Steven Labkoff, Suzanne Markel-Fox, Paul C. Tang, Don E. Detmer, and Don E. Expert Panel. “Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.J Am Med Inform Assoc 14, no. 1 (2007): 1–9. https://doi.org/10.1197/jamia.M2273.
Safran C, Bloomrosen M, Hammond WE, Labkoff S, Markel-Fox S, Tang PC, et al. Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. J Am Med Inform Assoc. 2007;14(1):1–9.
Safran, Charles, et al. “Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.J Am Med Inform Assoc, vol. 14, no. 1, 2007, pp. 1–9. Pubmed, doi:10.1197/jamia.M2273.
Safran C, Bloomrosen M, Hammond WE, Labkoff S, Markel-Fox S, Tang PC, Detmer DE, Expert Panel. Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. J Am Med Inform Assoc. 2007;14(1):1–9.
Journal cover image

Published In

J Am Med Inform Assoc

DOI

ISSN

1067-5027

Publication Date

2007

Volume

14

Issue

1

Start / End Page

1 / 9

Location

England

Related Subject Headings

  • United States
  • Societies, Medical
  • Medical Records
  • Medical Informatics
  • Informed Consent
  • Humans
  • Health Services Research
  • Health Policy
  • Confidentiality
  • Biomedical Research