Selected Grants
Sickle Cell Disease Functional Assessment Validation and Exercise Pilot Intervention
ResearchMentor · Awarded by National Heart, Lung, and Blood Institute · 2023 - 2028A Double-Blind, Randomized, Controlled Trial of Epidural Conus Medullaris Stimulation to Alleviate Pain and Augment Rehabilitation in Patients with Subacute Thoracic Spinal Cord Injury (SCI)
ResearchInvestigator · Awarded by National Institutes of Health · 2020 - 2026Learning to Predict Disease Trajectories
ResearchPrincipal Investigator · Awarded by Harvard Pilgrim Health Care, Inc. · 2023 - 2026Expanding the Observer-Reported Communication Ability (ORCA) Measure: Measuring the communication ability of individuals with rare, neurodevelopmental disorders
ResearchCo Investigator · Awarded by Food and Drug Administration · 2021 - 2026Duke Center for Advancement of Child Health (CAtCH).
Inst. Training Prgm or CMEMentor · Awarded by National Institutes of Health · 2021 - 2026Sickle Cell Disease Functional Assessment Validation and Exercise Pilot Intervention
ResearchMentor · Awarded by National Heart, Lung, and Blood Institute · 2023 - 2028A Double-Blind, Randomized, Controlled Trial of Epidural Conus Medullaris Stimulation to Alleviate Pain and Augment Rehabilitation in Patients with Subacute Thoracic Spinal Cord Injury (SCI)
ResearchInvestigator · Awarded by National Institutes of Health · 2020 - 2026Learning to Predict Disease Trajectories
ResearchPrincipal Investigator · Awarded by Harvard Pilgrim Health Care, Inc. · 2023 - 2026Expanding the Observer-Reported Communication Ability (ORCA) Measure: Measuring the communication ability of individuals with rare, neurodevelopmental disorders
ResearchCo Investigator · Awarded by Food and Drug Administration · 2021 - 2026Duke Center for Advancement of Child Health (CAtCH).
Inst. Training Prgm or CMEMentor · Awarded by National Institutes of Health · 2021 - 2026Validation of the Observer-Reported Communication Ability (ORCA) Measure for MDS
ResearchPrincipal Investigator · Awarded by Ionis Pharmaceuticals Inc · 2023 - 2025Population-based assessment of patient-reported outcomes in adults living with metastatic colorectal cancer
ResearchPrincipal Investigator · Awarded by Georgetown University · 2023 - 2025Observer-Reported Communication Ability (ORCA) measure in Pitt Hopkins Syndrome (PHS)
ResearchPrincipal Investigator · Awarded by Mahzi Therapeutics Inc. · 2023 - 2025Development of PRO Symptom Measures for Adults with PSC
ResearchPrincipal Investigator · Awarded by University of North Carolina - Chapel Hill · 2022 - 2025Measurement and Regulatory Science (MaRS) Fellowship Program
Inst. Training Prgm or CMEPrincipal Investigator · Awarded by Eli Lilly and Company · 2023 - 2025Trajectories of care for Elderly Trauma Patients Requiring Mechanical Ventilation: A Depiction of their Year Post Trauma
ResearchAdvisor · Awarded by National Institutes of Health · 2020 - 2025Optimizing the Management and Outcomes for Cancer Survivors Transitioning to Follow-up Care
ResearchCo Investigator · Awarded by National Cancer Institute · 2020 - 2025Designing Measures of Expressive Communication Ability in Individuals with Angelman Syndrome
ResearchPrincipal Investigator · Awarded by Foundation for Angelman Syndrome Therapeutics · 2018 - 2024Clinical Outcome Assessments for Acute Pain Therapeutics in Infants and your Children (COA APTIC)
ResearchCo-Principal Investigator · Awarded by Food and Drug Administration · 2019 - 2024Unified Program for Therapeutics in Children
Inst. Training Prgm or CMEPreceptor · Awarded by National Institutes of Health · 2019 - 2024Optimizing health related quality of life measurement in adolescent and young adult oncology: A PROMISing solution
ResearchPrincipal Investigator · Awarded by Wake Forest University School Of Medicine · 2017 - 2024Assessing intersectional, multilevel and multidimensional structural racism for English- and Spanish-speaking populations in the US
ResearchPrincipal Investigator · Awarded by University of Maryland, Baltimore · 2023 - 2024Preparing Adults with Osteogenesis Imperfecta to Engage in Research on Access and Quality of Care for Their Rare Bone Disease
ResearchPrincipal Investigator · Awarded by Osteogenesis Imperfecta Foundation · 2021 - 2023QUALITE-Pain Cognitive Interview Study
ResearchPrincipal Investigator · Awarded by University of Rochester Medical Center · 2020 - 2023Evaluating physical functioning using patient-reported outcome measures: How does the question form and recall period influence patients' interpretation?
ResearchCo Investigator · Awarded by Food and Drug Administration · 2020 - 2023The development and validation of a scale to measure Treatment Regimen Fatigue among older adults living with HIV
ResearchCo Investigator · Awarded by National Institutes of Health · 2022 - 2023Measurement and Regulatory Science (MaRS) Fellowship Program--AstraZeneca
Inst. Training Prgm or CMEPrincipal Investigator · Awarded by AstraZeneca Pharmaceuticals, LP · 2021 - 2023Elucidating the Prevalence, Etiology, and Trajectories of Symptom Clusters in Early Cancer Survivors
ResearchPrincipal Investigator · Awarded by Georgetown University · 2020 - 2023Characterizing frailty in older adults with sickle cell disease using a sickle cell frailty index (FI-SCD)
ResearchCo Investigator · Awarded by National Institutes of Health · 2021 - 2023Evaluating the ORCA measure in Rett Syndrome
ResearchPrincipal Investigator · Awarded by Rett Syndrome Research Trust · 2021 - 2023Gathering Evidence to Determine Whether Modifications are Necessary to the Kansas City Cardiomyopathy Questionnaire (KCCQ) to Address Possible Interpretation Differences by Men and Women
ResearchCo Investigator · Awarded by Food and Drug Administration · 2019 - 2022Analgesic, Anesthetic, and Addiction Clinical Trial Translations, Innovations, Opportunities, and Networks (ACTTION) Public-Private Partnership
ResearchPrincipal Investigator · Awarded by University of Rochester Medical Center · 2021 - 2022Convening Stakeholder Award
ResearchPrincipal Investigator · Awarded by Osteogenesis Imperfecta Foundation · 2021 - 2022Improving Patient-Centered Outcomes: Expanding Engagement of the Osteogenesis Imperfecta Community
ResearchPrincipal Investigator · Awarded by Osteogenesis Imperfecta Foundation · 2019 - 2021Enhancing Clinical Meaningfulness And Usefulness Of PROMIS Pediatric Measures Via Validation In Children And Adolescents With Rheumatic Disease, Cancer, Or Inflammatory Bowel Disease
ResearchPrincipal Investigator · Awarded by National Institutes of Health · 2017 - 2021Symptom Burden and Quality of Life in Multiple Myeloma Patients
FellowshipMentor · Awarded by American Cancer Society, Inc. · 2019 - 2021Advanced symptom burden and quality of life in multiple myeloma patients
FellowshipCollaborator · Awarded by National Institutes of Health · 2019 - 2021Treatment Switching Behavior among Multiple Myeloma Patients
ResearchCollaborating Investigator · Awarded by Amgen, Inc. · 2018 - 2021Creating and Validating Child Adverse Event Reporting in Oncology Trials
ResearchPrincipal Investigator · Awarded by National Institutes of Health · 2018 - 2021Evaluating the Association between Activity and PROMIS Pediatric Measures in Children with Chronic Conditions
ResearchPrincipal Investigator · Awarded by Children's Hospital of Philadelphia · 2018 - 2020Enhancing Clinical Meaningfulness And Usefulness Of PROMIS Pediatric Measures Via Validation In Children And Adolescents With Rheumatic Disease, Cancer, Or Inflammatory Bowel Disease
ResearchPrincipal Investigator · Awarded by National Institutes of Health · 2017 - 2019Development and Validation of a Screening Protocol to Identify Elder Abuse in United States Emergency Departments
ResearchPrincipal Investigator · Awarded by University of North Carolina - Chapel Hill · 2018 - 2018QUALIfied for Therapeutic Evaluations of Pain (QUALITE-Pain)
ResearchPrincipal Investigator · Awarded by University of Rochester · 2017 - 2018The National Person-Centered Assessment Resource (PCAR)
ResearchPrincipal Investigator · Awarded by Northwestern University · 2017 - 2018PROMIS VALIDATION IN PROSPECTIVE POPULATION-BASED PROSTATE CANCER RESEARCH STUDY
ResearchPrincipal Investigator · Awarded by University of North Carolina - Chapel Hill · 2017 - 2018Patient Reported Outcomes Project of HCV-TARGET (PROP up TARGET)
ResearchPrincipal Investigator · Awarded by University of North Carolina - Chapel Hill · 2017 - 2018Planning Grant_Center for Pediatric Patient-reported Outcomes in Research and Healthcare
ResearchPrincipal Investigator · Awarded by PhRMA Foundation · 2017 - 2017External Relationships
- Arthritis Foundation
- International Society for Quality of LIfe Research
- Johns Hopkins University School of Medicine
- Northwestern University
- Novartis pharmaceuticals
- Arthritis Foundation
- International Society for Quality of LIfe Research
- Johns Hopkins University School of Medicine
- Northwestern University
- Novartis pharmaceuticals
- Pattern Health
- University of North Carolina at Chapel Hill
- Washington University
This faculty member (or a member of their immediate family) has reported outside activities with the companies, institutions, or organizations listed above. This information is available to institutional leadership and, when appropriate, management plans are in place to address potential conflicts of interest.