Karen E. Steinhauser | Scholars@Duke

Karen E. Steinhauser
Professor in Population Health Sciences

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program.

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness. She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.

Karen Steinhauser, PhD, is Professor, Departments of Population Health Sciences and Medicine, Duke University Medical Center and Senior Fellow with the Duke University Center for Aging and Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham. Her research is dedicated to improving patient and family psychosocial and spiritual care, in serious illness. She has developed measurement tools to assess patient and family quality of life as well as psychosocial interventions to improve the experience of serious illness for patients and those who care for them. Dr. Steinhauser's research has used qualitative and qualitative methods, observational, trial and implementation research. Her latest work includes: developing a measure to assess the spiritual needs in palliative care, and addressing clinician resilience in palliative care. She serves as Associate Chief of Research for Duke Palliative Care, Director of the Duke Residency Professional Development Coaching program and Vice Chair of Faculty Development for Population Health Sciences. She has been a long-term member of AAHPM, having served on the research committee and being the 2015 Awardee for Excellence in Scientific Research in Palliative Care. She is the Director of Duke’s Residency Professional Development Coaching Program and Vice Chair for Faculty Development, Department of Population Health Sciences

Area of expertise: Palliative Care, Qualitative Research

Current Appointments & Affiliations

Professor in Population Health Sciences, Population Health Sciences, Basic Science Departments 2017
Professor in Medicine, Medicine, General Internal Medicine, Medicine 2020
Member of the Duke Cancer Institute, Duke Cancer Institute, Institutes and Centers 2013

Contact Information

200 Morris Street, Durham, NC 27705
200 Morris Street, Durham, NC 27705
karen.steinhauser@duke.edu (919) 668-2148

Background
Education, Training, & Certifications
- Ph.D., Duke University 1996
Duke Appointment History
- Professor in Medicine, Medicine, General Internal Medicine, Medicine 2018 - 2020
- Associate Professor in Population Health Sciences, Population Health Sciences, Basic Science Departments 2017
- Associate Professor in Medicine, Medicine, General Internal Medicine, Medicine 2008 - 2017
- Assistant Professor in Medicine, Medicine, General Internal Medicine, Medicine 2006 - 2008
- Assistant Research Professor in Medicine, Medicine, General Internal Medicine, Medicine 2000 - 2006
- Instructor, Temporary in the Department of Medicine, Medicine, General Internal Medicine, Medicine 2000
Leadership & Clinical Positions at Duke
- Director, Duke Residency Professional Development Coaching Program
  Associate Chief of Research in Palliative Care 2017-2019
  Vice Chair of Faculty Development 2019-present
Research
Selected Grants
- Couple Communication Skills Training for Advanced Cancer awarded by National Institutes of Health 2020 - 2024
- Meaning-Centered Pain Coping Skills Training for Patients with Advanced Cancer: A Randomized Pilot Trial awarded by National Palliative Care Research Center 2020 - 2022
- Reducing Disparities in the Quality of Palliative Care for Older African Americans Through Improved Advance Care Planning awarded by Patient Centered Outcomes Research Institute 2017 - 2022
- Which palliative care quality measures improve patient-centered outcomes? awarded by Agency for Healthcare Research and Quality 2015 - 2020
- Meaning-centered Psychotherapy and Pain Coping Skills in Advanced Cancer awarded by American Cancer Society, Inc. 2017 - 2020
- Toward Policies that Accommodate the Concerns of African Americans' in Resolving Disputes about the Use of Life Sustaining Technology awarded by Greenwall Foundation 2015 - 2017
- TRIADIC EXPECTATIONS: DECISION-MAKING IN ADVANCED CANCER awarded by National Palliative Care Research Center 2014 - 2017
- Palliative Care in Heart Failure (PAL-HF) awarded by National Institutes of Health 2011 - 2016
- VA IPA for Margaret Falkovic awarded by Durham Veterans Affairs Medical Center 2013 - 2015
- Increasing Access to Hospice Care for Older African Americans: A National Study awarded by National Institutes of Health 2012 - 2015
- Developing Interventions to Improve Function in Seniors with Comorbid Conditions awarded by National Institutes of Health 2008 - 2013
- Measuring/Improving Quality of Life in Acute Lung Injury awarded by National Institutes of Health 2005 - 2010
- Trajectories of Serious Illness: Patients and Caregivers awarded by National Institutes of Health 2003 - 2010
Publications & Artistic Works
Selected Publications
- Academic Articles
  - Steinhauser, Karen E., Karen M. Stechuchak, Katherine Ramos, Joseph Winger, James A. Tulsky, and Maren K. Olsen. “Current measures of distress may not account for what's most important in existential care interventions: Results of the outlook trial.” Palliat Support Care 18, no. 6 (December 2020): 648–57. https://doi.org/10.1017/S1478951520001170.
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  - Kobe, Elizabeth A., David Edelman, Phillip E. Tarkington, Hayden B. Bosworth, Matthew L. Maciejewski, Karen Steinhauser, Amy S. Jeffreys, et al. “Practical telehealth to improve control and engagement for patients with clinic-refractory diabetes mellitus (PRACTICE-DM): Protocol and baseline data for a randomized trial.” Contemp Clin Trials 98 (November 2020): 106157. https://doi.org/10.1016/j.cct.2020.106157.
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  - Bakitas, Marie A., J Nicholas Dionne-Odom, Deborah B. Ejem, Rachel Wells, Andres Azuero, Macy L. Stockdill, Konda Keebler, et al. “Effect of an Early Palliative Care Telehealth Intervention vs Usual Care on Patients With Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial.” Jama Intern Med 180, no. 9 (September 1, 2020): 1203–13. https://doi.org/10.1001/jamainternmed.2020.2861.
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  - Winger, Joseph G., Katherine Ramos, Karen E. Steinhauser, Tamara J. Somers, Laura S. Porter, Arif H. Kamal, William S. Breitbart, and Francis J. Keefe. “Enhancing meaning in the face of advanced cancer and pain: Qualitative evaluation of a meaning-centered psychosocial pain management intervention.” Palliat Support Care 18, no. 3 (June 2020): 263–70. https://doi.org/10.1017/S1478951520000115.
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  - Bruening, Rebecca, Nina Sperber, Katherine Miller, Sara Andrews, Karen Steinhauser, G Darryl Wieland, Jennifer Lindquist, et al. “Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program.” J Appl Gerontol 39, no. 4 (April 2020): 368–76. https://doi.org/10.1177/0733464818825050.
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  - Ejem, Deborah B., Nadine Barrett, Ramona L. Rhodes, Maren Olsen, Marie Bakitas, Raegan Durant, Ronit Elk, et al. “Reducing Disparities in the Quality of Palliative Care for Older African Americans through Improved Advance Care Planning: Study Design and Protocol.” J Palliat Med 22, no. S1 (September 2019): 90–100. https://doi.org/10.1089/jpm.2019.0146.
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  - Hemming, Patrick, Jessica A. Revels, Anh N. Tran, Lawrence H. Greenblatt, and Karen E. Steinhauser. “Identifying core curricular components for behavioral health training in internal medicine residency: Qualitative interviews with residents, faculty, and behavioral health clinicians.” Int J Psychiatry Med 54, no. 3 (May 2019): 188–202. https://doi.org/10.1177/0091217418802159.
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  - Bonsignore, Lindsay, Nicholas Bloom, Karen Steinhauser, Reginald Nichols, Todd Allen, Martha Twaddle, and Janet Bull. “Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care.” J Pain Symptom Manage 56, no. 1 (July 2018): 7–14. https://doi.org/10.1016/j.jpainsymman.2018.03.013.
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  - Boucher, Nathan A., Karen E. Steinhauser, and Kimberly S. Johnson. “Older, Seriously Ill Veterans' Views on the Role of Religion and Spirituality in Health-Care Delivery.” Am J Hosp Palliat Care 35, no. 7 (July 2018): 921–28. https://doi.org/10.1177/1049909118767113.
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  - LeBlanc, Thomas W., Nick Bloom, Steven P. Wolf, Sarah G. Lowman, Kathryn I. Pollak, Karen E. Steinhauser, Dan Ariely, and James A. Tulsky. “Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists.” Support Care Cancer 26, no. 4 (April 2018): 1197–1205. https://doi.org/10.1007/s00520-017-3942-y.
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  - Prescott, Anna T., Jay G. Hull, J Nicholas Dionne-Odom, Tor D. Tosteson, Kathleen Doyle Lyons, Zhigang Li, Zhongze Li, et al. “The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancer.” Health Psychol 36, no. 12 (December 2017): 1140–46. https://doi.org/10.1037/hea0000544.
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  - Steinhauser, Karen E., Stewart Alexander, Maren K. Olsen, Karen M. Stechuchak, Jennifer Zervakis, Natalie Ammarell, Ira Byock, and James A. Tulsky. “Addressing Patient Emotional and Existential Needs During Serious Illness: Results of the Outlook Randomized Controlled Trial.” J Pain Symptom Manage 54, no. 6 (December 2017): 898–908. https://doi.org/10.1016/j.jpainsymman.2017.06.003.
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  - Balboni, Tracy A., George Fitchett, George F. Handzo, Kimberly S. Johnson, Harold G. Koenig, Kenneth I. Pargament, Christina M. Puchalski, Shane Sinclair, Elizabeth J. Taylor, and Karen E. Steinhauser. “State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions.” J Pain Symptom Manage 54, no. 3 (September 2017): 441–53. https://doi.org/10.1016/j.jpainsymman.2017.07.029.
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  - Steinhauser, Karen E., George Fitchett, George F. Handzo, Kimberly S. Johnson, Harold G. Koenig, Kenneth I. Pargament, Christina M. Puchalski, Shane Sinclair, Elizabeth J. Taylor, and Tracy A. Balboni. “State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes.” J Pain Symptom Manage 54, no. 3 (September 2017): 428–40. https://doi.org/10.1016/j.jpainsymman.2017.07.028.
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  - Steinhauser, Karen E., and Tracy A. Balboni. “State of the Science of Spirituality and Palliative Care Research: Research Landscape and Future Directions.” J Pain Symptom Manage 54, no. 3 (September 2017): 426–27. https://doi.org/10.1016/j.jpainsymman.2017.02.020.
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  - Bakitas, Marie, J Nicholas Dionne-Odom, Salpy V. Pamboukian, Jose Tallaj, Elizabeth Kvale, Keith M. Swetz, Jennifer Frost, et al. “Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial.” Bmc Palliat Care 16, no. 1 (August 31, 2017): 45. https://doi.org/10.1186/s12904-017-0226-8.
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  - Rogers, Joseph G., Chetan B. Patel, Robert J. Mentz, Bradi B. Granger, Karen E. Steinhauser, Mona Fiuzat, Patricia A. Adams, et al. “Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial.” J Am Coll Cardiol 70, no. 3 (July 18, 2017): 331–41. https://doi.org/10.1016/j.jacc.2017.05.030.
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  - Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Why Burnout Is So Hard to Fix.” J Oncol Pract 13, no. 6 (June 2017): 348–51. https://doi.org/10.1200/JOP.2017.021964.
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  - Kavalieratos, Dio, Daniel E. Siconolfi, Karen E. Steinhauser, Janet Bull, Robert M. Arnold, Keith M. Swetz, and Arif H. Kamal. “"It Is Like Heart Failure. It Is Chronic … and It Will Kill You": A Qualitative Analysis of Burnout Among Hospice and Palliative Care Clinicians.” J Pain Symptom Manage 53, no. 5 (May 2017): 901-910.e1. https://doi.org/10.1016/j.jpainsymman.2016.12.337.
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  - Bailey, Donald E., Cristina C. Hendrix, Karen E. Steinhauser, Karen M. Stechuchak, Laura S. Porter, Julie Hudson, Maren K. Olsen, et al. “Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant.” Patient Educ Couns 100, no. 3 (March 2017): 509–17. https://doi.org/10.1016/j.pec.2016.10.017.
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  - Steinhauser, Karen E., Annette Olsen, Kimberly S. Johnson, Linda L. Sanders, Maren Olsen, Natalie Ammarell, and Daniel Grossoehme. “The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study.” Palliat Support Care 14, no. 5 (October 2016): 456–67. https://doi.org/10.1017/S1478951515001248.
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  - Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors.” J Pain Symptom Manage 52, no. 2 (August 2016): 284–91. https://doi.org/10.1016/j.jpainsymman.2016.02.002.
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  - Hendrix, Cristina C., Donald E. Bailey, Karen E. Steinhauser, Maren K. Olsen, Karen M. Stechuchak, Sarah G. Lowman, Abby J. Schwartz, et al. “Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.” Support Care Cancer 24, no. 1 (January 2016): 327–36. https://doi.org/10.1007/s00520-015-2797-3.
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  - Steinhauser, Karen E., Corrine I. Voils, Hayden Bosworth, and James A. Tulsky. “What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital.” Palliat Support Care 13, no. 4 (August 2015): 945–52. https://doi.org/10.1017/S1478951514000807.
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  - Powell, Richard A., Linda Emanuel, George Handzo, John Lantos, Laura B. Dunn, Ellen L. Idler, Diane J. Wilkie, et al. “Transcending differences to study the transcendent: an exploratory study of researchers' and chaplains' reflections on interdisciplinary spiritual care research collaboration.” Bmc Palliat Care 14 (April 18, 2015): 12. https://doi.org/10.1186/s12904-015-0004-4.
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  - LeBlanc, Thomas W., Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy P. Abernethy. “Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices.” Blood 124, no. 21 (December 6, 2014).
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  - Steinhauser, Karen E., Corrine I. Voils, Hayden B. Bosworth, and James A. Tulsky. “Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam).” J Pain Symptom Manage 48, no. 6 (December 2014): 1168–81. https://doi.org/10.1016/j.jpainsymman.2014.04.006.
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  - Mentz, Robert J., James A. Tulsky, Bradi B. Granger, Kevin J. Anstrom, Patricia A. Adams, Gwen C. Dodson, Mona Fiuzat, et al. “The palliative care in heart failure trial: rationale and design.” Am Heart J 168, no. 5 (November 2014): 645-651.e1. https://doi.org/10.1016/j.ahj.2014.07.018.
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  - Adams, Judith A., Ruth A. Anderson, Sharron L. Docherty, James A. Tulsky, Karen E. Steinhauser, and Donald E. Bailey. “Nursing strategies to support family members of ICU patients at high risk of dying.” Heart Lung 43, no. 5 (September 2014): 406–15. https://doi.org/10.1016/j.hrtlng.2014.02.001.
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  - Sautter, Jessica M., James A. Tulsky, Kimberly S. Johnson, Maren K. Olsen, Allison M. Burton-Chase, Jennifer Hoff Lindquist, Sheryl Zimmerman, and Karen E. Steinhauser. “Caregiver experience during advanced chronic illness and last year of life.” J Am Geriatr Soc 62, no. 6 (June 2014): 1082–90. https://doi.org/10.1111/jgs.12841.
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  - Sperber, Nina R., Heather A. King, Karen Steinhauser, Natalie Ammarell, Susanne Danus, and Benjamin J. Powers. “Scheduled telephone visits in the veterans health administration patient-centered medical home.” Bmc Health Serv Res 14 (April 1, 2014): 145. https://doi.org/10.1186/1472-6963-14-145.
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  - Balboni, Tracy A., Michael Balboni, Andrea C. Enzinger, Kathleen Gallivan, M Elizabeth Paulk, Alexi Wright, Karen Steinhauser, Tyler J. VanderWeele, and Holly G. Prigerson. “Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life.” Jama Intern Med 173, no. 12 (June 24, 2013): 1109–17. https://doi.org/10.1001/jamainternmed.2013.903.
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  - Chiarchiaro, Jared, Maren K. Olsen, Karen E. Steinhauser, and James A. Tulsky. “Admission to the intensive care unit and well-being in patients with advanced chronic illness.” Am J Crit Care 22, no. 3 (May 2013): 223–31. https://doi.org/10.4037/ajcc2013346.
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  - Keall, Robyn M., Phyllis N. Butow, Karen E. Steinhauser, and Josephine M. Clayton. “Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial.” Cancer Nurs 36, no. 3 (May 2013): E39–46. https://doi.org/10.1097/NCC.0b013e3182664c7a.
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  - Morris, Deborah A., Kimberly S. Johnson, Natalie Ammarell, Robert M. Arnold, James A. Tulsky, and Karen E. Steinhauser. “What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness.” J Gen Intern Med 27, no. 11 (November 2012): 1460–66. https://doi.org/10.1007/s11606-012-2109-2.
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  - Burton, Allison M., Jessica M. Sautter, James A. Tulsky, Jennifer Hoff Lindquist, Judith C. Hays, Maren K. Olsen, Sheryl I. Zimmerman, and Karen E. Steinhauser. “Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers.” J Pain Symptom Manage 44, no. 3 (September 2012): 410–20. https://doi.org/10.1016/j.jpainsymman.2011.09.018.
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  - Schell, Jane O., Uptal D. Patel, Karen E. Steinhauser, Natalie Ammarell, and James A. Tulsky. “Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study.” Am J Kidney Dis 59, no. 4 (April 2012): 495–503. https://doi.org/10.1053/j.ajkd.2011.11.023.
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  - Galanos, Anthony Nicholas, Deborah A. Morris, Carl F. Pieper, Angela M. Poppe-Ries, and Karen E. Steinhauser. “End-of-life care at an academic medical center: are attending physicians, house staff, nurses, and bereaved family members equally satisfied? Implications for palliative care.” Am J Hosp Palliat Care 29, no. 1 (February 2012): 47–52. https://doi.org/10.1177/1049909111407176.
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  - Hendrix, Cristina C., S Nicole Hastings, Courtney Van Houtven, Karen Steinhauser, Jennifer Chapman, Terry Ervin, Linda Sanders, and Morris Weinberger. “Pilot study: individualized training for caregivers of hospitalized older veterans.” Nurs Res 60, no. 6 (November 2011): 436–41. https://doi.org/10.1097/NNR.0b013e31823583c7.
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  - Whitson, Heather E., Karen Steinhauser, Natalie Ammarell, Diane Whitaker, Scott W. Cousins, Deidra Ansah, Linda L. Sanders, and Harvey J. Cohen. “Categorizing the effect of comorbidity: a qualitative study of individuals' experiences in a low-vision rehabilitation program.” J Am Geriatr Soc 59, no. 10 (October 2011): 1802–9. https://doi.org/10.1111/j.1532-5415.2011.03602.x.
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  - Hays, Judith C., Laura Wood, Karen Steinhauser, Maren K. Olson, Jennifer H. Lindquist, and James A. Tulsky. “Clergy-laity support and patients' mood during serious illness: a cross-sectional epidemiologic study.” Palliat Support Care 9, no. 3 (September 2011): 273–80. https://doi.org/10.1017/S1478951511000228.
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  - Keall, Robyn M., Phyllis N. Butow, Karen E. Steinhauser, and Josephine M. Clayton. “Discussing life story, forgiveness, heritage, and legacy with patients with life-limiting illnesses.” Int J Palliat Nurs 17, no. 9 (September 2011): 454–60. https://doi.org/10.12968/ijpn.2011.17.9.454.
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  - Steinhauser, Karen E., Robert M. Arnold, Maren K. Olsen, Jennifer Lindquist, Judith Hays, Laura L. Wood, Allison M. Burton, and James A. Tulsky. “Comparing three life-limiting diseases: does diagnosis matter or is sick, sick?” J Pain Symptom Manage 42, no. 3 (September 2011): 331–41. https://doi.org/10.1016/j.jpainsymman.2010.11.006.
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  - Johnson, Kimberly S., James A. Tulsky, Judith C. Hays, Robert M. Arnold, Maren K. Olsen, Jennifer H. Lindquist, and Karen E. Steinhauser. “Which domains of spirituality are associated with anxiety and depression in patients with advanced illness?” J Gen Intern Med 26, no. 7 (July 2011): 751–58. https://doi.org/10.1007/s11606-011-1656-2.
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  - Lyerly, Anne Drapkin, Karen Steinhauser, Corrine Voils, Emily Namey, Carolyn Alexander, Brandon Bankowski, Robert Cook-Deegan, et al. “Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey.” Fertil Steril 93, no. 2 (February 2010): 499–509. https://doi.org/10.1016/j.fertnstert.2008.10.015.
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  - Steinhauser, Karen E., Stewart C. Alexander, Ira R. Byock, Linda K. George, and James A. Tulsky. “Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life.” Palliat Support Care 7, no. 4 (December 2009): 393–404. https://doi.org/10.1017/S147895150999040X.
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  - Steinhauser, Karen E., and Julie Barroso. “Using qualitative methods to explore key questions in palliative care.” J Palliat Med 12, no. 8 (August 2009): 725–30. https://doi.org/10.1089/jpm.2009.9580.
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  - Van Houtven, Courtney Harold, Donald H. Taylor, Karen Steinhauser, and James A. Tulsky. “Is a home-care network necessary to access the Medicare hospice benefit?” J Palliat Med 12, no. 8 (August 2009): 687–94. https://doi.org/10.1089/jpm.2008.0255.
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  - Steinhauser, Karen E., Stewart C. Alexander, Ira R. Byock, Linda K. George, Maren K. Olsen, and James A. Tulsky. “Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial.” J Palliat Med 11, no. 9 (November 2008): 1234–40. https://doi.org/10.1089/jpm.2008.0078.
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  - Reynolds, Kimberly S., Laura C. Hanson, Robert F. DeVellis, Martha Henderson, and Karen E. Steinhauser. “Disparities in pain management between cognitively intact and cognitively impaired nursing home residents.” J Pain Symptom Manage 35, no. 4 (April 2008): 388–96. https://doi.org/10.1016/j.jpainsymman.2008.01.001.
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  - Reynolds, Kimberly S., Laura C. Hanson, Martha Henderson, and Karen E. Steinhauser. “End-of-life care in nursing home settings: do race or age matter?” Palliat Support Care 6, no. 1 (March 2008): 21–27. https://doi.org/10.1017/S1478951508000047.
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  - Voils, Corrine I., Margarete Sandelowski, Philipp Dahm, Rachel Blouin, Hayden B. Bosworth, Eugene Z. Oddone, and Karen E. Steinhauser. “Selective adherence to antihypertensive medications as a patient-driven means to preserving sexual potency.” Patient Prefer Adherence 2 (February 2, 2008): 201–6. https://doi.org/10.2147/ppa.s3796.
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  - Taylor, Donald H., Karen Steinhauser, James A. Tulsky, John Rattliff, and Courtney Harold Van Houtven. “Characterizing hospice discharge patterns in a nationally representative sample of the elderly, 1993-2000.” Am J Hosp Palliat Care 25, no. 1 (February 2008): 9–15. https://doi.org/10.1177/1049909107310136.
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  - Taylor, Donald H., Jan Ostermann, Courtney H. Van Houtven, James A. Tulsky, and Karen Steinhauser. “What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program?” Soc Sci Med 65, no. 7 (October 2007): 1466–78. https://doi.org/10.1016/j.socscimed.2007.05.028.
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  - Munn, Jean C., Sheryl Zimmerman, Laura C. Hanson, Christianna S. Williams, Philip D. Sloane, Elizabeth C. Clipp, James A. Tulsky, and Karen E. Steinhauser. “Measuring the quality of dying in long-term care.” J Am Geriatr Soc 55, no. 9 (September 2007): 1371–79. https://doi.org/10.1111/j.1532-5415.2007.01293.x.
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  - Steinhauser, Karen E., Elizabeth C. Clipp, Judith C. Hays, Maren Olsen, Robert Arnold, Nicholas A. Christakis, Jennifer Hoff Lindquist, and James A. Tulsky. “Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.” Palliat Med 20, no. 8 (December 2006): 745–54. https://doi.org/10.1177/0269216306073112.
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  - Lyerly, Anne Drapkin, Karen Steinhauser, Emily Namey, James A. Tulsky, Robert Cook-Deegan, Jeremy Sugarman, David Walmer, Ruth Faden, and Edward Wallach. “Factors that affect infertility patients' decisions about disposition of frozen embryos.” Fertil Steril 85, no. 6 (June 2006): 1623–30. https://doi.org/10.1016/j.fertnstert.2005.11.056.
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  - Evans, Wendy G., Toni M. Cutson, Karen E. Steinhauser, and James A. Tulsky. “Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities.” J Palliat Med 9, no. 1 (February 2006): 100–110. https://doi.org/10.1089/jpm.2006.9.100.
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  - Steinhauser, Karen E., Corrine I. Voils, Elizabeth C. Clipp, Hayden B. Bosworth, Nicholas A. Christakis, and James A. Tulsky. “"Are you at peace?": one item to probe spiritual concerns at the end of life.” Arch Intern Med 166, no. 1 (January 9, 2006): 101–5. https://doi.org/10.1001/archinte.166.1.101.
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  - Steinhauser, Karen E. “Measuring end-of-life care outcomes prospectively.” J Palliat Med 8 Suppl 1 (2005): S30–41. https://doi.org/10.1089/jpm.2005.8.s-30.
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  - Steinhauser, Karen E., Elizabeth C. Clipp, Hayden B. Bosworth, Maya McNeilly, Nicholas A. Christakis, Corrine I. Voils, and James A. Tulsky. “Measuring quality of life at the end of life: validation of the QUAL-E.” Palliat Support Care 2, no. 1 (March 2004): 3–14. https://doi.org/10.1017/s1478951504040027.
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  - Bosworth, H. B., K. E. Steinhauser, M. Orr, J. H. Lindquist, S. C. Grambow, and E. Z. Oddone. “Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors.” Aging Ment Health 8, no. 1 (January 2004): 83–91. https://doi.org/10.1080/13607860310001613374.
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  - Steinhauser, Karen E., Hayden B. Bosworth, Elizabeth C. Clipp, Maya McNeilly, Nicholas A. Christakis, Joanna Parker, and James A. Tulsky. “Initial assessment of a new instrument to measure quality of life at the end of life.” J Palliat Med 5, no. 6 (December 2002): 829–41. https://doi.org/10.1089/10966210260499014.
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  - Steinhauser, Karen E., Elizabeth C. Clipp, and James A. Tulsky. “Evolution in measuring the quality of dying.” J Palliat Med 5, no. 3 (June 2002): 407–14. https://doi.org/10.1089/109662102320135298.
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  - Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: Preferences of patients, families, physicians, and other care providers.” Gerontologist 41 (October 1, 2001): 299–300.
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  - Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: preferences of patients, families, physicians, and other care providers.” J Pain Symptom Manage 22, no. 3 (September 2001): 727–37. https://doi.org/10.1016/s0885-3924(01)00334-7.
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  - Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, L. McIntyre, and J. A. Tulsky. “Factors considered important at the end of life by patients, family, physicians, and other care providers.” Jama 284, no. 19 (November 15, 2000): 2476–82. https://doi.org/10.1001/jama.284.19.2476.
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  - Steinhauser, K. E., E. C. Clipp, N. Christakis, M. McNeilly, L. McIntyre, and J. A. Tulsky. “In Search of a Good Death: Attitudes of Patients, Family Members and Health Care Professionals.” Journal of General Internal Medicine 15, no. s2 (October 2000): 5–5. https://doi.org/10.1046/j.1525-1497.2000.15200-19.x.
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  - Steinhauser, K. E., E. C. Clipp, M. McNeilly, N. A. Christakis, L. M. McIntyre, and J. A. Tulsky. “In search of a good death: observations of patients, families, and providers.” Ann Intern Med 132, no. 10 (May 16, 2000): 825–32. https://doi.org/10.7326/0003-4819-132-10-200005160-00011.
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  - Steinhauser, K. E., G. L. Maddox, J. L. Person, and J. A. Tulsky. “The evolution of volunteerism and professional staff within hospice care in North Carolina.” Hosp J 15, no. 1 (2000): 35–51. https://doi.org/10.1080/0742-969x.2000.11882946.
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  - Maddox, G. L., D. O. Clark, and K. Steinhauser. “Dynamics of functional impairment in late adulthood.” Soc Sci Med 38, no. 7 (April 1994): 925–36. https://doi.org/10.1016/0277-9536(94)90425-1.
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  - Clark, D. O., G. L. Maddox, and K. Steinhauser. “Race, Aging, and Functional Health.” Journal of Aging and Health 5, no. 4 (January 1, 1993): 536–53. https://doi.org/10.1177/089826439300500407.
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- Book Sections
  - Porter, L. S., L. Fish, and K. Steinhauser. “The elephant in the room: Facilitating illness-related communication among couples with advanced cancer.” In When “We” Are Stressed: A Dyadic Approach to Coping with Stressful Events, 163–82, 2018.
- Conference Papers
  - Mentz, Robert J., Christopher M. O’Connor, Bradi B. Granger, Hongqiu Yang, Chetan B. Patel, Karen E. Steinhauser, Mona Fiuzat, et al. “Palliative care and hospital readmissions in patients with advanced heart failure: Insights from the PAL-HF trial.” In Am Heart J, 204:202–4, 2018. https://doi.org/10.1016/j.ahj.2018.07.010.
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  - LeBlanc, Thomas W., Laura J. Fish, Catherine T. Bloom, Areej El-Jawahri, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, and Kathryn I. Pollak. “Patient experiences of acute myeloid leukemia: A qualitative study about diagnosis, illness understanding, and treatment decision-making.” In Psychooncology, 26:2063–68, 2017. https://doi.org/10.1002/pon.4309.
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Scholarly, Clinical, & Service Activities
Outreach & Engaged Scholarship
- Bass Connections Team Leader. REGAIN: Roadmap for Evaluating Goals in Advanced Illness Navigation. 2020 - 2021 2020 - 2021
- Bass Connections Team Leader. REGAIN: Roadmap for Evaluating Goals in Advanced Illness Navigation. 2019 - 2020 2019 - 2020

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Education, Training, & Certifications

Duke Appointment History

Leadership & Clinical Positions at Duke

Selected Grants

Selected Publications

Academic Articles

Book Sections

Conference Papers

Outreach & Engaged Scholarship