Karen E. Steinhauser | Scholars@Duke

Karen E. Steinhauser
Professor in Population Health Sciences

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Assistant Research Professor, Department of Medicine; Senior Fellow with the Duke University Center for Aging; Associate Faculty Scholar with the Duke Institute on Care at the End of Life; and Associate Director of the Program on the Medical Encounter and Palliative Care, Duke and VA Medical Centers.

Dr. Steinhauser received her doctoral training in sociology at Duke where she specialized in the study of medical sociology and aging. Her dissertation examined the organizational evolution of hospice care. Particular attention centered on the influence of public funding, via Medicare, on a private sector volunteer organization. Following her graduate training, she completed post-doctoral research in Health Services Research and Development at the Durham VA Medical Center. Her post-doctoral research focused on identifying what patients, families and health care providers value at the end of life. The qualitative and quantitative results of that study served as the foundation in the design of a clinical instrument to assess the quality of dying (the QUAL-E). Dr. Steinhauser is the Principal Investigator of the study to longitudinally validate that instrument. She is also Principal Investigator of a study to develop a twenty-year longitudinal database of hospice care in North Carolina.

Area of expertise: Health Measurement

Current Appointments & Affiliations

Professor in Population Health Sciences, Population Health Sciences, Basic Science Departments 2017
Professor in Medicine, Medicine, General Internal Medicine, Medicine 2018
Member of the Duke Cancer Institute, Duke Cancer Institute, Institutes and Centers 2013

Contact Information

152 VA Med Ctr, Durham, NC 27708
VA Med Ctr, 508 Fulton St (152), Durham, NC 27705
karen.steinhauser@duke.edu (919) 286-0411

Background
Education, Training, & Certifications
- Ph.D., Duke University 1996
Duke Appointment History
- Associate Professor in Medicine, Medicine, General Internal Medicine, Medicine 2018
- Associate Professor in Population Health Sciences, Population Health Sciences, Basic Science Departments 2017
- Associate Professor in Medicine, Medicine, General Internal Medicine, Medicine 2008 - 2017
- Assistant Professor in Medicine, Medicine, General Internal Medicine, Medicine 2006 - 2008
- Assistant Research Professor in Medicine, Medicine, General Internal Medicine, Medicine 2000 - 2006
- Instructor, Temporary in the Department of Medicine, Medicine, General Internal Medicine, Medicine 2000
Research
Selected Grants
- Reducing Disparities in the Quality of Palliative Care for Older African Americans Through Improved Advance Care Planning awarded by Patient-Centered Outcomes Research Institute 2017 - 2022
- Which palliative care quality measures improve patient-centered outcomes? awarded by Agency for Healthcare Research and Quality 2015 - 2020
- Meaning-centered Psychotherapy and Pain Coping Skills in Advanced Cancer awarded by American Cancer Society, Inc. 2017 - 2020
- Toward Policies that Accommodate the Concerns of African Americans' in Resolving Disputes about the Use of Life Sustaini awarded by Greenwall Foundation 2015 - 2017
- TRIADIC EXPECTATIONS: DECISION-MAKING IN ADVANCED CANCER awarded by National Palliative Care Research Center 2014 - 2017
- Palliative Care in Heart Failure (PAL-HF) awarded by National Institutes of Health 2011 - 2016
- VA IPA for Margaret Falkovic awarded by Durham Veterans Affairs Medical Center 2013 - 2015
- Increasing Access to Hospice Care for Older African Americans: A National Study awarded by National Institutes of Health 2012 - 2015
- Developing Interventions to Improve Function in Seniors with Comorbid Conditions awarded by National Institutes of Health 2008 - 2013
- Measuring/Improving Quality of Life in Acute Lung Injury awarded by National Institutes of Health 2005 - 2010
- Trajectories of Serious Illness: Patients and Caregivers awarded by National Institutes of Health 2003 - 2010
Publications & Artistic Works
Selected Publications
- Conference Papers
  - LeBlanc, TW, Fish, LJ, Bloom, CT, El-Jawahri, A, Davis, DM, Locke, SC, Steinhauser, KE, and Pollak, KI. "Patient experiences of acute myeloid leukemia: A qualitative study about diagnosis, illness understanding, and treatment decision-making." December 2017. Full Text
  - Steinhauser, KE. "Measuring end-of-life care outcomes prospectively." December 1, 2005.
- Journal Articles
  - LeBlanc, TW, Bloom, N, Wolf, SP, Lowman, SG, Pollak, KI, Steinhauser, KE, Ariely, D, and Tulsky, JA. "Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists." Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 26, no. 4 (April 2018): 1197-1205. Full Text
  - Bakitas, M, Dionne-Odom, JN, Pamboukian, SV, Tallaj, J, Kvale, E, Swetz, KM, Frost, J, Wells, R, Azuero, A, Keebler, K, Akyar, I, Ejem, D, Steinhauser, K, Smith, T, Durant, R, and Kono, AT. "Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial." BMC Palliative Care 16, no. 1 (December 2017). Full Text
  - Prescott, AT, Hull, JG, Dionne-Odom, JN, Tosteson, TD, Lyons, KD, Li, Z, Li, Z, Dragnev, KH, Hegel, MT, Steinhauser, KE, Ahles, TA, and Bakitas, MA. "The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancer." Health psychology : official journal of the Division of Health Psychology, American Psychological Association 36, no. 12 (December 2017): 1140-1146. Full Text
  - Steinhauser, KE, Alexander, S, Olsen, MK, Stechuchak, KM, Zervakis, J, Ammarell, N, Byock, I, and Tulsky, JA. "Addressing Patient Emotional and Existential Needs During Serious Illness: Results of the Outlook Randomized Controlled Trial." Journal of pain and symptom management 54, no. 6 (December 2017): 898-908. Full Text
  - Balboni, TA, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Steinhauser, KE. "State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions." Journal of pain and symptom management 54, no. 3 (September 2017): 441-453. Full Text
  - Steinhauser, KE, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes." Journal of pain and symptom management 54, no. 3 (September 2017): 428-440. Full Text
  - Steinhauser, KE, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research: Research Landscape and Future Directions." Journal of pain and symptom management 54, no. 3 (September 2017): 426-427. Full Text
  - Rogers, JG, Patel, CB, Mentz, RJ, Granger, BB, Steinhauser, KE, Fiuzat, M, Adams, PA, Speck, A, Johnson, KS, Krishnamoorthy, A, Yang, H, Anstrom, KJ, Dodson, GC, Taylor, DH, Kirchner, JL, Mark, DB, O'Connor, CM, and Tulsky, JA. "Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial." Journal of the American College of Cardiology 70, no. 3 (July 2017): 331-341. Full Text
  - Back, AL, Steinhauser, KE, Kamal, AH, and Jackson, VA. "Why Burnout Is So Hard to Fix." Journal of oncology practice 13, no. 6 (June 2017): 348-351. Full Text
  - Kavalieratos, D, Siconolfi, DE, Steinhauser, KE, Bull, J, Arnold, RM, Swetz, KM, and Kamal, AH. ""It Is Like Heart Failure. It Is Chronic … and It Will Kill You": A Qualitative Analysis of Burnout Among Hospice and Palliative Care Clinicians." Journal of pain and symptom management 53, no. 5 (May 2017): 901-910.e1. Full Text
  - Bailey, DE, Hendrix, CC, Steinhauser, KE, Stechuchak, KM, Porter, LS, Hudson, J, Olsen, MK, Muir, A, Lowman, S, DiMartini, A, Salonen, LW, and Tulsky, JA. "Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant." Patient education and counseling 100, no. 3 (March 2017): 509-517. Full Text
  - Steinhauser, KE, Olsen, A, Johnson, KS, Sanders, LL, Olsen, M, Ammarell, N, and Grossoehme, D. "The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study." Palliative & supportive care 14, no. 5 (October 2016): 456-467. Full Text
  - Back, AL, Steinhauser, KE, Kamal, AH, and Jackson, VA. "Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors." Journal of pain and symptom management 52, no. 2 (August 2016): 284-291. Full Text
  - Hendrix, CC, Bailey, DE, Steinhauser, KE, Olsen, MK, Stechuchak, KM, Lowman, SG, Schwartz, AJ, Riedel, RF, Keefe, FJ, Porter, LS, and Tulsky, JA. "Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being." Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 24, no. 1 (January 2016): 327-336. Full Text
  - Steinhauser, KE, Voils, CI, Bosworth, H, and Tulsky, JA. "What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital." Palliative & supportive care 13, no. 4 (August 2015): 945-952. Full Text
  - Powell, RA, Emanuel, L, Handzo, G, Lantos, J, Dunn, LB, Idler, EL, Wilkie, DJ, Massey, K, Summerfelt, WT, Barnes, MJD, Quest, TE, Kestenbaum, A, Steinhauser, K, Fitchett, G, Zollfrank, A, Olsen, AK, Balboni, TA, and Sommer, D. "Transcending differences to study the transcendent: an exploratory study of researchers' and chaplains' reflections on interdisciplinary spiritual care research collaboration." BMC palliative care 14 (January 2015): 12-. Full Text
  - LeBlanc, TW, Bloom, CT, Davis, DM, Locke, SC, Steinhauser, KE, Ubel, PA, Tulsky, JA, and Abernethy, AP. "Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices." BLOOD 124, no. 21 (December 6, 2014). Link to Item
  - Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam)." Journal of pain and symptom management 48, no. 6 (December 2014): 1168-1181. Full Text
  - Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: rationale and design." American heart journal 168, no. 5 (November 2014): 645-651.e1. Full Text
  - Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart & lung : the journal of critical care 43, no. 5 (September 2014): 406-415. Full Text
  - Sautter, JM, Tulsky, JA, Johnson, KS, Olsen, MK, Burton-Chase, AM, Lindquist, JH, Zimmerman, S, and Steinhauser, KE. "Caregiver experience during advanced chronic illness and last year of life." Journal of the American Geriatrics Society 62, no. 6 (June 2014): 1082-1090. Full Text
  - Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart and Lung: Journal of Acute and Critical Care 43, no. 5 (January 1, 2014): 406-415. Full Text
  - Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: Rationale and design." American Heart Journal 168, no. 5 (January 1, 2014): 645-651.e1. Full Text
  - Sperber, NR, King, HA, Steinhauser, K, Ammarell, N, Danus, S, and Powers, BJ. "Scheduled telephone visits in the veterans health administration patient-centered medical home." BMC health services research 14 (January 2014): 145-. Full Text
  - Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: The QUAL-E (fam)." Journal of Pain and Symptom Management 48, no. 6 (January 1, 2014): 1168-1181. Full Text
  - Chiarchiaro, J, Olsen, MK, Steinhauser, KE, and Tulsky, JA. "Admission to the intensive care unit and well-being in patients with advanced chronic illness." Am J Crit Care 22, no. 3 (May 2013): 223-231. Full Text Link to Item
  - Keall, RM, Butow, PN, Steinhauser, KE, and Clayton, JM. "Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial." Cancer Nurs 36, no. 3 (May 2013): E39-E46. Full Text Link to Item
  - Balboni, TA, Balboni, M, Enzinger, AC, Gallivan, K, Paulk, ME, Wright, A, Steinhauser, K, VanderWeele, TJ, and Prigerson, HG. "Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life." JAMA Internal Medicine 173, no. 12 (2013): 1109-1117. Full Text
  - Keall, RM, Butow, PN, Steinhauser, KE, and Clayton, JM. "Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the australian palliative care setting: Results from a phase 2 trial." Cancer Nursing 36, no. 3 (2013): E39-E46. Full Text
  - Morris, DA, Johnson, KS, Ammarell, N, Arnold, RM, Tulsky, JA, and Steinhauser, KE. "What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness." J Gen Intern Med 27, no. 11 (November 2012): 1460-1466. Full Text Link to Item
  - Burton, AM, Sautter, JM, Tulsky, JA, Lindquist, JH, Hays, JC, Olsen, MK, Zimmerman, SI, and Steinhauser, KE. "Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers." J Pain Symptom Manage 44, no. 3 (September 2012): 410-420. Full Text Link to Item
  - Schell, JO, Patel, UD, Steinhauser, KE, Ammarell, N, and Tulsky, JA. "Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study." Am J Kidney Dis 59, no. 4 (April 2012): 495-503. Full Text Link to Item
  - Galanos, AN, Morris, DA, Pieper, CF, Poppe-Ries, AM, and Steinhauser, KE. "End-of-life care at an academic medical center: are attending physicians, house staff, nurses, and bereaved family members equally satisfied? Implications for palliative care." Am J Hosp Palliat Care 29, no. 1 (February 2012): 47-52. Full Text Link to Item
  - Hendrix, CC, Hastings, SN, Van Houtven, C, Steinhauser, K, Chapman, J, Ervin, T, Sanders, L, and Weinberger, M. "Pilot study: individualized training for caregivers of hospitalized older veterans." Nurs Res 60, no. 6 (November 2011): 436-441. Full Text Link to Item
  - Whitson, HE, Steinhauser, K, Ammarell, N, Whitaker, D, Cousins, SW, Ansah, D, Sanders, LL, and Cohen, HJ. "Categorizing the effect of comorbidity: a qualitative study of individuals' experiences in a low-vision rehabilitation program." J Am Geriatr Soc 59, no. 10 (October 2011): 1802-1809. Full Text Link to Item
  - Hays, JC, Wood, L, Steinhauser, K, Olson, MK, Lindquist, JH, and Tulsky, JA. "Clergy-laity support and patients' mood during serious illness: a cross-sectional epidemiologic study." Palliat Support Care 9, no. 3 (September 2011): 273-280. Full Text Link to Item
  - Keall, RM, Butow, PN, Steinhauser, KE, and Clayton, JM. "Discussing life story, forgiveness, heritage, and legacy with patients with life-limiting illnesses." Int J Palliat Nurs 17, no. 9 (September 2011): 454-460. Full Text Link to Item
  - Steinhauser, KE, Arnold, RM, Olsen, MK, Lindquist, J, Hays, J, Wood, LL, Burton, AM, and Tulsky, JA. "Comparing three life-limiting diseases: does diagnosis matter or is sick, sick?." J Pain Symptom Manage 42, no. 3 (September 2011): 331-341. Full Text Link to Item
  - Johnson, KS, Tulsky, JA, Hays, JC, Arnold, RM, Olsen, MK, Lindquist, JH, and Steinhauser, KE. "Which domains of spirituality are associated with anxiety and depression in patients with advanced illness?." J Gen Intern Med 26, no. 7 (July 2011): 751-758. Full Text Link to Item
  - Lyerly, AD, Steinhauser, K, Voils, C, Namey, E, Alexander, C, Bankowski, B, Cook-Deegan, R, Dodson, WC, Gates, E, Jungheim, ES, McGovern, PG, Myers, ER, Osborn, B, Schlaff, W, Sugarman, J, Tulsky, JA, Walmer, D, Faden, RR, and Wallach, E. "Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey." Fertil Steril 93, no. 2 (February 2010): 499-509. Full Text Link to Item
  - Steinhauser, KE, Alexander, SC, Byock, IR, George, LK, and Tulsky, JA. "Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life." Palliat Support Care 7, no. 4 (December 2009): 393-404. Full Text Link to Item
  - Steinhauser, KE, and Barroso, J. "Using qualitative methods to explore key questions in palliative care." J Palliat Med 12, no. 8 (August 2009): 725-730. Full Text Link to Item
  - Van Houtven, CH, Taylor, DH, Steinhauser, K, and Tulsky, JA. "Is a home-care network necessary to access the Medicare hospice benefit?." J Palliat Med 12, no. 8 (August 2009): 687-694. Full Text Link to Item
  - Steinhauser, KE, Alexander, SC, Byock, IR, George, LK, Olsen, MK, and Tulsky, JA. "Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial." J Palliat Med 11, no. 9 (November 2008): 1234-1240. Full Text Link to Item
  - Reynolds, KS, Hanson, LC, DeVellis, RF, Henderson, M, and Steinhauser, KE. "Disparities in pain management between cognitively intact and cognitively impaired nursing home residents." J Pain Symptom Manage 35, no. 4 (April 2008): 388-396. Full Text Link to Item
  - Reynolds, KS, Hanson, LC, DeVellis, RF, Henderson, M, and Steinhauser, KE. "Disparities in pain management between cognitively intact and cognitively impaired nursing home residents." JOURNAL OF PAIN AND SYMPTOM MANAGEMENT 35, no. 4 (April 2008): 388-396. Full Text Link to Item
  - Reynolds, KS, Hanson, LC, Henderson, M, and Steinhauser, KE. "End-of-life care in nursing home settings: do race or age matter?." Palliat Support Care 6, no. 1 (March 2008): 21-27. Full Text Link to Item
  - Voils, CI, Sandelowski, M, Dahm, P, Blouin, R, Bosworth, HB, Oddone, EZ, and Steinhauser, KE. "Selective adherence to antihypertensive medications as a patient-driven means to preserving sexual potency. (Published online)" Patient Prefer Adherence 2 (February 2, 2008): 201-206. Link to Item
  - Taylor, DH, Steinhauser, K, Tulsky, JA, Rattliff, J, and Van Houtven, CH. "Characterizing hospice discharge patterns in a nationally representative sample of the elderly, 1993-2000." Am J Hosp Palliat Care 25, no. 1 (February 2008): 9-15. Full Text Link to Item
  - Taylor, DH, Ostermann, J, Van Houtven, CH, Tulsky, JA, and Steinhauser, K. "What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program?." Soc Sci Med 65, no. 7 (October 2007): 1466-1478. Full Text Link to Item
  - Munn, JC, Zimmerman, S, Hanson, LC, Williams, CS, Sloane, PD, Clipp, EC, Tulsky, JA, and Steinhauser, KE. "Measuring the quality of dying in long-term care." J Am Geriatr Soc 55, no. 9 (September 2007): 1371-1379. Link to Item
  - Steinhauser, KE, Clipp, EC, Hays, JC, Olsen, M, Arnold, R, Christakis, NA, Lindquist, JH, and Tulsky, JA. "Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research." Palliat Med 20, no. 8 (December 2006): 745-754. (Review) Full Text Link to Item
  - Lyerly, AD, Steinhauser, K, Namey, E, Tulsky, JA, Cook-Deegan, R, Sugarman, J, Walmer, D, Faden, R, and Wallach, E. "Factors that affect infertility patients' decisions about disposition of frozen embryos." Fertil Steril 85, no. 6 (June 2006): 1623-1630. Full Text Link to Item
  - Evans, WG, Cutson, TM, Steinhauser, KE, and Tulsky, JA. "Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities." J Palliat Med 9, no. 1 (February 2006): 100-110. Full Text Link to Item
  - Steinhauser, KE, Voils, CI, Clipp, EC, Bosworth, HB, Christakis, NA, and Tulsky, JA. ""Are you at peace?": one item to probe spiritual concerns at the end of life." Arch Intern Med 166, no. 1 (January 9, 2006): 101-105. Full Text Link to Item
  - Steinhauser, KE. "Measuring end-of-life care outcomes prospectively." J Palliat Med 8 Suppl 1 (2005): S30-S41. (Review) Full Text Link to Item
  - Steinhauser, KE, Clipp, EC, Bosworth, HB, McNeilly, M, Christakis, NA, Voils, CI, and Tulsky, JA. "Measuring quality of life at the end of life: validation of the QUAL-E." Palliat Support Care 2, no. 1 (March 2004): 3-14. Link to Item
  - Bosworth, HB, Steinhauser, KE, Orr, M, Lindquist, JH, Grambow, SC, and Oddone, EZ. "Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors." Aging Ment Health 8, no. 1 (January 2004): 83-91. Full Text Link to Item
  - Steinhauser, KE, Bosworth, HB, Clipp, EC, McNeilly, M, Christakis, NA, Parker, J, and Tulsky, JA. "Initial assessment of a new instrument to measure quality of life at the end of life." J Palliat Med 5, no. 6 (December 2002): 829-841. Full Text Link to Item
  - Steinhauser, KE, Clipp, EC, and Tulsky, JA. "Evolution in measuring the quality of dying." J Palliat Med 5, no. 3 (June 2002): 407-414. (Review) Full Text Link to Item
  - Steinhauser, KE, Christakis, NA, Clipp, EC, McNeilly, M, Grambow, S, Parker, J, and Tulsky, JA. "Preparing for the end of life: Preferences of patients, families, physicians, and other care providers." GERONTOLOGIST 41 (October 2001): 299-300. Link to Item
  - Steinhauser, KE, Christakis, NA, Clipp, EC, McNeilly, M, Grambow, S, Parker, J, and Tulsky, JA. "Preparing for the end of life: preferences of patients, families, physicians, and other care providers." J Pain Symptom Manage 22, no. 3 (September 2001): 727-737. Link to Item
  - Steinhauser, KE, Christakis, NA, Clipp, EC, McNeilly, M, McIntyre, L, and Tulsky, JA. "Factors considered important at the end of life by patients, family, physicians, and other care providers." JAMA 284, no. 19 (November 15, 2000): 2476-2482. Link to Item
  - Steinhauser, KE, Clipp, EC, Christakis, N, McNeilly, M, McIntyre, L, and Tulsky, JA. "In search of a good death: Attitudes of patients, family members and health care professionals." JOURNAL OF GENERAL INTERNAL MEDICINE 15 (October 2000): 5-5. Full Text Link to Item
  - Steinhauser, KE, Clipp, EC, McNeilly, M, Christakis, NA, McIntyre, LM, and Tulsky, JA. "In search of a good death: observations of patients, families, and providers." Ann Intern Med 132, no. 10 (May 16, 2000): 825-832. Link to Item
  - Steinhauser, KE, Maddox, GL, Person, JL, and Tulsky, JA. "The evolution of volunteerism and professional staff within hospice care in North Carolina." Hosp J 15, no. 1 (2000): 35-51. Link to Item
  - Maddox, GL, Clark, DO, and Steinhauser, K. "Dynamics of functional impairment in late adulthood." Social Science and Medicine 38, no. 7 (1994): 925-936. Full Text
  - Clark, DO, Maddox, GL, and Steinhauser, K. "Race, aging, and functional health." Journal of Aging and Health 5, no. 4 (1993): 536-553. Full Text

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Education, Training, & Certifications

Duke Appointment History

Selected Grants

Selected Publications

Conference Papers

Journal Articles