Scholars@Duke

• Background
• 

  Education, Training, & Certifications

  • Ph.D., Duke University 1996
• 

  Previous Appointments & Affiliations

  • Professor in Medicine, Medicine, General Internal Medicine, Medicine 2018 - 2020
  • Associate Professor in Population Health Sciences, Population Health Sciences, Basic Science Departments 2017
  • Associate Professor in Medicine, Medicine, General Internal Medicine, Medicine 2008 - 2017
  • Assistant Professor in Medicine, Medicine, General Internal Medicine, Medicine 2006 - 2008
  • Assistant Research Professor in Medicine, Medicine, General Internal Medicine, Medicine 2000 - 2006
  • Instructor, Temporary in the Department of Medicine, Medicine, General Internal Medicine, Medicine 2000
• 

  Leadership & Clinical Positions at Duke

  • Director, Duke Residency Professional Development Coaching Program
    Associate Chief of Research in Palliative Care 2017-2019
    Vice Chair of Faculty Development 2019-present
• Research
• 

  Selected Grants

  • Behavior and Physiology in Aging awarded by National Institutes of Health 2015 - 2025
  • Couple Communication Skills Training for Advanced Cancer awarded by National Institutes of Health 2020 - 2024
  • Reducing Disparities in the Quality of Palliative Care for Older African Americans Through Improved Advance Care Planning awarded by Patient Centered Outcomes Research Institute 2017 - 2024
  • Meaning-Centered Pain Coping Skills Training for Patients with Advanced Cancer: A Randomized Pilot Trial awarded by National Palliative Care Research Center 2020 - 2022
  • Which palliative care quality measures improve patient-centered outcomes? awarded by Agency for Healthcare Research and Quality 2015 - 2020
  • Meaning-centered Psychotherapy and Pain Coping Skills in Advanced Cancer awarded by American Cancer Society, Inc. 2017 - 2020
  • Toward Policies that Accommodate the Concerns of African Americans' in Resolving Disputes about the Use of Life Sustaining Technology awarded by Greenwall Foundation 2015 - 2017
  • TRIADIC EXPECTATIONS: DECISION-MAKING IN ADVANCED CANCER awarded by National Palliative Care Research Center 2014 - 2017
  • Palliative Care in Heart Failure (PAL-HF) awarded by National Institutes of Health 2011 - 2016
  • VA IPA for Margaret Falkovic awarded by Durham Veterans Affairs Medical Center 2013 - 2015
  • Increasing Access to Hospice Care for Older African Americans: A National Study awarded by National Institutes of Health 2012 - 2015
  • Developing Interventions to Improve Function in Seniors with Comorbid Conditions awarded by National Institutes of Health 2008 - 2013
  • Measuring/Improving Quality of Life in Acute Lung Injury awarded by National Institutes of Health 2005 - 2010
  • Trajectories of Serious Illness: Patients and Caregivers awarded by National Institutes of Health 2003 - 2010
• Publications & Artistic Works
• 

  Selected Publications

  • Academic Articles

    • Winger, Joseph G., Sarah A. Kelleher, Katherine Ramos, Devon K. Check, Justin A. Yu, Victoria D. Powell, Reginald Lerebours, et al. “Meaning-centered pain coping skills training for patients with metastatic cancer: Results of a randomized controlled pilot trial.” Psychooncology, May 12, 2023. https://doi.org/10.1002/pon.6151.
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    • Schlichte, Lindsay, Noppon Setji, Jonathan Walter, Yvonne Acker, David Casarett, Kathryn I. Pollak, Karen Steinhauser, et al. “The Use of Templates for Documenting Advance Care Planning Conversations: A Descriptive Analysis.” J Pain Symptom Manage, April 18, 2023. https://doi.org/10.1016/j.jpainsymman.2023.04.015.
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    • Alexopoulos, Anastasia-Stefania, Diana Soliman, Allison A. Lewinski, Elizabeth Strawbridge, Karen Steinhauser, David Edelman, and Matthew J. Crowley. “Simplifying therapy to assure glycemic control and engagement (STAGE) in poorly-controlled diabetes: A pilot study.” J Diabetes Complications 37, no. 1 (January 2023): 108364. https://doi.org/10.1016/j.jdiacomp.2022.108364.
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    • Kolmar, Amanda, Arif H. Kamal, and Karen E. Steinhauser. “"Between Wings of Hope and Fear": Muslim Parents' Experiences with the American Health Care System.” J Palliat Med 26, no. 1 (January 2023): 73–78. https://doi.org/10.1089/jpm.2022.0154.
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    • Deng, Lubin R., Katherine J. Doyon, Kevin S. Masters, Karen E. Steinhauser, Paula R. Langner, Shaunna Siler, and David B. Bekelman. “How Does Spiritual Well-Being Change Over Time Among US Patients with Heart Failure and What Predicts Change?” J Relig Health, December 7, 2022. https://doi.org/10.1007/s10943-022-01712-4.
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    • Crowley, Matthew J., Phillip E. Tarkington, Hayden B. Bosworth, Amy S. Jeffreys, Cynthia J. Coffman, Matthew L. Maciejewski, Karen Steinhauser, et al. “Effect of a Comprehensive Telehealth Intervention vs Telemonitoring and Care Coordination in Patients With Persistently Poor Type 2 Diabetes Control: A Randomized Clinical Trial.” Jama Intern Med 182, no. 9 (September 1, 2022): 943–52. https://doi.org/10.1001/jamainternmed.2022.2947.
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    • Kobe, Elizabeth A., Allison A. Lewinski, Amy S. Jeffreys, Valerie A. Smith, Cynthia J. Coffman, Susanne M. Danus, Elisabeth Sidoli, et al. “Implementation of an Intensive Telehealth Intervention for Rural Patients with Clinic-Refractory Diabetes.” J Gen Intern Med 37, no. 12 (September 2022): 3080–88. https://doi.org/10.1007/s11606-021-07281-8.
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    • Porter, Laura S., Katherine Ramos, Donald H. Baucom, Karen Steinhauser, Alaattin Erkanli, Timothy J. Strauman, S Yousuf Zafar, et al. “Evaluating a couple communication skills training (CCST) intervention for advanced cancer: study protocol for a randomized controlled trial.” Trials 23, no. 1 (August 26, 2022): 712. https://doi.org/10.1186/s13063-022-06656-4.
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    • Tobin, Rachel S., Michael F. Cosiano, Christopher M. O’Connor, Mona Fiuzat, Bradi B. Granger, Joseph G. Rogers, James A. Tulsky, Karen E. Steinhauser, and Robert J. Mentz. “Spirituality in Patients With Heart Failure.” Jacc Heart Fail 10, no. 4 (April 2022): 217–26. https://doi.org/10.1016/j.jchf.2022.01.014.
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    • Tulsky, James A., Karen E. Steinhauser, Thomas W. LeBlanc, Nick Bloom, Pauline R. Lyna, Jennie Riley, and Kathryn I. Pollak. “Triadic agreement about advanced cancer treatment decisions: Perceptions among patients, families, and oncologists.” Patient Educ Couns 105, no. 4 (April 2022): 982–86. https://doi.org/10.1016/j.pec.2021.08.001.
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    • Palamara, Kerri, Jacqueline T. Chu, Yuchiao Chang, Liyang Yu, Dominique Cosco, Stacy Higgins, Asher Tulsky, et al. “Who Benefits Most? A Multisite Study of Coaching and Resident Well-being.” J Gen Intern Med 37, no. 3 (February 2022): 539–47. https://doi.org/10.1007/s11606-021-06903-5.
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    • Perry, Kathleen R., Heather A. King, Ryan Parker, and Karen E. Steinhauser. “Coordinating assessment of spiritual needs: a cross-walk of narrative and psychometric assessment tools used in palliative care.” J Health Care Chaplain 28, no. 3 (2022): 365–77. https://doi.org/10.1080/08854726.2021.1904653.
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    • Winger, Joseph G., Katherine Ramos, Sarah A. Kelleher, Tamara J. Somers, Karen E. Steinhauser, Laura S. Porter, Arif H. Kamal, William S. Breitbart, and Francis J. Keefe. “Meaning-Centered Pain Coping Skills Training: A Pilot Feasibility Trial of a Psychosocial Pain Management Intervention for Patients with Advanced Cancer.” J Palliat Med 25, no. 1 (January 2022): 60–69. https://doi.org/10.1089/jpm.2021.0081.
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    • Ejem, Deborah, Karen Steinhauser, J Nicholas Dionne-Odom, Rachel Wells, Raegan W. Durant, Olivio J. Clay, and Marie Bakitas. “Exploring Culturally Responsive Religious and Spirituality Health Care Communications among African Americans with Advanced Heart Failure, Their Family Caregivers, and Clinicians.” J Palliat Med 24, no. 12 (December 2021): 1798–1806. https://doi.org/10.1089/jpm.2021.0044.
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    • Hildenbrand, Jordan D., Debra M. Davis, Areej El-Jawahri, Kris W. Herring, Susan C. Locke, Kathryn I. Pollak, Gregory P. Samsa, et al. “A novel decision aid for acute myeloid leukemia: a feasibility and preliminary efficacy trial.” Support Care Cancer 29, no. 7 (July 2021): 3563–69. https://doi.org/10.1007/s00520-020-05864-5.
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    • Kaufman, Brystana G., Bradi B. Granger, Jie-Lena Sun, Gillian Sanders, Donald H. Taylor, Daniel B. Mark, Haider Warraich, et al. “The Cost-Effectiveness of Palliative Care: Insights from the PAL-HF Trial.” J Card Fail 27, no. 6 (June 2021): 662–69. https://doi.org/10.1016/j.cardfail.2021.02.019.
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    • Lewinski, Allison A., Matthew J. Crowley, Christopher Miller, Hayden B. Bosworth, George L. Jackson, Karen Steinhauser, Courtney White-Clark, Felicia McCant, and Leah L. Zullig. “Applied Rapid Qualitative Analysis to Develop a Contextually Appropriate Intervention and Increase the Likelihood of Uptake.” Med Care 59, no. Suppl 3 (June 1, 2021): S242–51. https://doi.org/10.1097/MLR.0000000000001553.
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    • Steinhauser, Karen E., Karen M. Stechuchak, Katherine Ramos, Joseph Winger, James A. Tulsky, and Maren K. Olsen. “Current measures of distress may not account for what's most important in existential care interventions: Results of the outlook trial.” Palliat Support Care 18, no. 6 (December 2020): 648–57. https://doi.org/10.1017/S1478951520001170.
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    • Kobe, Elizabeth A., David Edelman, Phillip E. Tarkington, Hayden B. Bosworth, Matthew L. Maciejewski, Karen Steinhauser, Amy S. Jeffreys, et al. “Practical telehealth to improve control and engagement for patients with clinic-refractory diabetes mellitus (PRACTICE-DM): Protocol and baseline data for a randomized trial.” Contemp Clin Trials 98 (November 2020): 106157. https://doi.org/10.1016/j.cct.2020.106157.
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    • Bakitas, Marie A., J Nicholas Dionne-Odom, Deborah B. Ejem, Rachel Wells, Andres Azuero, Macy L. Stockdill, Konda Keebler, et al. “Effect of an Early Palliative Care Telehealth Intervention vs Usual Care on Patients With Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial.” Jama Intern Med 180, no. 9 (September 1, 2020): 1203–13. https://doi.org/10.1001/jamainternmed.2020.2861.
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    • Winger, Joseph G., Katherine Ramos, Karen E. Steinhauser, Tamara J. Somers, Laura S. Porter, Arif H. Kamal, William S. Breitbart, and Francis J. Keefe. “Enhancing meaning in the face of advanced cancer and pain: Qualitative evaluation of a meaning-centered psychosocial pain management intervention.” Palliat Support Care 18, no. 3 (June 2020): 263–70. https://doi.org/10.1017/S1478951520000115.
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    • Bruening, Rebecca, Nina Sperber, Katherine Miller, Sara Andrews, Karen Steinhauser, G Darryl Wieland, Jennifer Lindquist, et al. “Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program.” J Appl Gerontol 39, no. 4 (April 2020): 368–76. https://doi.org/10.1177/0733464818825050.
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    • Ejem, Deborah B., Nadine Barrett, Ramona L. Rhodes, Maren Olsen, Marie Bakitas, Raegan Durant, Ronit Elk, et al. “Reducing Disparities in the Quality of Palliative Care for Older African Americans through Improved Advance Care Planning: Study Design and Protocol.” J Palliat Med 22, no. S1 (September 2019): 90–100. https://doi.org/10.1089/jpm.2019.0146.
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    • Olsen, Maren K., Karen M. Stechuchak, and Karen E. Steinhauser. “Comparing internal and external validation in the discovery of qualitative treatment-subgroup effects using two small clinical trials.” Contemp Clin Trials Commun 15 (September 2019): 100372. https://doi.org/10.1016/j.conctc.2019.100372.
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    • Warraich, Haider J., Christopher M. O’Connor, Hongqiu Yang, Bradi B. Granger, Kimberly S. Johnson, Daniel B. Mark, Kevin J. Anstrom, et al. “African Americans With Advanced Heart Failure Are More Likely to Die in a Health Care Facility Than at Home or in Hospice: An Analysis From the PAL-HF Trial.” J Card Fail 25, no. 8 (August 2019): 693–94. https://doi.org/10.1016/j.cardfail.2019.05.013.
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    • Hemming, Patrick, Jessica A. Revels, Anh N. Tran, Lawrence H. Greenblatt, and Karen E. Steinhauser. “Identifying core curricular components for behavioral health training in internal medicine residency: Qualitative interviews with residents, faculty, and behavioral health clinicians.” Int J Psychiatry Med 54, no. 3 (May 2019): 188–202. https://doi.org/10.1177/0091217418802159.
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    • Porter, Laura S., Laura Fish, and Karen Steinhauser. “Themes Addressed by Couples With Advanced Cancer During a Communication Skills Training Intervention.” J Pain Symptom Manage 56, no. 2 (August 2018): 252–58. https://doi.org/10.1016/j.jpainsymman.2018.04.004.
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    • Bonsignore, Lindsay, Nicholas Bloom, Karen Steinhauser, Reginald Nichols, Todd Allen, Martha Twaddle, and Janet Bull. “Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care.” J Pain Symptom Manage 56, no. 1 (July 2018): 7–14. https://doi.org/10.1016/j.jpainsymman.2018.03.013.
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    • Boucher, Nathan A., Karen E. Steinhauser, and Kimberly S. Johnson. “Older, Seriously Ill Veterans' Views on the Role of Religion and Spirituality in Health-Care Delivery.” Am J Hosp Palliat Care 35, no. 7 (July 2018): 921–28. https://doi.org/10.1177/1049909118767113.
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    • LeBlanc, Thomas W., Nick Bloom, Steven P. Wolf, Sarah G. Lowman, Kathryn I. Pollak, Karen E. Steinhauser, Dan Ariely, and James A. Tulsky. “Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists.” Support Care Cancer 26, no. 4 (April 2018): 1197–1205. https://doi.org/10.1007/s00520-017-3942-y.
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    • Sperber, N., C. Van Houtven, S. Andrews, K. Miller, K. Steinhauser, G. D. Wieland, V. Smith, et al. “Family caregiver use and value of support services in the VA Program of Comprehensive Assistance for Family Caregivers.” Journal of Long Term Care 2018 (January 1, 2018): 41–50. https://doi.org/10.31389/jltc.4.
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    • Prescott, Anna T., Jay G. Hull, J Nicholas Dionne-Odom, Tor D. Tosteson, Kathleen Doyle Lyons, Zhigang Li, Zhongze Li, et al. “The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancer.” Health Psychol 36, no. 12 (December 2017): 1140–46. https://doi.org/10.1037/hea0000544.
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    • Steinhauser, Karen E., Stewart Alexander, Maren K. Olsen, Karen M. Stechuchak, Jennifer Zervakis, Natalie Ammarell, Ira Byock, and James A. Tulsky. “Addressing Patient Emotional and Existential Needs During Serious Illness: Results of the Outlook Randomized Controlled Trial.” Journal of Pain and Symptom Management 54, no. 6 (December 2017): 898–908. https://doi.org/10.1016/j.jpainsymman.2017.06.003.
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    • Balboni, Tracy A., George Fitchett, George F. Handzo, Kimberly S. Johnson, Harold G. Koenig, Kenneth I. Pargament, Christina M. Puchalski, Shane Sinclair, Elizabeth J. Taylor, and Karen E. Steinhauser. “State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions.” J Pain Symptom Manage 54, no. 3 (September 2017): 441–53. https://doi.org/10.1016/j.jpainsymman.2017.07.029.
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    • Steinhauser, Karen E., George Fitchett, George F. Handzo, Kimberly S. Johnson, Harold G. Koenig, Kenneth I. Pargament, Christina M. Puchalski, Shane Sinclair, Elizabeth J. Taylor, and Tracy A. Balboni. “State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes.” J Pain Symptom Manage 54, no. 3 (September 2017): 428–40. https://doi.org/10.1016/j.jpainsymman.2017.07.028.
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    • Steinhauser, Karen E., and Tracy A. Balboni. “State of the Science of Spirituality and Palliative Care Research: Research Landscape and Future Directions.” J Pain Symptom Manage 54, no. 3 (September 2017): 426–27. https://doi.org/10.1016/j.jpainsymman.2017.02.020.
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    • Bakitas, Marie, J Nicholas Dionne-Odom, Salpy V. Pamboukian, Jose Tallaj, Elizabeth Kvale, Keith M. Swetz, Jennifer Frost, et al. “Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial.” Bmc Palliat Care 16, no. 1 (August 31, 2017): 45. https://doi.org/10.1186/s12904-017-0226-8.
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    • Rogers, Joseph G., Chetan B. Patel, Robert J. Mentz, Bradi B. Granger, Karen E. Steinhauser, Mona Fiuzat, Patricia A. Adams, et al. “Palliative Care in Heart Failure The PAL-HF Randomized, Controlled Clinical Trial.” Journal of the American College of Cardiology 70, no. 3 (July 18, 2017): 332–41.
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    • Rogers, Joseph G., Chetan B. Patel, Robert J. Mentz, Bradi B. Granger, Karen E. Steinhauser, Mona Fiuzat, Patricia A. Adams, et al. “Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial.” J Am Coll Cardiol 70, no. 3 (July 18, 2017): 331–41. https://doi.org/10.1016/j.jacc.2017.05.030.
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    • Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Why Burnout Is So Hard to Fix.” J Oncol Pract 13, no. 6 (June 2017): 348–51. https://doi.org/10.1200/JOP.2017.021964.
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    • Kavalieratos, Dio, Daniel E. Siconolfi, Karen E. Steinhauser, Janet Bull, Robert M. Arnold, Keith M. Swetz, and Arif H. Kamal. “"It Is Like Heart Failure. It Is Chronic … and It Will Kill You": A Qualitative Analysis of Burnout Among Hospice and Palliative Care Clinicians.” J Pain Symptom Manage 53, no. 5 (May 2017): 901-910.e1. https://doi.org/10.1016/j.jpainsymman.2016.12.337.
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    • Bailey, Donald E., Cristina C. Hendrix, Karen E. Steinhauser, Karen M. Stechuchak, Laura S. Porter, Julie Hudson, Maren K. Olsen, et al. “Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant.” Patient Educ Couns 100, no. 3 (March 2017): 509–17. https://doi.org/10.1016/j.pec.2016.10.017.
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    • Rogers, J. G., C. B. Patel, R. J. Mentz, K. E. Steinhauser, B. B. Granger, M. Fiuzat, P. A. Adams, et al. “Palliative Care in Heart Failure: Results of a Randomized, Controlled Clinical Trial.” Journal of Cardiac Failure 22, no. 11 (November 2016): 940–940. https://doi.org/10.1016/j.cardfail.2016.09.014.
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    • Steinhauser, Karen E., Annette Olsen, Kimberly S. Johnson, Linda L. Sanders, Maren Olsen, Natalie Ammarell, and Daniel Grossoehme. “The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study.” Palliat Support Care 14, no. 5 (October 2016): 456–67. https://doi.org/10.1017/S1478951515001248.
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    • Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors.” J Pain Symptom Manage 52, no. 2 (August 2016): 284–91. https://doi.org/10.1016/j.jpainsymman.2016.02.002.
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    • Hendrix, Cristina C., Donald E. Bailey, Karen E. Steinhauser, Maren K. Olsen, Karen M. Stechuchak, Sarah G. Lowman, Abby J. Schwartz, et al. “Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.” Support Care Cancer 24, no. 1 (January 2016): 327–36. https://doi.org/10.1007/s00520-015-2797-3.
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    • Steinhauser, Karen E., Corrine I. Voils, Hayden Bosworth, and James A. Tulsky. “What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital.” Palliat Support Care 13, no. 4 (August 2015): 945–52. https://doi.org/10.1017/S1478951514000807.
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    • Powell, Richard A., Linda Emanuel, George Handzo, John Lantos, Laura B. Dunn, Ellen L. Idler, Diane J. Wilkie, et al. “Transcending differences to study the transcendent: an exploratory study of researchers' and chaplains' reflections on interdisciplinary spiritual care research collaboration.” Bmc Palliat Care 14 (April 18, 2015): 12. https://doi.org/10.1186/s12904-015-0004-4.
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    • LeBlanc, Thomas W., Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy P. Abernethy. “Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices.” Blood 124, no. 21 (December 6, 2014).
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    • Steinhauser, Karen E., Corrine I. Voils, Hayden B. Bosworth, and James A. Tulsky. “Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam).” J Pain Symptom Manage 48, no. 6 (December 2014): 1168–81. https://doi.org/10.1016/j.jpainsymman.2014.04.006.
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    • Mentz, Robert J., James A. Tulsky, Bradi B. Granger, Kevin J. Anstrom, Patricia A. Adams, Gwen C. Dodson, Mona Fiuzat, et al. “The palliative care in heart failure trial: rationale and design.” Am Heart J 168, no. 5 (November 2014): 645-651.e1. https://doi.org/10.1016/j.ahj.2014.07.018.
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    • Sautter, Jessica M., James A. Tulsky, Kimberly S. Johnson, Maren K. Olsen, Allison M. Burton-Chase, Jennifer Hoff Lindquist, Sheryl Zimmerman, and Karen E. Steinhauser. “Caregiver experience during advanced chronic illness and last year of life.” J Am Geriatr Soc 62, no. 6 (June 2014): 1082–90. https://doi.org/10.1111/jgs.12841.
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    • Sperber, Nina R., Heather A. King, Karen Steinhauser, Natalie Ammarell, Susanne Danus, and Benjamin J. Powers. “Scheduled telephone visits in the veterans health administration patient-centered medical home.” Bmc Health Serv Res 14 (April 1, 2014): 145. https://doi.org/10.1186/1472-6963-14-145.
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    • Adams, Judith A., Ruth A. Anderson, Sharron L. Docherty, James A. Tulsky, Karen E. Steinhauser, and Donald E. Bailey. “Nursing strategies to support family members of ICU patients at high risk of dying.” Heart Lung 43, no. 5 (2014): 406–15. https://doi.org/10.1016/j.hrtlng.2014.02.001.
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    • Balboni, Tracy A., Michael Balboni, Andrea C. Enzinger, Kathleen Gallivan, M Elizabeth Paulk, Alexi Wright, Karen Steinhauser, Tyler J. VanderWeele, and Holly G. Prigerson. “Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life.” Jama Intern Med 173, no. 12 (June 24, 2013): 1109–17. https://doi.org/10.1001/jamainternmed.2013.903.
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    • Chiarchiaro, Jared, Maren K. Olsen, Karen E. Steinhauser, and James A. Tulsky. “Admission to the intensive care unit and well-being in patients with advanced chronic illness.” Am J Crit Care 22, no. 3 (May 2013): 223–31. https://doi.org/10.4037/ajcc2013346.
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    • Keall, Robyn M., Phyllis N. Butow, Karen E. Steinhauser, and Josephine M. Clayton. “Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial.” Cancer Nurs 36, no. 3 (2013): E39–46. https://doi.org/10.1097/NCC.0b013e3182664c7a.
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    • Morris, Deborah A., Kimberly S. Johnson, Natalie Ammarell, Robert M. Arnold, James A. Tulsky, and Karen E. Steinhauser. “What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness.” J Gen Intern Med 27, no. 11 (November 2012): 1460–66. https://doi.org/10.1007/s11606-012-2109-2.
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    • Burton, Allison M., Jessica M. Sautter, James A. Tulsky, Jennifer Hoff Lindquist, Judith C. Hays, Maren K. Olsen, Sheryl I. Zimmerman, and Karen E. Steinhauser. “Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers.” J Pain Symptom Manage 44, no. 3 (September 2012): 410–20. https://doi.org/10.1016/j.jpainsymman.2011.09.018.
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    • Schell, Jane O., Uptal D. Patel, Karen E. Steinhauser, Natalie Ammarell, and James A. Tulsky. “Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study.” Am J Kidney Dis 59, no. 4 (April 2012): 495–503. https://doi.org/10.1053/j.ajkd.2011.11.023.
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    • Galanos, Anthony Nicholas, Deborah A. Morris, Carl F. Pieper, Angela M. Poppe-Ries, and Karen E. Steinhauser. “End-of-life care at an academic medical center: are attending physicians, house staff, nurses, and bereaved family members equally satisfied? Implications for palliative care.” Am J Hosp Palliat Care 29, no. 1 (February 2012): 47–52. https://doi.org/10.1177/1049909111407176.
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    • Whitson, Heather E., Karen Steinhauser, Natalie Ammarell, Diane Whitaker, Scott W. Cousins, Deidra Ansah, Linda L. Sanders, and Harvey J. Cohen. “Categorizing the effect of comorbidity: a qualitative study of individuals' experiences in a low-vision rehabilitation program.” J Am Geriatr Soc 59, no. 10 (October 2011): 1802–9. https://doi.org/10.1111/j.1532-5415.2011.03602.x.
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    • Hays, Judith C., Laura Wood, Karen Steinhauser, Maren K. Olson, Jennifer H. Lindquist, and James A. Tulsky. “Clergy-laity support and patients' mood during serious illness: a cross-sectional epidemiologic study.” Palliat Support Care 9, no. 3 (September 2011): 273–80. https://doi.org/10.1017/S1478951511000228.
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    • Keall, Robyn M., Phyllis N. Butow, Karen E. Steinhauser, and Josephine M. Clayton. “Discussing life story, forgiveness, heritage, and legacy with patients with life-limiting illnesses.” Int J Palliat Nurs 17, no. 9 (September 2011): 454–60. https://doi.org/10.12968/ijpn.2011.17.9.454.
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    • Steinhauser, Karen E., Robert M. Arnold, Maren K. Olsen, Jennifer Lindquist, Judith Hays, Laura L. Wood, Allison M. Burton, and James A. Tulsky. “Comparing three life-limiting diseases: does diagnosis matter or is sick, sick?” J Pain Symptom Manage 42, no. 3 (September 2011): 331–41. https://doi.org/10.1016/j.jpainsymman.2010.11.006.
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    • Johnson, Kimberly S., James A. Tulsky, Judith C. Hays, Robert M. Arnold, Maren K. Olsen, Jennifer H. Lindquist, and Karen E. Steinhauser. “Which domains of spirituality are associated with anxiety and depression in patients with advanced illness?” J Gen Intern Med 26, no. 7 (July 2011): 751–58. https://doi.org/10.1007/s11606-011-1656-2.
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    • Hendrix, Cristina C., S Nicole Hastings, Courtney Van Houtven, Karen Steinhauser, Jennifer Chapman, Terry Ervin, Linda Sanders, and Morris Weinberger. “Pilot study: individualized training for caregivers of hospitalized older veterans.” Nurs Res 60, no. 6 (2011): 436–41. https://doi.org/10.1097/NNR.0b013e31823583c7.
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    • Lyerly, Anne Drapkin, Karen Steinhauser, Corrine Voils, Emily Namey, Carolyn Alexander, Brandon Bankowski, Robert Cook-Deegan, et al. “Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey.” Fertil Steril 93, no. 2 (February 2010): 499–509. https://doi.org/10.1016/j.fertnstert.2008.10.015.
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    • Steinhauser, Karen E., Stewart C. Alexander, Ira R. Byock, Linda K. George, and James A. Tulsky. “Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life.” Palliat Support Care 7, no. 4 (December 2009): 393–404. https://doi.org/10.1017/S147895150999040X.
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    • Steinhauser, Karen E., and Julie Barroso. “Using qualitative methods to explore key questions in palliative care.” J Palliat Med 12, no. 8 (August 2009): 725–30. https://doi.org/10.1089/jpm.2009.9580.
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    • Van Houtven, Courtney Harold, Donald H. Taylor, Karen Steinhauser, and James A. Tulsky. “Is a home-care network necessary to access the Medicare hospice benefit?” J Palliat Med 12, no. 8 (August 2009): 687–94. https://doi.org/10.1089/jpm.2008.0255.
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    • Steinhauser, Karen E., Stewart C. Alexander, Ira R. Byock, Linda K. George, Maren K. Olsen, and James A. Tulsky. “Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial.” J Palliat Med 11, no. 9 (November 2008): 1234–40. https://doi.org/10.1089/jpm.2008.0078.
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    • Reynolds, Kimberly S., Laura C. Hanson, Robert F. DeVellis, Martha Henderson, and Karen E. Steinhauser. “Disparities in pain management between cognitively intact and cognitively impaired nursing home residents.” J Pain Symptom Manage 35, no. 4 (April 2008): 388–96. https://doi.org/10.1016/j.jpainsymman.2008.01.001.
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    • Reynolds, Kimberly S., Laura C. Hanson, Martha Henderson, and Karen E. Steinhauser. “End-of-life care in nursing home settings: do race or age matter?” Palliat Support Care 6, no. 1 (March 2008): 21–27. https://doi.org/10.1017/S1478951508000047.
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    • Voils, Corrine I., Margarete Sandelowski, Philipp Dahm, Rachel Blouin, Hayden B. Bosworth, Eugene Z. Oddone, and Karen E. Steinhauser. “Selective adherence to antihypertensive medications as a patient-driven means to preserving sexual potency.” Patient Prefer Adherence 2 (February 2, 2008): 201–6. https://doi.org/10.2147/ppa.s3796.
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    • Taylor, Donald H., Karen Steinhauser, James A. Tulsky, John Rattliff, and Courtney Harold Van Houtven. “Characterizing hospice discharge patterns in a nationally representative sample of the elderly, 1993-2000.” Am J Hosp Palliat Care 25, no. 1 (2008): 9–15. https://doi.org/10.1177/1049909107310136.
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    • Taylor, Donald H., Jan Ostermann, Courtney H. Van Houtven, James A. Tulsky, and Karen Steinhauser. “What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program?” Soc Sci Med 65, no. 7 (October 2007): 1466–78. https://doi.org/10.1016/j.socscimed.2007.05.028.
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    • Munn, Jean C., Sheryl Zimmerman, Laura C. Hanson, Christianna S. Williams, Philip D. Sloane, Elizabeth C. Clipp, James A. Tulsky, and Karen E. Steinhauser. “Measuring the quality of dying in long-term care.” J Am Geriatr Soc 55, no. 9 (September 2007): 1371–79. https://doi.org/10.1111/j.1532-5415.2007.01293.x.
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    • Steinhauser, Karen E., Elizabeth C. Clipp, Judith C. Hays, Maren Olsen, Robert Arnold, Nicholas A. Christakis, Jennifer Hoff Lindquist, and James A. Tulsky. “Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.” Palliat Med 20, no. 8 (December 2006): 745–54. https://doi.org/10.1177/0269216306073112.
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    • Lyerly, Anne Drapkin, Karen Steinhauser, Emily Namey, James A. Tulsky, Robert Cook-Deegan, Jeremy Sugarman, David Walmer, Ruth Faden, and Edward Wallach. “Factors that affect infertility patients' decisions about disposition of frozen embryos.” Fertil Steril 85, no. 6 (June 2006): 1623–30. https://doi.org/10.1016/j.fertnstert.2005.11.056.
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    • Evans, Wendy G., Toni M. Cutson, Karen E. Steinhauser, and James A. Tulsky. “Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities.” J Palliat Med 9, no. 1 (February 2006): 100–110. https://doi.org/10.1089/jpm.2006.9.100.
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    • Steinhauser, Karen E., Corrine I. Voils, Elizabeth C. Clipp, Hayden B. Bosworth, Nicholas A. Christakis, and James A. Tulsky. “"Are you at peace?": one item to probe spiritual concerns at the end of life.” Arch Intern Med 166, no. 1 (January 9, 2006): 101–5. https://doi.org/10.1001/archinte.166.1.101.
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    • Steinhauser, Karen E. “Measuring end-of-life care outcomes prospectively.” J Palliat Med 8 Suppl 1 (2005): S30–41. https://doi.org/10.1089/jpm.2005.8.s-30.
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    • Steinhauser, Karen E., Elizabeth C. Clipp, Hayden B. Bosworth, Maya McNeilly, Nicholas A. Christakis, Corrine I. Voils, and James A. Tulsky. “Measuring quality of life at the end of life: validation of the QUAL-E.” Palliat Support Care 2, no. 1 (March 2004): 3–14. https://doi.org/10.1017/s1478951504040027.
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    • Bosworth, H. B., K. E. Steinhauser, M. Orr, J. H. Lindquist, S. C. Grambow, and E. Z. Oddone. “Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors.” Aging Ment Health 8, no. 1 (January 2004): 83–91. https://doi.org/10.1080/13607860310001613374.
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    • Steinhauser, Karen E., Hayden B. Bosworth, Elizabeth C. Clipp, Maya McNeilly, Nicholas A. Christakis, Joanna Parker, and James A. Tulsky. “Initial assessment of a new instrument to measure quality of life at the end of life.” J Palliat Med 5, no. 6 (December 2002): 829–41. https://doi.org/10.1089/10966210260499014.
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    • Steinhauser, Karen E., Elizabeth C. Clipp, and James A. Tulsky. “Evolution in measuring the quality of dying.” J Palliat Med 5, no. 3 (June 2002): 407–14. https://doi.org/10.1089/109662102320135298.
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    • Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: Preferences of patients, families, physicians, and other care providers.” Gerontologist 41 (October 1, 2001): 299–300.
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    • Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: preferences of patients, families, physicians, and other care providers.” J Pain Symptom Manage 22, no. 3 (September 2001): 727–37. https://doi.org/10.1016/s0885-3924(01)00334-7.
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    • Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, L. McIntyre, and J. A. Tulsky. “Factors considered important at the end of life by patients, family, physicians, and other care providers.” Jama 284, no. 19 (November 15, 2000): 2476–82. https://doi.org/10.1001/jama.284.19.2476.
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    • Steinhauser, K. E., E. C. Clipp, N. Christakis, M. McNeilly, L. McIntyre, and J. A. Tulsky. “In Search of a Good Death: Attitudes of Patients, Family Members and Health Care Professionals.” Journal of General Internal Medicine 15, no. s2 (October 2000): 5–5. https://doi.org/10.1046/j.1525-1497.2000.15200-19.x.
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    • Steinhauser, K. E., E. C. Clipp, M. McNeilly, N. A. Christakis, L. M. McIntyre, and J. A. Tulsky. “In search of a good death: observations of patients, families, and providers.” Ann Intern Med 132, no. 10 (May 16, 2000): 825–32. https://doi.org/10.7326/0003-4819-132-10-200005160-00011.
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    • Steinhauser, K. E., G. L. Maddox, J. L. Person, and J. A. Tulsky. “The evolution of volunteerism and professional staff within hospice care in North Carolina.” Hosp J 15, no. 1 (2000): 35–51. https://doi.org/10.1080/0742-969x.2000.11882946.
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    • Maddox, G. L., D. O. Clark, and K. Steinhauser. “Dynamics of functional impairment in late adulthood.” Soc Sci Med 38, no. 7 (April 1994): 925–36. https://doi.org/10.1016/0277-9536(94)90425-1.
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    • Clark, D. O., G. L. Maddox, and K. Steinhauser. “Race, Aging, and Functional Health.” Journal of Aging and Health 5, no. 4 (January 1, 1993): 536–53. https://doi.org/10.1177/089826439300500407.
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  • Book Sections

    • Porter, L. S., L. Fish, and K. Steinhauser. “The elephant in the room: Facilitating illness-related communication among couples with advanced cancer.” In When “We” Are Stressed: A Dyadic Approach to Coping with Stressful Events, 163–82, 2018.

  • Conference Papers

    • Winger, Joseph G., Tamara J. Somers, Karen E. Steinhauser, Laura S. Porter, Katherine Ramos, Arif H. Kamal, William S. Breitbart, and Francis J. Keefe. “MEANING-CENTERED PAIN COPING SKILLS TRAINING: A PILOT TRIAL OF A PSYCHOSOCIAL INTERVENTION FOR PATIENTS WITH ADVANCED CANCER.” In Annals of Behavioral Medicine, 55:S302–S302, 2021.
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    • LeBlanc, Thomas William, Susan C. Locke, Kris Herring, Debra M. Davis, Jesse D. Troy, Karen E. Steinhauser, Kathryn I. Pollak, and Peter A. Ubel. “A video decision aid to improve acute myeloid leukemia patients' illness understanding: Results of a pilot trial.” In Journal of Clinical Oncology, Vol. 37. AMER SOC CLINICAL ONCOLOGY, 2019.
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    • Ejem, Deborah, Karen E. Steinhauser, James Dionne-Odom, Rachel Wells, Raegan W. Durant, Olivio J. Clay, Yasemin Turkman, and Marie Bakitas. “EXPLORING RELIGION AND SPIRITUALITY IN PROVIDER-PATIENT DIALOGUE AMONG AFRICAN-AMERICANS WITH HEART FAILURE AND CAREGIVERS.” In Annals of Behavioral Medicine, 53:S729–S729. OXFORD UNIV PRESS INC, 2019.
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    • Winger, Joseph G., Caroline S. Dorfman, Karen E. Steinhauser, Arif H. Kamal, Francis J. Keefe, Tamara J. Somers, and William S. Breitbart. “QUALITATIVE FEEDBACK ON A PSYCHOSOCIAL PAIN MANAGEMENT INTERVENTION FOR PATIENTS WITH ADVANCED CANCER.” In Annals of Behavioral Medicine, 53:S264–S264. OXFORD UNIV PRESS INC, 2019.
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    • Mentz, Robert J., Christopher M. O’Connor, Bradi B. Granger, Hongqiu Yang, Chetan B. Patel, Karen E. Steinhauser, Mona Fiuzat, et al. “Palliative care and hospital readmissions in patients with advanced heart failure: Insights from the PAL-HF trial.” In Am Heart J, 204:202–4, 2018. https://doi.org/10.1016/j.ahj.2018.07.010.
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    • LeBlanc, Thomas W., Laura J. Fish, Catherine T. Bloom, Areej El-Jawahri, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, and Kathryn I. Pollak. “Patient experiences of acute myeloid leukemia: A qualitative study about diagnosis, illness understanding, and treatment decision-making.” In Psychooncology, 26:2063–68, 2017. https://doi.org/10.1002/pon.4309.
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    • Granger, Bradi B., Hongqiu Yang, Robert J. Mentz, Daniel B. Mark, Donald H. Taylor, Karen E. Steinhauser, Gwen C. Dodson, et al. “The Impact of a Palliative Care Intervention on Polypharmacy in Advanced HF: Results From Pal-HF.” In Circulation, Vol. 136. LIPPINCOTT WILLIAMS & WILKINS, 2017.
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    • Porter, Laura S., Laura FIsh, Hope Elizabeth Uronis, Yousuf Zafar, and Karen E. Steinhauser. “The elephant in the room: Facilitating conversations about advanced cancer between patients and their spouses.” In Journal of Clinical Oncology, 34:233–233. American Society of Clinical Oncology (ASCO), 2016. https://doi.org/10.1200/jco.2016.34.26_suppl.233.
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    • LeBlanc, Thomas William, Steven Wolf, Debra M. Davis, Greg Samsa, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy Pickar Abernethy. “Symptom burden, quality of life, and distress in acute myeloid leukemia patients receiving induction chemotherapy: A prospective electronic patient-reported outcomes study.” In Journal of Clinical Oncology, Vol. 33. AMER SOC CLINICAL ONCOLOGY, 2015.
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    • LeBlanc, Thomas William, Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy Pickar Abernethy. “Acute Myeloid Leukemia (AML) Patients’ Understanding of Prognosis and Treatment Goals: A Mixed-Methods Study.” In Journal of Clinical Oncology, 33:e17741–e17741. American Society of Clinical Oncology (ASCO), 2015. https://doi.org/10.1200/jco.2015.33.15_suppl.e17741.
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    • Steinhauser, Karen E. “What Improves Quality of Life for Seriously-Ill Patients and Their Caregivers? From Observation to Intervention to Dissemination (SA510-B).” In Journal of Pain and Symptom Management, 49:390–91. Elsevier BV, 2015. https://doi.org/10.1016/j.jpainsymman.2014.11.150.
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• Scholarly, Clinical, & Service Activities
• 

  Outreach & Engaged Scholarship

  • Bass Connections Team Leader. REGAIN: Roadmap for Evaluating Goals in Advanced Illness Navigation. 2020 - 2021  2020 - 2021
  • Bass Connections Team Leader. REGAIN: Roadmap for Evaluating Goals in Advanced Illness Navigation. 2019 - 2020  2019 - 2020

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