A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international, multidisciplinary working group with regard to which outcomes a typical cleft team could track, how those outcomes could be measured and recorded, and what strategies may be employed to sustainably implement a system for prospective data collection. It is only by agreeing on a common, standard set of outcome measures for the comprehensive appraisal of cleft care that intercenter comparisons can become possible. This is important for quality-improvement endeavors, comparative effectiveness research, and value-based health-care reform.
Duke Scholars
Altmetric Attention Stats
Dimensions Citation Stats
Published In
DOI
EISSN
Publication Date
Volume
Issue
Start / End Page
Location
Related Subject Headings
- Treatment Outcome
- Terminology as Topic
- Quality Improvement
- Phenotype
- Outcome Assessment, Health Care
- Humans
- Dentistry
- Clinical Protocols
- Cleft Palate
- Cleft Lip
Citation
Published In
DOI
EISSN
Publication Date
Volume
Issue
Start / End Page
Location
Related Subject Headings
- Treatment Outcome
- Terminology as Topic
- Quality Improvement
- Phenotype
- Outcome Assessment, Health Care
- Humans
- Dentistry
- Clinical Protocols
- Cleft Palate
- Cleft Lip