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A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.

Publication ,  Journal Article
Allori, AC; Kelley, T; Meara, JG; Albert, A; Bonanthaya, K; Chapman, K; Cunningham, M; Daskalogiannakis, J; de Gier, H; Heggie, AA; Jackson, O ...
Published in: Cleft Palate Craniofac J
September 2017

Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international, multidisciplinary working group with regard to which outcomes a typical cleft team could track, how those outcomes could be measured and recorded, and what strategies may be employed to sustainably implement a system for prospective data collection. It is only by agreeing on a common, standard set of outcome measures for the comprehensive appraisal of cleft care that intercenter comparisons can become possible. This is important for quality-improvement endeavors, comparative effectiveness research, and value-based health-care reform.

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Published In

Cleft Palate Craniofac J

DOI

EISSN

1545-1569

Publication Date

September 2017

Volume

54

Issue

5

Start / End Page

540 / 554

Location

United States

Related Subject Headings

  • Treatment Outcome
  • Terminology as Topic
  • Quality Improvement
  • Phenotype
  • Outcome Assessment, Health Care
  • Humans
  • Dentistry
  • Clinical Protocols
  • Cleft Palate
  • Cleft Lip
 

Citation

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Chicago
ICMJE
MLA
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Allori, A. C., Kelley, T., Meara, J. G., Albert, A., Bonanthaya, K., Chapman, K., … Wong, K. W. (2017). A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care. Cleft Palate Craniofac J, 54(5), 540–554. https://doi.org/10.1597/15-292
Allori, Alexander C., Thomas Kelley, John G. Meara, Asteria Albert, Krishnamurthy Bonanthaya, Kathy Chapman, Michael Cunningham, et al. “A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.Cleft Palate Craniofac J 54, no. 5 (September 2017): 540–54. https://doi.org/10.1597/15-292.
Allori AC, Kelley T, Meara JG, Albert A, Bonanthaya K, Chapman K, et al. A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care. Cleft Palate Craniofac J. 2017 Sep;54(5):540–54.
Allori, Alexander C., et al. “A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.Cleft Palate Craniofac J, vol. 54, no. 5, Sept. 2017, pp. 540–54. Pubmed, doi:10.1597/15-292.
Allori AC, Kelley T, Meara JG, Albert A, Bonanthaya K, Chapman K, Cunningham M, Daskalogiannakis J, de Gier H, Heggie AA, Hernandez C, Jackson O, Jones Y, Kangesu L, Koudstaal MJ, Kuchhal R, Lohmander A, Long RE, Magee L, Monson L, Rose E, Sitzman TJ, Taylor JA, Thorburn G, van Eeden S, Williams C, Wirthlin JO, Wong KW. A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care. Cleft Palate Craniofac J. 2017 Sep;54(5):540–554.

Published In

Cleft Palate Craniofac J

DOI

EISSN

1545-1569

Publication Date

September 2017

Volume

54

Issue

5

Start / End Page

540 / 554

Location

United States

Related Subject Headings

  • Treatment Outcome
  • Terminology as Topic
  • Quality Improvement
  • Phenotype
  • Outcome Assessment, Health Care
  • Humans
  • Dentistry
  • Clinical Protocols
  • Cleft Palate
  • Cleft Lip