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Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss.

Publication ,  Journal Article
West, JS; Low, JCM; Stankovic, KM
Published in: Ear Hear
2016

OBJECTIVE: Hearing loss is the most common sensory deficit and congenital anomaly, yet the decision-making processes involved in disclosing hearing loss have been little studied. To address this issue, we have explored the phrases that adults with hearing loss use to disclose their hearing loss. DESIGN: Since self-disclosure research has not focused on hearing loss-specific issues, we created a 15-question survey about verbally disclosing hearing loss. English speaking adults (>18 years old) with hearing loss of any etiology were recruited from otology clinics in a major referral hospital. Three hundred and thirty-seven participants completed the survey instrument. Participants' phrase(s) used to tell people they have hearing loss were compared across objective characteristics (age; sex; type, degree, and laterality of hearing loss; word recognition scores) and self-reported characteristics (degree of hearing loss; age of onset and years lived with hearing loss; use of technology; hearing handicap score). RESULTS: Participants' responses revealed three strategies to address hearing loss: Multipurpose disclosure (phrases that disclose hearing loss and provide information to facilitate communication), Basic disclosure (phrases that disclose hearing loss through the term, a label, or details about the condition), or nondisclosure (phrases that do not disclose hearing loss). Variables were compared between patients who used and who did not use each disclosure strategy using χ or Wilcoxon rank sum tests. Multipurpose disclosers were mostly female (p = 0.002); had experienced reactions of help, support, and accommodation after disclosing (p = 0.008); and had experienced reactions of being overly helpful after disclosing (p=0.039). Basic disclosers were predominantly male (p = 0.004); reported feeling somewhat more comfortable disclosing their hearing loss over time (p = 0.009); had not experienced reactions of being treated unfairly or discriminated against (p = 0.021); and were diagnosed with mixed hearing loss (p = 0.004). Nondisclosers tended not to disclose in a group setting (p = 0.002) and were diagnosed with bilateral hearing loss (p = 0.005). In addition, all of the variables were examined to build logistic regression models to predict the use of each disclosure strategy. CONCLUSIONS: Our results reveal three simple strategies for verbally addressing hearing loss that can be used in a variety of contexts. We recommend educating people with hearing loss about these strategies-this could improve the experience of disclosing hearing loss, and could educate society at large about how to interact with those who have a hearing loss.

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Published In

Ear Hear

DOI

EISSN

1538-4667

Publication Date

2016

Volume

37

Issue

2

Start / End Page

194 / 205

Location

United States

Related Subject Headings

  • Young Adult
  • Surveys and Questionnaires
  • Severity of Illness Index
  • Self Disclosure
  • Otorhinolaryngology
  • Middle Aged
  • Male
  • Logistic Models
  • Humans
  • Hearing Loss
 

Citation

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Chicago
ICMJE
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West, J. S., Low, J. C. M., & Stankovic, K. M. (2016). Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss. Ear Hear, 37(2), 194–205. https://doi.org/10.1097/AUD.0000000000000238
West, Jessica S., Jacob C. M. Low, and Konstantina M. Stankovic. “Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss.Ear Hear 37, no. 2 (2016): 194–205. https://doi.org/10.1097/AUD.0000000000000238.
West JS, Low JCM, Stankovic KM. Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss. Ear Hear. 2016;37(2):194–205.
West, Jessica S., et al. “Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss.Ear Hear, vol. 37, no. 2, 2016, pp. 194–205. Pubmed, doi:10.1097/AUD.0000000000000238.
West JS, Low JCM, Stankovic KM. Revealing Hearing Loss: A Survey of How People Verbally Disclose Their Hearing Loss. Ear Hear. 2016;37(2):194–205.

Published In

Ear Hear

DOI

EISSN

1538-4667

Publication Date

2016

Volume

37

Issue

2

Start / End Page

194 / 205

Location

United States

Related Subject Headings

  • Young Adult
  • Surveys and Questionnaires
  • Severity of Illness Index
  • Self Disclosure
  • Otorhinolaryngology
  • Middle Aged
  • Male
  • Logistic Models
  • Humans
  • Hearing Loss