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Parenting while living with advanced cancer: A qualitative study.

Publication ,  Journal Article
Park, EM; Check, DK; Song, M-K; Reeder-Hayes, KE; Hanson, LC; Yopp, JM; Rosenstein, DL; Mayer, DK
Published in: Palliat Med
March 2017

BACKGROUND: Patients with advanced cancer who have dependent children are an important population with a life-limiting illness and high levels of psychological distress. Few studies have addressed the experience of being a parent with advanced cancer and their potential palliative needs. AIM: To describe the experience of living with advanced cancer as a parent, including illness experience, parental concerns, and treatment decision making and to explore whether these experiences differ by their functional status. DESIGN: We conducted a cross-sectional, qualitative study using in-depth, semi-structured interviews. Data were analyzed using thematic content analysis. SETTING AND PARTICIPANTS: A total of 42 participants with metastatic cancer and with at least one child under the age of 18 years were recruited from a comprehensive cancer center. 25 participants were rated as having high functional status (the Eastern Cooperative Oncology Group (ECOG) Performance Status Scale = 0-1) and 17 with low functional status (ECOG=2-4). RESULTS: We identified four themes regarding the experience of being a parent with advanced cancer: (1) parental concerns about the impact of their illness and death on their children, (2) "missing out" and losses of parental role and responsibilities, (3) maintaining parental responsibilities despite life-limiting illness, and (4) parental identity influencing decision making about treatment. Parental functional status influenced not only physical responsibilities but also intensified parenting psychological concerns. CONCLUSION: Parents with metastatic cancer may have unique palliative care needs as they experience parenting concerns while managing the psychological and physical demands of advanced cancer.

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Published In

Palliat Med

DOI

EISSN

1477-030X

Publication Date

March 2017

Volume

31

Issue

3

Start / End Page

231 / 238

Location

England

Related Subject Headings

  • Qualitative Research
  • Parents
  • Parenting
  • Parent-Child Relations
  • Palliative Care
  • Neoplasms
  • Neoplasm Metastasis
  • Middle Aged
  • Male
  • Infant, Newborn
 

Citation

APA
Chicago
ICMJE
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Park, E. M., Check, D. K., Song, M.-K., Reeder-Hayes, K. E., Hanson, L. C., Yopp, J. M., … Mayer, D. K. (2017). Parenting while living with advanced cancer: A qualitative study. Palliat Med, 31(3), 231–238. https://doi.org/10.1177/0269216316661686
Park, Eliza M., Devon K. Check, Mi-Kyung Song, Katherine E. Reeder-Hayes, Laura C. Hanson, Justin M. Yopp, Donald L. Rosenstein, and Deborah K. Mayer. “Parenting while living with advanced cancer: A qualitative study.Palliat Med 31, no. 3 (March 2017): 231–38. https://doi.org/10.1177/0269216316661686.
Park EM, Check DK, Song M-K, Reeder-Hayes KE, Hanson LC, Yopp JM, et al. Parenting while living with advanced cancer: A qualitative study. Palliat Med. 2017 Mar;31(3):231–8.
Park, Eliza M., et al. “Parenting while living with advanced cancer: A qualitative study.Palliat Med, vol. 31, no. 3, Mar. 2017, pp. 231–38. Pubmed, doi:10.1177/0269216316661686.
Park EM, Check DK, Song M-K, Reeder-Hayes KE, Hanson LC, Yopp JM, Rosenstein DL, Mayer DK. Parenting while living with advanced cancer: A qualitative study. Palliat Med. 2017 Mar;31(3):231–238.
Journal cover image

Published In

Palliat Med

DOI

EISSN

1477-030X

Publication Date

March 2017

Volume

31

Issue

3

Start / End Page

231 / 238

Location

England

Related Subject Headings

  • Qualitative Research
  • Parents
  • Parenting
  • Parent-Child Relations
  • Palliative Care
  • Neoplasms
  • Neoplasm Metastasis
  • Middle Aged
  • Male
  • Infant, Newborn