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Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study.

Publication ,  Journal Article
Sperber, NR; Boucher, NA; Delgado, R; Shepherd-Banigan, ME; McKenna, K; Moore, M; Barrett, R; Kabat, M; Van Houtven, CH
Published in: Health Aff (Millwood)
June 2019

Family caregivers often serve as unpaid members of the home and community-based care workforce for people with serious illness; as key partners in the home-clinic continuum, they should be included in health care teams. The Campaign for Inclusive Care is an initiative within the Veterans Affairs health care system to improve provider practices for including caregivers of military members in treatment planning and decisions. We defined inclusive care using a literature review, provider interviews, and a caregiver survey. We found that inclusive care involves clear definition of the caregiver role, system policies for inclusion, assessment of caregivers' capacity, explicit involvement of caregivers, and mutuality in caregiver-provider communication. We recommend solutions based on this definition that can inform development of a national caregiver strategy, required of the Department of Health and Human Services by the Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2018.

Duke Scholars

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Published In

Health Aff (Millwood)

DOI

EISSN

2694-233X

Publication Date

June 2019

Volume

38

Issue

6

Start / End Page

957 / 963

Location

United States

Related Subject Headings

  • Veterans
  • United States Department of Veterans Affairs
  • United States
  • Surveys and Questionnaires
  • Social Support
  • Quality Improvement
  • Patient Care Team
  • Male
  • Humans
  • Health Policy & Services
 

Citation

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Sperber, N. R., Boucher, N. A., Delgado, R., Shepherd-Banigan, M. E., McKenna, K., Moore, M., … Van Houtven, C. H. (2019). Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study. Health Aff (Millwood), 38(6), 957–963. https://doi.org/10.1377/hlthaff.2019.00012
Sperber, Nina R., Nathan A. Boucher, Roxana Delgado, Megan E. Shepherd-Banigan, Kevin McKenna, Madison Moore, Rachael Barrett, Margaret Kabat, and Courtney H. Van Houtven. “Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study.Health Aff (Millwood) 38, no. 6 (June 2019): 957–63. https://doi.org/10.1377/hlthaff.2019.00012.
Sperber NR, Boucher NA, Delgado R, Shepherd-Banigan ME, McKenna K, Moore M, et al. Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study. Health Aff (Millwood). 2019 Jun;38(6):957–63.
Sperber, Nina R., et al. “Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study.Health Aff (Millwood), vol. 38, no. 6, June 2019, pp. 957–63. Pubmed, doi:10.1377/hlthaff.2019.00012.
Sperber NR, Boucher NA, Delgado R, Shepherd-Banigan ME, McKenna K, Moore M, Barrett R, Kabat M, Van Houtven CH. Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study. Health Aff (Millwood). 2019 Jun;38(6):957–963.

Published In

Health Aff (Millwood)

DOI

EISSN

2694-233X

Publication Date

June 2019

Volume

38

Issue

6

Start / End Page

957 / 963

Location

United States

Related Subject Headings

  • Veterans
  • United States Department of Veterans Affairs
  • United States
  • Surveys and Questionnaires
  • Social Support
  • Quality Improvement
  • Patient Care Team
  • Male
  • Humans
  • Health Policy & Services