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The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives.

Publication ,  Journal Article
Cusatis, R; Holt, JM; Williams, J; Nukuna, S; Asan, O; Flynn, KE; Neuner, J; Moore, J; Makoul, G; Crotty, BH
Published in: Patient Educ Couns
April 2020

BACKGROUND: Effective communication is integral to patient-centered care, yet external pressures can impede the ability to discuss important topics. One strategy to facilitate communication is pre-visit collection and sharing of patient contextual data (PCD), including life circumstances such as their beliefs, needs, and concerns. OBJECTIVE: To understand how patients and care team members perceive the electronic collection of PCD and its impact on communication in the context of a large academic health system that implemented PatientWisdom, a new technology that elicits PCD from patients and integrates within the electronic health record (EHR). METHODS: We conducted focus groups with patients (n = 26) and semi-structured interviews with primary care team members (n = 20). Qualitative analysis of focus group/interviews included an iterative and reflexive inductive technique to uncover emergent themes. RESULTS: Four themes were reflected among both patient and care team: (1) the technology enhances the patient's voice; (2) the technology creates a safe space for patients to share sensitive topics; (3) PCD facilitates rapport not only between patient and provider but the entire care team; (4) PCD aligns patient and clinician goals. Two unique themes emerged among patients: (1) PCD provides opportunity for reflection; (2) PCD humanizes patients in the clinical context. One theme was evident in provider comments: collecting PCD may potentially undermine trust if not reviewed by clinical teams. CONCLUSION: PCD collected directly from patients and available within the EHR was seen by patients and care team members as beneficial to communication. PCD collection supports a paradigm shift towards coproduction of health information and a shared responsibility for information gathering but requires investment from patients and care team to ensure the data are effectively utilized. PRACTICE VALUE: PCD may be useful for team-based care, enabling physicians and non-physician staff to more quickly and responsively connect with patients.

Duke Scholars

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Published In

Patient Educ Couns

DOI

EISSN

1873-5134

Publication Date

April 2020

Volume

103

Issue

4

Start / End Page

734 / 740

Location

Ireland

Related Subject Headings

  • Trust
  • Qualitative Research
  • Public Health
  • Patient-Centered Care
  • Humans
  • Focus Groups
  • Communication
  • 4203 Health services and systems
  • 17 Psychology and Cognitive Sciences
  • 11 Medical and Health Sciences
 

Citation

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ICMJE
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Cusatis, R., Holt, J. M., Williams, J., Nukuna, S., Asan, O., Flynn, K. E., … Crotty, B. H. (2020). The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives. Patient Educ Couns, 103(4), 734–740. https://doi.org/10.1016/j.pec.2019.10.020
Cusatis, Rachel, Jeana M. Holt, Joni Williams, Sandile Nukuna, Onur Asan, Kathryn E. Flynn, Joan Neuner, Jennifer Moore, Gregory Makoul, and Bradley H. Crotty. “The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives.Patient Educ Couns 103, no. 4 (April 2020): 734–40. https://doi.org/10.1016/j.pec.2019.10.020.
Cusatis R, Holt JM, Williams J, Nukuna S, Asan O, Flynn KE, et al. The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives. Patient Educ Couns. 2020 Apr;103(4):734–40.
Cusatis, Rachel, et al. “The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives.Patient Educ Couns, vol. 103, no. 4, Apr. 2020, pp. 734–40. Pubmed, doi:10.1016/j.pec.2019.10.020.
Cusatis R, Holt JM, Williams J, Nukuna S, Asan O, Flynn KE, Neuner J, Moore J, Makoul G, Crotty BH. The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives. Patient Educ Couns. 2020 Apr;103(4):734–740.
Journal cover image

Published In

Patient Educ Couns

DOI

EISSN

1873-5134

Publication Date

April 2020

Volume

103

Issue

4

Start / End Page

734 / 740

Location

Ireland

Related Subject Headings

  • Trust
  • Qualitative Research
  • Public Health
  • Patient-Centered Care
  • Humans
  • Focus Groups
  • Communication
  • 4203 Health services and systems
  • 17 Psychology and Cognitive Sciences
  • 11 Medical and Health Sciences