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Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience.

Publication ,  Journal Article
Dobkin, RD; Amondikar, N; Kopil, C; Caspell-Garcia, C; Brown, E; Chahine, LM; Marras, C; Dahodwala, N; Mantri, S; Standaert, DG; Dean, M ...
Published in: J Parkinsons Dis
2020

BACKGROUND: Clinical research in Parkinson's disease (PD) faces practical and ethical challenges due to two interrelated problems: participant under-recruitment and lack of diversity. Fox Insight (FI) is a web-based longitudinal study collecting patient-reported outcomes and genetic data worldwide to inform therapeutic studies. FI's online platform provides an opportunity to evaluate online strategies for recruiting large, diverse research cohorts. OBJECTIVE: This project aimed to determine 1) whether FI's digital marketing was associated with increased enrollment overall and from under-represented patient groups, compared to traditional recruitment methods; 2) the clinical and demographic characteristics of samples recruited online, and 3) the cost of this online recruitment. METHOD: FI recruitment during a 6-week baseline period without digital promotion was compared to recruitment during several periods of digital outreach. Separate online recruiting intervals included general online study promotion and unique Facebook and Google ad campaigns targeting under-represented subgroups: early PD, late/advanced PD, and residents of underrepresented/rural geographic areas. RESULTS: Early PD, late PD, and geotargeting campaigns enrolled more individuals in their respective cohorts compared to baseline. All online campaigns also yielded greater total FI enrollment, attracting more participants who were non-White, Hispanic, older, female, and had lower educational attainment and income, and more medical comorbidities. Cost per new participant ranged from $21 (Facebook) to $108 (Google). CONCLUSION: Digital marketing may allow researchers to increase, accelerate, and diversify recruitment for PD clinical studies, by tailoring digital ads to target PD cohort characteristics.

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Published In

J Parkinsons Dis

DOI

EISSN

1877-718X

Publication Date

2020

Volume

10

Issue

2

Start / End Page

665 / 675

Location

Netherlands

Related Subject Headings

  • Young Adult
  • Social Media
  • Patient Selection
  • Patient Reported Outcome Measures
  • Parkinson Disease
  • Minority Groups
  • Middle Aged
  • Marketing of Health Services
  • Male
  • Longitudinal Studies
 

Citation

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Chicago
ICMJE
MLA
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Dobkin, R. D., Amondikar, N., Kopil, C., Caspell-Garcia, C., Brown, E., Chahine, L. M., … Fox Insight Study, . (2020). Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience. J Parkinsons Dis, 10(2), 665–675. https://doi.org/10.3233/JPD-191901
Dobkin, Roseanne D., Ninad Amondikar, Catherine Kopil, Chelsea Caspell-Garcia, Ethan Brown, Lana M. Chahine, Connie Marras, et al. “Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience.J Parkinsons Dis 10, no. 2 (2020): 665–75. https://doi.org/10.3233/JPD-191901.
Dobkin RD, Amondikar N, Kopil C, Caspell-Garcia C, Brown E, Chahine LM, et al. Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience. J Parkinsons Dis. 2020;10(2):665–75.
Dobkin, Roseanne D., et al. “Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience.J Parkinsons Dis, vol. 10, no. 2, 2020, pp. 665–75. Pubmed, doi:10.3233/JPD-191901.
Dobkin RD, Amondikar N, Kopil C, Caspell-Garcia C, Brown E, Chahine LM, Marras C, Dahodwala N, Mantri S, Standaert DG, Dean M, Shoulson I, Marek K, Katz A, Korell M, Riley L, Tanner CM, Fox Insight Study. Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience. J Parkinsons Dis. 2020;10(2):665–675.

Published In

J Parkinsons Dis

DOI

EISSN

1877-718X

Publication Date

2020

Volume

10

Issue

2

Start / End Page

665 / 675

Location

Netherlands

Related Subject Headings

  • Young Adult
  • Social Media
  • Patient Selection
  • Patient Reported Outcome Measures
  • Parkinson Disease
  • Minority Groups
  • Middle Aged
  • Marketing of Health Services
  • Male
  • Longitudinal Studies