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Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors.

Publication ,  Journal Article
Kruchko, C; Gittleman, H; Ruhl, J; Hofferkamp, J; Ward, EM; Ostrom, QT; Sherman, RL; Jones, SF; Barnholtz-Sloan, JS; Wilson, RJ
Published in: Neurooncol Pract
September 2019

Cancer surveillance is critical for monitoring the burden of cancer and the progress in cancer control. The accuracy of these data is important for decision makers and others who determine resource allocation for cancer prevention and research. In the United States, cancer registration is conducted according to uniform data standards, which are updated and maintained by the North American Association of Central Cancer Registries. Underlying cancer registration efforts is a firm commitment to ensure that data are accurate, complete, and reflective of current clinical practices. Cancer registries ultimately depend on medical records that are generated for individual patients by clinicians to record newly diagnosed cases. For the cancer registration of brain and other CNS tumors, the Central Brain Tumor Registry of the United States is the self-appointed guardian of these data. In 2017, the Central Brain Tumor Registry of the United States took the initiative to promote the inclusion of molecular markers found in the 2016 WHO Classification of Tumours of the Central Nervous System into information collected by cancer registries. The complexities of executing this latest objective are presented according to the cancer registry standard-setting organizations whose collection practices for CNS tumors are directly affected.

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Published In

Neurooncol Pract

DOI

ISSN

2054-2577

Publication Date

September 2019

Volume

6

Issue

5

Start / End Page

330 / 339

Location

England
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Kruchko, C., Gittleman, H., Ruhl, J., Hofferkamp, J., Ward, E. M., Ostrom, Q. T., … Wilson, R. J. (2019). Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors. Neurooncol Pract, 6(5), 330–339. https://doi.org/10.1093/nop/npz029
Kruchko, Carol, Haley Gittleman, Jennifer Ruhl, Jim Hofferkamp, Elizabeth M. Ward, Quinn T. Ostrom, Recinda L. Sherman, Sandra F. Jones, Jill S. Barnholtz-Sloan, and Reda J. Wilson. “Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors.Neurooncol Pract 6, no. 5 (September 2019): 330–39. https://doi.org/10.1093/nop/npz029.
Kruchko C, Gittleman H, Ruhl J, Hofferkamp J, Ward EM, Ostrom QT, et al. Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors. Neurooncol Pract. 2019 Sep;6(5):330–9.
Kruchko, Carol, et al. “Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors.Neurooncol Pract, vol. 6, no. 5, Sept. 2019, pp. 330–39. Pubmed, doi:10.1093/nop/npz029.
Kruchko C, Gittleman H, Ruhl J, Hofferkamp J, Ward EM, Ostrom QT, Sherman RL, Jones SF, Barnholtz-Sloan JS, Wilson RJ. Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors. Neurooncol Pract. 2019 Sep;6(5):330–339.
Journal cover image

Published In

Neurooncol Pract

DOI

ISSN

2054-2577

Publication Date

September 2019

Volume

6

Issue

5

Start / End Page

330 / 339

Location

England