Skip to main content

Research Goes Red: Early Experience With a Participant-Centric Registry.

Publication ,  Journal Article
Gilchrist, SC; Hall, JL; Khandelwal, A; Hidalgo, B; Aggarwal, B; Kinzy, C; Mallya, P; Conners, K; Stevens, LM; Alger, HM; Mehta, L; Wexler, L ...
Published in: Circulation research
February 2022

Cardiovascular disease remains the leading cause of death in women. To address its determinants including persisting cardiovascular risk factors amplified by sex and race inequities, novel personalized approaches are needed grounded in the engagement of participants in research and prevention.To report on a participant-centric and personalized dynamic registry designed to address persistent gaps in understanding and managing cardiovascular disease in women.The American Heart Association and Verily launched the Research Goes Red registry (RGR) in 2019, as an online research platform available to consenting individuals over the age of 18 years in the United States. RGR aims to bring participants and researchers together to expand knowledge by collecting data and providing an open-source longitudinal dynamic registry for conducting research studies. As of July 2021, 15 350 individuals have engaged with RGR. Mean age of participants was 48.0 48.0±0.2 years with a majority identifying as female and either non-Hispanic White (75.7%) or Black (10.5%). In addition to 6 targeted health surveys, RGR has deployed 2 American Heart Association-sponsored prospective clinical studies based on participants' areas of interest. The first study focuses on perimenopausal weight gain, developed in response to a health concerns survey. The second study is designed to test the use of social media campaigns to increase awareness and participation in cardiovascular disease research among underrepresented millennial women.RGR is a novel online participant-centric platform that has successfully engaged women and provided critical data on women's heart health to guide research. Priorities for the growth of RGR are centered on increasing reach and diversity of participants, and engaging researchers to work within their communities to leverage the platform to address knowledge gaps and improve women's health.

Duke Scholars

Altmetric Attention Stats
Dimensions Citation Stats

Published In

Circulation research

DOI

EISSN

1524-4571

ISSN

0009-7330

Publication Date

February 2022

Volume

130

Issue

3

Start / End Page

343 / 351

Related Subject Headings

  • Social Media
  • Registries
  • Patient-Centered Care
  • Patient Participation
  • Middle Aged
  • Humans
  • Female
  • Cardiovascular System & Hematology
  • Cardiovascular Diseases
  • Aged
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Gilchrist, S. C., Hall, J. L., Khandelwal, A., Hidalgo, B., Aggarwal, B., Kinzy, C., … Roger, V. L. (2022). Research Goes Red: Early Experience With a Participant-Centric Registry. Circulation Research, 130(3), 343–351. https://doi.org/10.1161/circresaha.121.320403
Gilchrist, Susan C., Jennifer L. Hall, Abha Khandelwal, Bertha Hidalgo, Brooke Aggarwal, Claire Kinzy, Pratheek Mallya, et al. “Research Goes Red: Early Experience With a Participant-Centric Registry.Circulation Research 130, no. 3 (February 2022): 343–51. https://doi.org/10.1161/circresaha.121.320403.
Gilchrist SC, Hall JL, Khandelwal A, Hidalgo B, Aggarwal B, Kinzy C, et al. Research Goes Red: Early Experience With a Participant-Centric Registry. Circulation research. 2022 Feb;130(3):343–51.
Gilchrist, Susan C., et al. “Research Goes Red: Early Experience With a Participant-Centric Registry.Circulation Research, vol. 130, no. 3, Feb. 2022, pp. 343–51. Epmc, doi:10.1161/circresaha.121.320403.
Gilchrist SC, Hall JL, Khandelwal A, Hidalgo B, Aggarwal B, Kinzy C, Mallya P, Conners K, Stevens LM, Alger HM, Mehta L, Wexler L, Mega JL, Hernandez A, Hayes SN, Mieres JH, Jessup M, Roger VL. Research Goes Red: Early Experience With a Participant-Centric Registry. Circulation research. 2022 Feb;130(3):343–351.

Published In

Circulation research

DOI

EISSN

1524-4571

ISSN

0009-7330

Publication Date

February 2022

Volume

130

Issue

3

Start / End Page

343 / 351

Related Subject Headings

  • Social Media
  • Registries
  • Patient-Centered Care
  • Patient Participation
  • Middle Aged
  • Humans
  • Female
  • Cardiovascular System & Hematology
  • Cardiovascular Diseases
  • Aged